I suffered from the illness in 2018 and in 2022. It stole my life, time and happiness from me but I still fight everyday with fatigue and occasional body pains. It started in my face and eyes with blurred vision and dizziness, doctors misdiagnosed me in the er and discharged me, I left the er room and fell in the er hallway, 24 hours later I was in ICU fully paralyzed. I was awake but scared cause no one knew what was happening until they confirmed with a lumbar puncture that I had a protein for GBS. Godbless every doctor that day, they ran and saved my life and because of them I am able to see my babies finish growing. I am now 35 and try to limit my stress levels, eat a moderate diet and do light exercise. I’m happy to say I am a survivor.
The very best to you. It’s a fight that unfortunately is up to you to fight alone so often. Be careful in your fight and be kind to yourself. If you do a good enough job you will watch your children grow. You sound like you have it under control. Good luck with everything.
My Beautiful Wife Beth was first diagnosed with Guillian Barre Syndrome back in early October 2018 and is currently in a nursing home.... She has improved drastically during this time but still can't walk... This has been one of the hardest things we've ever been through in our 13 years together.... There were several times in the beginning that I thought I was going to lose her but she has shown so much strength and refuses to give up... I have been with her since the beginning and I will be there with her until it's over with... It's especially hard when it happens to someone you love & it's one of the worst things I've ever seen and I went through brain surgery in 2012....💔 54 years old when I first heard of this and wish I didn't have to find out the way I did....
@@lindajenkins5209 I was diagnosed with Miller Fisher Syndrome a GBS variant . The first symptom was inability to walk numbness in my mouth and had double vision. Anything that I hold just fell off my hands. The doctor suspected at first that it was a stroke, he gave me immunoglobulin for 5 nights through iv. After 3 months I fully recovered. That was 11 years ago but now I'm having residue from that because i have unexplained fatigue and tingling on my fingers. I was 58 yrs old then.
@@lindajenkins5209 I am 25 years old and diagnosed with this right now. I am in rehabilitation center for nearly three month. At the beginning I couldn’t do anything alone and needed help in everything that I had or need to do. Now I can walk and stand, do things and need help to get up from regular chair, can’t still got up on stairs and need help in the toilet… easy easy but on the right way I move for recovery
Just watched a video of a mother of a newborn who completely overcame this. It was a long & hard road she spent 126 days in the hospital total. Went from being paralyzed to walking again. Great story.
I got GBS at 15 in Dec 2017. Such a terrible experience. Nobody believed me, not even the doctors when I told them I was getting weak. Then after my 5th visit they life slighted me to Kansas City because I was completely paralyzed. I had to wear an oxygen mask for a week bc I also had pneumonia. I had to learn to walk and talk again. I definitely don’t wish it upon anyone.. the worst pain to ever go through. Recovering is depressing, but yes god is with all us and he saved my life.
So sorry you went through this! Why didn’t they believe you? I don’t understand this! had a patient admit for sacral wound and sepsis and was unable to walk because of GB a few years ago… patient can feel their legs but not move them and told me doctors didn’t believe him at first… and now it’s in his history in the chart but he still encounters doctors who don’t believe him… we learn about this in nursing school but doctors are just ignoring it?
My daughter was struck suddenly by GBS on the evening of August 17th, 2024. She is 20 years old and has been in the hospital since. She is essentially paralyzed from the hips down, only able to move her toes and rotate her ankles. Prior to the event she was an active, normal young lady, a college cheer leader at CSU.
My sister who was 16 in 1977 passed away from complication's of GBS, she got it from the swine flu shot that was given in school that year. She ended up paralyzed from head to toe from it, got gangrene in her aorta arch from using a too large of a tracheotomy tube and ended up having 17 open heart surgeries in 3 months, she actually began to get better from the GBS like getting feeling back and sitting up and starting to breath on her own and even ate a few bites of food after 3 months of being paralyzed, but sadly she died of a brain aneurysm. This all happened at the Mayo Clinic in Rochester, Mn. They had such an amazing team of Dr.'s there. We believe she would have passed sooner than she did if she would have stayed at our small local hospital in Iowa. It is amazing how things have changed over the last 45 years how it is treated!! RIP my sweet sister! You are so loved!! Miss you so much!!
@@sueburt1757 actually, there were two major swine flu vaccine rollouts-one in 1976 and one in 2009. The 1976 vaccine was rolled out after a sudden emergence of swine flu at Fort Dix. This is according to a Medical News Today article. And according to the CDC, the vaccine caused a slightly increased risk of GBS.
My dear darling daddy had this in the 1960's. Was in hospital for three months. This was so frightening to look at. By the grace of God Almighty and most wonderful and dedicated doctors, he walked out of the hospital. God bless all those loving and dedicated doctors and nursing staff who attended to him.
I have GBS, after a flu vaccine. My pain didn’t go away until I fasted for 4 days. Now, anytime it flares up, I fast. Fasting is the only thing that has ever worked for me.
Thats what works for me with this. I'm 28, and had a flare up once when I was in the 10th grade. Still, 13 years later, watching what I eat, portion control, fasting, lots of water and a mindfulness of listening to my body on cravings and turning most of those cravings down has worked for me and i haven't had an issue since. Once I feel things in my feet and twitches in my face, I know I'm missing something or I've eaten something I didn't need. Very mindful of my vitamins and lack of is always the best to keep this under control. I've noticed I crave a strong Keto diet and I take vitamin C and D to manage it. Good luck and I hope you're still managing this.
My son was diagnosed with GBS just before his 2nd birthday. He quickly recovered through plasmapheresis over the course of a 10 day stay in the hospital. He had to learn to walk and talk again, but quickly recovered. This was in the Summer of 1990 and thankfully he has no residual effects.
My brother had it way back in late 70's. At that time only about 11 people had been diagnosed. But , his case started in his head , a numb tongue within three days he was on ventilator and in ICU for almost three months . Luckily he was young and recovered almost completely within about six months . I remember his nerves coming back to life excruciating pain. It was impossible to keep him down and even before got over the "foot drop" he started playing baseball again. He recovered completely.
I got this just before my 9th birthday. It started when I was at recess in school playing tag and I noticed I couldn’t run as fast as I normally could but didn’t think anything of it. My mom and I were scheduled to go on a mini vacation that weekend a few hours away, and the first day into our trip we went on a walk down a long trail to see petroglyphs. At the end of the trail I collapsed and could no longer stand up or walk, so she had to carry me all the way back to the car and rushed me to the hospital. I’ll never forget the look on her face, or the doctors when he said he believed he knew what was going on. Sticks with me. I recovered a couple of weeks later but had to undergo physical therapy for months and still have some longterm side effects but they are manageable and I can walk just fine. My longterm symptoms are mostly related to fatigue but with a healthy diet and exercise it seems to stay in check
CDC study shows risk of Guillain-Barré syndrome elevated after Ad.26.COV2.S COVID vaccination………. Did you take the vaccine (covid shot)????? This is what lead me here a news article.
