These Cancer Symptoms Ruined Life as I Knew it - Large Granular Lymphocytic Leukemia (LGLL)
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- เผยแพร่เมื่อ 10 ก.ย. 2022
- The cancer symptoms of Large Granular Lymphocytic Leukemia (LGLL) ruined life as I knew it. This video was made in response to a viewer's question about my LGLL symptoms before diagnosis.
You'll want to watch:
These Cancer Symptoms Ruined Life as I Knew it - Large Granular Lymphocytic Leukemia (LGLL)
• These Cancer Symptoms ...
My Cancer Journey: The Effect of Juicing on Large Granular Lymphocytic Leukemia (LGLL)
• Leukemia Cancer Surviv...
Leukemia Cancer Survivor - My 10 Day Hospital Stay (LGLL) - PART 1
• Leukemia Cancer Surviv...
Leukemia Cancer Survivor - My 10-day Hospital Stay (LGLL) - Part 2
• Leukemia Cancer Surviv...
All cancer-related videos are found in the playlist:
CANCER-LARGE GRANULAR LYMPHOCYTIC LEUKEMIA (LGLL)
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Hi, my name is Shauna Collins and I have cancer. I happen to be a medical doctor as well. I have a very rare leukemia called 'Large Granular Lymphocytic Leukemia' (LGLL). Most of my LGLL videos are extremely candid and very, very personal. They document my personal cancer journey - the good, the bad and the ugly. I also explain how I've addressed this cancer with nutrition and juicing with some (but not all) very remarkable results. I take you into my own kitchen and show you exactly what produce we juice. I show you my actual lab reports and tests and you see what elements of my LGLL cancer have tremendously improved with juicing and which have not. Also, being a physician (UCLA Med School graduate) I study quite a bit of LGLL literature and teach you about LGLL because it's so rare and there is not a lot of information on the internet about it.
All of this sharing is purely an act of love for whoever may benefit.
God bless you!
Doc Shauna
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#LargeGranularLymphocyticLeukemia
#LGLL
#MyCancerJourney
#WhatIsLargeGranularLymphocyticLeukemia
#LGLLeukemia
#BloodCancers
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Hi there, very interesting video. Please advise what you mean by juicing? Is it making healthy blended juices or having a more scheduled or routine blood transfusion treatment?
& did the Methotrexate prescription help and did you experience any side effects?
Hi @mukthaar goolam. Thank you so much for watching! I'm happy to answer your questions.
By "juicing" I mean putting several pounds of raw vegetables and some fruit through a juicer which 'presses' most of the juice out of the produce and into a container. I drink about 48 ounces of this fresh juice everyday. I do skip a day of drinking it now and then because I just get tired of drinking so much all the time. But when I miss days of drinking it, I will have significantly less energy the next day. Also, knowing how much these nutrients have benefited my health, in terms of the cancer keeps me motivated to keep chugging down the juice everyday.
You mentioned blending. I do also blend (but less often) so I can add solid food to the juice. I'll put the fresh juice in a blender and add raw, organic walnuts, chia seeds, flax seeds, broccoli, berries (the broccoli and berries could be juiced, but I don't juice them) and sometimes other things as well. This creates a thick smoothie. I try to drink 16 - 32 ounces of this every day, but in actuality, I drink it maybe 5 days/week. It's very challenging for me to drink so much fluid every day. But again, the health benefits and the amount of energy I derive from drinking it every day outweighs the inconvenience.
I made a video that spoke of the juicing and I showed my actual lab results over a 6 month period. This period was before I started taking any medicine for the cancer. You can see the clear benefit of the juicing as my cancerous cell line (and other white blood cell lines) NORMALIZED. However, I'm very candid about the fact that my nutrition regimen did not (and still has not) corrected my chronic hemolytic anemia, which is why I had to start taking meds (Methotrexate) for LGLL.
