If you're wondering why I spend so much time with my arm on my head when I'm in bed, it's because it opens up my torso and seems to give my kidneys a little more room to "breathe" if you know what I mean. haha
Makes sense! I have reactive airways and asthma along with a very large chest and I sleep with my arms above my head all the time. Good thing I'm not super tall so there's still room for my feet when I scotch down the extra door for my arms 😂
I have had two liver transplants and end stage your liver is larger than an NFL regulation size football. Very painful so I feel your pain. I frequently kept my right arm above my head when trying to find a comfortable position. I hope you can get transplanted soon. You will feel so much better and have a new lease on life. Within 24 hours of my most recent transplant I felt like a completely different person. Before that I literally slept 20 hours a day. Sloths were my spirit animal! Even after transplant my autoimmune disease has attacked my latest liver so I have progressively started feeling that fatigue creep in. We just have to use our good days to be productive and really be patient with our bodies on the bad days and really focus on self care. So hard to do as a mom and when you have the desire to do so much! Keep up the fighting spirit! Every heard of the spoon theory? Look it up. Beyoncé has like 50 spoons where as people with chronic disease have maybe 10 tops and we use them up just trying to get ready for the day!
I loved seeing this! I know all too well the life with chronic pain..😔 You are a rockstar is all I can say!! The kitties are adorable!!! That cute little squeak 😍 I would love to see more of these, I know though you have so muxh on your plate so I understand if its not possible. Thank you for all you do, seriously. I love Sundays I look forward to them and even bought stickers to mark every sunday with Cindy. Thanks for making the world smile! Love ya 😘
Watched the video in its entirety!! Love your personality, seriously so enjoy your content and just your thought process!!! You speak like I think!!lol Please know that you are in my prayers and I do believe in healing!!! Stay strong and know that you are belong lifted up!!! Love your videos and your channel!!!❤️❤️❤️❤️❤️
I have a few chronic illnesses / pain / mental illness and I live by the spoon theory. We might all have 12 spoons for the day, but what costs you 1 spoon, might cost me 4. So what I do in the day has to be carefully planned so I don't run out but alas, I usually run out by 2pm and the rest of the day is so so painful.
I’ve lived with chronic pain for almost 10 years. Thank you for your perspective. Seems so obvious after hearing it. I needed to hear it! Thank you! 💜💜
I have been working from home since march, before COVID I had one day a week in my contract. We are still self isolating as I have Fibro & CRPS and I had cervical spine surgery in April as well so recovery has been tough without access to normal medical care. Thank you for sharing the truth about living with chronic illness and how hard it is to function normally. Healthy people find it hard to understand how debilitating it is to be fully exhausted and not just tired. I am finding since working from home full time I need to take a 3 hour break and sleep somewhere in my day, every day. I honestly don’t know how I will cope once we have to go back to the office full time. I’m dreading going back to normal life and having to travel & socialise now my body is used to this slower pace of life and napping when needed 😥
Nicole Fraser Nicole: I have CRPS too. It's in my left foot. I'm approaching my third year (the surgery that started it was 12/01/17). I'm always pleasantly surprised if I find someone with crps in the comments! how did yours start and where do you have it? how are you doing with it?
Diane S SAME!!! Terrible club to be in but nice to find another member ☺️ I have it in my left hand following carpal tunnel release surgery 17/04/2015. Well the first 3 years were the worst getting to use to not being able to use my hand and trying various treatments. I was lucky I was diagnosed early (within 10 days of surgery) so had access to pain specialist, physio & pain psychologist from the start. What was life changing for me was the ketamine infusions. My 3rd one in September 2018 worked and i was 100% pain free. I got full use of my hand back within 6 months 🙌🏻🙌🏻 I was pain free until August this year when it came back ...its not too bad but after being pain free it’s annoying mostly and my strength is going as I am not using it as much. I am on the list for another Ketamine infusion so its a waiting game. Are you able to use your foot? what treatments have you had success with?
Nicole Fraser I had a consult for ketamine but I haven't been able to commit yet - the process seems a bit scary to me - maybe if I found a doctor I was more comfortable with? I was diagnosed early in the process also and got nerve injections and lumbar injections... not super super life changing but the slow and steady progress I've made in PT is encouraging. My initial symptoms were completely life stopping for the first couple months. Medication helped a lot. I still am very limited with what I can do in a day but I am so thankful to be in a better place than I was 2 years ago. I am just incredibly thankful it hasn't got worse or spread... I'm encouraged to hear you found success with ketamine. Was there anything in particular that made it flare back up do you think? What state are you located in? Are you in Cindy's FB group - I'll keep an eye out for you there as well 🌸
@@dianeandbrad529 I am in Sydney Australia, got my date for my next infusion Monday 19th ...cannot wait. Today was very busy at work and i had to type a lot and my hand was up to a 5 i had forgotten was it was like to be in that much pain :-( I cant believe I suffered for 3.5 years with such intense pain its so crazy what we can endure when we have to. I am not sure if it was stress from work as we have been very busy or if it just wore off? When I got it done my pain specialist said 6 days, 6 months, 6 years everyone is different. Pray to all your gods for a miracle to go pain free as I have only seen a few in all my years. I was lucky i got 23 months :-) I prayed and got everyone I knew to pray and if they didn’t believe I asked them to keep me in their thoughts. I kept a very positive mindset and every day said “this is going to work i am going to hit pain free”. I also went to a shop that sells crystals and asked them for healing crystals for a medical procedure and held them as well during the infusion. Every little but helps. The infusion is not that bad its a small needle under the skin in the fat of your belly or legs. It’s only if they go too high too quickly you will get sick and have hallucinations - this happened the first time for me. Then they learnt how to increase it slowly over time with a max dose of 8mg (some people go to 16 or 32) I am very sensitive to all brain altering drugs, gabapentin, endone ...everything really. No i am not in her group ill pop over now. Hope this helps xx
Loving your day in the life. Makes me realize that just because I don't work outside of the home, due to chronic pain, I don't do anything. I do have a fun question for you...What are your favorite Nick Cage movies? I love him too! Gone in 60 Seconds is my all time face, but I like the ones he made with Disney too.
