Genetic Research Education Series: Focus on TARDBP

Thousands of healthy people in the world have pathogenic TARDBP variants, and around 100 more have an active ALS or FTD diagnosis - what research is available for them to participate in? It can be hard to understand what research participation is available. It can be even harder to picture what participating in research is like! Hear from experts about what research is available and from everyday people with the mutation about what participating looks like for them. Speakers include Dr. Neil Shneider and Ms Elizabeth Harrington from the Eleanor and Lou Gehrig ALS Center at Columbia University and will be hosted by Dr. Nadia Sethi.