@@khiyaduo This happened to my daughter @ 10yrs old after the HPV shot. She was paralyzed from the neck down. Was in ICU for several months and Rehab 7 months. She had to relearn everything again. There are many shots and vaccines that we were advised not to take. Covid-19 one of them!
My ex wife’s younger sister was struck down with this…back around 1982ish…she almost died several times but thanks to superb medical care she survived 🤷♂️…love to all 😘
You are literally helping me get through my finals. I love your content and I visit your website daily. Thank you so much for everything you do!!!! - RN student
I was diagnosed around Christmas just gone after three days in hospital. It was scary. I had Covid, which led to sciatica. The sciatic pain abated, but i woke to find I could barely walk. It's five weeks later and I've made very little progress this far. I'm getting around on crutches and try to stay positive. The prognosis for most of us is quite good but requires patience. I'm trying to stay active. I shop using a trolley as a walker and the stairs to my second floor flat are a challenge and a workout. Although debilitating and extremely frustrating, my heart goes out to those who have it much worse than I do. I've cancelled any life plans I had for now. I'm a carpenter by trade, but now have elderly people scrambling to hold doors open for me. It's humbling,to say the least.
Is there any community group on social media or some messanger applications of people who had this disease in the past or still have it?? I think it would be good to share experiences there
did u suddenly stop walking after covid? i have covid and my hands and feet feel very numb in the extremeities namely my left hand has some strange numbness. hope you make a full recovery, feels like not many people talk about these symptoms with covid
Thats crazy, i had almost the same thing happen to me too around the same time after getting covid. Its been 5 months and I'm still recovering. Im glad you are doing better. The chronic pain out of nowhere is quite a mental challenge too. I hope youre alright
I got this after getting the flu vaccine in 2018. It was awful! Thank GOD I am better, but I have still have painful peripheral neuropathy. According to my neurologist, it is most likely permanent. 😞 And while I hate it happened and it certainly changed my life, I am very thankful I recovered!!! 🙏
It's strange because now I'm hearing that people who have been vaccinated with you know what have gotten this condition, I'll have to look more into this..
So very happy to know you are better!!! Because of my brother's GBS tragedy, I'm now not going to get any vaccine!! Watching him suffer those 8 months in the hospital was enough to scare me!!
The exact same thing happened to me after a flu vaccine 5 years ago. I still have chronic sensory neuropathy CIDP and still take IVIG monthly. I’m glad you recovered. Did you open a case with the federal vaccine compensation program? Mine is still in process.
@@jankelsey9738 Hi Jan! My brother did file a claim with the Government, had to provide all his documentsfrom the 3 different hospitals/rehab facility he was in. His lawyer representing him said he's not seen a case as bad as my brothers. It's been in review for 3 yrs now, seriously 😐! They finally came back with a settlement amount, which was ridiculously lower than what he should receive. We are giving another final push back to try and get at least a bit more . It's very maddening!! He still has GBS in the bottom part of his legs & they say he'll always have that.
My brother had this when he was only 6. It was so bad in the beginning. He was diagnosed in august 2020 and was paralyzed and needed a tracheostomy. Thankfully he got home just before christmas. He still struggles physically, he can’t run like other kids and isn’t as flexible. I’m so grateful he got through GBS as such a young boy❤
My daughter had this when she was thirteen. She only had a little cold a few weeks before this devastating condition. But had recently received some vaccinations. She’s considered fully recovered. But she is not the same. It was extremely painful. Completely debilitating. In hospital almost two months. Being treated and then learning to do everything again like a baby. Walking, feeding herself, speaking, brushing her hair etc.
I got exactly the type described in the beginning of the video at 5 years old, lost the function of my legs at first but at the worst of it I was put in a ventilator so I could breath. I was in the hospital for 6 months, a wheelchair for some time and then crutches until I could start walking again, it took 5 years, and I believe because I started training ice hockey, I made a full recovery.
I have this condition. I'm so weak in my legs and arms, I have a proclivity to seizures, heart attacks and strokes. I'm slowly developing parkinsons and I have these rushes of pain that follow mental breakdowns. I can't begin to describe how useful this video was for recognition of symptoms. Thank you🎉
My father had guillian barre after the flu shot in the 90s. He was in the hospital for a while and eventually recover ed. I also spent time in the hospital with a woman who had Gilliam barre. It was horrible. We shared a room and she was paralyzed, she could only whisper so i had to call nurses for her, she lost control of everything, she was very young. I was paralyzed on my left side but I felt worse for her! I hope she is ok now. I pray🙏
@dystopian21 I'm very curious to know time period took for your father to recover such as walking etc.. One of My loved one encountered Guillaun Barre right after few hours when she took shot of vaccine. She can talk perfectly fine, move head but legs, Arms are not moving.. I'd love to hear bit more from you so we can also takes those precautions for her .
@@valuechain4710 - a friend of my daughter's stepfather took the HPV vaccine, and contracted Guillain-Barre and died almost 3 months later. I really wish they would make vaccines hypoallergenic so they are safe for everyone!!
@@lisarice4402 I'm so sorry to hear that. My loved one cured in 2 weeks perfect condition.. Actually under menstrual cycle taken injection 💉 caused her head below body motionless.. she recovered miraclelssy. Her early symptoms shows GPS syndrome but after 4days she slowly begin to move hands, legs
@@TauntEh I'm very curious to know time period took for you to recover such as walking etc.. One of My loved one encountered Guillaun Barre right after few hours when she took shot of vaccine. She can talk perfectly fine, move head but legs, Arms are not moving.. I'd love to hear bit more from you so we can also takes those precautions for her .
@@valuechain4710 another thing to keep in mind is age, i got out of hospital in 6 weeks i’m not sure if that’s quicker than average or not but I was 20 when I had it the worst, older people can take longer to recover but honestly if the person is dedicated to getting better every day they will be fine :)
This hits home. Remember a close family member aflicted with this syndrome. It is quite bizarre. One day you are walking and next day you are paralyzed. No explanation, no obvious signs. just bed ridden. I am glad that it resolves on its own but during those times you are confused and highly stressed out. You honestly don't know which way is up and that is for the family member. Its much worse for the patient.
My mother got GBS exactly 10 weeks ago... she used to not move at all but now she is only moving her head, even though she's not talking, it makes me happy that she's making progress.
@@kavyamotapothula7393 She’s on her way. Unfortunately this takes a while. But she’s been able to talk for about 3 or 4 months and she just started eating soft food a few days ago. I hope your brother gets better, truly sorry.
I was diagnosed with Guillain-Barre` Syndrome on May 24th 2022. I just got out of the hospital after having IVIG treatments. I was lucky that it was caught early but I am going to have a long recovery as I also have Ehlers-Danlos Syndrome. O'Joyous times.
I'm not a doctor or even a medical professional, but I'm determined to learn as much as I can before I start my medical degree. Thank you so much Thomas, these are great videos.