If you're interested, the video is called:
'Leukemia Cancer Survivor-The Effect of Juicing on Large Granular Lymphocytic Leukemia (LGLL)'
Here's the link: th-cam.com/video/crkjEXIJn1U/w-d-xo.html
I began discussing the juicing and labs somewhere around the 18 - 19 minute mark.
And here's a very short video that shows the produce we (my husband does the juicing actually) use in the juicing:
"Exact Ingredients of Dee's Juice-that brought my cancer cell-line into normal range"
th-cam.com/video/3pZ36p3yEEg/w-d-xo.html
As far as the the benefit and side effects of the Methotrexate...oh boy!
The answer to this question is rather complicated. I plan on doing an update video shortly on this subject (hopefully, within 2 weeks) because it's not a straightforward answer. Suffice it to say, it's been a rocky road and it hasn't produced the results we had hoped for. :(
I hope I answered your questions adequately @mukthaar goolam. Please let me know if you have anymore questions. Thank you again for your interest.
God bless!
Doc Shauna
cancer really is a very serious disease, which we have to be aware of! Because it causes a lot of pain for those who follow closely
Yes, it's very serious! Thank you @iury catabi!
Hi, I was diagnosed with TLGL this Oct 24, 2022, and I found it hard to find anyone with any information on this disease. Let alone someone who looks like me. Nov 4, 2022, I went for a second opinion at MDAnderson in Houston, TX. It's been challenging to accept this diagnosis. I'm in the watch-and-wait stage. On 11/4, I had a bone marrow biopsy and aspiration, which was the worse experience. Something that I would not wish on anyone. The doctor told me that an autoimmune disorder does follow this cancer (e.g., RA, Lupus); anything else tuned out. My fear has been at an all-time high. But in doing some research, I started Yoga, Tai Chi, and eating plant-based food. The SW said to me to do some smoothies from a nutritionist. My next appt is in Jan 2023, where I will ask the doctor a host of questions. I'm glad you are a doctor, and I plan to continue watching your TH-cam. There were so many good things that I was preparing to do turning 60.
There are a couple of LGL leukemia support groups on Facebook. I joined one and it’s helpful.
Cancer is devastating, my grandma has it and it's an eternal struggle
I'm so sorry to hear this @FUTEMAIS. God bless you!
This disease has become life threatening for many people. Thanks for the information, and I wish recovery to all patients. And wellness to all.
Thank you @amar ski!
Yesssss sooo much!
Hello Dr. I stumbled across your page in the last week. I was recently diagnosed with a Stat 3 gene mutation associated with a blood cancer. Their not for certain 100% if I have leukemia. They're monitoring me for now. I hope you're doing well. Thank you for posting the video when you were in the hospital sharing your research & posting the juicing recipe. I bought the ingredients & juiced them yesterday & I'm starting my first glass today. Thanks again & wish you well!
Exercise is very important for all of us
Yes, it is! Thank you @Shiva Chhetri.
Dr. Shauna, I thought it was so kind to take time out to answer a viewer's comments. Your video really moved me. I like that even though you are a doctor, you are personable and funny! You keep your joy even though you have hit with a very serious diagnosis. I admire you! I can't wait to watch more of your videos! And tell Bella we said hi!!! :)
Thank you for all of your kind words @Jaimie Blake! Bella's right here at my feet (of course :) When she wakes up, I'll relay your message! ;)
Good one. It is amazingg for people to see a Doctor actually replying!!
Really, informative video and helpful to those who are suffering from cancer
Thank you for your comment @R K!
Great video about cancer symptoms that ruin our lives, really interesting video.
Thank you @Luiza Ol!
it's so satisfying to see people find their true selves, thanks for the video, i really love it
Thank you for taking the time to watch it and comment @Trucha! God bless you!
I'm already passing around. Wish I had saw earlier.
Thank you for sharing it @Q QQ!
I learned a lot about LGLL after watching your video, and it was very interesting to learn about its symptoms. Thank you very much for sharing your story.
