I just started Humira for severe psoriatic arthritis I started at 160. Will do 80 this week then 40 on going. Between Humira and new predisone taper I feel like a new woman! I am having different back pain but majority of the pain has lifted. I’m not used to this…I’ve been in so much pain for so long. Praying all goes well!
Thank you so much for sharing! I'm glad you're doing better on it. I'm feeling good too, was super nervous to try this again. But we have to be brave and keep going. Hope you're doing well.
Just got diagnosed with Severe Plaque Psoriasis, and prescribed Humira, just waiting for it to arrive in the mail. Can’t wait to start. Living with Psoriasis has been Hell
I hope you're doing well and it's been working good for you. I was hesitant to start but now I look forward to it being delivered in the mail. One less trip to the pharmacy!
I was just diagnosed with RA yesterday at the age of 31. I just woke up feeling like I’m turning to stone and I’m still waiting for some relief. The amount of research I have done on this and healing it through different diets etc etc is dizzying and I find comfort through other people who have had it before me. Thanks for uploading this and sharing your experience. I am very apprehensive about by these medications.
Hi Chad, thanks for sharing and stopping by. Sorry for the late reply here! I hope you're doing well. I understand it can be overwhelming. Did you start on anything yet? I know it's worrisome but there are so many people who have been helped by these meds. I don't know what I would do without mine...I also do a combo approach that's both conventional and alternative. But we have to find what works for us
@@RAandMyself Hi yes, thank you for the response. I haven't started on any medication as of yet. I have an appointment with another rheumatologist in 3 weeks. I have been trying a more alternative strategy by hiring a diet coach, spending thousands of hours online studying sophisticated material about our bodies (which is literally what I'm doing right now), really trying to continue optimizing my diet and lifestyle, and work through the problems so that hopefully I can put an end to what is happening to me. My experience so far over the last 4 months has been that my attempt has yielded at least a 60 percent effectiveness in cutting down my inflammation but it was because I really REALLY tried. I was very strict (still am) and it absolutely makes a massive difference. I bet if I didn't have a job and all these other responsibilities it would be even more effective because it would be easier to implement all the other things I know I could be doing everyday. It has been a disheartening process that has required a lot of practice and discipline but I'm not giving up. I find more pieces to the puzzle every single day and it does get easier over time. I would like to get on a biologic but they keep trying to force me to settle on methotrexate and I'm not down with it tbh. That is why I have an appointment with a new Rheumatologist. The next thing I'm going to start adding into my supplement stack are Special Pro Resolving Mediators. But even SPMs are complicated because there are different types of resolvins in the body and I'm still learning about them and the ones associated with Rheumatoid Arthritis. Trying to understand how these things work is a mind bending pain in the ass but I feel like my life literally depends on understanding as much as I can about this and just not giving up so that I don't have to get on a medication that REALLY aren't cures and only really makes us complacent as the root cause of the disease continues to go untreated which I currently think has to do a lot with the lack of production of SPMs in the body. There are so many theories but one thing is certain in my mind and that is that the pharmaceutical industry has absolutely zero incentive to cure this disease. The odds are against us there. They make more money than you can even comprehend on us being dependent on their medications. I don't see them giving that up sadly. So that is my current situation. The inflammation for at least most of each week is incredibly mild compared to what it was and manageable so something I'm doing is definitely making a difference.
@@paws4mercy643 damn, i wrote that 2 years ago. I am virtually in a constant state of remission. My best advice is for you to read, "when the body says no". That shit changed my life. I'm like doing hand stand push ups and muscle ups now in my CrossFit class and virtually free of medication. All I take is some prednisone every so often if I feel like I need it. I also cut out dairy. Good luck!
I’ve just got the go ahead for Humira. I was on Stelara for three years and it worked great but then decided to come off it as to working at sea and not having the chance to get medications often. My skin was clear for almost two years before my Eczema came back really bad. Now i live in the Netherlands and the Health care has decided to give me Humira. Fingers crossed it works. I’ve cut all dairy, bread and I only eat green veg now. I keep my diet at a high protein In take and take probiotics. I’ve also started Cryo treatment as I wasn’t sure if I was going to get medical help here.
@@jugo4590 Hey, well so far I have not started Humira as I am going through TSW. When having a break from biologics I started using steroid creams on and off for a year. I have now started Methotrexate to help with TSW and then I will go on to Humira once I am better. Cryo treatment was good but the effects only last a short time and at the moment I am not well enough to travel for more treatment. I am making slow progress with my health and hopefully be back on biologics soon so I can have a good life again. :)
Thank you so much i hope you still active in this chat I feel blessed i found you Im been on humira for 2 years honestly humira was a game changer for me . B4 i was in methotraxate which made feel sick. However a few months ago i started feeling something weird in my eyes!! At firt i thought it was bcz im been also in plaquenol along with the humira. My rheumatologist did check the effects of plaquenol but it is not plaquenol affecting my eyes . Now he put on hold the humira bcz he’s thinking that may be the cause. I don’t know how many of you are experiencing the same thing. My eyes feel like they crossed, it feels like right eye will pop out And the left eye is like theres no eye hopefully you guys understand what im trying to say . I really would like to hear from you guys Thank you Stay blessed n i hope you all feel better ❤
So sorry to hear that. Did you ever find out what was causing the eye issues by any chance? Hope you're feeling better and you get some answers if you haven't! Appreciate you stopping by my channel.
I lived with scalp, elbows,, my boy parts, trauma sites from the military I got pretty dinged up. It was miserable, embarrassing, at times all consuming. I've been on humara for a year. I'm clear, my skin is healing, and my scalp is flake free. My doctor is keeping me on a low frequency. Every three weeks and hasn't stopped working. I'm just great ful to have a break from that misery.