This is a great explanation of GBS. I can tell you from personal experience that a lot has been done re treatment since 1983, when I had GBS. I was hospitalized for 2-1/2 months in NYU and Rusk Institute and treated with steroid therapy back then. The steroids caused issues with my bones and I have avascular necrosis of both hips and shoulders, though I underwent a complete replacement of my left hip in 2010
I once nursed a 3- 4 year old child with GBS in 1982. He was diagnosed at age of 2. He was on positive pressure ventilator and hospitalized on an acute paediatric ward since then. All his development was affected.He was paralysed from neck downwards, his body didn't grow in size except his head. His speech not affected, could talk v.well, needed 24/7 nursing care. When he turned 4, we tried to wean him off the ventilator with support of an ambu bag, we trained his carer and parents how to care for him when he was finally allowed to have home leave. The time when I left my post, he managed to have short home leave for the weekend. Always wondering whether he is still alive today, that's the only and first GBS I nursed. This certainly was a sad experience to share. Medicine has moved on since then, prognosis probably much better these days.
Sad to say they can diagnose GBS and give the transfusions mentioned, the Neurologist was great and her Therapists terrific, 2 years later my wife is still hoping to walk again without her walker and for more that a few minutes. Thank you for your service as a nurse, good nurses are hard to find in 2022.
@@charlesdavis7461 Thank you for your appreciation of our nursing service. I can reassure you there are still plenty of good nurses around in 2022 and in future. Keep up the good work with your wife. There is always hope!
My Grandmother has been diagnosed with this. It’s been 4 days of treatment and intubation in Mexico. She had just left the US and a day later she fell I’ll.It’s been a horrible process. But today day four she has wiggled her toes and lifted her feet off the bed. I’m currently at her side feeling helpless as I watch her sleep. This video has shed some light and reading these stories have brought some relief. I hope that my abuelita will be home again soon! 💗
@@rongablue God called her home one week after I posted this comment. It took too long to receive the medication necessary to treat Guillen-Barre. Her heart couldn’t take the stress of the whole situation. I’ve never seen anything like it before her body just began to “give up”. I believe if she would have been in the United States she would have had access to the proper medication right away she would still be here today. But the What ifs don’t matter. I pray everyday for people fighting this condition. It’s truly traumatic.
I got this due to Covid 19 as I spent two months in a coma and I had all the symptoms. My arm on my left side was paralyzed and had to learn to walk again. I'm still recovering and trying to get stronger.
@@beachinhonolulu5136 have they recovered completely? I am going on a year and my left arm is still paralyzed and I have foot drop and still get tired after walking for a while.
@@raydiokilla honestly her recovery is remarkable. She was in a coma for almost a year and had to relearn how to walk etc. she still gets tired easy and can’t stand too long but she can walk and talk and eat. It’s amazing she is so young too only 27. I wish you luck on your healing journey
Hey, glad you've recovered. If you found the time, I'd appreciate if you could elaborate on the 5% you think you're missing from your recovery after a few years.
My son-in-law developed GBS on a walking holiday in Nepal - he had a 'flu vaccination which may possibly be how he received the virus but not possible to tell that definitively. His legs and arms were paralysed and he was brought back to England straight into hospital. It took a long time, hard work and lots of determination to exercise his way back to normality. Now in his fifties he still plays golf and football - also coaching young people. Shaking hands when very tired is the only indication left of this dreadful syndrome.
amazing story! i had gbs when i was 5 right after i had my first flu shot. We still aren’t for certain that the shot is what caused it. I still get really bad pains in my hips and sometimes knees.
@@PurpleHermitcrab it is certain after reading yours and above comment.. My loved encountered GBS exactly couples of hours later after vaccine shot.. Drug in shot, vaccines effect differently into each humans body .. Therefore I draw my conclusion never take vaccines when your 100% perfectly healthy.. But if you have to take vaccines neccesrly just make sure it is minimum quantity to try the effwcts
excellent synopsis...I'm a medical assistant...we ask patients before vaccinations like influenza if they've ever had "Guillain-Barre" syndrome...some patients have asked me..."well what exactly is that?"...so I thank you for the concise synopsis...I'm thinking of checking out the med books to use as a reference...thank you!
Just lost my friend to Guillain-Barre. He leaves behind a 2 year old son and a wife. Devastating and shocking. All happened with in a week. Rest in peace my friend.
thank god i recover in that syndrome i didn't know what that means when the doctor said i have that syndrome i have no reaction cause i don't really know that type of syndrome but thank god i recover and i couldn't even walk when i have that but now I'm fully recover and can walk again
I was diagnosed with Guillian Barre in 2004. I was first told that maybe my pants were too tight when I went to the ER because I couldn't walk... 3 days later I was almost completely paralyzed and progressed to my throat.. and inability to swallow. I was given 2 vials a day of IVIG for 5 days and had months of physical therapy. At the time doctors knew little about the syndrome so they predicted that I would not be able to live my life without assistance for the rest of my life, I was able to recover 90% of my mobility back. I have been very fortunate to have regained what I had lost.. I am curious though as to how many people were diagnosed with GBS and then diagnosed with another auto immune diseases later. for me 2004 GBS then 2009 Diagnosed with Lupus SLE, Sjogrens, And RA.
I got GB in 1996 back when very little was known. I went to ER and was sent home only to get worse and present with facial dropping, paralysis. Since I've had a 3 part iskemic stroke, lupus anticoagulant disorder, fibromyalgia chronic, campylobacter gastro infection, and this year severe vascular disease (PAD). I live with chronic pain and state of constant flu like state. I have 2 good days per week. Meditation and Tai chi helps, massages/soft tissue, low stress, and no meat at all diet, no fried foods, low sugar and salt. Mentally, I'm stronger than ever as I take one day at a time. I have adopted an open mind to being patient with myself. I do fun things like walk short distance on beach 🏖️, listen to soothing music, physical therapy periodically, ASMR helps, and rest when tired. Sending you my very best, positive energy. Living in the moment each day 🙏😇
I have had GBS and had 2 neurologists and both did none of the treatments you describe. In fact I was not given any medication. Nor did it start in the lower legs. It started with severe back pain that eventually made my whole body go numb. I was on a walker for 3 months again the specialists said I would need it for over a year. My immune system was strong and I got full recovery with not any form of medication at all
Hi shashikant, My mother also got an acute GBS four days back. She is receiving her IVIG dose and 4 days are completed as of today. Can you tell me how much time it will take to recover? Also of you can suggest some good practices otr medicines which were used in treatment.
I feel so fucking lucky to have gotten Guillain-Barre and got out of hospital after only two weeks or so and then went on to make a full-recovery in around a month or so, I am really REALLY thankful for it 🙏 and I hope the people who do still suffer with it could make a full-recovery too.
@@muhammadfaruq9182 The protocol in the hospital l work in, firstline is plasma exchange, then immunoglobulin IVIG this all alongside the supportive treatment of any clinical manifestation.