Kitty knows you needed a break. Chronic pain is hard. I’m now trying to recover from Covid and it really brings home for me how much I do and push through with chronic pain and right now pushing through is not possible. Thankfully my family recovered after a couple weeks. I’m just grateful I didn’t end up in the hospital. It was close. Blessings to you Cindy and all of us dealing with crap.
Omg I might get one of your postcards! We’ve been getting a ton of political mailers. I assumed that they were fellow Kentuckians filling those out, I had no idea! Also, your Michael print in your living room is amazing!!!
2020 has been one long, continuous flare for me too. It's also confusing because I would have the same symptoms and problems even without pandemic bullshit. But everything just feels so much worse because of the stress and chaos of everything else. Thank you for being vulnerable with us. It may not "fix" everything, but it's important for us (you too) to remember that we're not alone.
Cindy Guentert-Baldo On the other hand, if your function was about to tank anyway the slower pace of life right now is so beneficial! I have had chronic pain since I was hit by a car 37 years ago. Pain sucks, dealing with pain is a giant time suck but dealing with other people ( or my own head ) judging me for not being active enough etc is almost more draining. I have made a habit of looking for the positives anywhere I can find them and hanging on to those to savor when the negative Nancys (in my own head or coming at me from outside) start to chip away at my strength. I wish you peace and extra spoons when you most need them.
I recently shared with you that 5 years ago I had my right kidney out due to cancer. About a month ago, I had my first ambulance ride (and hopefully my last) but we found out that my left kidney now has a 2cm cysts on it. I guess you know what and how I have been thinking (and feeling.) I am also diabetic, have a heart valve problem, high blood pressure and fibromyalgia. I am awaiting an appointment with my derm. because they think I may have the beginning of "lip cancer." I think we have to take a long look at our pets. When they need a nap,,,,they take a nap. They stretch, yawn, look for soft quiet places. They avoid conflict, loud noises and stress. Sure sounds good to me..........
I would love to see a video on your project management! I’m heading into my senior year of college and I’m going to have several projects/papers. 😅 could use any advice!
Writing postcards is so great! I never got hooked up with that campaign. Instead, I'm writing letters through Swing Left/Vote Forward to registered voters, Democratic-leaning or traditionally underrepresented but who the data determined are not already highly motivated to vote. We write letters about why we think it's so important to vote and give them info on how to navigate their systems. I've handwritten 160 letters so far for the Texas campaign. Apparently data has shown that handwritten communication is incredibly effective, matching the turnout-boosting effects of door-to-door canvassing! 🤞🏻🤞🏻
I tried out the imperfect foods site using your link. First order was ok. I kinda expected more. Maybe the second order will help me decide. But could be because I’m out of state.
I don’t have any chronic issues but I struggle with anxiety and depression. I also have “runners knee” but mine is permanent... I struggle to get things done throughout the day and often feel guilty for it.... so I’m glad for what you said at the end because I know I shouldn’t overdo it but it’s always really hard for me. Seeing how you break down projects would be nice just because I’m a huge procrastinator and it’s difficult for me to get things done
I reframed that Beyonce meme during a bout of my own chronic illness flareups: yes, we have the same amount of time as Beyonce, but not the same amount of energy, resources, health, wealth, and assistance. The time part is all we have in common (well, and great hair), and it takes so much more than that to get shit done. That way, I still recognize the similarities between me and Bey, which is just fun, but still recognize reality.
I really enjoy A Day In The Life Vlogs, as a Content Creator myself I enjoy seeing others process. I do have to ask though, I’ve seen your Etsy shop and you’ve mention doing work for Chrissy Ann Designs so I was curious what kind of free lance work you do? Are you a Graphic Artist? I hope you feel better, take care and thanks for sharing❤️
Watching this while lying in bed hoping my pain meds work so that I can knock a few items off my to-do list, and I feel validated. I'd love to see how you break down big projects. Loki is such a talker! And Luci, mighty hunter, stalking the feared sky raisin.
Thank you for sharing your experience with chronic pain/illness with us, this internet world needs more diverse representation. Let's not make whatever kind of illness or other issue be something that needs to be hidden and wrapped up in shame.
I'm in bed quite a bed throughout the day too... foot chronic pain is another one of those things that just is limiting - period. I wanna say "i am amazed at how much you get done in a day" but I also realize how easily one thing (kitty jumps) can change the course of the day for you.... It's so hard going through my day knowing if I do one thing weong or even nothing at all and just pain flares up, my day takes a huge turn. Love the Jesse and Kitty footage - that made me smile - how adorable - (it's funny my boy cat and my husband have a different relationship than that cat has with me, it's funny - they just need some guy time, lol)
dude, it IS! Every time my gout has flared up it is so frustrating to not be able to get around. It opened my eyes to how tough it can be for people who suffer from chronic foot issues. And I fully agree - like one wrong turn or whatever can derail not only the rest of the day, but potentially the rest of the week.
I'm doing postcards too, and for the Democrats. I work as an Election Official, have run for Office, didn't win, and have been very involved. Thank you for helping.
Hi Cindy! Would you please remind everyone who is voting by mail to make sure they add the right amount of postage. Ohio’s ballot requires 70 cents to be delivered. I have two friends who have already sent their ballots off with only one stamp. I voted and dropped my ballot off at the Board of Elections yesterday!!! The line of cars was long, but our county sheriffs kept the line moving quickly and it took less than five minutes to get in line and then drop my ballot in the ballot box. Thanks!
