POTS and Dysautonomia: healthcoaching and lifestyle management

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  • เผยแพร่เมื่อ 27 ส.ค. 2024

ความคิดเห็น • 78

  • @KF-pk9tb
    @KF-pk9tb 2 ปีที่แล้ว +27

    I think Ms. Vintila's point of stabilizing first before embarking on lifestyle changes is full of wisdom. Many POTS patients have been over-extending themselves for YEARS and are physically & emotionally exhausted. Giving some space to truly rest and take stock of where your are before starting is so important. Thank you Dr Gupta & Ms Vintila for taking the time to share.

    • @line_inthe_sand2569
      @line_inthe_sand2569 2 ปีที่แล้ว +1

      Agreed.
      It's so hard being intentional finding strategies.

    • @salsspar2132
      @salsspar2132 2 ปีที่แล้ว

      i have been diagnosed with IST not pots and i like going 100 miles per hour but i do crash. maybe im going to fast. when you say rest do you mean not exercising for couple days cause every time i do that i feel guilty and also sometimes feel worse. also heart palpitations are annoying, fluttering, heart pounding, etc i get them too often

  • @ivintila
    @ivintila 2 ปีที่แล้ว +26

    Thank you so much for having me on. I'm very much looking forward to further collaboration!

    • @nomdeplumei7496
      @nomdeplumei7496 2 ปีที่แล้ว +1

      Thank you!

    • @if3581
      @if3581 2 ปีที่แล้ว +1

      Thank you so much for sharing!!

    • @raghumca
      @raghumca ปีที่แล้ว

      You didn't explain... how to cure ourselves. You just advertised for 46 minutes 😒. One word I grasped was you worked on gut bacteria and everything went well.

    • @ivintila
      @ivintila ปีที่แล้ว +1

      @@raghumca Hi there. It's not one particular thing that's worked. It's a combination of all the things I talk about in the video. And every single person is different in terms of what they need most. Gut bacteria, as you mentioned, is one of them. The others are nervous system regulation, finding triggers, looking at musculoskeletal issues, working with the vagus nerve, looking at root causes, pacing, movement, cranial nerves, etc. In order for this not to be an overwhelming video to watch, I focused on only some of the core pillars in this video. If you're interested in finding out more about the other things, you can look through my videos to learn more. I hope that helps.

  • @sandyreed277
    @sandyreed277 9 หลายเดือนก่อน +1

    Thank you for caring. Sometimes I cry listening to you because I have someone who cares.

  • @emmaberrow7648
    @emmaberrow7648 2 ปีที่แล้ว +10

    You are such an amazing cardiologist. Very humble and willing to listen. I wish all medics were half as understanding as you.

  • @StandUp777
    @StandUp777 2 ปีที่แล้ว +14

    I went through way too many doctors and top cardiologists from Cleveland Clinic, no less. Diagnosed with POTS 8 months ago which they said was brought on by a virus I had last year ( covid).
    My story is similar. No one had any answers and it took forever to get the diagnosis. I had to do my own research and got very little help from the docs.
    I am a lucky one as my situation as pretty much turned around. Here is what works for me:
    Magnesium daily. Helps the heart and nerves system and prevents pins and needles and cramping
    Exercise. Paced. Walking daily. Cardio daily.
    Water water water! 80 to 100 ounces daily. This is a must.
    Good diet. Little to no sugar. Small meals throughout the day.
    I don't smoke or drink so for me that was easy.
    Hope that helps someone. Don't give up!

    • @012roro
      @012roro 2 ปีที่แล้ว

      Your simply just simply went away completely? I was diagnosed 3 months ago and all this started after an unknown virus back in May of this year. They told me post viral pots could resolve on its own but I almost 7 months in and it’s still here

    • @StandUp777
      @StandUp777 2 ปีที่แล้ว

      @@012roro yes but it has taken almost 17 months and two major relapses. My last one was August. No more. Thank God. 🙏 hang in there.

    • @012roro
      @012roro 2 ปีที่แล้ว +2

      @@StandUp777 this gives me hope. thank you

    • @kmcnamara9717
      @kmcnamara9717 2 ปีที่แล้ว

      What kind of diet did you adjust to other than the less sugar?

    • @StandUp777
      @StandUp777 2 ปีที่แล้ว +1

      @@kmcnamara9717 for me not much of an adjustment other than eating smaller eats more frequently. I'm a pretty healthy eater to begin with. Gluten-free, non GMO and organic as much as possible. Very little junk food, fast food or processed stuff..

