Wolff-Parkinson White Syndrome (WPW) - My Heart Story
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- เผยแพร่เมื่อ 7 ส.ค. 2024
- This is my Wolff Parkinson White Syndrome (WPW) story with Catheter ablation surgery when I was a child. My heart condition caused severe recurrent palpitations however after surgery at 9 years old I have has no other symptoms or further issues. If you would like to know more or I haven't covered something please do feel free to ask in the comments or directly.
Like I say in the video I am not a medical professional and although I do know alot about it obviously this is just my take on my story. You can read more about it on the NHS website here
www.nhs.uk/conditions/wolff-p...
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My name is Laura, I am a 32 year old mother of two girls aged 6 and 2 and I blog and Vlog at Little Ladies Big World. I have a passion for photography and recently making videos too in order to record and share our every day lives, our travel, motherhood moments and anything in between, come join our journey.
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I was diagnosed with this at 18 (This year), even though I had been experiencing these symptoms for at least 5 years at that point, shortness of breath, dizziness, palpitations, near fainting episodes, chest pain, and during the episodes my heartbeat was often over 250 bpm, usually lasting 5-7 minutes, with my longest episode being 15 minutes. During all of these, my heartbeat was so strong that my friends could physically see my chest moving because of it. I never tried to get it diagnosed until last year (though diagnosis got delayed by a year due to Covid) because I just thought I had bad stamina 😅.
Anyhow, they were able to diagnose it fairly quickly as WPW Syndrome and scheduled me EP studies and ablation for this summer. However, during the operation, they realised that they could not go through with the ablation due to the location of my accessory pathway. Every time they would try to, it would start affecting my AV node, something that if damaged would lead to me needing a pacemaker for the rest of my life. They tried to ablate it with both the heating catheter, and then with the freezing catheter, but neither worked so they ultimately made the decision not to risk it.
The catheter ablation is successful in 85%-95% of cases, however unfortunately I was one of the few where it was not successful. Currently, and for my foreseeable future, I am on beta-blockers. I still get one of episodes once in a while, especially if I do anything strenuous that would cause my heart to beat faster, but otherwise, I am doing ok. Though no alcohol, cigarettes, caffeine, or any recreational drugs for me for the rest of my life. The only other issue I could have is if I were to get pregnant I would have to go off my medication.
But the point of me sharing my story here is to help people who feel unsafe going through with the ablation, or to those whos was unsuccessful like mine, that it does not mean you are alone. Of course, everyone's situation is different so don't decide to go through with the operation just because it didn't work for one person. And if you're worried about how painful it might be, I can assure you that it really isn't. For me, there were only a few incisions on the side of my groin, and they healed up pretty quickly. For the operation itself, well I spent most of it asleep due to the painkillers, and only felt mildly uncomfortable at times, but that was honestly expected with something poking around in my heart 😂.
So to any of you who have been recently diagnosed with WPW, all I can say is don't let it stress you out too much and just do what is best for you.
Thanks for your sharing. I am one of this syndrome patient, since had been diagnosed for almost last 5 years. 2021 is a challenging and stressful year, which causes me feeling those symptoms heavily, in first, I am thinking to let it be, don't decide to do ablation or taking medication. But recently really struggled with those symptoms, then try to get suggestions online, luckily seeing this video and your post, feeling that you are much positive person even though your operation was unsuccessful. Your sharing brings hopes to us. And I wish you all the best in future and God bless you always.
I still remember a time that I thought I was never going to be cured. You get there its an extremely hard time that will challenge your emotions. I had a failed surgery at first and had to go back to a seccond surgery. All this and I was 16 at the time so my emotions were pretty all over the place. When my first surgery failed I completely lost hope. I was certain I would live with this condition until it took my life. Now i barely think about it, my friend asked me the other day about it and I had forgotten it existed. Felt amazing to laugh it off like it was just a small thing, I thank the doctors at sick kids in toronto for my life and I am forever grateful.