Hello Cindy, I must have missed something, but you say something about a book,so here's my question are you doing a new book ,or are you speaking of the cute hand lettering book Thankyou for your time
Beyonce has a staff and doesn't have a chronic medical condition! I think you got so much done today. And for what it's worth I think you're more interesting a person than Beyonce!! :)
2020 has been crazy weird. My job has been flipped backward completely because we don’t have students right now. I also worked from home for 4 months and might have to again for a short time hopefully :( I haven’t seen my friend lately. No vacation this year. Dating is completely hard. I haven’t met a great niece and nephew since the pandemic, they were born in the pandemic. :( I hope 2021 is better.
I have like 13+ chronic illnesses including EDS (which causes frequent joint dislocations which causes nerve and muscle damage which causes a fuckton of chronic pain) along with its fun comorbidities like a paralyzed stomach (requiring a feeding tube) POTS (which causes frequent fainting and dreadful dehydration that causes a central line and daily IV fluids), TBM (which makes my lungs floppy and collapse in on themselves requiring oxygen 24/7) and more so I’m basically just a walking (sometimes) talking medical device and I was just telling my friend (who’s also chronically ill cause normies don’t want to be friends with someone who’s full time job is taking care of her body) that I’ve literally slept through all of 2020 because I am literally in bed at least 20+ hrs a day and asleep 16-22 hours. I hate it so much but it’s where I’m at and I try not to beat myself up too hard cause I didn’t choose this life but it’s hard when I know most 29 year olds have a degree and a career and a family and I’m not even able to sit upright for long periods of time. But anyways that’s enough of me whining, just wanted to let you know that I totally get it and also I love your vlogs and your whole channel and appreciate you 🥰
Have you ever thought of soliciting help to edit your videos to free up more of your time for other tasks? Do you ever feel that taking the time to update your to-do list is taking time away from just getting the thing done? Sometimes I feel that way. I'd also be interested in how you break up your big projects!
Watching you prepare food is satisfying because I know what it's like to feed teens! I think preparing and cooking food can take so much longer when you're feeding teens (especially without double ovens!). What are your thoughts on that?
I’ve had that magical being in bed for 18 hours a day at least level and in order to get anything done I have to do things in bed! It’s efficient and you can lay back and take breaks at well without walking. I am in a wheelchair so having to transfer from the bed to the wheelchair and then wheel around transfer again try to get comfortable hang out for a while I also have kidney disease so got to get up to P transfer again lather rinse repeat. Your sister was right Cindy...If I am sitting outside in the sun in my wheelchair it’s like a golden moment, if I was also getting something done at the same time it would be even better LOL. I think I’m gonna wander off and check out your Patreon page…
What braces fun. My orthodontist also did reg dental cleanings etc when I had braces. He was old school guy. It was also over 30 years ago. And I never had a bracket pop or wire loosen like my nieces & other kids.
Hi, Cindy, it's really cool to hear you talk about how you can't do as much as you want or as much as others want from you and how ok with that you are. I'd really like to hear how you break down tasks I find doing like anything really hard and I haven't worked out why yet life just doesn't make a lot of sense to me. How do you manage to be on time for things when you don't have alarms or such to remind you of the time.
Cindy - one thing you may find handy is a mask lanyard. If you are going in and out of places it is handy to not have to carry or store the mask - just wear it like a necklace / reading glasses :)
I would love to see how you do the freelance work for Kristin, that always intrigued me. As far as chronic pain goes, I had a bad day yesterday and trying to catch up on the things I didn’t get done is a bitch but adulting...imma right? But you’re right, I can’t judge what you get done and what I get done in a day, we may be in pain but I don’t know what your pain is like compared to mine so I can’t get down on myself for not getting the things I had written down in my journal. Just have to talk myself out of feeling bad and today is another day to get those things done, hope your feeling better today! Hugs 🤗
Idk how you manage to get so much done. You honestly make it look easy, and I know it's not. That broccoli looked amazing. Maybe I'll have some broccoli tonight...
Cindy, I just discovered you maybe last week and I have gone through at least half your content already. It's upsetting to hear about someone's chronic pain and not be able to have a solution. You are inspiring me to look into a Squarespace blog. While I don't have chronic physical pain on my plate, I have been dealing with anxiety since I was about 12/13 yrs (28 yrs. currently) and more recently severe depression after having my 14 yr old cat, and closest confidant crossing the rainbow bridge in January of this year. He passed from Chronic Kidney Failure (which happened almost within a weeks span of time). He was diabetic for 7 yrs and most of my life lovingly revolved around him. These days it's hard to get up, my heart says "what for? You have nothing to do, you have nothing left." But I get up usually an hour late and try to be the adult who still goes to work, pays her bills, and brushes her teeth.. while feeling half dead. I hope this doesn't read as insulting. If you manage to get through your day feeling like crap (or crap ^2) physically, which I'm sure also affects you emotionally.. I should be able to do that very same thing. I think I can even spell your name drunk XD
I understand. I still miss my cat who died seven years ago and have had anxiety and depression for most of my life. You can't replace your little darling, but I suggest looking into adopting another one. I also love the two I have now. Wishing you all the best.
I hate that you deal with so much pain. As someone who deals with chronic pain/invisible illness, it's hard to see someone else in pain. I'm sure you don't have near as many hours in a day as beyonce! I don't even have as many days in a week as she has. But I doubt she could deal with the pain I deal with and still do what I do! So there! If she had your pain, she'd quit! Take care of yourself, please. You work circles around beyonce!! It takes SO much more effort when everything is a push, every task a struggle. Some days I can pretend I'm ok. Some days I can't walk down the hall. No days show up as a beyonce day. Not even like beyonce's grandmother!! Ha! OK, I laughed at my own joke. Stay strong. I'm rooting for you.