Thank you for watching @DaniL! God bless you!
I really admire this video! It boosts our confidence and maintains the healthiness of our body.
Thank you @EXCELerate TV!
Most impressive. It’s so good to see nations and people pulling together doing such hazardous work for the help of human kind. This video is full of excellent information. Everything discussed in this video is very clear and very well explained for easy and better understanding. Hope to see more of this kind of video
Thank you @RESPECT 1st!
Yes, this is so much better than so much junk out there.
Love seeing all the different stages.. and lots of interesting things. I was hearing Bella, maybe she's telling you she understands, or like "Tell It". I think having her is good for you somehow. And I like your gold and white board, and some flowery thing with gold, and something turquoise.. it makes a nice background and places for eyes to go while listening.
"Tell It" LOL! That sounds about right! She is a bit sassy! And yes, I agree. She's good for me. I didn't realize how much until after we were blessed with adopting her. 💜
Thank you for noticing the background. A near & dear family member blessed me with most of the pretty things you see in the background! We all have her to thank for providing that beautiful imagery! 💜💜💜
The Information relating to cancer symptoms is very helpful for the people. Thank you for nice video
Thank you for your feedback @YOUNICK SPACE
This really encourage weight lost, I like it
Thank you @John Daniel.
Great story and how you explained your story. Thanks for Sharing | Best Regards, Daily Groove Shorts☆
Thank you so much!
Great video, very nice of you to share your story on your channel, really a story of overcoming, congratulations
Thank you so much @Maicon Sousa
I appreciate this video, you are a strong woman overcoming all this! Thank you for the cancer awareness ❤️
I loved it too! Doc Shauna, even though she is a professional, is so down to earth. I feel like I can learn a lot from her!
Thank you so much @Claire Bear!
Thank you so much @@JCGIRL0001!
Can we have at leasttt these short updates more often??😁💯😇
Most definitely @Q QQ! I will do much better with providing updates. Thank you for requesting! 😍
I've already lost several acquaintances because of this dreaded cancer, it's very sad, go ahead!
I'm so sorry to hear that. God bless you!
@@SOTEmedia Thank you God aways
So sorry to hear about you loss @Tradutor Zueiro!
One of the best videos I've seen regarding the subject, excellent explanation and very relevant information, it was just what I was looking for, thank you, I hope you continue uploading content, you have my support
Thank you @MSI-GONNN!
Please keep us posted on how you are doing and feeling! Your videos have been very informative and helpful on LGL leukemia. ❤ Not much is on TH-cam on this topic and it’s nice to hear from you !❤❤❤
greate video your explained is very well. need a more videos. good luck. Thank you!!
Thank you @lakshan madusanka!
Thanks for educating me to the effect steroids to the body
Absolutely @Laff off sorrow tv! Thanks for watching!
Yea it's a trip to see a Doctor going through, and able to explain so well.
I really learned a lot of important information from this video, thank you for making more videos like this
Thank you for taking the time to watch it @Ts online Store!
Your case is very interesting, thanks for sharing it, beautiful doesn't stop bothering you haha.
Thank you @juan carlos yalico chavarria!
Wow this is very exciting story. I so much enjoy watching the video.
Thank you @Ahmad Lawan Abdullahi! I appreciate your taking the time to watch it!
Incredible information thanks to this video now I know more about the subject, without a doubt very important, thanks I will share it with all my friends
Thank you @ShaellyWork
Very important video, thanks for let us know these things
Thank you for watching @Deshan Randika!
I was shocked when I read your amazing reply, but when you said you haven't achieved the results you were hoping for, I was like 🤯
I really learnt a lot from this video
Thank you @ MOVIE TRAILERS!
Very important video, thanks for let us know these things. Keep it up !!!
Thank you @lakshan madusanka!
greate video your explained is very well..need a more videos.good luck 👍
Thank you @All in One!