Hi Death Ally. Thank you for sharing your story. Your symptoms sound similar to mine. When I was a kid growing up in the 1970's- 80's I was told my symptoms were just "growing pains" and normal, and that I would grown out of them. Yyyyyeah. no. It wasn't until I was 19, a year into the Navy, and 2000 miles from family that I found out the truth. Like you, I was going to have another ablation a couple years ago, but would result in me having to have a pacemaker. Well... long story short, I ended up having to get a pacemaker anyways for other issues. So... this Friday I'm getting the ablation I was supposed to get a couple years ago. I hope your doing better now.
I was diagnosed two weeks ago. Thank you for sharing your story.
No idea how I just found this video lol. But I was Diagnosed with this at age 18! I had symptoms growing up, : Shortness of breathe, really fast heart beat, dizzy, sick feeling. My mom made a appointment with our primary, this was when I was in Junior High. My primary said she thought this was just asthma, I wish my primary would've looked more into this.. so I had an inhaler for years, brought it with me everywhere during my sporting events. I was playing every sport growing up. One time, during a volleyball game, my mom had to take me home because my heart was beating so fast (I could see my shirt moving), I felt so dizzy, short of breathe. I tried using my inhaler. didn't seem to help. But eventually, while I was at home I got my heart rate to go down and felt better... fast forward to college years... (All in between the years this happened on and off) I was playing dodge ball one night on campus and of course it was very extensive running and playing. My heart couldn't stop racing, felt short of breathe, dizzy felt like I could pass out, I did walk with my friends back to the dorm. I drank water. I was in my dorm room by myself that night, the symptoms didn't get better, actually worse. Luckily, no idea how, I was able to walk down the dorm to a friends room and tell them I can't breathe, I was crying, sweating. By the grace of God their was an ambulance already on campus for another call!!! so she got them to come upstairs to my dorm and I kept fainting in and out, the paramedics knew i couldn't breathe and knew my heart rate was high, so I taken on ambulance to hospital. Mind you, I was alone! my parents, sisters all lived 2 hours away :(. I'll always remember this entire ordeal. So many doctors, nurses, techs doing ekgs labs, etc. One nurse, in particular held my hand the entire time because I was crying in tears because my heart beat wouldn't go down and i couldn't breathe (they put medicine through my veins and everything) 250 beats per minute at age 18, (I think that was my age?) . But hours went by they got it down and the next morning a cardiologist came in to talk to me about WPW.
1st ablation in the hospital was so scary, I was in surgery for 8 hours. They had to use the defibrillator during operation, my heart wasn't strong. My family did get to come to see me that morning before the procedure, since the college was able to contact them with what happened.
In that year I had to have 3 heart ablations because my rhythm wouldn't go down. It was the scariest thing in my life! :/. Didn't know this was a thing.
BUT years later, 30 now, doing good! :) 3 kids, married. I try to watch my caffeine intake because that can make my heart rate go up and I don't want that happening again!
More people need to be aware of this because it's so scary!
I was diagnosed with WPW in 1990 when I was 19 and in the US Navy. I passed out while marching with my company back to our barracks after our first day of training. While testing my heart, it happened again and I passed out on the operating table. The doctors said my heart was going 215bpm when I passed out. I was told that this condition was corrected by open heart surgery at that time, but I was given the option to be a guinea pig for civilian doctors at UCSD for an a then experimental procedure (ablation). I had it done twice at that time. The procedures corrected the problem enough that the WPW it wasn't life threatening and enough that I could stay in the Navy... but I still had it.. Now, here I am today... 50 years old... and about to have another heart ablation this Friday. #KeepingMyFingersCrossed
Laura, thank you for sharing your story.
Thanks for posting this video. It’s delightful to hear from someone who has/had WPW. I was diagnosed 2 years ago through a random ECG. After follow up tests (stress test, Holter test), the electrophysiologist said I was asymptomatic.