Thank you for stopping by and sharing your story. I am glad you're doing better and have found relief with this medication. I started off low frequency too and now every two weeks. I have found it helpful when doctors adjust the medication dosage to your specific needs rather than follow what insurances want.
I have HS hidradenitis suppurativa, does anyone one here have any advice on taking Humira for HS. I'm still waiting in my approval... Drop any information below Thanks
I am getting my blood work done tomorrow before I start my journey with humira for severe plaque psoriasis. I am 80% covered. And also have inverse. I haven't heard too many great things about humira compared to more updated biologics like skyrizi. But I am hopeful , insurance only covers certain things and only before I take certain steps like trying and failing at steroids. Prayers to all on this journey , I wish you all the best.
Thank you for stopping by and sharing. I hope you're doing better now. I'm not too familiar with medications to treat plaque psoriasis though I know some of the same ones are given for RA too. I know a ton of people on Humira and it's helped them. But of course everyone is different. Sending good vibes and healing energy your way.
I got diagnosed with ankylosing spondylitis when I was 18 I’m 20 now and it’s been quite the journey with a whole lifetime of pain to go thankfully Humira has been so perfect with treating my condition I couldn’t be happier other than the insurance issues that come with a medicine describe by my rheumatologist as liquid gold.
Did you get uveitis as a result of ankylosing spondylitis? I've recently developed uveitis and struggled for years with joint pain and my doctor's can seem to give me a diagnosis 🙄got an x-ray on spine and it came back ok but they need an MRI to be sure and insurance is making me so 6 weeks of physical therapy before I can get mri
@@rebeccalazzell5262 I’m not sure what uveitis is but for a bout 7 months after I turned 18 the pain was unbearable in my right and left knee and we tried for months to get a diagnosis an mri and multiple X-rays later they tested my blood and found some sort of omega gene or something and I was diagnosed from there
My son got uvitis 3 times then he was referred to a rheumatologist because of possible AS. After an XRay, MRI and blood tests, he was diagnosed with Ankylosing Spondylitis. We just got Humira after 4 weeks of insurance back and forth. First dose this weekend. Fingers crossed this works, Hope this helps.
1.how r u affording all this doctors and meds? 2. can u stop n start back on humira like skip a month or 2? 3. how do u keep refrigerated hwn travelling? 4. do u feel u r more prone to sickness due to immunosuppressant?
I have medical insurance that covers the medication and even on disability you can find a ton of ways to get your meds covered.. talk to your rheumatologist and nurse because they help with all that but so do the pharm companies but its sometimes a pain to go through them. They give you an icepack/travel case... getting sick on biologics depends not really a clear cut answer for that but it does make you more prone to getting sick.
hi, I just got diagnosed with PSA today. It exploded after covid. The doc recommended Humira or Imuran. Kinda nervous, but hopefully this helps to feel better.
Thanks for stopping by and sharing! I'm sorry to hear that. Viral infection (EBV aka Epstein Barr virus and other co-infections) and multiple other things.. were huge factors in my RA diagnosis. So I empathize with you. I was nervous too. You never know you can feel better! I do. Hope you're well.
Today was my first humira dose, I was so nervous about it. I have psoriatic arthritis and inflammation of the heart. I’m hoping this helps. Thank You for sharing!! ❤️
Thanks for sharing! I hope you're feeling a bit better now. I actually haven't started Humira yet but plan to in April (had some setbacks)... I'm a bit nervous too.
I just stated Humira yesterday. I have been on methotrexate for about 15 years, but back in February for some reason I’ve been flared up and started prednisone. It helped a little, but flare up still continuing. During this time I’ve moved and finally saw a new rheumatologist last week. My rheumatologist has me starting the norm taking it every 2 weeks. The only difference is taking 3 methotrexate weekly instead of 4. I am very anxious of course taking this med, due to all the side affect warnings. I wanted to know if you would tell me if you are anxious about this? I know all meds come with warning labels and that even if 1 person has an adverse effect it needs to be reported. I’ve been trying to search patients that have been on Humira for years, to see how they are doing? Any suggestions? Hope nothing but the best for your battle😊
Thanks for sharing, Angie! Sorry for the late reply it's been a wild last two months. I hope you're doing well. I also flared sooo bad in February (EBV reactivated), and I had to get on prednisone too for some time after. But I can relate because the flare lasted on and off until May this year and still feel the impact. Though stress has been a huge issue for me from non-arthritis life stuff. I still take my methotrexate weekly and that's why I'm doing Humira once a month for now. The plan is to lower methotrexate and get off it, and that may be happening sooner now since it's not making me feel that great lately. I was anxious yeah.. but it was time and I want to do what I can do to feel/get better. Doesn't hurt at all, barely feel it, and don't feel gross like I do with methotrexate. If you are on Instagram I know a ton of people who have been on it for a while and are doing amazing! Follow me and I'll connect you.
I've always been on methotrexate, which I did not tolerate well, but it's the medication that's prescribed to me since I was a kid. I go in and out of remission and also experience the flare ups in my knee. I was just in remission for a little over a year after coming off methotrexate and remicade infusions but this weekend the flare ups started again. I spoke to my rheumatologist last night in her office about humira and we're going to try it and see if it will work for me because I would literally try anything that wasn't methotrexate because it makes me feel awful even though it gets my RA under control. There's a chance my insurance may deny humira at first and will suggest enbrel, which I understand as being almost identical to humira. I'm 31 and was diagnosed at 18 months old so this has been a lifelong struggle for me. Have you noticed any kind of side effects since being on humira for a couple months?