  • @sandyreed277
    @sandyreed277 9 หลายเดือนก่อน +1

    Keep telling your patients suggestions. Be positive. LISTEN TO YOUR PATIENT.

  • @enatp6448
    @enatp6448 10 หลายเดือนก่อน +1

    This might be the missing link for me. Thanks very much for interviewing someone who has lived experience. ❤

  • @katieee4695
    @katieee4695 2 ปีที่แล้ว +3

    Omg Thankyou so much for this video not many people are aware of pots. I’m currently being investigated for pots after years of being diagnosed with anxiety however I’ve been taking propranolol to and it also stopped working for me this lady is so incredibly strong it’s so annoying living with something that is so debilitating and trying to believe it’s anxiety but deep down you know it’s really not.

  • @SaravananNewcastle
    @SaravananNewcastle 2 ปีที่แล้ว +3

    Well done to both of you. Within and outside healthcare settings such self-help programs are essential. We can save a ton of money, pain and time through this.

  • @whitney8931
    @whitney8931 2 ปีที่แล้ว +6

    Thank you dearly for this interview. You both exemplify compassion, readiness to learn and share your knowledge with those in need.

  • @juanital.2608
    @juanital.2608 2 ปีที่แล้ว +7

    Sublingual Vit D in very high doses has completely eliminated my pots symptoms. Mine became intolerable after having covid. They were only mild & completely manageable before that. Covid led to heart surgery which i was hopeful would help my pots symptoms which were severe! I was having a 100+ bpm rise every time I stood up which would lead to passing out. Extremely high blood pressure at 220/190 & BP meds had zero effect. Terrible GI issues, heart palpitations even after surgery, tingling, temperature dysregulation, & more. After starting on sublingual Vit D, ALL these symptoms have cleared up. My heart rate is back to normal. My BP has returned to normal without medication. When I start having pots symptoms, I know I need more vit d. Within 15 min my symptoms resolve. So I have no doubt that vid d was the key factor contributing to my pots problems. It's an easy fix with none of the Terrible side effects I had from heart & BP meds.

    • @lindawilliams5015
      @lindawilliams5015 2 ปีที่แล้ว

      Thanks. Will try Vitamins D again

    • @princessmari5063
      @princessmari5063 2 ปีที่แล้ว

      Thank you for this information.

    • @heartchakra2
      @heartchakra2 2 ปีที่แล้ว

      What dose of D were you taking

    • @charmainethane5301
      @charmainethane5301 2 ปีที่แล้ว

      Wow, I had Rickets (a severe Vit D deficiency) as a child. So ok this makes SO much sense where I am now!

    • @soulpowerful
      @soulpowerful ปีที่แล้ว

      How much vit D would you suggest? 🙂 I’m going to try this.

  • @cristyalfaro4288
    @cristyalfaro4288 2 ปีที่แล้ว +3

    Does diet play a big role in controlling POTS? I have limited myself on sugar, pasta, breads, I make my own flaxseed breads, I don’t eat some veggies like potatoes and carrots, I cut down on most fruits I only eat berries, don’t eat dairy products, i do wat very little chicken and I mostly eat fish. I’m into two weeks on this diet and it has helped me immensely!! The inflammation on my body and my organs has lessened, I feel energized enough to get up and do choirs around the house and even going for walks! 🙏👍

  • @nomdeplumei7496
    @nomdeplumei7496 2 ปีที่แล้ว +1

    Thank you once again...last night I was hoping to find a new video from you! And voila! Moreover I seem to have many small disturbances that resonate with this video discussion.. I will pursue your suggestions..ie the video.....and phone consultation...THANK YOU SO VERY MUCH...you are a dear wonderful human being!

  • @trubrit5036
    @trubrit5036 ปีที่แล้ว +1

    Interesting! I have never heard of POTS, and had to look it up. It sounds an awful lot like the condition my son has, Neurocardio Synchophy. So I looked up the difference between the two. I will share this interview with him.

  • @keatsgipsy9991
    @keatsgipsy9991 2 ปีที่แล้ว +1

    Very interesting story. Hard to believe a life time to get a diagnosis - good for her she never gave up!

  • @melrichardson2392
    @melrichardson2392 2 ปีที่แล้ว +2

    Absolutely great interview thankyou and wish you and her all the best ,I have a series of accupressure and breathing techniques.That I use.