I'm having a flair up of my chronic pain today (this whole past week really). I'm trying to give myself some grace and compassion around the lack of ability to get things done around my house. I can only do what I can do today. And while I would never wish chronic pain on anyone, it is nice to know I'm not alone in the struggles.
Hey Cindy! I never comment but watch allll of your videos. I love them and you! Hahaha. I have a quick question! What printer and paper do you use to print your fuckery flowers and such? I have some prints I want to print and sale but can't find paper that I like! Thanks so much. PS I'm in KY. I may get your postcard. How cool!
My dog (who is a golden retriever basset hound mix. she looks like a short and long golden lol) hunts flies more than my cats. Except she barks at them and jumps at them and is 60 lbs of muscle crashing into things. Ridiculous adorable creature. lol
Question: how did you start explaining your sharif being (or I ABA to be) during flare ups. As a work outa the home person I can’t just lay down even when blinking is too painful. I feel like I come across as complaining or always “woe is me” (That was really long for what I was trying to say lol. )
I think that happens because we often so used to explaining ourselves. At some point we have to stop asking "Can I go home" and just say "I'm in pain, I have to go home". It's no easy feat!
I don’t get out much these days, but I will vote in person. I live in Florida, and anything can happen, lol 😂. We need to get that orange lunatic out of the office.
Awww I’m sorry for your illness and pain. I want to bring you chicken noodle soup and flowers. I was laughing earlier from what you said about your cat, now I’m sad 😞 but remember your fans love you and take a break
So there's no reason for them to take Kat's wires out before a cleaning. In my office the hygienists clean teeth with full ortho every day. We only have them taken off if they need to come in for fillings.
it's going as well as it could be. it feels strange to be thankful that my grandma and my sister also have PKD - i don't want them to be sick, but it is really helpful to have people I can talk to who know exactly what I am going through.
@@CindyGuentertBaldo that's a blessing. I was the only one in mine. Mine was caused by underdeveloped kidneys, 4 months early, so not everything developed right. Dialysis can take getting use to but I'm thankful it was/is an option vs a gradual toxic death
I tried (and am eating) imperfect foods! They messed up my order - missing things I ordered and included things I don’t want - but I kinda feel like I shouldn’t be surprised. 😂 Their customer service was great though.
I'd be interested in knowing how you and Kristen met and started working together. Also, would your PKD affect a donor kidney? Like, would cysts start growing on the new kidney? And is there any movement on the donor situation w/ Covid things relaxing a bit?
![ปฏิเสธไม่ไหว (Crush on you) - LIPTA feat. No One Else [Official MV]](http://i.ytimg.com/vi/NBw1jF342vw/mqdefault.jpg)
If you're wondering why I spend so much time with my arm on my head when I'm in bed, it's because it opens up my torso and seems to give my kidneys a little more room to "breathe" if you know what I mean. haha
Makes sense! I have reactive airways and asthma along with a very large chest and I sleep with my arms above my head all the time. Good thing I'm not super tall so there's still room for my feet when I scotch down the extra door for my arms 😂
I remember doing that while I was pregnant!
I have had two liver transplants and end stage your liver is larger than an NFL regulation size football. Very painful so I feel your pain. I frequently kept my right arm above my head when trying to find a comfortable position. I hope you can get transplanted soon. You will feel so much better and have a new lease on life. Within 24 hours of my most recent transplant I felt like a completely different person. Before that I literally slept 20 hours a day. Sloths were my spirit animal! Even after transplant my autoimmune disease has attacked my latest liver so I have progressively started feeling that fatigue creep in. We just have to use our good days to be productive and really be patient with our bodies on the bad days and really focus on self care. So hard to do as a mom and when you have the desire to do so much! Keep up the fighting spirit! Every heard of the spoon theory? Look it up. Beyoncé has like 50 spoons where as people with chronic disease have maybe 10 tops and we use them up just trying to get ready for the day!
Oh my goodness yes talk about how you process
I understand. Having an invisible illness and chronic pain sucks. It takes guts to be open about it. Be proud of yourself 🐱.
I loved seeing this! I know all too well the life with chronic pain..😔 You are a rockstar is all I can say!! The kitties are adorable!!! That cute little squeak 😍 I would love to see more of these, I know though you have so muxh on your plate so I understand if its not possible. Thank you for all you do, seriously. I love Sundays I look forward to them and even bought stickers to mark every sunday with Cindy. Thanks for making the world smile! Love ya 😘
I love Loki's meow. 😻😻😻
I ❤❤❤ your new t-shirt! Thank you for all that you do for democracy.
Watched the video in its entirety!! Love your personality, seriously so enjoy your content and just your thought process!!! You speak like I think!!lol Please know that you are in my prayers and I do believe in healing!!! Stay strong and know that you are belong lifted up!!! Love your videos and your channel!!!❤️❤️❤️❤️❤️
Love these videos!!! 😍🥰😍🥰
My son and I already did our vote for Amy!!
I would love to hear about how you break down big projects, that is always hard for me/intimidating
I’d love to see how you break down the bigger projects (especially the book).
I love this video! You are amazing. Take care.
I would love to see how you break down projects. I also hope you have more good days than bad right now. Hugs!
I am definitely interested in how you break down major projects!
So, you need to make "Deep Thoughts with Cindy" a regular occurrence :) Love your content!!!
Cindy's Chronic Cogitations
I have a few chronic illnesses / pain / mental illness and I live by the spoon theory. We might all have 12 spoons for the day, but what costs you 1 spoon, might cost me 4. So what I do in the day has to be carefully planned so I don't run out but alas, I usually run out by 2pm and the rest of the day is so so painful.