I'm on prednisone right now just to keep it under control until we find out from insurance what they're willing to cover so thankfully the swelling has gone down. I always respond well to prednisone but it's always a temporary fix until we start treatment. I am so lucky I have a doctor who listens to me and tries to come up with something that makes sense for my life. I am a very active person in the gym and I need to be able to live my life as normal as possible. Do you know if you can point me in the direction of possibly attending a conference in the future if you know of any?
Hey Suzanne! Sorry for the late reply here, was a bit of a hectic last three months as I was dealing with flares on and off too. When I posted this video I didn't start Humira yet and I still haven't... but starting it in April. Tbh, I flared badly after the third primary dose of the vaccine and that set me back a bit. So had to do some things before beginning this. How are you doing now? I noticed Humira is always tricky to get covered unlike Enbrel, but if you keep pushing they will cover it (or they should). I would look into the HealtheVoices conference for next year- you can connect with others mainly advocates/activists that represent various condition areas (arthritis too). The Arthritis Foundation has some, so does ACR (American College of Rheumatology). Def check those resources.
My Father's flare ups started in his early 50', whereas mine started at 19 in the Navy. I think it was stress and alcohol induced. Alcohol messes with your immune system, stress, lack of sleep. My scalp started itching and flaking, they even biopsied my leg.no real answers. I wasn't diagnosed until years later in college. When they told me there isn't a cure, only treatment. I've been living with psoriasis for 23 years.
I was diagnosed with HS yesterday. I have been looking at videos etc asked the dr for the syringe instead of the pen. I’m a nervous wreck & suffer from severe anxiety. 😢
Yea me too. Im diagnosed with HS and PG. been prescribed with Humira and im starting next week. I suffer from panic attacks and anxiety specifically with meds We’re both together though 🙏🏼❤️
I just got prescribed it yesterday they did my first injection i honestly didn't feel it or really have any side effects I started methotrexate it made me quite sick i was on plaquinel for six months it didn't do anything for me except make my face numb the entire time of taking it
I was diagnosed with RA last year. I was put on Prednisone, started with 5 and worked it down 4,3,2,1,0, Now I'm Methotrexate 2.5 MG. Two days ago I received my Humira Pen. After reading all the information of the things that could happen, freaked me out! Now I'm a little nervous about starting this medication. I've had RA now for almost 8 months. Does any one have any suggestions? The Methotrexate is working for now, but now I feel the comfortability of the flare up. So I know I need an inhibitor to stop the inflammation.
I've started humira on week 5 and experienced my first major flare up since starting the treatment for crohns. Does that mean it doesn't work or do I have to wait up to 12 weeks. I'm in the uk. Can humira still work for me. Update on week 10. Flare ups not as bad but still happening. This humira don't work anyone. My review will be on week 12 probably. Most likely I will start a alternative drug like humira Godwilling.
Not sure about Humira/chrons. I have RA, but have flared on Humira and other arthritis meds. Doesn't mean the meds aren''t working...flares happen for many reasons. Make sure to talk to your doctor. Hope you're doing well.
RA patient here and have been being treated with the “trinity “ and have recently had a status change to “moderate/severe”, this Humira. My question is; have you found yourself more susceptible to other infections while on this med?
Yes and no. I've had underlying viral and bacterial infections prior to being diagnosed. And were a big factor to trigger arthritis for me in the first place. Seeing a functional doctor, immunologist and taking good supplements ...basically making sure imbalances if any are addressed can help ward off or minimize side effects, symptoms and infections.. at least that is what I have found. But to answer your question, not really though that is because of what I'm doing to support my body through this.
I am 21 and have had rheumatoid arthritis and uveitis for years but have only started treating it with medication a year ago. And I just was prescribed humira but my rheumatologist never once mentioned it was an injection. When I got home with the medication I freaked out. I’ve only ever been on methotrexate and sulfasalazine but neither have been working recently. I’ve had to take prednisone for the pain and everyone says it’s really bad for you. I didn’t think anything of it until my hair started falling out. I hate needles and am so afraid to try humira. Did you like it when you used it more recently. I’m considering finding a new rheumatologist because I find it odd she prescribed me a needle to inject myself with and never once mentioned it. I thought humira would be a pill. And if I do work up the courage to take it how do you travel on a plane with it? Do you need to bring ice packs is it allowed through TSA?
Sorry for the late reply here. I feel you when you say you're scared of needles. I was too when I first started injections 19 years ago. I actually would practice with a nurse and sometimes have the it administered at my doctor's office in the beginning months. But then I got a hang of it. Have someone with you, and do something fun after like order food out, read a book, movie, TV show etc. And rest the day you take your injection. Humira also doesn't really hurt. You feel a little sting and that's it. You keep it out for 30-45 mins from the fridge before injecting. I'm sorry your rheumy didn't explain things better. Mine didn't either at first. But injections do help and sometimes better than pills for some people. If what you're doing hasn't been working. trying something else can not only make you feel better but treat your disease. You can travel with it. Humira offers travel cases, call the hotline number and they have nurses to talk to who call you every two weeks to touch base and you share concerns. You can keep it out for 30 days when traveling without ice but you can't put it back in fridge after that. These are really good questions to ask your doctor. Bring a list of questions and have someone with you at your appts if you can. Do not be scared to speak up. And if they don't explain, ask them to.