Thanks for sharing your story Laura. I almost died at 2 weeks old in 1973, was incredibly lucky to get pioneering surgery. I have had ablation twice as an adult but still have symptoms. At 47, with two wonderful teenage kids, I'm just glad to be alive and enjoying life.
I think this video will be so useful to others. Well done for sitting down and filming it!
Thank you Sian
Gosh, what a lot to go through at such a young age. It's amazing what can be done - I'm so glad the surgery worked and everything is ok now. I'm sure lots of people will find this super-helpful as it's so reassuring to hear the experiences of other people who have been through it.
Thank you I really hope it can put parents at ease knowing that there is another side as that's so hard to see at the time isn't it? X
thank you for making this video! i was diagnosed with wpw november just gone and this has really put my mind at ease
Fine story. Thank you for sharing your experience.
Well done for doing this lovely. I bet this will help others so much. X
Thank you lovely xx
as someone who first encountered this in 2009, as a patient, the astounding amount of consumer friendly info available now is astounding and fantastic!
Thanks for posting your story, I jut got diagnosed with wpw yesterday so it was quite a shocker
Hi. I’m 23 yo. I just got diagnosed WPW actually this month. Always feel palpitations and recently I experienced chest pain.
Thankyouu for sharing your experienced in WPW. I hope I will survive this too. 🙏🏻
I was diagnosed with this yesterday :( I’ve experienced symptoms but always thought it was just from daily activities being a mom and all. I’ve been having severe chest pains and I’m having “anxiety feelings” I feel like my chest is being crushed, I’ve been dizzy as well very very often. My dr took it as acid reflux Wich I knew the pain was different from acid reflux. I am seeing a cardiologist trmw and I am freaking out Because I don’t know what to expect. Especially having little babies at home. Please pray for me ! Thank you for your story I really appreciate it 😀
I hope it all went well
Same here
Good luck and stay strong! Not sure where you are in the world, but doctors can now do miracles. I have had amazing care from the NHS in the UK, had 2 ablations, good meds, and a brilliant consultant. Hope you get the same.
@@ElleSteer My ablation after that 11 week ago but still have little fluttering or skipping? Doctor tell ablation full sucsessfull will this problems change pls reply? This is heart healing process ? Reply
My daughter had 2 EKGs say short PR interval. Dr said WPW syndrome can be the reason for it. She has to see cardiologist. We don’t know what to expect next. She goes tomorrow. I don’t know what they will do at first visit ! Really scary because this is something dry confusing looking it up and all I can see is that it might cause bad problems and need for pacemaker later in life and possibly dealth. So it sucks that’s all I can understand about this. Any info that could help me understand or prepare us for what’s next will be awesome. Thanks
Thanks for sharing, I'm just newly diagnosed with WPW at 42,I'm in south Africa, waiting on my procedure.
Growing up it was really difficult to talk to people about how I felt cause I would get heart palpitations so often I thought and was told I had nothing even in moments when I felt so scared that I was grabbing my chest out of fear. Then one day in my sophomore year, I had to go to the hospital cause my heart rate spiked and I was turning pale. I had the procedure done and it was unsuccessful cause I was the un-lucky 10% and that’s when I found out I have WPW and PVC besides my SVT and since then I’ve taken medication but the fear and panic attacks linger so I’m posting this to hope that there is anyone who shares my story.
I dont share it. Ut my terror and fear from svt, ectopic stuff and plaps has destroyed my life... talk to me.. im scared,, poor you
Thank you for sharing 😊
i just found this searching you tube. Thanks for writing this. My daughter Madison was born in January of '85, so just a little younger than you. She had one attack of WPW tachycardia when she was about six weeks old. We had no idea of the WPW condition, and she had no symptoms of anything before the attack. We took her to Childrens Hospital Los Angeles, and they very fortunately had a baby heart specialist on duty when we came in. The initial treatment to get the heart to slow down to normal was to smother the baby with a bag of ice, until the heart slowed down. This was to activate what I think is called diving seal reflex, which is maybe something like a hibernation instinct. I think there would be better ways to do it if she had been older, but the bag of ice worked for her. My wife and I got ushered out of the ER room before this happened. It was very scary for us.