Awwww😍 Loki check in!!!! 😍😍😍
I’ve lived with chronic pain for almost 10 years. Thank you for your perspective. Seems so obvious after hearing it. I needed to hear it! Thank you! 💜💜
i'm glad to help!
Jesse looks like chilled out Geralt of Rivia
i told him and he says "thank you!" haha
Cindy your table scape on the !dining table looks really cute
Love postcards to voters! I started this year as well.
I have been working from home since march, before COVID I had one day a week in my contract. We are still self isolating as I have Fibro & CRPS and I had cervical spine surgery in April as well so recovery has been tough without access to normal medical care.
Thank you for sharing the truth about living with chronic illness and how hard it is to function normally. Healthy people find it hard to understand how debilitating it is to be fully exhausted and not just tired. I am finding since working from home full time I need to take a 3 hour break and sleep somewhere in my day, every day. I honestly don’t know how I will cope once we have to go back to the office full time. I’m dreading going back to normal life and having to travel & socialise now my body is used to this slower pace of life and napping when needed 😥
Nicole Fraser Nicole: I have CRPS too. It's in my left foot. I'm approaching my third year (the surgery that started it was 12/01/17). I'm always pleasantly surprised if I find someone with crps in the comments! how did yours start and where do you have it? how are you doing with it?
Diane S SAME!!! Terrible club to be in but nice to find another member ☺️ I have it in my left hand following carpal tunnel release surgery 17/04/2015. Well the first 3 years were the worst getting to use to not being able to use my hand and trying various treatments. I was lucky I was diagnosed early (within 10 days of surgery) so had access to pain specialist, physio & pain psychologist from the start. What was life changing for me was the ketamine infusions. My 3rd one in September 2018 worked and i was 100% pain free. I got full use of my hand back within 6 months 🙌🏻🙌🏻 I was pain free until August this year when it came back ...its not too bad but after being pain free it’s annoying mostly and my strength is going as I am not using it as much. I am on the list for another Ketamine infusion so its a waiting game.
Are you able to use your foot? what treatments have you had success with?
Nicole Fraser I had a consult for ketamine but I haven't been able to commit yet - the process seems a bit scary to me - maybe if I found a doctor I was more comfortable with? I was diagnosed early in the process also and got nerve injections and lumbar injections... not super super life changing but the slow and steady progress I've made in PT is encouraging. My initial symptoms were completely life stopping for the first couple months. Medication helped a lot. I still am very limited with what I can do in a day but I am so thankful to be in a better place than I was 2 years ago. I am just incredibly thankful it hasn't got worse or spread...
I'm encouraged to hear you found success with ketamine. Was there anything in particular that made it flare back up do you think? What state are you located in?
Are you in Cindy's FB group - I'll keep an eye out for you there as well 🌸
@@dianeandbrad529 I am in Sydney Australia, got my date for my next infusion Monday 19th ...cannot wait. Today was very busy at work and i had to type a lot and my hand was up to a 5 i had forgotten was it was like to be in that much pain :-( I cant believe I suffered for 3.5 years with such intense pain its so crazy what we can endure when we have to.
I am not sure if it was stress from work as we have been very busy or if it just wore off? When I got it done my pain specialist said 6 days, 6 months, 6 years everyone is different. Pray to all your gods for a miracle to go pain free as I have only seen a few in all my years. I was lucky i got 23 months :-)
I prayed and got everyone I knew to pray and if they didn’t believe I asked them to keep me in their thoughts. I kept a very positive mindset and every day said “this is going to work i am going to hit pain free”. I also went to a shop that sells crystals and asked them for healing crystals for a medical procedure and held them as well during the infusion. Every little but helps.
The infusion is not that bad its a small needle under the skin in the fat of your belly or legs. It’s only if they go too high too quickly you will get sick and have hallucinations - this happened the first time for me. Then they learnt how to increase it slowly over time with a max dose of 8mg (some people go to 16 or 32) I am very sensitive to all brain altering drugs, gabapentin, endone ...everything really.
No i am not in her group ill pop over now. Hope this helps xx
Loving your day in the life. Makes me realize that just because I don't work outside of the home, due to chronic pain, I don't do anything. I do have a fun question for you...What are your favorite Nick Cage movies? I love him too! Gone in 60 Seconds is my all time face, but I like the ones he made with Disney too.
I’m worn out just watching your day but I still love you makes me realize I shouldn’t complain. Thanks for being a brave person ❤️ 🤗
if you're having a rough time you go ahead and complain! letting off steam is so helpful
Ya but I complain or b!tch too much lol
KY voter here! I voted for Amy so hard...
Kitty knows you needed a break. Chronic pain is hard. I’m now trying to recover from Covid and it really brings home for me how much I do and push through with chronic pain and right now pushing through is not possible. Thankfully my family recovered after a couple weeks. I’m just grateful I didn’t end up in the hospital. It was close. Blessings to you Cindy and all of us dealing with crap.
I would be interested in how you break down big projects. I’m really sorry you aren’t feeling well. ❤️❤️❤️❤️
Omg I might get one of your postcards! We’ve been getting a ton of political mailers. I assumed that they were fellow Kentuckians filling those out, I had no idea!
Also, your Michael print in your living room is amazing!!!
OMG, Jesse's smile as he looked at Loki - true love!
And, yes please on the "how to break down a bigger project" video
I GOT a custom postcard for Bollier (KS Senate) from California! It was AWESOME
I'd love to see a vlog focusing on being self-employed and how you manage the work/life balance while doing so. The struggle is real...