  • @marianapalacios1675
    @marianapalacios1675 ปีที่แล้ว

    I would really recommend looking into Somatic Experiencing, which actively help regulate the vagus nerve and helps calm down the parasympathetic nervous system. A dis regulated autonomic nervous system is one way trauma shows up in the body.

  • @MarketsofSunshine
    @MarketsofSunshine ปีที่แล้ว +1

    Thank you for making these videos. I have had dysautonomia, Lyme disease, and now Afib. I am having blood sugar issues too. I've had hypoglycemia since I was 6 years old. I'm now 59 years old. I was treated for my Lyme and all that goes with it using natural doctors, holistic, homeopathic, and oriental medicine-type treatments for 14 years. Then 5 years ago I was told I have mast cell activation syndrome because I started not feeling well when taking even the supplements. I get extreme abdominal pain and allergic-type reactions. I also have dental issues and bone loss from an unknown source (possibly the MCA), so I have all my teeth removed. I'm currently taking Metoprolol 25 mg broken into 1/2 twice to three times a day. I've been taking it since December 20, 2022. I'm wondering if the Lyme is causing the AFib. I've had palpitations since getting Lyme in 2004. The natural doctors always treated me for it with homeopathic, herbs, etc... until I started not being able to take them in 2017. I started doing a program called DNRS by Annie Hopper that an MD functional medicine doctor who recommended I do it to see if it would calm down my autonomic nervous system. He said I probably had POTS too. The cardiologist could not find anything major wrong with my heart. I had a nuclear stress done in 2005 that nearly killed me. The solution shut down my organs a month later with a severe allergic reaction. So, I won't get those kinds of tests anymore. He understood and said the Echo and Holter monitor did not show anything other than my heart drops low sometimes. I have very mild mitrovalve and tri-cuspid regurgitation. No blood clots so I am not on blood thinners. I take one low-dose aspirin 81 mg a day. They all said I'm basically healthy other than Lyme disease. LOL, I'm 5'6 inches weigh 126 pounds, and eat a very healthy organic diet. I don't drink alcohol, smoke, do drugs, etc.. I get plenty of rest and was walking several times a week in the park with my husband. I really am looking for a doctor who can shed some light on what brought this on and how to get off the Metoprolol. How do they test to see if an Ablation surgery would work for me? I do have fibromyalgia and GERD, Asthma all mid, and had not taken any RX drugs or over-the-counter meds for 18 years. I only drink purified RO water with a home filter system. I'm wondering if it's blood sugar and nutrient-related. My potassium is 2.0 and my sodium was a little low. But, my primary doctor told me not to take any potassium. WHY? She said it could stop my heart. ????
    Any insight or suggestions would be greatly appreciated.
    P.S. My Mother has heart disease and had to have the Ablation in 2016.

  • @franceshemery5095
    @franceshemery5095 2 ปีที่แล้ว +1

    Thank you for this.one can feel so alone when trying to get med profession to think outside of the box.

  • @starryone7761
    @starryone7761 2 ปีที่แล้ว +2

    I've had "odd" symptoms since childhood that got worse as I got older. Fainting was a huge one, so I had a tilt table test and fainted and was told I had neurocardiogenic syncope/vasovagal. Strangely...I don't have 99.9% of those symptoms for those conditions. So, years later, I repeated the tilt table test. I was convinced it was a false positive the first time. However, I fainted again, went into a junctional rhythm, had an extremely scary experience and my cardiologist was very shaken up after my test. I was out, so I don't know what exactly happened. I've had numerous episodes and went to ER to have an EKG just to be sent home. I have no anxiety or mental health issues, yet I get dismissed and told it probably is a panic attack, so I just suffer and don't go to doctors or ER's any longer. My medical bills trying to figure out what is wrong has continued to grow and put me in debt. And bottom line, after being a guinea pig with a multitude of tests...I'm still sick. My quality life has tanked. My normal HR is in the 40's...I go over 200bpm in my tachy episodes, which happen when I lie down (not when I get up) and they tell me it is a panic attack. 🙄

    • @nomdeplumei7496
      @nomdeplumei7496 2 ปีที่แล้ว

      Hmmmmm these comments resonate!

    • @princessmari5063
      @princessmari5063 2 ปีที่แล้ว

      I am so sorry you are going through this. I will be praying for you and if you ever need anyone to just listen, please reach out.

  • @thedaywillcome
    @thedaywillcome 2 ปีที่แล้ว +5

    I’m going thru these same problems, doctors keep saying that my chest discomfort is due to anxiety 😒 it’s so frustrating..