I’m new here I got psoriasis I had my first humira dose 80mg two weeks ago my next one is on Tuesday 40mg I hope it really works for me I used to take otezla it’s a pill I wanted to try a injection medicine to see if it would work better
My dermatologist just prescribe me Humira for my Hidradenitis suppurativa and the inflammation I’m about to start taking it soon just a little nervous, because I never did injections. Any advice?
Sorry for the late reply here took a bit of a hiatus because I was burned out. Did you start them yet? I hope you're doing and feeling well. So what has helped me and I talk about this in one of the methotrexate injection videos I did (and you inspired me to make a new one on this topic)... is to have something to look forward to after you inject. I.e. a favorite show, a book to read, relaxing at home with family or friends, playing a board game, treating yourself to dessert, or ordering dinner from a restaurant you love. I also use fun bandaids from the Welly brand. I sometimes meditate or dance around before hand workout somehow...and having someone around while you do it or even to help you the first few times has helped calm me down. Hope that helps
I have the same disease and starting the injections next week , can you tell me any second effects , and your experience overall on your journey with it
I started it up again two months ago! You're not alone in feeling that way. I was nervous too, but as someone close to me put it... "you've gone through so much already, just take it, it can help." I was supposed to start it in the winter when I made this video but had some setbacks (unrelated to medication) and had to wait. But so far so good! I know this has been a miracle/lifesaver for many. You got this!!
No, I actually heard by other woman on Humira and was told by doctors that it's safe to take while pregnant. Talk openly to your doctors, being scared is valid, but so many women have had healthy babies with RA while on meds. It's totally doable with good planning and communication with doctors. Methotrexate and some others cause issues to the fetus, but if you're off it for some time you can conceive safely afterwards.
Humira and Enbrel are both TNF blockers in the same family. Both medications have great assistance programs now and coverage for insurance. I would straight up ask your doctor why one over the other and make sure it's insurance/find out why. You have a right to know and should know this info.
@@RAandMyself appreciate you! I had a bad reaction on day 11 of Enbrel. My entire arm and neck swelled. Had huge bullseye targets around injection sites. (I was sad bc I really thought it was helping some.) Took awhile to start my 4th RA med… But I’ve now been on Rinvoq 2 1/2 weeks. (I’m so praying that this is “the one”. So tired of hurting. I have horrible headaches, bruising, & fatigue. Waiting on hematologist to call me back, but thinking this is due to my low platelet count more than Rinvoq. Platelets were high at over 500 in Sept. last draw was 4/10 & I was low at 104. (If it gets below 100 doctor said bone biopsy is needed). 🫣 Thank you again… still fairly new to all this. So scary & painful. I just want to get back to life… I’m sure you understand!🙏🏻
Someone in my family is suppose to be trying on humira soon also,we are nervous and have doubts about it, it's very scary to us,but I am wishing the very best for you and hope you do get some relief.
Yes I have a ton! I may make a video on this too but I've found these things to help. You may have to test it out to see what works best for you: -Drink a ton of water the day you inject, and morning after lemon water in the morning -Time of day matters. I've found if I take it afternoon or evening (not too late like after you eat lunch or dinner) and can drink water it helps to not feel like crap the next day. I notice when I take it like late before bed, I feel it more the next day as in more fatigue, nausea, but good supplements help with side effects so if you can see a functional medicine dr to give you a plan to support your body while on that can do wonders -Do it on a day you can relax after...watch a show, read a book, sleep. clear your schedule if you can so your body can rest -treat yourself to something after you inject and make it fun! You can see my other videos on that but I like to have a sweet treat or fruit, and use cool bandaids/plasters. -I use my phone calendar to remind me of my injection days and started using something really cool called the Smart Sharps Bin Hope that helps and all went well! Thanks for stopping by. :)
thankyou for these as starting my first next week and really anxious and nervous i know its more just having to inject myself more than anything!! I hope all goes well for everyone etc i have rhumthoid arthritis been a painful journey past 2-3 yrs so now hoping to get relief as flare ups have been crazy but hearing and seeing vids eases it much more so can only say thankyou and best wishes to everyone!!! x
It woulf be helpful if she used COMPLETE specifics pertaining to what they gave her for her RA instaed of using wirds like GENERAL STUFF . i need SPECIFICS not VAGUE generalities
This video is about Humira. I think that's specific, and what works for someone else may not even work for you. You need to talk and listen to your doctor too.
I just started Humira for severe psoriatic arthritis I started at 160. Will do 80 this week then 40 on going. Between Humira and new predisone taper I feel like a new woman! I am having different back pain but majority of the pain has lifted. I’m not used to this…I’ve been in so much pain for so long. Praying all goes well!
Thank you so much for sharing! I'm glad you're doing better on it. I'm feeling good too, was super nervous to try this again. But we have to be brave and keep going. Hope you're doing well.
I have been on it for 8 years now and it has been a game changer for me.
Thanks for mentioning this. Been nervous about it but ready now to take the plunge again!
Have you experienced any side effects I’ve seen videos of people getting psoriasis after taking Humira for a while
I'm not aware of that
Can you drink while taking it?
Just got diagnosed with Severe Plaque Psoriasis, and prescribed Humira, just waiting for it to arrive in the mail. Can’t wait to start. Living with Psoriasis has been Hell
I hope you're doing well and it's been working good for you. I was hesitant to start but now I look forward to it being delivered in the mail. One less trip to the pharmacy!
How has it been going for yu ???
Dealing w that too. Newest side symptom of AS. In my ears! God has a sense of humor!
I was just diagnosed with RA yesterday at the age of 31. I just woke up feeling like I’m turning to stone and I’m still waiting for some relief. The amount of research I have done on this and healing it through different diets etc etc is dizzying and I find comfort through other people who have had it before me. Thanks for uploading this and sharing your experience. I am very apprehensive about by these medications.
