I see that a lot of EDS patients have had mold exposure. I recently learned what I believe is the connection between mold and the collagen degradation. I'm glad you found your recovery. I will be exploring more of what you are doing. Exploring trigger points is new to me. It makes sense that if the ligaments are not supporting the skeleton, that the brain causes the muscles to kick in and help. Thanks for sharing your recovery.
Thank you for appreciating my recovery story. I lived in a moldy home for years. My son was also triggered into illness during this time. I never did anything specific to address the mold exposure. In my experience, once the trigger points are managed, the body is able to heal from almost anything. The only thing that continues to worsen for me personally is my teeth. I think it’s from chronic dehydration, stress, and grinding due to tension and TMJD. I hope to get access to good TMJ treatment eventually.
@@KaylaDuncanLMTI was under the impression that many of us with Collagen Disorders have different enamel, as well as the other issues you mentioned. It explained SO much of my dental challenges despite vigilant care from a young age.
Thank you so much for this!! Recently diagnosed with EDS but have had Fibromyalgia for years, among other diagnoses. I’ve known my trigger points were an issue but didn’t realize they could be driving the symptoms, wow! Am going to check out the links, I somehow just intuitively feel the is the way forward for me. 🤗❤
I was excited to hear you say your thumb doesn’t bend back. Mine never has and doctor after doctor would grab my thumb, try to bend it backwards, and tell me “ you don’t have it.” My DNA said that I do have it.
It's amazing how far you've come, I hope you continue to manage your symptoms and get better. Thank you for sharing your story and helping other people through what you've learned. 💕
EDS is a challenging condition to manage. There are many ways to try though! Bodywork including massage and physical therapy are highly effective when you have the right providers. There is also a supplement approach to management known as the Cusack Protocol. I manage with massage, herbal medicine, and select supplements. It’s not perfect but it helps. I hope your daughter finds the support she needs to manage and even thrive! Take care.
I'd say eating an optimal diet, plenty of fresh foods, veg + necessary protein (animal or not) plus keeping fitness level good via gentle regular exercise that doesn't injure you is the base of health. Whatever you can do to keep fit uninjured is a huge benefit. Isometric exercises can help alot if you have pain.
What a great recovery video, I'm really enjoying your content and cant wait to give your practices a try. I'm eagerly awaiting your next video. I hope you do a video where you talk about all of your life traumas, I think it could reach a lot of people.
I would likely need to produce a whole series to chronical the traumas I have endured in this lifetime but I will consider approaching the subject and sharing some of the things I’ve overcome. I would be very happy to share what has helped me to process and release my trauma. Thank you for the support and the suggestion! I appreciate both very much.
@@KaylaDuncanLMT I am using my husband’s account to comment. I too would love to see a video on how or what you did to heal your trauma issues. I have all of the same health issues that you do. I have been chronically ill for 27 years. My body has been stuck in fight or flight for so long, that it doesn’t know how to get out of it. I have tried numerous modes of trauma release therapies and techniques, but all to no avail. It’s so frustrating. Thanks so much.
I completely understand all of this so much! I could tell that my nervous system was stuck. It was incredibly frustrating and very damaging to my body. Trigger point massage will definitely help begin the process of escaping fight or flight mode. Check into the curalistic program! You can listen to the audio book for free and start the program right away. I personally also did trauma release counseling. I will work to create content that details the techniques that I used to manage. Thank you for letting me know that this would be valuable to you. Here is the link for curalistic. Start here for sure! curalistic.org/sto-handbook/
This sounds too good to be true! I'm in a similar place to how you were a year before and having a terrible time getting any help from doctors. Do you have resources to share about how to go about this treatment?
I am so sorry you are struggling. I used the Curalistic program to begin my recovery journey. I often have links to this program in my video descriptions. I am also happy to be a resource for others on their own recovery journey. Please reach out any time.
Do you still get plugged ears? Both TMJ and cervical instability can cause that, but also can be from Mast Cells from MCAS and Mastocytosis. hEDS often comes with AAI/CCI and Mast Cell issues which often causes inflammation and itching in the ear, nose and throat passageways. If you get dermatographism/ Darier sign (raised red/pink lines caused when you run thumb nail across skin, usually more noticeable reaction on back or upper arms) then it is possible to have mast cell involvement.
Hi, congratulations on your video. I wanted to ask you or others too, is it normal to have tightness in the chest especially after eating? Difficulty breathing but I feel like it's more of a muscular thing than a respiratory thing, thanks (like suffocating and a lump in the throat). I'm hypermobile with a little bit elastic skin, but I don't know if I have EDS (I only have muscle problems like this and I haven't had any joint pain or any surgery at the moment). This symptom fades towards the evening and between meals.
I’ve lost so much hope lately. I’m so tired of being in pain. Almost feel like I’m destined to die. I will absolutely be getting in touch with my triggers points. Praying it helps
I just started having my trigger points dry needled and the change within only 5 days is remarkable. Years of pain, loss of function, and nearing complete dispair, I feel like I have found not just hope but excitement for getting my life back. If you haven't tried it yet I highly recommend it.