She ended up staying in a nicu on a heart monitor for three days, and we were mostly allowed to stay with her in the room. After the three days of tests and observation, she was put on digoxin drops, and she stayed on that for a couple years or so. She never had the dose upped and essentially just grew out of it, and I believe the WPW just healed as she grew. She's never had another incident of the tachycardia.
I could talk about this a lot more, it was a shocking incident. But I'll close with this. When we left to go to the hospital, we had a pot of mushroom soup on the stove on low. It stayed there for three days till we came home.
Thank you so much!
I just started a Facebook group Wolff-Parkinson-White Syndrome (WPW). Hopefully we can share stories.
This is so rare, its hard to find people.
Anyway thank you.
Excellent video.
What's the face book group called
@@dakotagascon7141 Wolff-Parkinson-White-Syndrome (WPW).
This will help me and other really thanks 🙏
When I was a child I had the same experience as you described in the video. At the time, I knew it wasn’t quite right however I never really felt scared for my life for some reason. Like you said, you kinda get used to it..it kinda became my normal. Doctors at that couldn’t find what was wrong. Several years later as a adult I became a paramedic and did a EKG on myself and saw WPW and took it to my doctor to confirm and sure enough I had it. Explained all the episodes I had as a child. It’s been nearly 10 years now since my last episode. I’m more active now that I ever was and still no symptoms. Doctors currently for me didn’t recommend any ablation as of right now however proceed with it if I started to have symptoms again.
Thanks for sharing. I was 11-12 when my episodes first started. In the beginning they only lasted for 10-15 minutes, but my last episode lasted 2 hours and went up to 298 bpm. I had lost a lot of weight over the course of time waiting to see if surgery was going to be needed. By the end the doctors knew things were going to get worse for my body and brain (due to improper oxygen intake) if something wasn’t done. So, 1992 was the year for my open heart surgery here in Canada. 8 hours long and 3 days in ICU, at 12 years old. I get “fluttering” still from time to time, they have told me no more coffee about 7 years ago, although I have just been able to quite drinking it just recently. The other issue that I developed, due to mainly the surgery, was Tietz Syndrome. This they believe is from my chest bone being put in two to get to my heart. TS is SOOOO painful. But if you don’t have to undergo full blown open heart now, TS will most likely not be a big possibility to get.
i’ve beaten wpw and everyone in the comments who have this you’ll get thru!
Yes ive beaten it as well. I just got the ablation done yesterday.
How was it ? Thank god you beat it! My surgery is coming up and I’m terrified we’re you awake during procedure?
@@aubrycook6132 it was scary since it was my second time but i was fully asleep and it went well!! i'm sure yours will go right goodluck
Thanks for sharing. Got diagnosed WPW when I was 15/16yo after feeling sick during a flight lesson. 2 unsuccessful exploration surgery because too close. Surgeon said that we can live like any other with this but it finished my dream of being a fighter pilot. I had really short episode of tachycardia, less than 15 seconds.
Today I still fly, not as a fighter/airline pilot but for my passion !
Take care
Your ablation was fully success?
@@user-jk7cp7iw1c nope. Too close of hearth « border » so the surgeon decided to let it as it was saying that there is no critical reason to live with it
@@Cleanwing My ablation after that 11 week ago but still have little fluttering or skipping? Doctor tell ablation full sucsessfull will this problems change pls reply? This is heart healing process ? Reply
I had an SVT heart ablation November 2021 (last month) to cue my Wolff Parkinson white syndrome! I had my ablation at the John Radcliffe hospital and the doctors there were incredible with me as I was very nervous. The symptoms are awful, I had the worst palpitations but my ablation had worked wonders. Amazing what they can do now! I had two incisions in my groin and you can barely see the scars. I stayed one night in hospital as I was the last surgery of the day however people who were earlier on in the day went home the same day! I felt sore and had chest pain for a few days after but the recovery was so fast!