Wow you came a long way, fighting obesity to stay health is no joke, i have so much respect for that🔥🔥🔥
Me too. She fought a lot to get to where she is. It inspires me!
Rightttt. Whew. Much respect.
Thank you for your kind words @SpheDev!
Thank you so much@@JCGIRL0001!
@@qqq829 Thank you!
Wait, in watching again.. I hsd thought after the Methotrexate and juicing that the thing I gotta warch again to remember the name. I do NOT know how Doctors csn remember allllllll this stuff and keep it straight.
Lol! It's true that it's a lot of information. I think you're probably referring to 'hemolytic anemia.' There's been some recent changes Methotrexate and the anemia. I will publish that update very soon! Thanks for inquiring @Q QQ!
Thank you so much for this video! I’m glad you are speaking about your pre diagnosis symptoms and post diagnosis symptoms. This is so helpful to know. Doctors have been trying to figure out if I have this T cell LGL leukemia. I have rheumatoid arthritis. The neutropenia started in 2017 but I wasn’t referred to a hematologist/oncologist until August 2020. Then after bone marrow biopsy they believed it was Felty syndrome. I didn’t have gene rearrangement. I was treated with rituximab in 12/2020 and 6/2021. I responded but then had repeated sinus infections. In Mid 2022 they repeated the Gene rearrangement testing now it is positive. Weirdly my neutrophils are still normal range but I do have anemia still and low B12. I have had the fatigue as you described progressively got worse until February 2019 I could no longer exercise and had difficulty staying awake etc. Even after the Rituxan infusions I’m just as tired as before and the infections are constant. Anemia is still unresolved. I had been asking my rheumatologist and primary care doc why I was so fatigued and it was getting worse even though they said my RA was controlled! I was told to see a mental health because I was also very depressed and anxious. No one looked into an iron panel etc.
I have LGLL too. I’m on watch and wait but the fatigue is so real. Glad to follow you and thank you for sharing.
Hi @darlenefalast9419. My apologies for not replying until now. There are a few comments from last year that I missed (I was hospitalized again towards the end of last year, so that might be why).
I agree about the fatigue! Overall, it's been debilitating for me. I drink about a quart of fresh juice every day which helps. I don't realize how much it helps until I miss a day. How about you? Have you (or any other LGLL-afflicted person reading this) found anything that helps with the fatigue? God bless!
Its great how you explained your experience
Thank you for saying so @Shanti Tamang! I appreciate it!
Thank you for this very clearly explained video and your journey with LGLL. You have made such a positive impact in your life and in the life of others by simply sharing your journey! I’ve learned a lot about LGLL by watching your videos! I really appreciate that you are a doctor and a patient- sharing BOTH experiences with this Community!!! You also make the more scientific side of this cancer easier to understand! Thank you for your transparency in allowing us to see your journey!!! This lets others know they are not alone! Thank youuuu!
P.S. Bella is adorable!!!! Keep her in your videos!! She has such a sweet face!!
Thank you so much @Felicia Woods for all of your kind words! I'm so happy you were blessed by this content. That is our aim! And, I do believe Bella will be making appearances in future videos. I have a feeling that she'll settle for nothing less! Lol! ;)
Yes, what a great comment.
this is nice video. thank you for sharing
Thank you for watching @Thantzyn aung!
Thanks for your explanation and enlightenment
I appreciate your watching @Smart Gamer💪
This video helps me lot. Thanks
I'm glad to hear that @Dipesh Gautam! Thank you!
this is an interesting video which is more important information
Thank you for watching @Perera user!
I like it so much. It's a great explanation.
Thank you @Football TV!
excellent explanation, I liked your video
Thank you so much @abigail Alfonso!
Also, pleaseeee update, and tell us how you feel now... really. So we can know the truth. Sooo many people do fakeee videos where you don't even know it's fake. Which is why I soooo appreciate how you are just sooo real, and smart, and being beautiful doesn't hurt, and you actually share truth, and knowledge wuth us.
when someone is determinate to lose some weight, It's really important for his health.
