A journey with Menkes Disease | Interview with Ana Romanow

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  • เผยแพร่เมื่อ 27 ม.ค. 2025

ความคิดเห็น • 9

  • @MyKabukiGirl
    @MyKabukiGirl  25 วันที่ผ่านมา +3

    Would you like me to make more interviews? Let me know!

  • @melisarestrepo1353
    @melisarestrepo1353 24 วันที่ผ่านมา +1

    Thank you for sharing Ana’s stories. It’s a great experience of growth and insightfull personal evolution❤

    • @MyKabukiGirl
      @MyKabukiGirl  22 วันที่ผ่านมา

      It really is! Thank you Melisa ☺️

  • @nicolasibagoncarvajal7526
    @nicolasibagoncarvajal7526 24 วันที่ผ่านมา +1

    So proud of you ❤

    • @MyKabukiGirl
      @MyKabukiGirl  22 วันที่ผ่านมา

      She's such an inspiration, right? 🌸

  • @ChristineKeen-v1e
    @ChristineKeen-v1e 25 วันที่ผ่านมา +1

    That was wonderful. Please do many more interviews. I'm sure they will be immensely helpful and supportive to families. I am an Adelaide Nana, and before retirement, I worked many years with multiply disabled children and provided respite for 3 children and their families. Thanks for what you are doing. Christine ❤

    • @MyKabukiGirl
      @MyKabukiGirl  25 วันที่ผ่านมา

      Oh, Christine, thank you for your kind words!
      My goodness, it sounds like you've seen a lot! That must have been very intense for you too. How did you manage to cope with seeing all those grieving and complex journeys, and yet providing them support and respite?

  • @BelindaHerro
    @BelindaHerro 18 วันที่ผ่านมา

    Thank you both for this amazing interview.
    Ana has so much to teach as about what is truly important in life. She has such grace and a wonderful outlook on life despite the pain and trauma she has experienced.

    • @MyKabukiGirl
      @MyKabukiGirl  8 วันที่ผ่านมา

      I totally agree! ❤️