2020 has been one long, continuous flare for me too. It's also confusing because I would have the same symptoms and problems even without pandemic bullshit. But everything just feels so much worse because of the stress and chaos of everything else. Thank you for being vulnerable with us. It may not "fix" everything, but it's important for us (you too) to remember that we're not alone.
sometimes I wonder if my function would have dropped so fast had it not been for the stress of the pandemic. then I go down a rabbit hole. big hugs!
Cindy Guentert-Baldo On the other hand, if your function was about to tank anyway the slower pace of life right now is so beneficial! I have had chronic pain since I was hit by a car 37 years ago. Pain sucks, dealing with pain is a giant time suck but dealing with other people ( or my own head ) judging me for not being active enough etc is almost more draining. I have made a habit of looking for the positives anywhere I can find them and hanging on to those to savor when the negative Nancys (in my own head or coming at me from outside) start to chip away at my strength. I wish you peace and extra spoons when you most need them.
I recently shared with you that 5 years ago I had my right kidney out due to cancer. About a month ago, I had my first ambulance ride (and hopefully my last) but we found out that my left kidney now has a 2cm cysts on it. I guess you know what and how I have been thinking (and feeling.) I am also diabetic, have a heart valve problem, high blood pressure and fibromyalgia. I am awaiting an appointment with my derm. because they think I may have the beginning of "lip cancer." I think we have to take a long look at our pets. When they need a nap,,,,they take a nap. They stretch, yawn, look for soft quiet places. They avoid conflict, loud noises and stress. Sure sounds good to me..........
Helen, I hope at the very least you start to feel better! Always take a nap when possible! =^.^=
@@fromthecat You are an inspiration to me......
Omg the squeak 🥰
I would love to see a video on your project management! I’m heading into my senior year of college and I’m going to have several projects/papers. 😅 could use any advice!
No questions, but wanted to let you know I made the Chicken Gnocchi Soup from the recipe you posted in your livestream. It was really good!
😱 I’m a registered Dem in KY! I hope I get one of your postcards!
Writing postcards is so great! I never got hooked up with that campaign.
Instead, I'm writing letters through Swing Left/Vote Forward to registered voters, Democratic-leaning or traditionally underrepresented but who the data determined are not already highly motivated to vote. We write letters about why we think it's so important to vote and give them info on how to navigate their systems.
I've handwritten 160 letters so far for the Texas campaign. Apparently data has shown that handwritten communication is incredibly effective, matching the turnout-boosting effects of door-to-door canvassing! 🤞🏻🤞🏻
that's awesome!
@@CindyGuentertBaldo So far, more than 10 million letters have been written through the campaign. They've had to increase their goal to 15 million!
Would love to se how you breakdown major projects 😊
I love vlogtober! I’m just starting a TH-cam channel and really hope I feel confident enough to do vlogmas around the holidays.
I think you’d appreciate The Daily Beans podcast. They closed the Mueller She Wrote podcast but the Beans is each weekday. “News With Swears”
When I heard IUD, I thought you said ID.....I’m like huh, so had to rewind it!
I tried out the imperfect foods site using your link. First order was ok. I kinda expected more. Maybe the second order will help me decide. But could be because I’m out of state.
I don’t have any chronic issues but I struggle with anxiety and depression. I also have “runners knee” but mine is permanent... I struggle to get things done throughout the day and often feel guilty for it.... so I’m glad for what you said at the end because I know I shouldn’t overdo it but it’s always really hard for me. Seeing how you break down projects would be nice just because I’m a huge procrastinator and it’s difficult for me to get things done
one of my kids struggles with those things as well, and we try to remind them that one thing at a time is the best way to go. so many hugs!
I just said the mask off bra off thing to the boyfriend the other day... it's so true! I love Loki's meow and Luci's squeak... such cute bois
OMG! Loki's color- he's beautiful!!!!
I reframed that Beyonce meme during a bout of my own chronic illness flareups: yes, we have the same amount of time as Beyonce, but not the same amount of energy, resources, health, wealth, and assistance. The time part is all we have in common (well, and great hair), and it takes so much more than that to get shit done. That way, I still recognize the similarities between me and Bey, which is just fun, but still recognize reality.
I really enjoy A Day In The Life Vlogs, as a Content Creator myself I enjoy seeing others process. I do have to ask though, I’ve seen your Etsy shop and you’ve mention doing work for Chrissy Ann Designs so I was curious what kind of free lance work you do? Are you a Graphic Artist? I hope you feel better, take care and thanks for sharing❤️
Watching this while lying in bed hoping my pain meds work so that I can knock a few items off my to-do list, and I feel validated.
I'd love to see how you break down big projects.
Loki is such a talker! And Luci, mighty hunter, stalking the feared sky raisin.
I’m exhausted just listening to all the running around/errands you did! 🤦🏽♀️😩 lol
Thank you for sharing your experience with chronic pain/illness with us, this internet world needs more diverse representation. Let's not make whatever kind of illness or other issue be something that needs to be hidden and wrapped up in shame.
Hang in there. You are amazing!
Lmao “fuck you dude I’m trying to relax” you make me laugh
I'm in bed quite a bed throughout the day too... foot chronic pain is another one of those things that just is limiting - period.
I wanna say "i am amazed at how much you get done in a day" but I also realize how easily one thing (kitty jumps) can change the course of the day for you....
It's so hard going through my day knowing if I do one thing weong or even nothing at all and just pain flares up, my day takes a huge turn.
Love the Jesse and Kitty footage - that made me smile - how adorable - (it's funny my boy cat and my husband have a different relationship than that cat has with me, it's funny - they just need some guy time, lol)
dude, it IS! Every time my gout has flared up it is so frustrating to not be able to get around. It opened my eyes to how tough it can be for people who suffer from chronic foot issues. And I fully agree - like one wrong turn or whatever can derail not only the rest of the day, but potentially the rest of the week.