Hi Chad, thanks for sharing and stopping by. Sorry for the late reply here! I hope you're doing well. I understand it can be overwhelming. Did you start on anything yet? I know it's worrisome but there are so many people who have been helped by these meds. I don't know what I would do without mine...I also do a combo approach that's both conventional and alternative. But we have to find what works for us
@@RAandMyself Hi yes, thank you for the response. I haven't started on any medication as of yet. I have an appointment with another rheumatologist in 3 weeks. I have been trying a more alternative strategy by hiring a diet coach, spending thousands of hours online studying sophisticated material about our bodies (which is literally what I'm doing right now), really trying to continue optimizing my diet and lifestyle, and work through the problems so that hopefully I can put an end to what is happening to me.
My experience so far over the last 4 months has been that my attempt has yielded at least a 60 percent effectiveness in cutting down my inflammation but it was because I really REALLY tried. I was very strict (still am) and it absolutely makes a massive difference.
I bet if I didn't have a job and all these other responsibilities it would be even more effective because it would be easier to implement all the other things I know I could be doing everyday. It has been a disheartening process that has required a lot of practice and discipline but I'm not giving up.
I find more pieces to the puzzle every single day and it does get easier over time. I would like to get on a biologic but they keep trying to force me to settle on methotrexate and I'm not down with it tbh. That is why I have an appointment with a new Rheumatologist.
The next thing I'm going to start adding into my supplement stack are Special Pro Resolving Mediators. But even SPMs are complicated because there are different types of resolvins in the body and I'm still learning about them and the ones associated with Rheumatoid Arthritis.
Trying to understand how these things work is a mind bending pain in the ass but I feel like my life literally depends on understanding as much as I can about this and just not giving up so that I don't have to get on a medication that REALLY aren't cures and only really makes us complacent as the root cause of the disease continues to go untreated which I currently think has to do a lot with the lack of production of SPMs in the body.
There are so many theories but one thing is certain in my mind and that is that the pharmaceutical industry has absolutely zero incentive to cure this disease. The odds are against us there. They make more money than you can even comprehend on us being dependent on their medications. I don't see them giving that up sadly. So that is my current situation.
The inflammation for at least most of each week is incredibly mild compared to what it was and manageable so something I'm doing is definitely making a difference.
@@chadmichael_I’m in the same boat as you. Did you find anything else that works to keep your CRP down?
I was diagnosed this year and am struggling to find medicatio sthat work and won't kill me from side effects
@@paws4mercy643 damn, i wrote that 2 years ago. I am virtually in a constant state of remission. My best advice is for you to read, "when the body says no". That shit changed my life. I'm like doing hand stand push ups and muscle ups now in my CrossFit class and virtually free of medication. All I take is some prednisone every so often if I feel like I need it. I also cut out dairy. Good luck!
I’ve just got the go ahead for Humira. I was on Stelara for three years and it worked great but then decided to come off it as to working at sea and not having the chance to get medications often. My skin was clear for almost two years before my Eczema came back really bad. Now i live in the Netherlands and the Health care has decided to give me Humira. Fingers crossed it works.
I’ve cut all dairy, bread and I only eat green veg now. I keep my diet at a high protein In take and take probiotics. I’ve also started Cryo treatment as I wasn’t sure if I was going to get medical help here.
Heyy, how's been your experience with it??
@@jugo4590 Hey, well so far I have not started Humira as I am going through TSW. When having a break from biologics I started using steroid creams on and off for a year. I have now started Methotrexate to help with TSW and then I will go on to Humira once I am better. Cryo treatment was good but the effects only last a short time and at the moment I am not well enough to travel for more treatment. I am making slow progress with my health and hopefully be back on biologics soon so I can have a good life again. :)
My daughter switched Humira this year for her immune disease TINU (attacks kidneys and eyes). Hoping it decreases the attacks on her eyes!
Thank you so much i hope you still active in this chat I feel blessed i found you Im been on humira for 2 years honestly humira was a game changer for me . B4 i was in methotraxate which made feel sick. However a few months ago i started feeling something weird in my eyes!! At firt i thought it was bcz im been also in plaquenol along with the humira. My rheumatologist did check the effects of plaquenol but it is not plaquenol affecting my eyes . Now he put on hold the humira bcz he’s thinking that may be the cause. I don’t know how many of you are experiencing the same thing.
My eyes feel like they crossed, it feels like right eye will pop out
And the left eye is like theres no eye hopefully you guys understand what im trying to say . I really would like to hear from you guys
Thank you
Stay blessed n i hope you all feel better ❤
So sorry to hear that. Did you ever find out what was causing the eye issues by any chance? Hope you're feeling better and you get some answers if you haven't! Appreciate you stopping by my channel.
I lived with scalp, elbows,, my boy parts, trauma sites from the military I got pretty dinged up. It was miserable, embarrassing, at times all consuming. I've been on humara for a year. I'm clear, my skin is healing, and my scalp is flake free. My doctor is keeping me on a low frequency. Every three weeks and hasn't stopped working. I'm just great ful to have a break from that misery.
Thank you for stopping by and sharing your story. I am glad you're doing better and have found relief with this medication. I started off low frequency too and now every two weeks. I have found it helpful when doctors adjust the medication dosage to your specific needs rather than follow what insurances want.
I have HS hidradenitis suppurativa, does anyone one here have any advice on taking Humira for HS. I'm still waiting in my approval... Drop any information below Thanks
I use humira weekly it has helped me soooo much I have not had any type of lump or bump since taking it!