I was diagnosed with wpw at 16, 4 years ago, but had symptoms starting as young as 6. They went away and when I turned 16 I started getting them again. I had the procedure done and I’ve been all good since.
My ablation after that 11 week ago but still have little fluttering or skipping? Doctor tell ablation full sucsessfull will this problems change pls reply? This is heart healing process ? Reply
I was diagnosed when I was 10. I remember having some tachycardia episodes before that, but for some reason I didn't tell my parents..I guess I was scared. Until the day I fainted for a few seconds during one of the palpitations, and my mom took me to a hospital. I used medications for some years before the ablation with 16. I'm 28 now, and haven't had any symptoms since then, even when I exercise.
For anyone who was just diagnosed, know that everything will be fine! You can have a very normal life.
Nothing is fine unless one has EP study it’s about interval only then one knows if it will be fine so before you advise know what you are talking about
I was diagnosed with this syndrome and I don't expect because I always live a normal life until I got a stress for not sleeping well and got caffeine and I got the palpitations episode and shortness of breath.
My youngest child was diagnosed with WPW at 6 months of age. We had to wait until a reasonable age for him to have surgery. We are sitting in recovery as I speak and everything has went well this far. He just tuned 5 last month. Definitely scary as a parent, I couldn't imagine how scary it is for the patient.
I had my first episode of SVT at age 5 i I was playing with barbie dolls and never played with them again. I was diagnosed with WPW when I was pregnant with my oldest daughter. I’ve been in and out of hospital all my childhood and adulthood , I would cry and think i was stupid for going to the hospital every time because they never could catch it.
Did you have an issue with exercise afterwards? My daughter is being monitored at the moment for a possible Delta Wave.
My ablation after that 11 week ago but still have little fluttering or skipping? Doctor tell ablation full sucsessfull will this problems change pls reply? This is heart healing process ? Reply
Do you think it can affect your hair texture ?
I have Wpw and Ebsteins Anomaly. Not the greatest combination, but I hope to have a surgery that helps my Wpw since it causes me the most trouble
My daughter had 2 EKGs say short PR interval. Dr said WPW syndrome can be the reason for it. She has to see cardiologist. We don’t know what to expect next. She goes tomorrow. I don’t know what they will do at first visit ! Really scary because this is something dry confusing looking it up and all I can see is that it might cause bad problems and need for pacemaker later in life and possibly dealth. So it sucks that’s all I can understand about this. Any info that could help me understand or prepare us for what’s next will be awesome. Thanks
Hi, I do have the same issue wpw syndrome, but my hear bit episode is about 3 to 4 years , it's came in 2 or 4 years, what did your body reacting when you had it, were you able to see blur vision? Or memory loss something ? How do you feel after Cather ablation? Please let me know your experiences
The video explains it all but as I was a child I don’t remember some details like vision.
I’m 29 weeks pregnant and I just got diagnosed with wpw. I’m in the hospital now and they are helping me through it with beta blockers.
Mallory Paige hope ur okay
Mallory Paige I was just wondering how your pregnancy went and how you gave birth i have wpw and wondering if I could have kids
I have wpw when I was in stv 280 Beata blockers are like saving🥺
Beta blockers wiped me out, but they got me through to surgery.
@@Nahyelee I actually had an ablation during my second pregnancy. When they went in they found it wasn’t wpw but ventricular tachycardia. I can imagine WPW would be better and you can totally have kids. VT is dangerous and I still had 2 kids. ♥️
I’ve had 2 ablations. Both failed due to being too close to the node. I was diagnosed 20 years ago when I was 14- when my heart rate got up over 300 beats per minute (at least that’s as high as the school nurse could count). Had the first ablation attempt at 15 years old. My second attempt, I was 31. I am nervous about living with this for the rest of my life. And I would love to have kids someday soon but I am not sure it’s possible.