Loki and Jesse are like my red muttcat and my boyfriend. 🐈
Yes to the project breakdown
I'm doing postcards too, and for the Democrats. I work as an Election Official, have run for Office, didn't win, and have been very involved. Thank you for helping.
thank you too!
Hi Cindy! Would you please remind everyone who is voting by mail to make sure they add the right amount of postage. Ohio’s ballot requires 70 cents to be delivered. I have two friends who have already sent their ballots off with only one stamp. I voted and dropped my ballot off at the Board of Elections yesterday!!! The line of cars was long, but our county sheriffs kept the line moving quickly and it took less than five minutes to get in line and then drop my ballot in the ballot box. Thanks!
i will in my next video! thank you!
Jody Yarborough I will tell my friends. They were both bummed to think their ballots were now worthless.
I have my absentee ballot and I already marked my vote for Amy! I have received some of those post cards lol
Hello Cindy, I must have missed something, but you say something about a book,so here's my question are you doing a new book ,or are you speaking of the cute hand lettering book
Thankyou for your time
Lmao “mask=bra” ain’t that the truth! Now men and kids understand how that feels lol
hahahaha right?
Beyonce has a staff and doesn't have a chronic medical condition! I think you got so much done today. And for what it's worth I think you're more interesting a person than Beyonce!! :)
As someone with an IUD I kinda love that you accidentally said IED, 😆
2020 has been crazy weird. My job has been flipped backward completely because we don’t have students right now. I also worked from home for 4 months and might have to again for a short time hopefully :( I haven’t seen my friend lately. No vacation this year. Dating is completely hard. I haven’t met a great niece and nephew since the pandemic, they were born in the pandemic. :( I hope 2021 is better.
Amy totally!!!!!!!!!!!!!
I’m just sending some love your way and really wishing for the best for you 💗💗
awww thank you friend!
I do not like Amy McGrath (I am from Kentucky) but I do like YOU! P.S. I had to add in when my IUD expires to my phone calendar in order to remember.
I have like 13+ chronic illnesses including EDS (which causes frequent joint dislocations which causes nerve and muscle damage which causes a fuckton of chronic pain) along with its fun comorbidities like a paralyzed stomach (requiring a feeding tube) POTS (which causes frequent fainting and dreadful dehydration that causes a central line and daily IV fluids), TBM (which makes my lungs floppy and collapse in on themselves requiring oxygen 24/7) and more so I’m basically just a walking (sometimes) talking medical device and I was just telling my friend (who’s also chronically ill cause normies don’t want to be friends with someone who’s full time job is taking care of her body) that I’ve literally slept through all of 2020 because I am literally in bed at least 20+ hrs a day and asleep 16-22 hours. I hate it so much but it’s where I’m at and I try not to beat myself up too hard cause I didn’t choose this life but it’s hard when I know most 29 year olds have a degree and a career and a family and I’m not even able to sit upright for long periods of time. But anyways that’s enough of me whining, just wanted to let you know that I totally get it and also I love your vlogs and your whole channel and appreciate you 🥰
Have you ever thought of soliciting help to edit your videos to free up more of your time for other tasks?
Do you ever feel that taking the time to update your to-do list is taking time away from just getting the thing done? Sometimes I feel that way.
I'd also be interested in how you break up your big projects!
Watching you prepare food is satisfying because I know what it's like to feed teens! I think preparing and cooking food can take so much longer when you're feeding teens (especially without double ovens!). What are your thoughts on that?
Is there anyway that you can set up a bed-desk situation? I know that working in bed is ~terrible~ but like if it's what you have to do...
I’ve had that magical being in bed for 18 hours a day at least level and in order to get anything done I have to do things in bed! It’s efficient and you can lay back and take breaks at well without walking. I am in a wheelchair so having to transfer from the bed to the wheelchair and then wheel around transfer again try to get comfortable hang out for a while I also have kidney disease so got to get up to P transfer again lather rinse repeat. Your sister was right Cindy...If I am sitting outside in the sun in my wheelchair it’s like a golden moment, if I was also getting something done at the same time it would be even better LOL. I think I’m gonna wander off and check out your Patreon page…
My Dad cooks Pork Chops every week...usually on Monday. I eat mine with A-Sha Tainan Style Noodles from Costco. Really good Ramen Noodles!!
First, I hope your days got better as the week went on. Chronic illnesses suck, I have some myself.
I've been having a rough time of it, but that's how it goes I guess
Jesse looks like Bob Seger!
What braces fun. My orthodontist also did reg dental cleanings etc when I had braces. He was old school guy. It was also over 30 years ago. And I never had a bracket pop or wire loosen like my nieces & other kids.
the biggest sadness for me with COVID is not getting to go into the office with them. both our orthodontist and our dentist are cute ;-)
Project how - to would be amazing!!! I’m sorry that your kidney stuff still sucks balls. Keep us up to date on the PKD Diaries if you’re up for it.
Hi, Cindy, it's really cool to hear you talk about how you can't do as much as you want or as much as others want from you and how ok with that you are. I'd really like to hear how you break down tasks I find doing like anything really hard and I haven't worked out why yet life just doesn't make a lot of sense to me. How do you manage to be on time for things when you don't have alarms or such to remind you of the time.
Cindy - one thing you may find handy is a mask lanyard. If you are going in and out of places it is handy to not have to carry or store the mask - just wear it like a necklace / reading glasses :)
oooh i like that!
I would love to see how you do the freelance work for Kristin, that always intrigued me.
As far as chronic pain goes, I had a bad day yesterday and trying to catch up on the things I didn’t get done is a bitch but adulting...imma right? But you’re right, I can’t judge what you get done and what I get done in a day, we may be in pain but I don’t know what your pain is like compared to mine so I can’t get down on myself for not getting the things I had written down in my journal. Just have to talk myself out of feeling bad and today is another day to get those things done, hope your feeling better today! Hugs 🤗
that's exactly it!! we are all doing our best, so being both kind and FAIR to ourselves is so important!
