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I love that swagger comment...I'm going to borrow that if you don't mind! I'm going back now and reading the older blogs I haven't read yet so I don't know if you'll see this.

Fibromyalgia and lupus, for me, came from hypothyroidism, if the thyroid isn't optimized I suffer horribly.. Finding a Dr that knows anything about thyroid is very hard now, but when I find one I will insist on thyroid being optimal.. no point in this horrible pain.. for anyone..

Hi

Congratulations!! ❤

I m sad! I miss you already! You did a great job and I know what that must have cost you and I am amazed at your preserverance! My favorite? You had me on the edge of my seat with that scurvy mishap. Would you keep us posted? Thank you.

Thanks so much for all you share.😁

👍🏻👍🏻👍🏻👍🏻congratulations! I most enjoy the medical content.

Hello, anybody has idea about rituximab's effect on pemphigus vulgaris ??? I going to get first does 500 mg next week

🎃🫶🏻🍁🥳great job we your community appreciate you ❤

Thank you, Elaine. I really appreciated your medical appointment videos as I'm always looking for informative content to share on my scleroderma awareness page. Halloween is practically over here in Australia...I'm guessing about half the population celebrates. Thank you again & Happy Halloween! 🎃👻🎃👻

YAY! You did it 👏🏻 The whole month, Congrats!! 😃

Wednesday is so beautiful 😻 She has really grown 🐈‍⬛ Does she sleep with you guys? Have a favorite toy, and place to nap?

I love all your adventures thank you for the fun October Halloween countdown 🌻🎃🍁

I appreciate your attitude of being upbeat and having an adventure.I am still nervous and scared from being fairly newly diagnosed but sick for years before I had answers. So, thank you!

hugs.. auto immune fighter here too :)

Thank you for giving back to the community ❤

I said no to the mindful and demure also, 😂😂😂😂

Dear Elaine, in my thoughts and heart with you. 🙏🏽🕯️With regards from the Netherlands, Lily❤

It took five and a half years of testing to get my diagnosis. When I got it I had almost given up trying to find it - that's how I felt about it - *I* had to solve it myself, because the medical professionals never had the time to look at the whole picture (I had so many different things going on and they tended to focus on just one or two out of my 10+ symptoms). So before the appointment that lead to my diagnosis, I talked to my doctor on the phone and was like, "there is one diagnosis left that I think could explain all my symptoms, it's a diagnosis of exclusion, and I think we've done enough of that to finally have a look at it". He made the time for me (I got 2 whole hours! Usually it's just 45 minutes) and we went through it, and sure enough, I have it. I have ME, I have Myalgic Encephalomyelitis. I had suspected having it for quite a while, but because it is a diagnosis of exclusion, it wasn't possible to get before I had went through the whole chain of testing for other things. And had I not pushed for it, I still wouldn't have an answer - most doctors know so little about it, they wouldn't even consider it. Getting it felt unreal, I had gotten so used to not knowing, having an answer felt like it was wrong somehow. I was so used to getting negatives and having to reset and start over. I felt hollow, I felt confused, I felt like a fake. Totally dumb in hindsight, but that's how I felt. Getting my ME diagnosis didn't get me access to anything at all the day I got it. Just a word for what I have. Like I said, most doctors know very little about ME and there are no specialists. I went home, did my own research, found a medicine I wanted to try, and called and asked for it. Now here I am two and a half years later, still on that medication and I feel so much better. It makes me feel so sad that this is how things are for people who have ME in my country. If I hadn't solved my medical mystery, I wouldn't have a diagnosis. If I hadn't done my own research and asked for my medication I wouldn't feel better today. It horrifies me that people like me, who are not as driven as I am, could be where I would have been if I hadn't been doing my own research - without answers and without treatment. It's really not okay at all... I manage my own disease. I am my own doctor. I have no medical education except what I have learned myself. It shouldn't be like that. People like me should have access to professionals who know how to help us.

Ahoy matey! Who could have guessed? Its not surprising that you handle this with humor! Are all of the newish symptoms related to a vitamin c problem? Thank goodness you have a good team on your side. Please keep us updated...and take care of yourself.

😂

Oh my goodness Elaine, that is so surprising! My first thought was, I hope it’s not because your body is not absorbing it. Praying they get the answer quickly. I have to take high doses of vitamin D when mine gets low, and when my geographic tongue is messed up, I know I’m sick. It’s like a thermometer telling me something is wrong. So weird 👅 Praying they get your vitamin C up and you to feeling like yourself again soon gf!! 🫶🏻

You are very courageous though 😊

Oh my gosh! That's out of deep left field 😮 Who would have ever thought?!? Hope they get it sorted quickly! 🙏🙏🙏 Arrrgh matey!