I started 4months ago, and my GOD it has been such a relief 😊. Glad I decided to move forward. But minds is every 2 weeks
I am getting my blood work done tomorrow before I start my journey with humira for severe plaque psoriasis. I am 80% covered. And also have inverse. I haven't heard too many great things about humira compared to more updated biologics like skyrizi. But I am hopeful , insurance only covers certain things and only before I take certain steps like trying and failing at steroids. Prayers to all on this journey , I wish you all the best.
Thank you for stopping by and sharing. I hope you're doing better now. I'm not too familiar with medications to treat plaque psoriasis though I know some of the same ones are given for RA too. I know a ton of people on Humira and it's helped them. But of course everyone is different. Sending good vibes and healing energy your way.
How has Humira helped so far?
I got diagnosed with ankylosing spondylitis when I was 18 I’m 20 now and it’s been quite the journey with a whole lifetime of pain to go thankfully Humira has been so perfect with treating my condition I couldn’t be happier other than the insurance issues that come with a medicine describe by my rheumatologist as liquid gold.
Did you get uveitis as a result of ankylosing spondylitis? I've recently developed uveitis and struggled for years with joint pain and my doctor's can seem to give me a diagnosis 🙄got an x-ray on spine and it came back ok but they need an MRI to be sure and insurance is making me so 6 weeks of physical therapy before I can get mri
@@rebeccalazzell5262 I’m not sure what uveitis is but for a bout 7 months after I turned 18 the pain was unbearable in my right and left knee and we tried for months to get a diagnosis an mri and multiple X-rays later they tested my blood and found some sort of omega gene or something and I was diagnosed from there
My son got uvitis 3 times then he was referred to a rheumatologist because of possible AS. After an XRay, MRI and blood tests, he was diagnosed with Ankylosing Spondylitis. We just got Humira after 4 weeks of insurance back and forth. First dose this weekend. Fingers crossed this works, Hope this helps.
@@pixelelementInc🙏🙏🙏🙏
Lol mine said the same lol your holding liquid gold lol $5,000 a shot😊
1.how r u affording all this doctors and meds?
2. can u stop n start back on humira like skip a month or 2?
3. how do u keep refrigerated hwn travelling?
4. do u feel u r more prone to sickness due to immunosuppressant?
I have medical insurance that covers the medication and even on disability you can find a ton of ways to get your meds covered.. talk to your rheumatologist and nurse because they help with all that but so do the pharm companies but its sometimes a pain to go through them. They give you an icepack/travel case... getting sick on biologics depends not really a clear cut answer for that but it does make you more prone to getting sick.
hi, I just got diagnosed with PSA today. It exploded after covid. The doc recommended Humira or Imuran. Kinda nervous, but hopefully this helps to feel better.
Thanks for stopping by and sharing! I'm sorry to hear that. Viral infection (EBV aka Epstein Barr virus and other co-infections) and multiple other things.. were huge factors in my RA diagnosis. So I empathize with you. I was nervous too. You never know you can feel better! I do. Hope you're well.
Heyy, how's been it?
Same
I started out with enbrele for many months,but then my rheumatologist had me try Humira which was a blessing for me because I had Psoriatic arthritis.
I was diagnosed with Hidradentitis Suppurativa and got prescribed Humira. They just put it into the pharmacy. So I am looking forward to a new life.
I hope it works for you and you're feeling better!!
Has this helped with your HS?
did it helped with HS
Today was my first humira dose, I was so nervous about it. I have psoriatic arthritis and inflammation of the heart. I’m hoping this helps. Thank You for sharing!! ❤️
Thanks for sharing! I hope you're feeling a bit better now. I actually haven't started Humira yet but plan to in April (had some setbacks)... I'm a bit nervous too.
Can you tell us how it went after 6 months?
@@joepromedioyess, please🙏☺️
I just stated Humira yesterday. I have been on methotrexate for about 15 years, but back in February for some reason I’ve been flared up and started prednisone. It helped a little, but flare up still continuing. During this time I’ve moved and finally saw a new rheumatologist last week. My rheumatologist has me starting the norm taking it every 2 weeks. The only difference is taking 3 methotrexate weekly instead of 4. I am very anxious of course taking this med, due to all the side affect warnings. I wanted to know if you would tell me if you are anxious about this? I know all meds come with warning labels and that even if 1 person has an adverse effect it needs to be reported. I’ve been trying to search patients that have been on Humira for years, to see how they are doing? Any suggestions? Hope nothing but the best for your battle😊
Thanks for sharing, Angie! Sorry for the late reply it's been a wild last two months. I hope you're doing well. I also flared sooo bad in February (EBV reactivated), and I had to get on prednisone too for some time after. But I can relate because the flare lasted on and off until May this year and still feel the impact. Though stress has been a huge issue for me from non-arthritis life stuff. I still take my methotrexate weekly and that's why I'm doing Humira once a month for now. The plan is to lower methotrexate and get off it, and that may be happening sooner now since it's not making me feel that great lately. I was anxious yeah.. but it was time and I want to do what I can do to feel/get better. Doesn't hurt at all, barely feel it, and don't feel gross like I do with methotrexate. If you are on Instagram I know a ton of people who have been on it for a while and are doing amazing! Follow me and I'll connect you.
