One Fragile X Experience: Carrier & Mom Answers FAQs
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- เผยแพร่เมื่อ 23 ก.ย. 2024
- Ilana Garber, a Fragile X carrier and mother of a child with Fragile X syndrome, shares her experience with Fragile X and offers her perspective to people interested in testing for themselves or their child. She covers Fragile X-associated Primary Ovarian Insufficiency (FXPOI), learning from the internet, finding community, and what she wished she would have known when her son was diagnosed.