Idk how you manage to get so much done. You honestly make it look easy, and I know it's not.
That broccoli looked amazing. Maybe I'll have some broccoli tonight...
the broccoli was really really good - I recommend! as for getting a lot done, fuck if i know lol
Cindy, I just discovered you maybe last week and I have gone through at least half your content already. It's upsetting to hear about someone's chronic pain and not be able to have a solution. You are inspiring me to look into a Squarespace blog. While I don't have chronic physical pain on my plate, I have been dealing with anxiety since I was about 12/13 yrs (28 yrs. currently) and more recently severe depression after having my 14 yr old cat, and closest confidant crossing the rainbow bridge in January of this year. He passed from Chronic Kidney Failure (which happened almost within a weeks span of time). He was diabetic for 7 yrs and most of my life lovingly revolved around him. These days it's hard to get up, my heart says "what for? You have nothing to do, you have nothing left." But I get up usually an hour late and try to be the adult who still goes to work, pays her bills, and brushes her teeth.. while feeling half dead. I hope this doesn't read as insulting. If you manage to get through your day feeling like crap (or crap ^2) physically, which I'm sure also affects you emotionally.. I should be able to do that very same thing. I think I can even spell your name drunk XD
I understand. I still miss my cat who died seven years ago and have had anxiety and depression for most of my life. You can't replace your little darling, but I suggest looking into adopting another one. I also love the two I have now. Wishing you all the best.
I hate that you deal with so much pain. As someone who deals with chronic pain/invisible illness, it's hard to see someone else in pain. I'm sure you don't have near as many hours in a day as beyonce! I don't even have as many days in a week as she has. But I doubt she could deal with the pain I deal with and still do what I do! So there! If she had your pain, she'd quit! Take care of yourself, please. You work circles around beyonce!! It takes SO much more effort when everything is a push, every task a struggle. Some days I can pretend I'm ok. Some days I can't walk down the hall. No days show up as a beyonce day. Not even like beyonce's grandmother!! Ha! OK, I laughed at my own joke. Stay strong. I'm rooting for you.
I'm having a flair up of my chronic pain today (this whole past week really). I'm trying to give myself some grace and compassion around the lack of ability to get things done around my house. I can only do what I can do today. And while I would never wish chronic pain on anyone, it is nice to know I'm not alone in the struggles.
I wound up taking it slow yesterday - it's still up in the air how much gets done today. Big hugs!
Hey Cindy! I never comment but watch allll of your videos. I love them and you! Hahaha. I have a quick question! What printer and paper do you use to print your fuckery flowers and such? I have some prints I want to print and sale but can't find paper that I like! Thanks so much. PS I'm in KY. I may get your postcard. How cool!
My dog (who is a golden retriever basset hound mix. she looks like a short and long golden lol) hunts flies more than my cats. Except she barks at them and jumps at them and is 60 lbs of muscle crashing into things. Ridiculous adorable creature. lol
Question: how did you start explaining your sharif being (or I ABA to be) during flare ups. As a work outa the home person I can’t just lay down even when blinking is too painful. I feel like I come across as complaining or always “woe is me”
(That was really long for what I was trying to say lol. )
I think that happens because we often so used to explaining ourselves. At some point we have to stop asking "Can I go home" and just say "I'm in pain, I have to go home". It's no easy feat!
I don’t get out much these days, but I will vote in person. I live in Florida, and anything can happen, lol 😂. We need to get that orange lunatic out of the office.
I completely have no idea when I'm due for a new IUD. Hell, I keep forgetting to schedule an appointment for my MEDS :O
Awww I’m sorry for your illness and pain. I want to bring you chicken noodle soup and flowers. I was laughing earlier from what you said about your cat, now I’m sad 😞 but remember your fans love you and take a break
“man servant” checkin!!! 🥰😉🤣
So there's no reason for them to take Kat's wires out before a cleaning. In my office the hygienists clean teeth with full ortho every day. We only have them taken off if they need to come in for fillings.
Hope your kidney stuff is going ok! I've walked the road, it's a learning experience.
it's going as well as it could be. it feels strange to be thankful that my grandma and my sister also have PKD - i don't want them to be sick, but it is really helpful to have people I can talk to who know exactly what I am going through.
@@CindyGuentertBaldo that's a blessing. I was the only one in mine. Mine was caused by underdeveloped kidneys, 4 months early, so not everything developed right.
Dialysis can take getting use to but I'm thankful it was/is an option vs a gradual toxic death
I tried (and am eating) imperfect foods! They messed up my order - missing things I ordered and included things I don’t want - but I kinda feel like I shouldn’t be surprised. 😂 Their customer service was great though.
I think I will die with unused stamps. I have a ridiculous amount as I *may* have turned into a bit of a philatelist in the last five years.
I love the bra analogy. Have you heard the mask below the nose is like not wearing a condom?
I'd be interested in knowing how you and Kristen met and started working together. Also, would your PKD affect a donor kidney? Like, would cysts start growing on the new kidney? And is there any movement on the donor situation w/ Covid things relaxing a bit?
I’m jealous that you’re still playing animal crossing 😫 I need to make time for it. I haven’t picked up my switch in over a month 😭
i've been "redoing" my island since like june, but really it's just logging in each day and catching fish. that's enough relaxation for me ;-)
How do decide what to spend tour energy on verse reserve it?
Cat’s love is the cure they know when you’re hurt I use to have cats (rip ol kitties)
If you want to relax during your kidney pain, listen to Liquid Mind on Pandora it’ll make you sleepy, relax and fall asleep...or help you meditate.