My most commonly asked questions following surgery as final stage treatment for my PMDD (Feb 2021)
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- เผยแพร่เมื่อ 19 ก.ย. 2024
- In May 2019 I underwent a total hysterectomy and BSO for treatment resistant PMDD, 21 months on and I decided to film a video answering my most commonly asked questions, including things to think about when considering surgery, did surgery help and do I ever regret my surgery?
I chose to share my story to help others feel less alone 💚
This is my journey and mine alone, told from my perspective, in my words.
For more info, support and advice on PMDD please check out
National Association for Premenstrual Syndromes - www.pms.org.uk
International Association for Premenstrual Disorders - www.iapmd.org
For info and support for surgical menopause please check out
The Surmeno Connection - www.thesurmenoconnection.com
Amazing video. Both relevant to me (soon to start chemical menopause experiments) and my job in mental health. Thank you so much for sharing. We need to be more vocal about this area of women's health.
Thanks for such a lovely comment, the word is definitely getting out there. I first started documenting my journey in 2017 because I kept searching online for info and someone who was talking about this but there was nothing and so little info or awareness, but now there is a whole online community of people with pmdd which is fantastic that they have one another's support. The medical community has also come a long way, I have presented at Royal College Nursing and Royal College of Psychiatry conferences and been part of developing resources to support ongoing education and learning. I am on Twitter @PeriodsPower and you would like to connect to talk about perhaps doing some education for your colleagues at work / NHS Trust.
Finally good luck with the next stage in your own journey, I am so glad you got the diagnosis you needed to start to heal x
Thank you for sharing this, I'm so glad I've found your channel as I've felt so alone having PMDD, nobody else around me understands!
You’re absolutely not alone my lovely 🧡
You’re not alone x
Thank you Ladies xx
WOW even though I'm post meno and a lot older than you I am going through progesterone intolerance. I didn't know what pmdd was and now it all fits together. I used to be confident and happy when I was a little girl and remember the sudden change in me at 12. I was always thought of as a problem teenager and then went through life going from one disaster to another. I am trying to talk my gp into referring me for a hysterectomy but she is reluctant. I have no quality of life and am just coming through another progesterone crash.
You have given me hope and I will push for what I know is right. I was up until 3 last night watching everyone of these vlogs, you are my hero ❤
Awww could I possibly email you? Long time desperate sufferer here... I would love to be able to ask a few things.
Thanks for sharing! Quite enlightning! I went through a similar experience - stage IV endo / surgery at 42. I am also on the ongoing battle of figuring out my hormone dosage. Stay well!!
I had my surgery last Monday... I'm nervous for the weeks to come ... I cried almost all day around Thursday - Saturday ... didn't track cycle super close lately so idk I think it's the drastic dip that effects me more than the hormones themselves idk
Feel a little better today... I am so sick of the ups n downs and so are my children family and friends.. Pretty sure I have a hernia from picking up my 9 month old and caring for my other children but I really had no choice :/ which really sucks ..I did my best to have coverage but I have 4 kids so yea ... Just trying to follow instructions the best I can give circumstances
Post op appt next week...
Wish me luck
Thank you for sharing this video... I understand you so much . . I feel the same way about the time wasted etc and the damage I have done to my children that will affect them the rest of their lives from having three diff moms... Crying hysterical depressed n in bed ..,... Rage filled witch .... And then normal nice elated living stable... They haven't even had a good routine cus it changed .. pretty sure this is going to give me relief ... I hope so
35 years for me battling pmdd currently in perimenopause hormones all over the place, I can’t wait till I’m period free for a year and in full blown menopause and I’m pmdd free
Are you blogging or vlogging your experience?
Thank you 🙏
Have you heard of Dr Louise Newson? She's a wonderful menopause doctor. She has lots of useful information on her website.She explains that women produce 3-4 times more testosterone than Estrogen and it massively helps with fatigue, cognition and confidence. All the best with your healing x
would you still answer the same now?
@@NatureisCoolBA ooh maybe I will have to do an update 5 years on. Good question!
@@pmdd-vlogger8873 yes please Emily! Your channel has been an amazing help to me and I am 99% likely to get a hysterectomy.