I've had GBS several times in my life.... unfortunately. Oddly enough, I'm in a hospital like facility with GBS right now!! I've been sick for almost 3 years...I have breathing tube called a trache tube that's inserted into my trachea through a hole in my neck..I also have asthma!! So that's how I take my asthma breathing treatments as well....the scariest part of all, in my eyes, is that I've been out of my mind for that WHOLE time!! I just got my mind back ALL the way, TODAY!! I did have what I thought were just bad dreams about being in a hospital... but then I realized that I couldn't wake up from these "dreams". That's when it hit me... something wasn't right!! Come to find out, I WAS RIGHT about this situation NOT being just a bad, terrible dream!! THIS is real... I could've died!! My family told me that I stopped BREATHING at one point...clearly they were able to bring me back, but I just can't believe this craziness actually happened to me, to my family, AGAIN.... This is my ACTUAL FIRST DAY of full consciousness...or as I seem to be calling it, (based off of reading my text messages that I have between me and my family) I'm back in "My Right Mind"!! This is so freakin' crazy to me!! This is definitely NOT the position that I wanna be in right now, but at least I'm ALIVE and back in my MIND, to be able to say that!! I just want this mess to be over and done with and I want to FINALLY be able to go home and get MY LIFE back!!! Normally I don't put myself out there for anybody to "see"... but I figured, "Why not?!? I might as well".. so here I am... this is ME!! Hopefully I've been able to help SOMEBODY, SOMEHOW!!! Hopefully I've been able to help MYSELF somehow.... thanks for letting share my story with y'all. Hopefully I've been able to help someone else out there that's going through some tough or crazy times!! Whatever you do, don't get discouraged or depressed!! TRY to keep your head up and stay as positive as you possibly can!! Even if you have to fake it!! It may not seem like it and it may not be clear right NOW, but it WILL get better!! I'm telling myself this as well... this is for ANYONE that needs to hear this!! God bless you and stay safe out there!!! Amen AMEN 🙏🏽😇🙏🏽!!!
Thanks for your comment. Ive been having an insane time dealing with Pneumonia from Covid 19. With the Pneumonia, I feel so damn weak, like ive never felt in my whole life, and also makes it really hard to get any sleep at all especially with having asthma. I was looking at this video because ive been having weakness in my hands and muscles.....
Video is excellent and more than that the explanation with momentary pausing of voice which enable to catch the concept is out of the box...hence subscribed... Kudos to the team...expecting more like such
Our 29 year old son has been dealing with this since 8/2021. It's been 8 months now and he still can't walk and can barely use his hands. He's been in continuous therapy since 9/2021 and although he is getting better, he's a long way from walking again. His GBS came on very quickly. He was literally walking at the store at 9pm, by 12:30am he noticed he was stumbling a great deal and by 3:30am, he was paralyzed from the chest down. He was very lucky we got him in to the ER so quickly. The doctor said his damage was extensive with damage to the protective layer around the nerves and to the nerves too. They started him on an IVIg and when that didn't help they did the plasma dialysis, but with no real change. Has anyone else had a quick onset like that? I've not talked to anyone with an onset that took place over hours; has anyone on here experienced this? If so, what was your prognosis? I'm just praying he will get back some resemblance of his life before.
Mine took like 2 days for my hole body to paralyze I had it when I was 15 I’m 34 now and still have some aftermath your son will need a lot of support mentally and physically don’t let him down cheer him up on his therapy!!!!!
My father got it 10 years ago. A week prior he had a stomach flu. He woke up in the morning and suddenly could move his entire body. He could only move his head. There were no other symptoms before.
My son was diagnosed with this a month ago, has severe nerve damage was in full paralysis but can now move his head and face, slight shoulder movement and can get a foot to wiggle every now and then, it happened so quick we took him to the ER they sent him home with antibiotics saying he had strep and stomach virus, 2 hours later we drove him to childrens hospital and by the time we made it there he could not stand and had to be put on a vent immediately!!!! It’s scary because of how fast this happened, went from walking that morning to not being able to stand or breathe that night and then after being in the ICU his body went into full paralysis…I pray more info comes out for this and more awareness because I had never heard of GBS until he had gotten it, it still seams surreal because it happened so quick and you never think it will be your kid, we’ve been in the ICU for a month now still on the vent with some small improvements, they’re wanting to put a trach in so they can get him out of the ICU to the physical therapy floor to work with him, I hope no one has to ever go through this with a child or loved one and if you are goin through this I pray for you and just know you’re not alone ❤
Oh Lord! I pray that God shows mercy to your son and your family. I pray for miraculous recovery right now. I speak complete healing in the mighty name of Jesus. No weapon will prosper against your son because God has great plans for him! I rebuke every sickness right now and release healing and joy and peace over you in Jesus name !
Yes! Are they are saying the J&J vaccine increases susceptibility to the bacteria that causes GBS? Or does the J&J vaccine induce GBS all by itself? I got the Pfizer vaccine that will probably have issues too. J&J only has 21.4M shots with 12.7 used. The vaccination rate has gone down so low it's depressing.
@@johnconway4389 LOL nah whats depressing is the unvaccinated are going to have to stay away from the vaccinated to avoid getting sick from yall LOL yall are going to carry every disease known to man soon.
I got GBS in 1997. Still can’t walk without elbow crutches and have no balance. It really has destroyed my life as I knew it. If you get it bad it has unbelievable effects on your body.
@@mohitsrivastava3381 not taking treatment now. Still do my own physio. Just a really difficult situation. Should have said I use elbow crutches to get around. I live in Melbourne, Australia so had my initial treatment in the local hospital.
had it from may 2023 when i was in a coffee shop. when i was trying to stand up, my knees are so weak. then, i fell. everyone thought i was drunk or just joking but when they knew that i wasn't playing, they immidiately call the paramedic and i was rushed to the hospital for two weeks. now i still have the residual/long-term with pain around my knees or sometimes weakness but they come and go. i hope that my disease won't reoccur in the future.
My mom had this. She was in hospital for a long time. They had her on a blood machine. Then she went into rehab. Made a full recovery. But then had heart attacks and cancer and died. 😢 I miss her so much.
Note: Guillain Barre isn't always ascending and shouldn't be presented as such. 30 % of patients report symptoms starting from both upper and lower extremities. In addition, 15 % of patients report symptoms proceeding distally i.e. towards the extremities.
My wife is a pediatric PT who treated a few patients with Guillain-Barré years ago. She is currently admitted to a hospital and suspected of having Guillain-Barré. Hopefully she will be getting treatments like IVIG soon.
I was diagnosed with small bowel cancer last year .I am on chemotherapy after having half my bowel removed .The chemo can cause similar symptoms to GB .I have numbness in my toes and fingers they are so weak i cannot open any packaging or do up buttons or press studs on clothing etc .Even cant get the cream out of the tube the McMillan nurses gave me to use on my feet and toes .I was told to take Vit B6 perodoxine hydrochloride .
How are you doing now? I hope you are feeling better Kathryn. If possible plz search Metaphysical Anatomy channel on youtube and Listen to Evette Rose plz. I wish you healing and good luck 🙏🙏.
I wanted to learn more after recently hearing that some doctors believe Franklin Delano Roosevelt had Guillain Barre Syndrome instead of Polio as originally believed.