I’m sorry to hear your experience and hope you can get some help.
@@ElleSteer My ablation after that 11 week ago but still have little fluttering or skipping? Doctor tell ablation full sucsessfull will this problems change pls reply? This is heart healing process ? Reply
I was diagnosed with this , all of this started like a year ago at 2 in the morning I woke up feeling my heart beating so fast , never had this happen to me , it lasted for about 15 minutes,. I ignored it ,. Went back to sleep , than the following days I been feeling light headed and dizzyness like I was gonna faint at work , but than in 2 different separate days my heart beated fast but it didn't go on for 15 minutes, it was more like 2 to 3 minutes, the third time around it's when I went to the hospital, I found out than I had wpws
I am 14 and i have WPW too, the diagnose was before 2 years, but with 8 years i had the first "attact", at this time i often had panic because i had fear because i thought i will die, my parents never were with me when i had my "attacts". when i was 12 my mum went the first time to the doctor with me and he diagnosed WPW. Since last year it is getting worse, my heart rate goes up to 255bpm and i have very very often "attacts", 2 times i passed out. My ablation is in 5 months.
Hi How did the ablation go plz respond thanks
I’m 26 and have had panic attacks since I was 5... and I recently got diagnosed when trying to get on birth control recommended by my endocrinologist. Now I wonder if they were panic attacks or just symptoms of wpw.
Yes it does sound like these, I hope you manage to get treatment
I’m 37 and I got diagnose with this problem... it’s very difficult knowing you have this and felling I’ll from it
It is I’m sorry you have this
I have a son, he is 2 months old now. In the 3rd day of his birth he was diagnosed with high bpm (240-260). And up until 6th day of his birth he had episodes, until the doctors found out which medicine has impact on stoping tachychardia. We are still worried but I thank you or sharing your story, now I have hope that my son will jave no issues in the future (if its Gods will). Anyway, can you do sports after the intervention?
I hope that you are able to get some good news, yes after my ablation I was not forbid doing anything physical at all.
Thank you for this video I'm 12 years old and one year ago I had cardiac ablation on my heart because I had wpw. Love you ❤
Sophia Mansell same
2 of my siblings have it and I have been having the symptoms a lot!! Recently the only one I don’t have is fainting but I have an appointment on the 26 to figure out what is going on hopefully its not wpw but knowing that 2 of my siblings have it is worrying
I was diagnosed with wpw in 2019 had surgery because my heart rate would reach 162 just from laughing and I tried to join the merchant seaman this year but couldn’t because my symptoms was returning
How do you know that your problem is back? I had ablation of my wpw syndrome in 2020. After then when I feel my chest little bit pain then do a ECG for there are happening any problem By the grace of God doctor don’t found any problem. But it sometimes happened with me I afraid about it .As I am passing this time now. I have very bad habit after my wpw ablation I still smoking i always try to quit it and fighting with me.
I have wpw and I was searching for a video like this and I found it
Hiyori me too!
I hope you're doing ok
@@everything5066 I completely forgot about this comment- also yes I’m doing much better thank you for asking❤️
@@nea_ami3343 its feels so good to know 🤗❤
Hello, I'm 14 and I have wpw too but I haven't experienced heart palpitations yet. Do you think there's still a chance of me dying of sudden death? Also, when you had your surgery, were you awake? Thank you so much for your video 😊
Hi Isabelle I'm sorry you have it too. I think it is very rare to die of sudden death especially these days but do see your doctor if you are worried. The surgery was done under general anaesthetic so I was totally asleep.
Ok, thank you!!
I have wpw too! And that is my worst fear!