The Trigger Point Workbook by Claire Davies is an excellent resource. Also the Curalistic program and Facebook group. A therapeutic massage provider will also be well versed in trigger point pathology and treatment. I also have a video on how to identify trigger points.
The elongated styloids are a perpetuating factor for trigger points in the digastric muscle and other muscles of the jaw and neck. Active trigger points need to be treated or they will cause progressive issues. Managing the TP’s caused by me having Eagle’s helps me manage the Eagle’s. Hope this helps.
How are you doing?? Same here,, I have been through hell trying to understand what's wrong with my body from last 4 years and just few days back, an eds video was suggested to me. Probably, god sent .. I am kind of feeling relieved but also need to know which eds is it
Many think they have more than one type but in fact there are some similarities in all off them but each type has significant traits, you can not cure it, you can only manage it,
If you are going to point out her incorrect use of words, you probably ought to consult a dictionary first. * recover - to regain a normal position or condition (as of health)
I didn't hear you say anything about the vascular of you do have a order problems do you have mesenteric vein problems give blood flow problems is all of your stuff inflamed inside your abdomen area the central nervous system area
I see that a lot of EDS patients have had mold exposure. I recently learned what I believe is the connection between mold and the collagen degradation. I'm glad you found your recovery. I will be exploring more of what you are doing. Exploring trigger points is new to me. It makes sense that if the ligaments are not supporting the skeleton, that the brain causes the muscles to kick in and help. Thanks for sharing your recovery.
Thank you for appreciating my recovery story. I lived in a moldy home for years. My son was also triggered into illness during this time. I never did anything specific to address the mold exposure. In my experience, once the trigger points are managed, the body is able to heal from almost anything. The only thing that continues to worsen for me personally is my teeth. I think it’s from chronic dehydration, stress, and grinding due to tension and TMJD. I hope to get access to good TMJ treatment eventually.
What about those who were born hypomobile in moldy house to confusing my mother hypomobility ms my grandfather was hypomobile to
@@KaylaDuncanLMTI was under the impression that many of us with Collagen Disorders have different enamel, as well as the other issues you mentioned. It explained SO much of my dental challenges despite vigilant care from a young age.
Thank you so much for this!! Recently diagnosed with EDS but have had Fibromyalgia for years, among other diagnoses. I’ve known my trigger points were an issue but didn’t realize they could be driving the symptoms, wow! Am going to check out the links, I somehow just intuitively feel the is the way forward for me. 🤗❤
I was excited to hear you say your thumb doesn’t bend back. Mine never has and doctor after doctor would grab my thumb, try to bend it backwards, and tell me “ you don’t have it.” My DNA said that I do have it.
It's amazing how far you've come, I hope you continue to manage your symptoms and get better. Thank you for sharing your story and helping other people through what you've learned. 💕
My daughter suffers from EDS. Thank you for sharing this.
EDS is a challenging condition to manage. There are many ways to try though! Bodywork including massage and physical therapy are highly effective when you have the right providers. There is also a supplement approach to management known as the Cusack Protocol. I manage with massage, herbal medicine, and select supplements. It’s not perfect but it helps. I hope your daughter finds the support she needs to manage and even thrive! Take care.
Good to see you thriving Kayla
I'd say eating an optimal diet, plenty of fresh foods, veg + necessary protein (animal or not) plus keeping fitness level good via gentle regular exercise that doesn't injure you is the base of health. Whatever you can do to keep fit uninjured is a huge benefit. Isometric exercises can help alot if you have pain.
Getting Lyme Disease, and the resultant collagen destruction from the organisms truly advanced my disorder! 😭
What a great recovery video, I'm really enjoying your content and cant wait to give your practices a try. I'm eagerly awaiting your next video. I hope you do a video where you talk about all of your life traumas, I think it could reach a lot of people.
I would likely need to produce a whole series to chronical the traumas I have endured in this lifetime but I will consider approaching the subject and sharing some of the things I’ve overcome. I would be very happy to share what has helped me to process and release my trauma. Thank you for the support and the suggestion! I appreciate both very much.
@@KaylaDuncanLMT I am using my husband’s account to comment. I too would love to see a video on how or what you did to heal your trauma issues. I have all of the same health issues that you do. I have been chronically ill for 27 years. My body has been stuck in fight or flight for so long, that it doesn’t know how to get out of it. I have tried numerous modes of trauma release therapies and techniques, but all to no avail. It’s so frustrating. Thanks so much.
I completely understand all of this so much! I could tell that my nervous system was stuck. It was incredibly frustrating and very damaging to my body. Trigger point massage will definitely help begin the process of escaping fight or flight mode. Check into the curalistic program! You can listen to the audio book for free and start the program right away. I personally also did trauma release counseling. I will work to create content that details the techniques that I used to manage. Thank you for letting me know that this would be valuable to you. Here is the link for curalistic. Start here for sure! curalistic.org/sto-handbook/
Trigger points are a nightmare I've had Candida to CFS first now fybromyalgia related to Asperger's ADHD
This sounds too good to be true! I'm in a similar place to how you were a year before and having a terrible time getting any help from doctors. Do you have resources to share about how to go about this treatment?