Didnt know that!! Wow will research. Well my dad had GB after the flu shot and it was a very difficult time for my family. And a client who had disappeared for almost a year had guilliam barre. His wife came into the salon to book an appt and said it's been a horrible year. She Explained that he also got GB from flu shot per his dr. I know it's rare that it could occur "that way" but it's worth knowing about.
I m a gullian barre sydrone patient in 22nd 2016 i collasped now 5 years i still no balance bad foot drop claw fingers Pls pray for me i want to normal
Dear Lord I pray that you heal this person and that you strengthen them and support them physically mentally and spiritually. Glory be to the highest the king of all Kings hallelujah. Amen
2001 got guillain-barre and it hit my respiratory, where I couldn't walk talk or see for 3 years. Had two neurologist that was clueless. The pain I had lasted all through the years and continue, but not as bad. I aspirated all my drink and food. My mylon sheath was affected so bad, the pain! I saw 4 yellow lines a two white lines when I drove down the road. We really have medical idiots out there. I should be dead.
@@Rmveber my treatment was heat. I took many hot baths and had a rice pack wrapped around my right arm seemed like forever. The pain was so bad I was in tears constantly. I did stretches everyday and was on vitamins that my chiropractor put me on. I went to the chiropractor every 2 to 3 weeks. I was on steroids and aspirating pills for 3 years. If I don't go to the chiropractor every 4 weeks it gets harder to breathe. I took myself off of the steroid and the aspirating pills once I was able to eat and drink normally. I still have nerve pain in my right arm and sometimes I still use the rice pack that I made. You put the rice pack in the microwave.
I had an acute (within hours), purely sensory (non-motor), diffuse neuropathy that was extremely painful and on every inch of my body after a car accident. It felt like I was being electrocuted, burned, or stung. I never had motor issues. But everything else presented itself as GBS. It started in my feet and spread to the rest of my body hours later. My EMG was normal. My symptoms did not get better. 15 neurologists didn't know what it was. 1.5 years after the wreck and onset of symptoms, my EMG started showing demyelination. I was diagnosed with CIDP. I also had a nerve biopsy that showed Small FIber Neuropathy. I started on IVIG a year ago and it was helped the pain a lot. I get frustrated because there's nothing in the medical community about a sudden onset of purely sensory, diffuse, neuropathy. Well I had it and it never went away. IVIG helps me manage, but I suspect I will be on it for years now. I wish they had given me this right after the wreck ... insurance would have never paid for it right away before an abnormal EMG though... weird that it took that long to show abnormality in my EMG, but my symptoms were acute. Does a purely sensory GBS exist?
Guillain-Barré Syndrome happened to me when I couldn't stand up for all of a sudden, i tried to get up but no matter what I couldn't get up, I can't remember anything after but my mom helping me get up, after a while we've gotten to the hospital and after a while I was moved to a new hospital, My dad was always with me and my sibling and mom were at home, I didn't know what was going on when I was going to the hospital. It was so scary. Luckly I was treated and I have been good ever since I've left the hospital.
I had it in 1979 at the age of 27. Never received any sort of IV. Put my mom through hell one night when I came close to needing respiratory aid...but thankfully it wasn't necessary and started my slow recovery process. I did have a full facial paralysis that recovered. All in all it was an experience I don't wish on anyone.
This is more than spooky how TH-cam recommend this to me when I just had a patient few days ago with suspected GBS. Though didn’t know much about this condition, guess someone wants me to learn more about it 👩🏾💻📝
Yes I was just talking about gB the other day and it just came thru my feed as well. Spooky. Nothing private but worse that you were with a patient. But then HIPPA no longer matters you know...unfortunatley. theres no privacy anymore
HAVE FAITH!!!!! From onset with almost total paralyzation to complete recovery in 2 weeks in my daughters case. Standard Electrophorisis and Immuno infusions were used along with physical therapy.
I'm waiting to be diagnosed. My family doctor thinks I have the beginning stages of MS. One neurologist said he thought it was sensory neuropathy and wanted to give me medications that I turned down. I'm not diabetic. I don't smoke or use alcohol. I'm seeing a different neurologist now. Next week I'll do a nerve conductive test. Depending on what the results are he said I may need a spinal tap. I have lost some of my reflexes in my knees. My MRI results showed some flares that were called white matter disease. This Guillain-Barrr'e was also brought up. So I'm still going through symptoms that started awhile back. The fatigue started in 2017 and the doctor thought it was shift work disorder. The fatigue is getting worse. Pins/needles and numbness in my hands and feet. My lips have a buzzing feeling and have moved on their on for like a second. I get twitches off and on in my face. But no one can see the twitches. My right thumb has moved in the past by itself. My right side has been effected the most. But I have symptoms on both sides. I can park my car and sometimes it feels like the car is still moving. My balance is off sometimes but I haven't fallen. It's one thing to have to deal with a health issue. But adding the fear of not being able to keep your job is awful. I can't see myself not being able to support myself. I use to be a six mile runner and now just being out in the heat wears me out. My legs feel like my shoes are weighted down. It's like everything you are going through is invisible to others while you are hurting in front of everyone. My voice changed a year ago. First I thought it was allergies.I take medication for my thyroid. I've been to see different specialist and now it's in a neurologist hands to tell me what is going on.
Have you recently have the Covid vaccine? This has caused very similarly symptoms in me aswell as lots of other people. I am 33 years old and 3 days after my third vaccine I developed symptoms like yours.
Do not inject the MRI gadolinium dye..its toxic and causes pain and serious health problems. MRI Gadolinium Toxicity Support Group online. No contrast dye!
I had GBS in 1997 and fully recovered but had weakness and pain for several years, particularly after stress or tired. I found that i needed extra rest to cope and recover. I avoid most inoculations but recently had the Moderna jab for COVID. Although GBS is not common, I have known 4 people who had it, one of whom is still paralyzed after 25 years.
Would not have chanced taking the Covid vaccines. I had GBS 5 years ago & the pain/recovery was terrible & long. Right now I personally know 2 people who’ve gotten GBS from the Covid vaccine. The number is much higher than what is being reported.
Doctors in Germany could not diagnose me till now and im researching desperately to find such a correct video. I don’t know if Covid vaccines could have caused this issue or not
Thanks for this video. I like the way you spoke gently and clearly, easy to understand what you said. I've never heard of GBS until today, I read an article that said some people in the UK, Australia and India got GBS after taking the vaxx, so I searched for what kind of disease it is, and the symptoms. Well done.