Definitely talk to your Doctor about your concerns I totally understand and they will too.
Hey I'm 14 too and experienced palpitations many times from my experience it only triggers when i slam my chess into something or if I jump.
I know this video is old, but I have recently started getting ridiculously dizzy, my body goes tingly and I can’t see well, and I also feel my heart beating so strong in my body, I fainted the other day and hit my head…. It truly felt like a heart attack. How can I ask my doctor to look for this?
Ask for a cardiologist an to run a ecg I just got diagnosed with it had similar symptoms as u does feel like a heart attack my heart rate spikes still about it have surgery soon for it 🤞🏽
I Have wpw too . I have a question WPW do extrasystole ? I Have skip heart beat . My doctor says wpw not make a extrasyatole.
Hi I’m sorry I can’t give medical advice as I’m not a doctor this is just my experience and I don’t know I’m afraid.
@@ElleSteer hi laura Im back I have a question for u . People can feel wpw heart beat ? I touching my left side of my chest (left side my heart) when Im touch it Im feeling weirds heart beats İts like electrical / Shaking heart beat
Thanks for sharing! I'm going to have an ablation procedure soon and I can't wait to be done with SVT and WPW
Good luck I hope it goes well.
Your ablation was sucsess plz reply
@@noncopyrightsong8848 Yes it was!! And recovery was pretty smooth and fast if you were wondering :)
@@faithann9293 👍
@@faithann9293 hi how long did it take while u where doing the procedure I heard they keep u awake
Was it pretty painful i heard it’s like 95% successful but the other 5% they can mess it up pole ur heart or something I don’t really know what to do I’m trying to be a professional athlete and I don’t want to have this problem
i have this but not that bad but im having a presidure to fix it
I had an ablation mine failed and I need it doing again unfortunately it's horrid
I had 3 ablations before it worked!
You mean , it's not necessary to have successfully first time , I have wpw but I am still not ready for ablation . I just want suggestion from actual patients like you
How did you know it failed? Did you have symptoms again? I had my ablation 7 years ago and everything went well but since november this year I have a fast heart beat (tachycardia) ... :-(
I had the same thing! I also had an ablation when I was 9/10 at Birmingham's children's hospital I was born 1985 and my consultant was Dr giavanni.
I have WPWSS. People genuinely think I'm having a heart attack when it happens to me and I always have to reassure them that it'll pass and that it's just annoying lol
Do you feel anything before your heart speeds up ?
@@Rob-dh3rp yes, it usually feels like it's slowing down believe it or not. At least my vision and movement does.
@@alanblyth9730 your vision? Like derealization?
Is WPW bad for corona virus if you had the ablation?
I’m sorry I have no idea, definitely a question for your doctor.
So what other symptoms other than fast heart rate may one feel?
Some people have no symptoms at all
I get anxiety attacks or pass out
My ecg reports shows that..my pr interval is 102...could this mean I have wpw ?
Normally your ECG will show any abnormalities with your heart. I'd ask your doctor for a review of your ECG to confirm this.
@@banan_9672 thank you for your response ❤️
I’d definitely ask your doctor
Short PR and Wide QRS indicates WPW.
I had it when I was born I didn’t have a good chance of surviving but I did my highest heart rate was so close to the highest in history the highest in history was 370 mine was 340 I got surgery a few years ago so I’m ok now!
I had the ablation and unfortunately it didn't succeed the extra pathway was so close the node there was a huge risk so doctors stopped their attempts ...that was like 7 years ago when I was 13 year old , i ve spent these 7 years suffering from palpitations and tachycardies of 220 beats per minute , I am gonna have the ablation again these coming days i hope it will work ...So haaaaaaappy for u .
Sorry it didn’t work for you, I wish you all the success this time.
thank you
Same to me. My first ablation was on july, but twoo weeks ago i had another crisis, around 270 bpm. Each episodes, i think i am near to die. It's hard this condition, we're always dancing with the death... My second ablation is near, and i hope this time will work... So, wpw people, keep beating. We can stop this nigthmare.
