I want to thank you and let everyone that watches your video know you are an Angel, after contacting you and getting the information from you Mayo hospital didn’t want her to fly to Texas so they excepted her and she has been placed on the national transplant list and if it wasn’t for you and this video none of that would have been possible. We were told by other hospitals to go home that she had two weeks to live and today she was excepted for a life saving transplant and it will happen any day now. You will be in our prayers forever and I want to thank you and yes you are our Angel forever Sir.
Just saw a newsletter from University of Colorado Hospital. They are now experiencing record numbers of alcoholic liver transplants. During the pandemic, many people drank heavily, so now they are getting transplants. Unreal. I spent 14 years on “ the list “ for PSC. Was always told I would need to find a living donor. 😡 Was taken off the list 6 years ago, due to being stable & very low MELD scores.
The good thing about a MELD score is it allocates organs to those in most need. So it’s a good thing to not have a high score. However your situation is not uncommon for PSC. Some centers have notable living donor programs. There’s also been discussion of exemptions if the PSC patient has recurrent Biliary infections.
Watching your video really hit home for my wife and I, we live in Phoenix Arizona and she is currently having liver failure due to drinking, she was unaware of her issues until she woke up one morning with yellowing in her eyes and skin, we went to the emergency room and was notified that she has cirrhosis of the liver and will need a transplant but is not a candidate until the six month mark of sobriety which would be fine except her health and liver may not last that long, she has never had any prior hospital visits no DUI’s made every scheduled appointments and has a steady job and hasn’t drank any alcohol since finding out about her liver failure which has been three months but the hospital still will not place her on the transplant list even knowing her health is declining. I have sent medical records to another hospital and without even seeing her in person they remarked that they follow the “ six month sobriety “. Why steps can I take to help save her?
I believe Methodist Houston is open to this. UTSW in Dallas is. But it’s a case by case issue. I would think the program in New Mexico would be more open as well.
I just underwent an unexpected, speedy liver transplant after experiencing jaundice - After coming down from a chest cold that lasted 3 days. A virus killed my liver and it was diagnosed as an idiopathic disease. If cause wasn’t clear, must one still refrain from alcohol
I want to thank you and let everyone that watches your video know you are an Angel, after contacting you and getting the information from you Mayo hospital didn’t want her to fly to Texas so they excepted her and she has been placed on the national transplant list and if it wasn’t for you and this video none of that would have been possible. We were told by other hospitals to go home that she had two weeks to live and today she was excepted for a life saving transplant and it will happen any day now. You will be in our prayers forever and I want to thank you and yes you are our Angel forever Sir.
Thank you for sharing and I’m really happy you were able to be evaluated and listed. What great news to receive!
Just saw a newsletter from University of Colorado Hospital. They are now experiencing record numbers of alcoholic liver transplants. During the pandemic, many people drank heavily, so now they are getting transplants.
Unreal. I spent 14 years on “ the list “ for PSC. Was always told I would need to find a living donor. 😡
Was taken off the list 6 years ago, due to being stable & very low MELD scores.
The good thing about a MELD score is it allocates organs to those in most need. So it’s a good thing to not have a high score. However your situation is not uncommon for PSC. Some centers have notable living donor programs. There’s also been discussion of exemptions if the PSC patient has recurrent Biliary infections.
My cousin won’t stop drinking and she has stage one cirrhosis , and I don’t know what to do , she’s only 36
Watching your video really hit home for my wife and I, we live in Phoenix Arizona and she is currently having liver failure due to drinking, she was unaware of her issues until she woke up one morning with yellowing in her eyes and skin, we went to the emergency room and was notified that she has cirrhosis of the liver and will need a transplant but is not a candidate until the six month mark of sobriety which would be fine except her health and liver may not last that long, she has never had any prior hospital visits no DUI’s made every scheduled appointments and has a steady job and hasn’t drank any alcohol since finding out about her liver failure which has been three months but the hospital still will not place her on the transplant list even knowing her health is declining. I have sent medical records to another hospital and without even seeing her in person they remarked that they follow the “ six month sobriety “. Why steps can I take to help save her?
I would think Mayo Phoenix may consider her case
That was the hospital that received her medical records but I am praying that once she is there they would reconsider
I believe Methodist Houston is open to this. UTSW in Dallas is. But it’s a case by case issue. I would think the program in New Mexico would be more open as well.
Thank you 🙏🏻
I just underwent an unexpected, speedy liver transplant after experiencing jaundice - After coming down from a chest cold that lasted 3 days. A virus killed my liver and it was diagnosed as an idiopathic disease. If cause wasn’t clear, must one still refrain from alcohol