I am a survivor in 2013. I have aphasia . It has been very hard every day BUT you have to practice every day. Sometimes you think that your not getting better. The fact that you are reading this message YOU ARE BETTER. We know that this is a lifetime change and the Aphasia family that will help each other. You do not have to be alone. There are MANY programs not all of them work for you, find one that works for you.
You know he is shouting everything he wants to say in his head, but his tongue and brain are in disconnect. How incredibly frustrating that must be. His wife is a wonderful translator and extremely patient. I hope that they are still in good health!!
I have a patient who had a massive stroke. Its so hard on them and their family. Thank you for making these videos, its amazing to learn from each person's experience to help understand my patient's feelingsand thoughts while they cannot express themselves at this time.
Blessings to you both this has happened in my family . .All the best you guys are beautiful Steve your smile is Awesome . ..I'm trying my very best you keep going God's love🌻
I had aphasia from the beginning because when I was born the speech center of my brain was damaged when I was coming out of my mother. It was very hard at the beginning but my parents were proactive and took me to a speech therapist when I was a child and that really helped me. When you're born, you don't have any language so It was hard at the beginning. I went to a speech therapist for a few years. I had expressive aphasia and over the years I have overcome it with the help of God.
thank you for sharing this experience, my father-in-law has this condition, can you recommend a support organisation in australia that understands Aphasia and could assist in an assessment for him as the family is on different wavelengths coping and understanding. I feel if we could get someone to assess him that understands Aphasia we can then offer him support solutions. I have already had a speech pathologist see him and unfortunately it wasn't a match, no one's fault it was a mismatch and I know he felt misperceived. Thank you and good day
Wow this amazing lady supports Steve in3 such a loving way. she always knows what he's going to say. I have aphasia 3 strokes back to back within a week from COVID. No one knows how it is I feel trapped inside.I wish I had a woman like that!
@@carmella88 I progressed significantly and I can do all that, but I cannot talk or express myself. It gets a bit frustrating because you know what you're going to say but cannot do it.
Ater an open heart surgery i had cv5 theyput me in s coma woke up all my interior organ working my leg was working too oly my left hand imoh physical therapy myaccent chnged my voice, but ican still bring words i need i planning to see a speach therapist. , my hand is getting better life can be lost in a second i thsnk god that he brought me bsck from surgery and coma. I guess my doctors in lebanon are good yet i know for sure i will never be how i used to be before thestroke.i am 53 born with a bad valve, unlucky
You are incredibly brave & inspirational! We are living with post-stroke aphasia, and it’s quite a challenging & frustrating journey, but we are always trying toward improvement. ❤️
just like my mother after her stroke, its better now but the weirdest thing is that she could SING perfectly but not talk...that and that before the stroke she needed glasses, after the stroke she learned to read again and didnt need glasses XD
My father just had a massive stroke that left him with severe global aphasia. We do not know where to start with therapy since it appears that no one is familiarized with this illness (Ecuador). Could you please give us some advice?
Even though he can't talk much this guy looks like he'd be amazing company and a pleasure to be around. He is extremely expressive without language.
Agreed. No doubt. He's got a great spirit about him.
I am a survivor in 2013. I have aphasia . It has been very hard every day BUT you have to practice every day. Sometimes you think that your not getting better. The fact that you are reading this message YOU ARE BETTER. We know that this is a lifetime change and the Aphasia family that will help each other. You do not have to be alone. There are MANY programs not all of them work for you, find one that works for you.
Could you perform tasks like give me thumbs up squeeze my hand lift your arm? When you first had it?
You know he is shouting everything he wants to say in his head, but his tongue and brain are in disconnect. How incredibly frustrating that must be. His wife is a wonderful translator and extremely patient. I hope that they are still in good health!!
What a sweet couple. I really wish him the absolute best!
I have a patient who had a massive stroke. Its so hard on them and their family. Thank you for making these videos, its amazing to learn from each person's experience to help understand my patient's feelingsand thoughts while they cannot express themselves at this time.