Who else didn’t know this was even possible in 2024? I seriously thought scurvy was something that only sailors in the 1800s got.

Shocker I’m sure for everyone including your rheumatologist, praying you will absorb your script 🍊🍊🍊🍊🥬🥝🍈

Wow, that’s so interesting. I hope they get you sorted fast!

I'm anemic due to Iron malabsorption and have been getting infusions for years. It seems like it would have to be an absorption issue. Hopefully, they gave you a liposomal Vitamin C.

Hi Elaine...so sorry that you have found out that you have yet another health thing to deal with. I guess the good thing is that someone caught it and it can be treated. I know you will go foreward with the courage and cheerfulness that you have shown thus far. I will include you in my prayers.

Yes, with two autoimmune diseases and multiple other diagnoses related to those diseases, I always have this cloud over my head, wondering when another shoe is going to drop and how bad is it going to be.

Hi sister my sister is having autoimmune disease and sge took 4 dose of rituximab...how much time remission u had and how many rituximab u... took...please reply from india😢

I can relate to being overwhelmed with one more thing. 🫶🏻🙏

💜

I’m sorry you had to go through that, along with everything else you have to deal with. That man is in the wrong profession it should be removed. Still, you bounce right back with your wonderful attitude. Good for you. On a different note, can you share how you get through an MRI, especially when the mask has to be used? I’m also claustrophobic and I have to take a sedative to get through it and practically asleep. I know this is not ideal so if you have any hints, I would appreciate hearing them.

What a pity you happened to encounter that nit-picking arsehole, Elaine... the woman seriously needs an attitude adjustment!

I had one of those days yesterday, when my test cancel due to radiology family emergency the guy on the phone was so rude as it was my fault to reschedule. Never mind now it is put off for another 2 weeks and I had prepared and fasted for testing.

I'm so sorry Elaine that you ran into one of THOSE types. Why someone like that would work around sick people is a mystery. I think I mentioned that I have been an R.N. for many years. Well after covid put me in a wheelchair I had to take the special bus to a test...at the same hospital I had worked at for 20 years. The driver wheeled me to the sign in desk and walked away. He was almost at the door. I was right in front of the receptionist. She kind of leaned around me and yelled at the bus driver "Hey! Can she sign her name?" I was dressed decently and had combed my hair etc. I felt my face burn and could not speak as I was trying not to cry. I didn't say anything but wish I had for the sake of the next person she would humiliate. I still think about this. The woman you ran into probably had poor self esteem and felt important when she was was rude. So anyway, go give Wednesday a cuddle and thank God for David and Wednesday!!

My rheumatologist makes it lighthearted too. He is terrific.

I can’t believe that. They chronically run late at every hospital appt here… they post it on a screen how late the drs are running. ❤

Hey Elaine, I’m sorry you had trouble with the appointments. . Yes my clinic I go to is hour away so I try to schedule my rheumatologist, Pulmonary tests , CT scan , and actual Pulmonologist dr appointment at same day. My doctors are good to work with scheduling on same day and if they see I’m gonna be late because they are running late they will call over to next appointment and tell them. The pulmonologist is usually the one running late so we make it last. That was mean of them to say you was late at 9:01🤨.

Bat girl ❤

Bat woman Wednesday 🐈‍⬛😂😍

So cute!

I want to talk about growing your TH-cam channel. Can you give me some time. Please give me some time. Check your email inbox. I have sent you email

Thank you

I still don't know what oogie boogie is ...but it is a pure joy to watch! can you imagine how much fun it would be to be in that parade! You did such a great job filming..I almost felt like I was there! I'm going to miss vlogober as checking out what you have to say every day made my day. I had let my son set up my name and he made me a Dr. Pepper can! But I am Rebecca ,newly diagnosed with scleroderma and rheumatoid arthritis but sick for probably 30 years. I should be an old hand at this but am just now feeling my way around this...started cell cept a few weeks ago and you have been like a guiding light! So thanks sgain!

My favorite the headless horseman , scared me so much when I was a kid🎃😱

I recently moved to Albuquerque from Ohio and I am not in favor of my rheumatologist, nut have been nervous to look for another. I know i need to advocate for myself. Thanks for everything you share. It is helping me have more courage.

It is so exhausting 😢 and people have no idea …. Making plans - is damn near impossible.

Elaine...I guess I'm completely out of it. What is an oogie boogie bash? What is soaring???!! Well, anyway, it looked like you guys were having a lot of fun!