PAUSE for The GFPD on October 5th!
ฝัง
- เผยแพร่เมื่อ 3 ต.ค. 2024
- Please participate! thegfpd.org/pa...
#PauseforTheGFPD is our worldwide awareness day for Peroxisomal Disorders.
• Peroxisomal disorders are rare, genetic disorders that are usually terminal in childhood.
• Peroxisomes are part of the cell, which affects every system in your body. Patients withperoxisomal disorders typically experience deafness, blindness, global developmental delays, adrenal insufficiency, neurological issues, and feeding issues.
More information: thegfpd.org/pe....
#GFPD #PBDZSD #RareDiseaseAwareness #RareDisease #FindACure
#GFPDisFamily #GFPDisResearch #GFPDisHope #ZellwegerSyndrome #ZellwegerSpectrumDisorder #PeroxisomalDisorder #MedicallyComplexKids #DBPD #AMACRD #acox #PauseForTheGFPD #ShareYourRare #showyourstripes