I was talking Metothrexate 3 tablets a week, my dr increase to 5 tablets a week, now I am loosing my hair 😢
I've always been on methotrexate, which I did not tolerate well, but it's the medication that's prescribed to me since I was a kid. I go in and out of remission and also experience the flare ups in my knee. I was just in remission for a little over a year after coming off methotrexate and remicade infusions but this weekend the flare ups started again. I spoke to my rheumatologist last night in her office about humira and we're going to try it and see if it will work for me because I would literally try anything that wasn't methotrexate because it makes me feel awful even though it gets my RA under control. There's a chance my insurance may deny humira at first and will suggest enbrel, which I understand as being almost identical to humira. I'm 31 and was diagnosed at 18 months old so this has been a lifelong struggle for me. Have you noticed any kind of side effects since being on humira for a couple months?
I'm on prednisone right now just to keep it under control until we find out from insurance what they're willing to cover so thankfully the swelling has gone down. I always respond well to prednisone but it's always a temporary fix until we start treatment. I am so lucky I have a doctor who listens to me and tries to come up with something that makes sense for my life. I am a very active person in the gym and I need to be able to live my life as normal as possible. Do you know if you can point me in the direction of possibly attending a conference in the future if you know of any?
Hey Suzanne! Sorry for the late reply here, was a bit of a hectic last three months as I was dealing with flares on and off too. When I posted this video I didn't start Humira yet and I still haven't... but starting it in April. Tbh, I flared badly after the third primary dose of the vaccine and that set me back a bit. So had to do some things before beginning this. How are you doing now? I noticed Humira is always tricky to get covered unlike Enbrel, but if you keep pushing they will cover it (or they should). I would look into the HealtheVoices conference for next year- you can connect with others mainly advocates/activists that represent various condition areas (arthritis too). The Arthritis Foundation has some, so does ACR (American College of Rheumatology). Def check those resources.
My Father's flare ups started in his early 50', whereas mine started at 19 in the Navy. I think it was stress and alcohol induced. Alcohol messes with your immune system, stress, lack of sleep. My scalp started itching and flaking, they even biopsied my leg.no real answers. I wasn't diagnosed until years later in college. When they told me there isn't a cure, only treatment. I've been living with psoriasis for 23 years.
I was diagnosed with HS yesterday. I have been looking at videos etc asked the dr for the syringe instead of the pen. I’m a nervous wreck & suffer from severe anxiety. 😢
Yea me too.
Im diagnosed with HS and PG.
been prescribed with Humira and im starting next week.
I suffer from panic attacks and anxiety specifically with meds
We’re both together though 🙏🏼❤️
I just got prescribed it yesterday they did my first injection i honestly didn't feel it or really have any side effects I started methotrexate it made me quite sick i was on plaquinel for six months it didn't do anything for me except make my face numb the entire time of taking it
I was diagnosed with RA last year. I was put on Prednisone, started with 5 and worked it down 4,3,2,1,0, Now I'm Methotrexate 2.5 MG. Two days ago I received my Humira Pen. After reading all the information of the things that could happen, freaked me out! Now I'm a little nervous about starting this medication. I've had RA now for almost 8 months. Does any one have any suggestions? The Methotrexate is working for now, but now I feel the comfortability of the flare up. So I know I need an inhibitor to stop the inflammation.
I've started humira on week 5 and experienced my first major flare up since starting the treatment for crohns. Does that mean it doesn't work or do I have to wait up to 12 weeks. I'm in the uk. Can humira still work for me.
Update on week 10. Flare ups not as bad but still happening. This humira don't work anyone. My review will be on week 12 probably. Most likely I will start a alternative drug like humira Godwilling.
Not sure about Humira/chrons. I have RA, but have flared on Humira and other arthritis meds. Doesn't mean the meds aren''t working...flares happen for many reasons. Make sure to talk to your doctor. Hope you're doing well.
RA patient here and have been being treated with the “trinity “ and have recently had a status change to “moderate/severe”, this Humira. My question is; have you found yourself more susceptible to other infections while on this med?
Yes and no. I've had underlying viral and bacterial infections prior to being diagnosed. And were a big factor to trigger arthritis for me in the first place. Seeing a functional doctor, immunologist and taking good supplements ...basically making sure imbalances if any are addressed can help ward off or minimize side effects, symptoms and infections.. at least that is what I have found. But to answer your question, not really though that is because of what I'm doing to support my body through this.
I am 21 and have had rheumatoid arthritis and uveitis for years but have only started treating it with medication a year ago. And I just was prescribed humira but my rheumatologist never once mentioned it was an injection. When I got home with the medication I freaked out. I’ve only ever been on methotrexate and sulfasalazine but neither have been working recently. I’ve had to take prednisone for the pain and everyone says it’s really bad for you. I didn’t think anything of it until my hair started falling out. I hate needles and am so afraid to try humira. Did you like it when you used it more recently. I’m considering finding a new rheumatologist because I find it odd she prescribed me a needle to inject myself with and never once mentioned it. I thought humira would be a pill. And if I do work up the courage to take it how do you travel on a plane with it? Do you need to bring ice packs is it allowed through TSA?
Sorry for the late reply here. I feel you when you say you're scared of needles. I was too when I first started injections 19 years ago. I actually would practice with a nurse and sometimes have the it administered at my doctor's office in the beginning months. But then I got a hang of it. Have someone with you, and do something fun after like order food out, read a book, movie, TV show etc. And rest the day you take your injection. Humira also doesn't really hurt. You feel a little sting and that's it. You keep it out for 30-45 mins from the fridge before injecting. I'm sorry your rheumy didn't explain things better. Mine didn't either at first. But injections do help and sometimes better than pills for some people. If what you're doing hasn't been working. trying something else can not only make you feel better but treat your disease. You can travel with it. Humira offers travel cases, call the hotline number and they have nurses to talk to who call you every two weeks to touch base and you share concerns. You can keep it out for 30 days when traveling without ice but you can't put it back in fridge after that. These are really good questions to ask your doctor. Bring a list of questions and have someone with you at your appts if you can. Do not be scared to speak up. And if they don't explain, ask them to.