Any vaccination has risks because there is a very small minority who could have a reaction but so does not taking it, where the risk is far greater so don’t let that put you off vaccines, without them, polio etc would be rampant. Watch a video on the effects of polio.
i contracted GBS in 1999 and became quadruplegic,i have partially recovered but now diagnosed as an incomplete quadruplegic but still hete after 23 years aged 71, i was given a process called plasmapharesis several times a week to seperate the white blood cells from the red then replace white cells with plasma, its not fun, wishing all with this disease the very best
I had this, this year, after campylobacter and dysentery which also caused critically low phosphate. My speech is still affected when I’m tired. I get tired a lot. I still braved a trip to India (thanks to the pandemic my marriage was cancelled repeatedly for 1.5 years so I had to go there to marry my fiancé or we’d have prolonged our separation) … it would have cost more for him to come to the U.K. for us to marry … and then I caught another stomach infection in India - but I’ve been ok. No more nervous system problems … Just extreme fatigue. Now I’m working 6-7 days a week to get my husband over here - fast. We lost a lot of money in the past 1.5 years due to repeatedly trying to get together and failed plans so I now need to work overtime to help cover costs (which we are paying together but it’s a lot of money) otherwise I’m potentially waiting another 12 months to be reunited with my husband. So I’m killing myself with work when I don’t feel well enough to, just so I can have my husband with me. Only then can I reduce my hours down to acceptable levels to help me recover. It’s extremely unfair what we have to keep going through. Such a battle.
I had gbs when I was just 2 years old and thankfully recovered but came back just this Jan 2022 and I'm now 14 and I'm still at the hospital as I'm writing this comment currently recovering in rehab
This picture should be enough to make diagnosis, but my husband doctor refused to give plasma pheresis life saving treatment. Another doctor did testing and notice elevation of protein in spine. It almost cost my husband life because the delay in treatment one week after recuperating from covid
I developed Guillain-Barre after a mmr vaccine. I was told if I didn't get it,I wouldn't be put on the schedule. I Received the Vax March 23 March 24th I was swollen with aches and pain. I'm ferious!
I had Guillain Barre Syndrome in 1985. Return home from 1st semester of college, recognizing extreme weakness in my legs. Not much was known then about GBS. Spent one night in the hospital and sent home. By the grace of God and an my family taking care of me, I recovered. It's an ordeal I would not like to go back through. I pray for all who are experiencing GBS.
In 1985, I recieved no treatments. The doctor asked my mother to monitor my breathing. I never saw that doctor again. There after, I eventually recovered on my own at home.
I had it when I was 21. One of the lucky ones, it didn't shut down my heart a s lungs.. I was told not to have flu vaccines as I could have a relapse.. I've never had a flu vaccine in my life and for that matter, I couldn't tell you when I've had the flu.. Meanwhile I've been told by many they get the flu shot but end up getting the flu... lol 🤔🤔
Jeff, I've never had a flu shot in my life either, and as far I know, have never had "the flu". It appears the jury is still out on the safety and efficacy of some vaccinations. My thinking is, don't be messing with your immune system if you can avoid doing so. My own brother will not let me visit him because I haven't had the COVID vaccine shot. This, the same man I visited in the hospital with Epstein-Barr and he never once made an issue about passing on HIS infection, while I was in his hospital room. Go figure. All most of these videos prove is that the "scientists" are mostly guessing and jumping to their own conclusions. And that Fauci is just an over-paid fraud in my opinion. Makes more money than the president of the US and never leaves his administrative desk to step foot in the actual laboratories ... just another political bureaucrat with ties to the pharmaceutical industry.
@@tabitham1057 I was talking about the last part where they said they’d never gotten the flu despite not having a flu shot but they know people who’ve had the shot and still got the flu. It kinda sounds like they’re saying vaccines don’t work
Molecular mimicry, B cells Create Antibodies against the existing pathogen Same antibioies match proteins on the Nerve cells Target protein cells on the Myelin sheath (motor nerve or on the nerve axon itself) this targeting of the nerve cells creates the neuropathy
I contracted this 4 years ago. I went from being able to walk normally to unable to walk at all in 5 days. Very scary. Fortunately, my local doctor worked it out after 2 other docs couldn't. He got me to hospital rapido the next day. I was able to walk again after 3 weeks and have made a full recovery, as it was mild atypical, but scary enough at that!
As healthcare provider, particularly as a clinical ward pharmacist at neurological department, l have seen a lot of cases with GBS, generally any autoimmune disease with neurological manifestation, the recovery is pretty slow but there is noticeable progress. What l have noted that the patients with familial support and lighted sprit their response is way better on the treatment protocol. Yet, sadly most of them are depressed and helpless😢😢. I hope the complete recovery to each patient and everyone to stay healthy and sound. Ameen 🤲
I was admitted into an Intensive care unit with what they called COVID-19. Intimated after 5 days. On the ventilator for 21 days. When I woke I couldn't move my arms and legs. I couldn't even turn myself in bed. That lasted another 26 days in an critical care unit . I was moves from there to an Acute Rehab Unit for another 26 days to relearn how to walk and use my arms. How to turn myself...etc. Is it possible they misdiagnosed my ailment just to get the bonus money from the government as a covid patient?
You have described it well in short and clear. I have been suffering from G.B.S.since August 2020. Thanks to Dr.Srinivas Reddy & Dr. Harish who gave me life. I have recovered almost but still under medication because I'm losing my voice whenever I'm stressed /tired. What may the best way to overcome this? Could you kindly suggest me.
I had GBS in 1984. Thankfully I recovered. I was in a wheelchair, then made it to a walker then a cane. It was hard for them to get me diagnosed I remember. But now since 2015 I have been diagnosed with CIDP, which is a "cousin ". I have been on IVIG, every 2 weeks since April of 2015. It still took 7 months to get diagnosed. But at this time I am maintaining.
I was diagnosed in 2017, ventilator, plasmapheresis, weeks in hospital, home in a wheelchair. I walk with bilateral afos and a cane. My new neurologist just told me in my 15min visit, that I never had gbs because at 41yrs old I would have been fully recovered at 3 MONTHS!!!! Gee, thanks doc. (I think he bought his PhD)
I suffered from the illness in 2018 and in 2022. It stole my life, time and happiness from me but I still fight everyday with fatigue and occasional body pains. It started in my face and eyes with blurred vision and dizziness, doctors misdiagnosed me in the er and discharged me, I left the er room and fell in the er hallway, 24 hours later I was in ICU fully paralyzed. I was awake but scared cause no one knew what was happening until they confirmed with a lumbar puncture that I had a protein for GBS. Godbless every doctor that day, they ran and saved my life and because of them I am able to see my babies finish growing. I am now 35 and try to limit my stress levels, eat a moderate diet and do light exercise. I’m happy to say I am a survivor.
Hai kindly send your no
The very best to you. It’s a fight that unfortunately is up to you to fight alone so often. Be careful in your fight and be kind to yourself. If you do a good enough job you will watch your children grow. You sound like you have it under control. Good luck with everything.
Wow, I've never heard of someone having it twice. I have also had it.
My Beautiful Wife Beth was first diagnosed with Guillian Barre Syndrome back in early October 2018 and is currently in a nursing home.... She has improved drastically during this time but still can't walk... This has been one of the hardest things we've ever been through in our 13 years together.... There were several times in the beginning that I thought I was going to lose her but she has shown so much strength and refuses to give up... I have been with her since the beginning and I will be there with her until it's over with... It's especially hard when it happens to someone you love & it's one of the worst things I've ever seen and I went through brain surgery in 2012....💔 54 years old when I first heard of this and wish I didn't have to find out the way I did....