So true @kender theus!
very good explain. thank you
Thank you @KaVinZa_!
great video and imfortant thank you
Thank you for watching @Jayantha Ariyawansha
I so much enjoy this vedio. It is exciting how they were able to reduce weight.
Thanks for watching @Ahmad Lawan Abdullahi (although I actually gained weight).
I was ki da sad when all the comments were done, cause it's so interesting how sooo many people from alll different walks of life come together in a loving way. This feels like how God wants is to be. And to reside with HIM.
It's hard to know if you have cancer if you have chronic pain like I do, right? It's awful. thanks for your history
Tests are needed to confirm cancer. I'm so sorry to hear about your chronic pain. that's very challenging! God bless!
Oh I sooo feel you on your chronic pain. I think sometimes pain also mimicks being tired when it's not.
Very usefull thanks doc.
Thank you for watching @vicious 99!
Yes really cancer ruined life
Yes, sadly it does. Thank you Suresh karki!
It is very useful
Thank you sana akthar!
Ok wait.. so what's going on with the Hemolytic Anemia?? Or Hemolysis? Are you still having to just go round and round with the blood transfusions? Are you gonna take the Methotrexate again? Or will it not work as good as first time? Or?? Sorry to ask so many things. If you can't answer it's ok.
Of course I can answer @Q QQ! I am making the update video now and I will specifically answer each of these questions in it, I promise. Thank you so much for inquiring! 🤗
Wow, it is amazing to have a Doc and Patient, to help understand... I just hateeeee that you're a patient.
I am a skeleton now. Can’t put on weight. Not my intention. 3 yrs ago, I was very active until now. Extreme fatigue and in bed 10-12 hrs a day. Won’t kill me but might as well since I really don’t have a life now.
I'm so sorry to hear it. You're in our prayers. How are you doing now?
THANK YOU GOD FOR SAVING SHAUNA, AND LETTING HER BE A BLESSING TO ALL OF US FOR A LONGGG TIME, TIL' YOU COME FATHER GOD, AND THAT YOU WILL TELL HER
(AND ME AND OUR LOVED ONES)
"WELL DONE"... IN JESUS' MIGHTY NAME, AMEN!!!
you give a good motvation
I appreciate your feedback @omar alqubati. Thank you!
YOU ARE A BLESSING FROM GOD.
Sempre se exercite, pessoal. Nossos corpos são compostos de partes que deveriam estar em forma, saudáveis e trabalhando juntas em uníssono, cooperando desde nossos constituintes visíveis mais externos até o nucléolo e o DNA das células.
Es tan cierto @Dafiny Olliveira! Gracias por tu comentario!
WELL OK!!! 🙂
Can I ask what lab showed your lgl cancer? I’m waiting on my diagnosis right now and have a horrible doctor. Was rare large granular lymphocytes a tell?
My apologies for the delayed reply @jennifertombaugh1744! Somehow I missed your comment. I hope you're doing well.
Initially, I was diagnosed with a bone marrow biopsy sample and flow cytometry. Sometime later I saw Dr. Thomas Loughran (he co-discovered LGLL) who confirmed the diagnosis with an LGLL-specific flow cytometry test and a TCRG gene clonality assay.
How you are doing now ? How can i contact you about LGL?
Anytime! SOTEmediaministry@gmail.com
I would say I'm stable, thank God.
Thanks for asking. :)
Cancer is devastating, my grandma has it and it's an eternal struggle
Sorry to hear this @lahiru nirmal! God bless you!
I'm sorry you're going through that.
I so much enjoy this vedio. It is exciting how they were able to reduce weight.
I gained weight my friend. But thank you for watching and commenting! :)
Wait, but in watching, it seems as though you gained, but lost and gained again from steroids.. but then lost weight again by the look of it no??