I’m new here I got psoriasis I had my first humira dose 80mg two weeks ago my next one is on Tuesday 40mg I hope it really works for me I used to take otezla it’s a pill I wanted to try a injection medicine to see if it would work better
Wishing you all the best, and I hope it works for you too!! I find injections seem to work better than pills for me.
Hi, could you tell us how its going?? I really aprecciate your words. Thanks!!
hey how are you doing ? I'm starting humira soon for psoriasis.
My dermatologist just prescribe me Humira for my Hidradenitis suppurativa and the inflammation I’m about to start taking it soon just a little nervous, because I never did injections. Any advice?
Sorry for the late reply here took a bit of a hiatus because I was burned out. Did you start them yet? I hope you're doing and feeling well. So what has helped me and I talk about this in one of the methotrexate injection videos I did (and you inspired me to make a new one on this topic)... is to have something to look forward to after you inject. I.e. a favorite show, a book to read, relaxing at home with family or friends, playing a board game, treating yourself to dessert, or ordering dinner from a restaurant you love. I also use fun bandaids from the Welly brand. I sometimes meditate or dance around before hand workout somehow...and having someone around while you do it or even to help you the first few times has helped calm me down. Hope that helps
Same here, I have the same also and waiting on my Injections
I have the same disease and starting the injections next week , can you tell me any second effects , and your experience overall on your journey with it
I have just ben diagnosed with EA and im nervous to take this injection but i really need something for my pain :(
Did you mean RA
I started it up again two months ago! You're not alone in feeling that way. I was nervous too, but as someone close to me put it... "you've gone through so much already, just take it, it can help." I was supposed to start it in the winter when I made this video but had some setbacks (unrelated to medication) and had to wait. But so far so good! I know this has been a miracle/lifesaver for many. You got this!!
Is humira injection will affect fertility and pregnancy ij tge future please I’m really worry to take it😢?!
No, I actually heard by other woman on Humira and was told by doctors that it's safe to take while pregnant. Talk openly to your doctors, being scared is valid, but so many women have had healthy babies with RA while on meds. It's totally doable with good planning and communication with doctors. Methotrexate and some others cause issues to the fetus, but if you're off it for some time you can conceive safely afterwards.
My doctor said it’d be Humira or Enbrel… but then called saying Enbrel. I’m guessing it’s my insurance. 🙄
Humira and Enbrel are both TNF blockers in the same family. Both medications have great assistance programs now and coverage for insurance. I would straight up ask your doctor why one over the other and make sure it's insurance/find out why. You have a right to know and should know this info.
@@RAandMyself appreciate you! I had a bad reaction on day 11 of Enbrel. My entire arm and neck swelled. Had huge bullseye targets around injection sites. (I was sad bc I really thought it was helping some.)
Took awhile to start my 4th RA med… But I’ve now been on Rinvoq 2 1/2 weeks. (I’m so praying that this is “the one”. So tired of hurting.
I have horrible headaches, bruising, & fatigue. Waiting on hematologist to call me back, but thinking this is due to my low platelet count more than Rinvoq.
Platelets were high at over 500 in Sept. last draw was 4/10 & I was low at 104. (If it gets below 100 doctor said bone biopsy is needed). 🫣
Thank you again… still fairly new to all this. So scary & painful. I just want to get back to life… I’m sure you understand!🙏🏻
They supposed to give me Humira start next month
Praying all goes well for you and you're doing good!
Someone in my family is suppose to be trying on humira soon also,we are nervous and have doubts about it, it's very scary to us,but I am wishing the very best for you and hope you do get some relief.
After four months and family, we still see the score where they were at
Call the 800 number and ask them to send you a travel kit, they are free and it really helps alot!
I finally got one last year and you won't believe it they were backordered for over a year lol
@RAandMyself ooo good so glad to hear it's truly a big help
Im starting Humira TODAY!
Any tips?
Yes I have a ton! I may make a video on this too but I've found these things to help. You may have to test it out to see what works best for you:
-Drink a ton of water the day you inject, and morning after lemon water in the morning
-Time of day matters. I've found if I take it afternoon or evening (not too late like after you eat lunch or dinner) and can drink water it helps to not feel like crap the next day. I notice when I take it like late before bed, I feel it more the next day as in more fatigue, nausea, but good supplements help with side effects so if you can see a functional medicine dr to give you a plan to support your body while on that can do wonders
-Do it on a day you can relax after...watch a show, read a book, sleep. clear your schedule if you can so your body can rest
-treat yourself to something after you inject and make it fun! You can see my other videos on that but I like to have a sweet treat or fruit, and use cool bandaids/plasters.
-I use my phone calendar to remind me of my injection days and started using something really cool called the Smart Sharps Bin
Hope that helps and all went well! Thanks for stopping by. :)
thankyou for these as starting my first next week and really anxious and nervous i know its more just having to inject myself more than anything!! I hope all goes well for everyone etc i have rhumthoid arthritis been a painful journey past 2-3 yrs so now hoping to get relief as flare ups have been crazy but hearing and seeing vids eases it much more so can only say thankyou and best wishes to everyone!!! x
It woulf be helpful if she used COMPLETE specifics pertaining to what they gave her for her RA instaed of using wirds like GENERAL STUFF . i need SPECIFICS not VAGUE generalities
This video is about Humira. I think that's specific, and what works for someone else may not even work for you. You need to talk and listen to your doctor too.