    • @Austin-Afridi
      @Austin-Afridi 2 ปีที่แล้ว

      If you Rubondese it can help!

  • @DrLisaDeG
    @DrLisaDeG 2 ปีที่แล้ว +4

    How do you distinguish between fatigue from ME/CFS and say POTS or EDS and POTS given there is no biomarker for ME/CFS and the treatment for the disorders differs widely

    • @thomasmore4468
      @thomasmore4468 2 ปีที่แล้ว

      Many people with what they call ME/CFS have POTS. I got the symptoms of POTS on the day after I recovered from the worst stomach virus I had ever had, as did my friend who I was sharing a house with. that was over 30 years ago - I self-diagnosed only 5 years ago (when I discovered my pulse rate went up massively on standing) and insisted that my doctor arrange for me to have a tilt table test. Up to then I had been told I had ME or post viral syndrome or that it was all in my mind and was offered CBT (which I refused).

    • @DrLisaDeG
      @DrLisaDeG 2 ปีที่แล้ว +1

      @@thomasmore4468 I am aware that ME/CFS can cause secondary POTS that doesn't address the issue. NICE specifically caution against exercise in ME/CFS so it's important to distinguish if it's primary POTS or secondary the TTT doesn't do that

  • @miramor
    @miramor 2 ปีที่แล้ว

    Good to see you, Dr. Gupta.

  • @arnabnagendran9032
    @arnabnagendran9032 2 ปีที่แล้ว +1

    How to face panic attack without anti anxiety medicine , please add one video ?

  • @tobidauenhauer7125
    @tobidauenhauer7125 2 ปีที่แล้ว +2

    My twins who are 18 have mcas, pots, eds, gastroparesis, Eoe, etc
    It is so difficult to navigate the medical field. When they were pediatric patients, my husband and I were accused of munchausen, as if we were wanting them to be sick. It cost us $125,000 American dollars to fight legally to help our children. It was awful. We did "win" but this winning was just a dismissal of charges and we never regained what we lost.
    Our children are so very ill and we now have a better team that understands, but still this terrible complex set of disorders are debilitating. My daughter has a gj tube and even with that still cannot keep weight on and is malnourished.

    • @princessmari5063
      @princessmari5063 2 ปีที่แล้ว

      Prayers going up for your twins ❤️

  • @sarahsoor6219
    @sarahsoor6219 2 ปีที่แล้ว +1

    Thank you :)

  • @nomdeplumei7496
    @nomdeplumei7496 2 ปีที่แล้ว +1

    Wow! In reading the comments I am more and more surprised by what I find similar to my daily experience that always asks the question...is this normal or not?..I am almost 80 feel mentally 40 (except for those spurts of diminishing brain ability...is what I call it!!!)...so I put it down to aging....but the comments make me feel it is NOT!!....will pursue...

  • @rhondae8222
    @rhondae8222 2 ปีที่แล้ว +2

    York Cardiology, what health advice can you give a person who has blood clots and high blood pressure. Please respond.

    • @janeslater8004
      @janeslater8004 2 ปีที่แล้ว

      Bloodthinners are used or Fruits and vegetables and juices to thin blood and help.prevent clots especially papaya and kiwi. Pineapple
      You cant make jelly with papaya duet o enzyme that prevent it gelling. Also systemic enzymes. Theenzymes break down and digest clots Also will help high bp and magnesium can help

  • @maryellwood1373
    @maryellwood1373 2 ปีที่แล้ว +1

    I am also having this problem

  • @TraceyPoland
    @TraceyPoland ปีที่แล้ว

    If Redfin has any marketing data analysis budget they really need to hire you to keep things consistent 😂

  • @whaleblue
    @whaleblue 2 ปีที่แล้ว +1

    Doctor, I need some help! I am relatively low in blood pressure, and my heart always racing 90-100, should I take a beta-blocker? because I am very worried about my low blood pressure, I am scared that I gonna pass out if I take a beta-blocker. (someone with experience can help me too) thnk you!

    • @swaxy6274
      @swaxy6274 ปีที่แล้ว

      Your heart rate is fine but check your blood pressure forsure my heart rate resting is 120 and standing or sitting up is 140-150

  • @alterculture
    @alterculture 2 ปีที่แล้ว +1

    I seem destined to be a dysauto healthcoach and advocate. I may have had dysautonomia my whole life. I was pretty certain by age 10 a problem with my adrenaline. Confident chronic illness by 1992 and started to research a lot, giving up on dr's entirely in 95. I got crushed into the ground by undercarriage of an SUV in 2017 which made everything worse and brand new never even mild symptoms of before. I finally figured out was dysauto in 2019 then referred myself to a dysauto center in Jan 2020 where had proper ANS testing and my dr seemed so impressed with what I had been able to do on my own (with zero tests nor dr's and no meds, only foods, supplements and OTC), that it felt like part job interview, lol.