My 25 year old granddaughter has g.b.s just found out July 11 this year I wish I could talk with someone that has went through this painful ordeal.
Prayers for you and your wife
@@lindajenkins5209 I was diagnosed with Miller Fisher Syndrome a GBS variant . The first symptom was inability to walk numbness in my mouth and had double vision. Anything that I hold just fell off my hands. The doctor suspected at first that it was a stroke, he gave me immunoglobulin for 5 nights through iv. After 3 months I fully recovered. That was 11 years ago but now I'm having residue from that because i have unexplained fatigue and tingling on my fingers. I was 58 yrs old then.
@@lindajenkins5209 Hello you can tell me. How is she ? I had GBS when i was 26 . Is she on Ventilator?? Or is stable?
@@lindajenkins5209 I am 25 years old and diagnosed with this right now. I am in rehabilitation center for nearly three month. At the beginning I couldn’t do anything alone and needed help in everything that I had or need to do. Now I can walk and stand, do things and need help to get up from regular chair, can’t still got up on stairs and need help in the toilet… easy easy but on the right way I move for recovery
One of my teachers had GBS at young age and it inspired him to become a physical therapist after he fully recovered with the help of physical therapy
And he's your teacher? Whaaa? 🤷
@@janchampine2009 I think he had been a teacher, and then went back to school after recovering, to become a PT.
Wow...kudos
Avoid vaccines
Kindly share your no
Just watched a video of a mother of a newborn who completely overcame this. It was a long & hard road she spent 126 days in the hospital total. Went from being paralyzed to walking again. Great story.
I got GBS at 15 in Dec 2017. Such a terrible experience. Nobody believed me, not even the doctors when I told them I was getting weak. Then after my 5th visit they life slighted me to Kansas City because I was completely paralyzed. I had to wear an oxygen mask for a week bc I also had pneumonia. I had to learn to walk and talk again. I definitely don’t wish it upon anyone.. the worst pain to ever go through. Recovering is depressing, but yes god is with all us and he saved my life.
All thanks to the Almighty.
So sorry you went through this! Why didn’t they believe you? I don’t understand this! had a patient admit for sacral wound and sepsis and was unable to walk because of GB a few years ago… patient can feel their legs but not move them and told me doctors didn’t believe him at first… and now it’s in his history in the chart but he still encounters doctors who don’t believe him… we learn about this in nursing school but doctors are just ignoring it?
My daughter was struck suddenly by GBS on the evening of August 17th, 2024. She is 20 years old and has been in the hospital since. She is essentially paralyzed from the hips down, only able to move her toes and rotate her ankles. Prior to the event she was an active, normal young lady, a college cheer leader at CSU.
My sister who was 16 in 1977 passed away from complication's of GBS, she got it from the swine flu shot that was given in school that year. She ended up paralyzed from head to toe from it, got gangrene in her aorta arch from using a too large of a tracheotomy tube and ended up having 17 open heart surgeries in 3 months, she actually began to get better from the GBS like getting feeling back and sitting up and starting to breath on her own and even ate a few bites of food after 3 months of being paralyzed, but sadly she died of a brain aneurysm. This all happened at the Mayo Clinic in Rochester, Mn. They had such an amazing team of Dr.'s there. We believe she would have passed sooner than she did if she would have stayed at our small local hospital in Iowa. It is amazing how things have changed over the last 45 years how it is treated!! RIP my sweet sister! You are so loved!! Miss you so much!!
🙏
Since swine flu was first identified in Mexico in 2009 I’d be very surprised if it were from a swine flu shot in 1977… I’m sorry for your loss.
My deepest sympathy to you and your family LuCinda 🙏 🙏
@@sueburt1757 actually, there were two major swine flu vaccine rollouts-one in 1976 and one in 2009. The 1976 vaccine was rolled out after a sudden emergence of swine flu at Fort Dix. This is according to a Medical News Today article. And according to the CDC, the vaccine caused a slightly increased risk of GBS.
@Sue Burt yes swine flu in 70s. She is right
This video is not only great but fantastic! It explained the complicated medical issues, for both medics and non-medics, in a viewer-friendly way.
Thank you!
My dear darling daddy had this in the 1960's. Was in hospital for three months. This was so frightening to look at. By the grace of God Almighty and most wonderful and dedicated doctors, he walked out of the hospital. God bless all those loving and dedicated doctors and nursing staff who attended to him.
I have GBS, after a flu vaccine. My pain didn’t go away until I fasted for 4 days. Now, anytime it flares up, I fast. Fasting is the only thing that has ever worked for me.
Thanks for sharing, how do you fast? Do you just drink water and nothing else for 4 days?
Thats what works for me with this.
I'm 28, and had a flare up once when I was in the 10th grade.
Still, 13 years later, watching what I eat, portion control, fasting, lots of water and a mindfulness of listening to my body on cravings and turning most of those cravings down has worked for me and i haven't had an issue since.
Once I feel things in my feet and twitches in my face, I know I'm missing something or I've eaten something I didn't need. Very mindful of my vitamins and lack of is always the best to keep this under control. I've noticed I crave a strong Keto diet and I take vitamin C and D to manage it.
Good luck and I hope you're still managing this.
My son was diagnosed with GBS just before his 2nd birthday. He quickly recovered through plasmapheresis over the course of a 10 day stay in the hospital. He had to learn to walk and talk again, but quickly recovered. This was in the Summer of 1990 and thankfully he has no residual effects.
Wow, I had it around that time, but I was about age 12. Had to learn to walk and talk again, and had the same plasma treatment.
My daughter got GBS last year at 7 years old.. it was a long hard road to learn to walk again, she still deals with pain on and off.. great video
My brother had it way back in late 70's. At that time only about 11 people had been diagnosed. But , his case started in his head , a numb tongue within three days he was on ventilator and in ICU for almost three months . Luckily he was young and recovered almost completely within about six months . I remember his nerves coming back to life excruciating pain. It was impossible to keep him down and even before got over the "foot drop" he started playing baseball again. He recovered completely.
Thankful for your brother's recovery!
Thank God!
I got this just before my 9th birthday. It started when I was at recess in school playing tag and I noticed I couldn’t run as fast as I normally could but didn’t think anything of it. My mom and I were scheduled to go on a mini vacation that weekend a few hours away, and the first day into our trip we went on a walk down a long trail to see petroglyphs. At the end of the trail I collapsed and could no longer stand up or walk, so she had to carry me all the way back to the car and rushed me to the hospital. I’ll never forget the look on her face, or the doctors when he said he believed he knew what was going on. Sticks with me. I recovered a couple of weeks later but had to undergo physical therapy for months and still have some longterm side effects but they are manageable and I can walk just fine. My longterm symptoms are mostly related to fatigue but with a healthy diet and exercise it seems to stay in check
Are you ok now ?
CDC study shows risk of Guillain-Barré syndrome elevated after Ad.26.COV2.S COVID vaccination………. Did you take the vaccine (covid shot)????? This is what lead me here a news article.
