Why I’ve Been Missing: Life & Health Update
ฝัง
- เผยแพร่เมื่อ 10 ก.ย. 2024
- A life and health update and the reason why I have been missing from TH-cam. Life happened and my health hasn’t been great. It’s just a bump in the road. I’ve missed you all and really plan on trying to be more present here.
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📸 On Instagram: elainesautoimmuneadventure
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I“m curious about the RA testing. Since I am recently diagnosed with RA I’m still learning about it and wouldnlove to hear more from your perspective. I’m so sorry you have had a hard month, and hope you start to feel better and they find your perfect medical cocktail 🙏💕
Hi Justine! Thanks for letting me know you would like to learn more about Vectra. I’ll definitely put something together about it. I’ve always found it helpful so I’d love to share it and maybe it can help in your journey. ❤️ Thank you for the encouragement. I’m sending extra strength back your way.
Nice to hear you're doing ok. Being at work must be so challenging again!
Thanks, Julie. I’ve learned that I much prefer my comfy clothes over “work clothes”. 😂
Tigger and I send you ❤️. We don’t have the Vectra test in Oz, that I know of so it would be good to hear about it. Hope all is going better now. And i know what you mean about social media. Been sick most of this past week with an end of winter cold 🥶 that knocked me (tested myself for covid and negative) but I didn’t want to let people know about it so haven’t mentioned it on social media. Good to see you back
I’m so sorry you have been sick. 😞 Hope you are feeling a bit better now. I’m glad you have Tigger to keep you company…they are so good at knowing when we aren’t feeling great. ❤️ I am in the midst of uploading a Vectra vid now. You’re right, it’s not available in Oz but hopefully sometime soon they can get it to those outside of the USA. 🤞🏼
Glad to see you back have missed you♥️👍🏼🌻🌻🌻
Awe, thank you! I’ve missed you all too! ❤️
Thank you for struggling through this video! I learned quite a lot!
I’m so glad. Thank you for watching and commenting. I’m happy you’re here.
YOU are the best! ❤️
🥰 Awe, thank you! I’m truly blessed to have you in my life. ❤️
I'm sorry to hear that you've been struggling, but I'm glad you are okay. Hopefully everything will be sorted out soon. Having the right medication is so important. It's something I struggle with as well, but being undiagnosed makes that hard - they can't give me anything except general stuff like anti-inflammatory drugs and pain meds. It's frustrating because we're treating the symptoms, not the cause... Thank goodness for supplements, those help me a lot.
Being undiagnosed is so hard. I lived undiagnosed for a year with a GI disease when I was 20. It truly is a frustrating spot…I totally understand how you feel. I’m glad you are finding some help for the symptoms but I am hoping clarity for your medical team that they can give more answers soon. ❤️ Thank you for your comment. I met with my doctor and he agreed it’s time to go back to something I was using before. I’m thankful this is just a bump in my road. Hugs, Warrior!
You complain the least of anyone I know. Great video ❤️
🥰 Thank you, Debbie!
Really hope there’s been some improvement for you xx
Thanks, Jennifer! Since this video I had a medication change and we are still figuring stability out but I am really blessed to have a great medical team who are truly relentless when it comes to my care. I know others aren’t blessed with that. Hope you doing well in this new year! ❤️
Do you think that the Evusheld has contributed to your occipital neuralgia and fatigue? I’m sorry to hear this!
I’m sorry for my delay in responding. The Evusheld didn’t. I’ve was diagnosed with occipital neuralgia about 5 years ago (long before the pandemic) and unfortunately the fatigue is a huge part of my autoimmune disease symptoms. The Evusheld actually decreased my joint pain following the shots. It was weird but an unexpected surprise. I did learn that my iron infusion caused a flare so part of what I was feeling was a side effect of the iron. I hadn’t experienced that before. It’s such a catch 22…need iron to feel better but the iron infusion caused a flare. 🤦🏻♀️ I’ve started new (and old because it’s a return) medicine so hopefully it kicks in soon. Hope you are doing well! ❤️
@@ElainesAutoimmuneAdventure just had my first iron infusions last week and it flares my asthma/allergy and now occipital neuralgia symptoms. Although it could also be change of season here contributing. Impossible to sort out what flares what when there’s so many overlapping troubles. Not sure how I’m gonna make it thru 4 more infusions. 😿 I don’t have an autoimmune diagnosis (yet) but lots of things pointing that way. Solidarity!