    • @alterculture
      @alterculture 2 ปีที่แล้ว

      And I asked a question of a popular functional neurologist in q and a of seminar and he commented on how advanced my question was and he needed to explain my question to his audience and said how it was an advanced one and that I must have been at this for sometime. I say all this not to brag, but to compare that to when I would talk with pcps or ER staff and I would be talking over their heads (I know how to DIY my health better than anyone otherr than my dysauto center dr, but I"m not a dr) or they would look at me like I was nuts. Maybe it's because I had done years and years of research and even providing them my conclusions and why they still couldn't identify the tale tale signs of an illness. I mean if your patient has a bunch of different illness maybe the part of the body that controls all that stuff wihtout human control could be the problem and not psychosomatic, later proven with ANS testing.

  • @venusburgos3559
    @venusburgos3559 2 ปีที่แล้ว

    Dr gupta I've watched several videos on pvcs,gastrocardiac syndrome and I believe this is what I have it's taken over my life and my Dr's aren't listening.ive messaged u several times.im on disability and no money to pay for a appt with u.im in SC please I believe u r the only answer to my problems.please how can I message u

  • @Yowhats-good
    @Yowhats-good 2 ปีที่แล้ว +1

    Can you do a video on Hot shower and racing heart beat with skipped beats please?

  • @venusburgos3559
    @venusburgos3559 2 ปีที่แล้ว

    I have ekg and echo need ur help

    • @YorkCardiology
      @YorkCardiology  2 ปีที่แล้ว +2

      please get in touch via yorkcardiology.co.uk or drsanjayguptacardiologist.com

  • @venusburgos3559
    @venusburgos3559 2 ปีที่แล้ว

    I've been on metoporolol for over 5 years and now a ep Dr wants to prescribe me a med called flacainide which is on the fda black box market list its scaring me to death Dr gupta I beg u ur my only hope please help!!!!

    • @magnusterminus4728
      @magnusterminus4728 2 ปีที่แล้ว

      the side effects of metropolol for me where terrible and i was on a low dosis. since ealy this year i am on flecainide also low dosis and that was a huge improvement. much more energy, no longer exhausted after some exercise and mentally sharp again. succes!

  • @aellaaskew4263
    @aellaaskew4263 2 ปีที่แล้ว +3

    Privileged. Lifestyle changes are inaccessible when living below the poverty line, also in the US known as being on disability. Support systems are a luxury- housing is a luxury- trauma free life is also assumed here. So take a patient that doesn't have the ability to just change their country when they are a little stressed. I'm making assumptions as well, But This outrageously simplifies this condition. I was really hoping this was going to have more specifics on what exactly these changes you are suggesting are. For example diet. Part of having to self diagnose through guiding your doctors is that they don't tell you what foods are good, what kinds of exercise, what vitamins and why! The nitty gritty. "Easy available on going support " is not affordable!! I just won't get it. It just won't ever happen. Maybe I'll get housing before that happens - anyone's bet. Diagnostic guided support would be ideal...not a hand to hold if you "slip up" on you "diet" or Lifestyle changes. This is just a horribly broken system. Medical systems are aweful-" its psychosomatic"🙄 and years to diagnose, it's aweful. 😔 Also rare POTS related issues that get dismissed with lifestyle changes- psudotumor cerebri- are even more difficult to be heard because SOME people "heal" themselves 😤😕

    • @aellaaskew4263
      @aellaaskew4263 2 ปีที่แล้ว +2

      To be clear, I appreciate this I'm just frustrated and from a very disadvantaged situation.

  • @Irishmom786
    @Irishmom786 2 ปีที่แล้ว

    hi sir want to contact with you

  • @sola4613
    @sola4613 2 ปีที่แล้ว

    Better staying home and healthy with help of good medicine, good advice, even alone or with loving people, than getting attacked, harrassed, terrorised, shocked, poisoned, humiliated, slandered, forcefully sickened, tortured, murdered in hospitals, torture"camps" by Isis, nazimedicals, mafiabosses, warcriminels, murderers and psychiatrists.