😥😥
Good luck. Let me know dear. I do have same issue but I am not ready for ablation
I am 15 and last year I was wrongly diagnosed with Exercise induced asthma and was put on 2 different inhalers come to find out I have Wolff Parkasin White Syndrom. I will be getting an ablation soon.
This is exactly what happened to me! They found the WPW on accident and now I’m getting an ablation next week! It’s nice to know I’m not the only one who got misdiagnosed
@@devynp787 Yes you are not alone. Good luck with your ablation!
Hi did u get it done how was it
@@massimocampanella5228 I did get it done and it went smoothly and it was a success
@@nevaehlowder5676 thanks , how was the procedure where u asleep and how was recovery
I also have it. It’s getting diagnosed right now
Are u gonna get ablation
@@massimocampanella5228 i might
Can this increase your blood pressure
Check with your doctor for sure
I see you commenting a lot on wpw related videos..i hope you're well :)
i have wpw what should I do
Go and see your doctor for sure.
I have this and my ablation is next month
How was it? I hope you are doing well
@@alondratellez1364 It was fine, alot less scary than I thought. I am doing well now thanks for asking.
@@lydiahorrex9353 Hi, I also have WPW- I am wondering how you are feeling?
God bless- I hope you are well.
@@lydiahorrex9353 yaya! This is great news sending you blessings
Now i see im not the only one on yt that has it
My also failed ..
Ja też mam od urodzenia wpw syndrom
Coming here after lamarcus Aldridge retired
I have wpw and waiting to have an ablation my heart rate goes up to 250bpm
It's so hard to remember the details from when I was a child but it's so scary isn't it? I hope the ablation comes soon for you x
Laura Steer // Little Ladies Big World Thank You
I had my ablation on Friday cardiologist said he was successful
That’s great news
I am waiting too! I already had one, but failed! Wish me luck
Last week I fainted due to my WPW it was very scary
This has happened to me due to my WPW. Normally for me it happens when I don't eat enough in a day and my blood pressure is out of wack. Lightheadedness is a regular thing for me. Unfortunate there's no surefire way to cure this for it is very scary for everyone involved. Can't tell you how many times my significant other has had to carry me because of my fainting episodes. Normally happens for me once or twice a year. Godspeed to you, girl.
@@banan_9672 thanks
Sorry to hear that hope you are well
I had that and TOF
Hi i am wpw patient plz help me
Hello, do you know where the disease can be located in the patient's DNA code?
I have the wpw syndrome too .........
I'm 15 with wpw and had 2 oblations when I was 11 and 13 but it hasn't gone away seems to be getting worse
If you have a child or baby that has wpw try cheese 😅 that's what my mom gave me when I was little and woul have episodes
i am just a kid with this im to young to know this i shouldnt have searched this up
Please talk to your parents or doctor and they can help
I have WPW I hate it and I’m so young I pray things get better and I can have kids 💔💔
Did you have ablation
@@noncopyrightsong8848 yes I got a ablation done July of last year
@@jassrenee how many ablations you have done
@@jassrenee now all the difficulties are gone
@@noncopyrightsong8848 just one so now I don’t have shortness of breath anymore and I don’t feel light headed anymore the only thing is sometimes I do have chest pain and sometimes my heart beats fast out of nowhere
The ablation is a terrifying experience because you are awake and they flood the body with something that replicates the tachycardia episodes - you see, hear, and feel everything! After my procedure I was cocky, thought I was done with the condition. Unfortunately after about a year the symptoms have returned with worse episodes than before and I am undergoing more tests. (It’s not always a “happily ever after and god bless the NHS” story.)
i was 12 when i had mine done and i was put under, luck for me it fixed the issue, but as a kid i would get insane pounding heart rates and would always be tired etc