My brother had a massive stroke did your patient survive
Blessings to you both this has happened in my family . .All the best you guys are beautiful Steve your smile is Awesome . ..I'm trying my very best you keep going God's love🌻
I had aphasia from the beginning because when I was born the speech center of my brain was damaged when I was coming out of my mother. It was very hard at the beginning but my parents were proactive and took me to a speech therapist when I was a child and that really helped me. When you're born, you don't have any language so It was hard at the beginning. I went to a speech therapist for a few years. I had expressive aphasia and over the years I have overcome it with the help of God.
What a wonderful man and a beautiful woman. So much love is radiating in this video! So wholesome.
What about expressive AND receptive aphasia? Married 40 years, but it is difficult!!!!! Plus anger outbursts.
thank you for sharing this experience, my father-in-law has this condition, can you recommend a support organisation in australia that understands Aphasia and could assist in an assessment for him as the family is on different wavelengths coping and understanding. I feel if we could get someone to assess him that understands Aphasia we can then offer him support solutions. I have already had a speech pathologist see him and unfortunately it wasn't a match, no one's fault it was a mismatch and I know he felt misperceived. Thank you and good day
Wow this amazing lady supports Steve in3
such a loving way. she always knows what he's going to say. I have aphasia 3 strokes back to back within a week from COVID. No one knows how it is I feel trapped inside.I wish I had a woman like that!
Could you answer questions like blink or squeeze my hand or give thumbs up or hear those around you when it first happened?
@@carmella88 I progressed significantly and I can do all that, but I cannot talk or express myself. It gets a bit frustrating because you know what you're going to say but cannot do it.
Lovely! It’s so inspiring! Thanks for sharing those precious stories.
She’s very awesome as well .
Ater an open heart surgery i had cv5 theyput me in s coma woke up all my interior organ working my leg was working too oly my left hand imoh physical therapy myaccent chnged my voice, but ican still bring words i need i planning to see a speach therapist. , my hand is getting better life can be lost in a second i thsnk god that he brought me bsck from surgery and coma. I guess my doctors in lebanon are good yet i know for sure i will never be how i used to be before thestroke.i am 53 born with a bad valve, unlucky
We have no resources here in the mountains we would have to drive hours
What a lovely coup,e ..❤️ to u both
My husband had severe left ischemic stroke and has aphasia and is paralyzed on right side still after one year. It's so hard
Could your husband ever answer commands when it first happened thumbs up squeeze my hand etc
Is he in rehab center or home
I Am Aphasia
I had a stroke in March 2019
Could you ever give commands when it first happened? Thumbs up etc?
APHASIA/Stroke
Must be terrible
35 years old, i couldn't speak well verbally or write..I had in Feb 2023 and I hope I can recover soon. Recovery to all of us in Jesus name.
You are incredibly brave & inspirational! We are living with post-stroke aphasia, and it’s quite a challenging & frustrating journey, but we are always trying toward improvement. ❤️
I was so lucky, surviving two strokes.
What if you can not write at a normal pace and can not verbally make full sentences? Any advice is greatly accepted
Omg I thank you for this! My dad just had a stroke and Im nervous about his sentences but I’m starting to understand more
Genuinely a likeable guy i can tell
just like my mother after her stroke, its better now but the weirdest thing is that she could SING perfectly but not talk...that and that before the stroke she needed glasses, after the stroke she learned to read again and didnt need glasses XD
He looks like he would have been really good looking as a young guy
❤❤❤❤
My father just had a massive stroke that left him with severe global aphasia. We do not know where to start with therapy since it appears that no one is familiarized with this illness (Ecuador). Could you please give us some advice?
Hey how is your dad doing?
❤️
So can they write are read like normal…?? Is it only a spoken language impairment…?
It really depends on the person. It varies quite a bit.
She makes an incredible SIRI voice!