I am so sorry you are struggling. I used the Curalistic program to begin my recovery journey. I often have links to this program in my video descriptions. I am also happy to be a resource for others on their own recovery journey. Please reach out any time.
Do you still get plugged ears? Both TMJ and cervical instability can cause that, but also can be from Mast Cells from MCAS and Mastocytosis.
hEDS often comes with AAI/CCI and Mast Cell issues which often causes inflammation and itching in the ear, nose and throat passageways.
If you get dermatographism/ Darier sign (raised red/pink lines caused when you run thumb nail across skin, usually more noticeable reaction on back or upper arms) then it is possible to have mast cell involvement.
Oh my gosh, this is so helpful! I love the way you explain everything. I tell people I feel like "gumby mush! lol Thank you so much for sharing!! :)
Do you think we could talk sometime? Thanks again for sharing. I definitely feel like no one understands what I'm living through.
I apologize for the delay. I am reachable through Facebook if you’re on there. I usually link my info in the descriptions.
Hi, congratulations on your video. I wanted to ask you or others too, is it normal to have tightness in the chest especially after eating? Difficulty breathing but I feel like it's more of a muscular thing than a respiratory thing, thanks (like suffocating and a lump in the throat). I'm hypermobile with a little bit elastic skin, but I don't know if I have EDS (I only have muscle problems like this and I haven't had any joint pain or any surgery at the moment). This symptom fades towards the evening and between meals.
What practitioner should someone seek to do trigger point work?
? the bit about feeling like melting slime hit home hahahha
I’ve lost so much hope lately. I’m so tired of being in pain. Almost feel like I’m destined to die. I will absolutely be getting in touch with my triggers points. Praying it helps
I just started having my trigger points dry needled and the change within only 5 days is remarkable. Years of pain, loss of function, and nearing complete dispair, I feel like I have found not just hope but excitement for getting my life back. If you haven't tried it yet I highly recommend it.
@@reginaagreatergulfcoast672 TMS Dan pain free you people are doing it just from relaxation though hasn't worked for me yet
@@reginaagreatergulfcoast672 Thank you for your experience.
Hope you are finding some relief. Humor helps me, even gallow's humor. Keep trying! Every little gain adds up. ❤️🙏💞
could you give an update on how youre doing today?
This is so true
do you get paid from curalistic?
Nope.
And one more question, how did you learn about trigger points?
I learned from Gustav Grundsoe and his program known as Curalistic. The audio book should be linked in my video description.
Just about healed from heds with 2 years of lyme treatment....I have no idea what active trigger points are?
How are your ears now? Hope you’re good
Where can I learn about the trigger points?
The Trigger Point Workbook by Claire Davies is an excellent resource. Also the Curalistic program and Facebook group. A therapeutic massage provider will also be well versed in trigger point pathology and treatment. I also have a video on how to identify trigger points.
amzn.to/3fieHeU
curalistic.org/sto-handbook/
facebook.com/groups/curalisticgroup/?ref=share
th-cam.com/video/wTY1cg9mwYI/w-d-xo.html
How did you deal with your trigger points did you get injections or what
Who treats trigger points ?
Search for bodywork- specifically look for those offering Rolfing, Cranio-Sacral therapy, Visceral Manipulation…
Curious if you ever struggled with heart arrhythmias like pvcs?
I have!
how does releasing trigger points reverse eagles? eagles has to do with calcification of the styloid ligaments, and the etiology is unknown, i think.
The elongated styloids are a perpetuating factor for trigger points in the digastric muscle and other muscles of the jaw and neck. Active trigger points need to be treated or they will cause progressive issues. Managing the TP’s caused by me having Eagle’s helps me manage the Eagle’s. Hope this helps.
I have same symptoms like you but doctors don’t believe it’s frustrating
How are you doing?? Same here,, I have been through hell trying to understand what's wrong with my body from last 4 years and just few days back, an eds video was suggested to me. Probably, god sent .. I am kind of feeling relieved but also need to know which eds is it
@@ashmitasharma719 hopefully you will find a good doctor who knew about EDS
@@ashmitasharma719 hopefully you will find a good doctor
Many think they have more than one type but in fact there are some similarities in all off them but each type has significant traits, you can not cure it, you can only manage it,
You're title is literally misleading. You cannot recover from EDS you can only manage it..not recover from it
Ow can you know. There are people prayed for where already the Gen changed and healed...
*Your
If you are going to point out her incorrect use of words, you probably ought to consult a dictionary first.
* recover - to regain a normal position or condition (as of health)
I didn't hear you say anything about the vascular of you do have a order problems do you have mesenteric vein problems give blood flow problems is all of your stuff inflamed inside your abdomen area the central nervous system area
its progressive for many.
Find someone who does PRP injections