@@khiyaduo This happened to my daughter @ 10yrs old after the HPV shot. She was paralyzed from the neck down. Was in ICU for several months and Rehab 7 months. She had to relearn everything again. There are many shots and vaccines that we were advised not to take. Covid-19 one of them!
I hope your okay!
Were u ever told it was caused by your vaccines ????
Got this when I was 19, 24 now and thankfully standing stronger then ever hope all else that go through this make quick and full recoveies
How did you recover?
@@german_lifestyle_tajbakhsh7282 plasma infustion
My ex wife’s younger sister was struck down with this…back around 1982ish…she almost died several times but thanks to superb medical care she survived 🤷♂️…love to all 😘
You are literally helping me get through my finals. I love your content and I visit your website daily. Thank you so much for everything you do!!!! - RN student
I was diagnosed around Christmas just gone after three days in hospital. It was scary. I had Covid, which led to sciatica. The sciatic pain abated, but i woke to find I could barely walk. It's five weeks later and I've made very little progress this far. I'm getting around on crutches and try to stay positive. The prognosis for most of us is quite good but requires patience. I'm trying to stay active. I shop using a trolley as a walker and the stairs to my second floor flat are a challenge and a workout. Although debilitating and extremely frustrating, my heart goes out to those who have it much worse than I do. I've cancelled any life plans I had for now. I'm a carpenter by trade, but now have elderly people scrambling to hold doors open for me. It's humbling,to say the least.
Is there any community group on social media or some messanger applications of people who had this disease in the past or still have it?? I think it would be good to share experiences there
did u suddenly stop walking after covid? i have covid and my hands and feet feel very numb in the extremeities namely my left hand has some strange numbness. hope you make a full recovery, feels like not many people talk about these symptoms with covid
Sciatica is a pinched nerve…Covid didn’t cause that lol.
Thats crazy, i had almost the same thing happen to me too around the same time after getting covid. Its been 5 months and I'm still recovering. Im glad you are doing better. The chronic pain out of nowhere is quite a mental challenge too. I hope youre alright
@@jamiebury1807 I hope you went to a doctor. Your symptoms were the same as mine and I have GBS.
I got this after getting the flu vaccine in 2018. It was awful! Thank GOD I am better, but I have still have painful peripheral neuropathy. According to my neurologist, it is most likely permanent. 😞 And while I hate it happened and it certainly changed my life, I am very thankful I recovered!!! 🙏
It's strange because now I'm hearing that people who have been vaccinated with you know what have gotten this condition, I'll have to look more into this..
My doctor suspects I have guillain barre from my j and j vaccine. I deal with very painful neuropathy. I’m waiting to get ivig.
So very happy to know you are better!!! Because of my brother's GBS tragedy, I'm now not going to get any vaccine!! Watching him suffer those 8 months in the hospital was enough to scare me!!
The exact same thing happened to me after a flu vaccine 5 years ago. I still have chronic sensory neuropathy CIDP and still take IVIG monthly. I’m glad you recovered. Did you open a case with the federal vaccine compensation program? Mine is still in process.
@@jankelsey9738 Hi Jan! My brother did file a claim with the Government, had to provide all his documentsfrom the 3 different hospitals/rehab facility he was in. His lawyer representing him said he's not seen a case as bad as my brothers. It's been in review for 3 yrs now, seriously 😐! They finally came back with a settlement amount, which was ridiculously lower than what he should receive. We are giving another final push back to try and get at least a bit more . It's very maddening!! He still has GBS in the bottom part of his legs & they say he'll always have that.
My brother had this when he was only 6. It was so bad in the beginning. He was diagnosed in august 2020 and was paralyzed and needed a tracheostomy. Thankfully he got home just before christmas. He still struggles physically, he can’t run like other kids and isn’t as flexible. I’m so grateful he got through GBS as such a young boy❤
Did your brother have a flu shot before this happened?
❤❤
My daughter had this when she was thirteen. She only had a little cold a few weeks before this devastating condition. But had recently received some vaccinations. She’s considered fully recovered. But she is not the same. It was extremely painful. Completely debilitating. In hospital almost two months. Being treated and then learning to do everything again like a baby. Walking, feeding herself, speaking, brushing her hair etc.
❤❤
I got exactly the type described in the beginning of the video at 5 years old, lost the function of my legs at first but at the worst of it I was put in a ventilator so I could breath. I was in the hospital for 6 months, a wheelchair for some time and then crutches until I could start walking again, it took 5 years, and I believe because I started training ice hockey, I made a full recovery.
My son got this when he was 4 years old, in 1990, heartbreaking to see such a young person get a lumbar punch. He took about 3 years to recover.
in Belgium it is advised not to donate blood after you had GBS. Also be careful with the new shots of C 19
What do you mean "lumbar punch "?
I have this condition. I'm so weak in my legs and arms, I have a proclivity to seizures, heart attacks and strokes. I'm slowly developing parkinsons and I have these rushes of pain that follow mental breakdowns.
I can't begin to describe how useful this video was for recognition of symptoms.
Thank you🎉
My father had guillian barre after the flu shot in the 90s. He was in the hospital for a while and eventually recover ed. I also spent time in the hospital with a woman who had Gilliam barre. It was horrible. We shared a room and she was paralyzed, she could only whisper so i had to call nurses for her, she lost control of everything, she was very young. I was paralyzed on my left side but I felt worse for her! I hope she is ok now. I pray🙏
Hello. How is your father now?
@dystopian21 I'm very curious to know time period took for your father to recover such as walking etc..
One of My loved one encountered Guillaun Barre right after few hours when she took shot of vaccine.
She can talk perfectly fine, move head but legs, Arms are not moving..
I'd love to hear bit more from you so we can also takes those precautions for her .
@@valuechain4710 - a friend of my daughter's stepfather took the HPV vaccine, and contracted Guillain-Barre and died almost 3 months later. I really wish they would make vaccines hypoallergenic so they are safe for everyone!!
@@lisarice4402 I'm so sorry to hear that.
My loved one cured in 2 weeks perfect condition..
Actually under menstrual cycle taken injection 💉 caused her head below body motionless.. she recovered miraclelssy.
Her early symptoms shows GPS syndrome but after 4days she slowly begin to move hands, legs
@value chain - your loved one got extremely lucky
My dad had this as a teen. Missed a whole year of school. He made a full recovery eventually. Likely due to the fact he was young.
how he recovered
i’m recovering from it at the moment
@@TauntEh I'm very curious to know time period took for you to recover such as walking etc..
One of My loved one encountered Guillaun Barre right after few hours when she took shot of vaccine.
She can talk perfectly fine, move head but legs, Arms are not moving..
I'd love to hear bit more from you so we can also takes those precautions for her .
@@valuechain4710 another thing to keep in mind is age, i got out of hospital in 6 weeks i’m not sure if that’s quicker than average or not but I was 20 when I had it the worst, older people can take longer to recover but honestly if the person is dedicated to getting better every day they will be fine :)
@@TauntEh thank you very much for your feedback..
I am positive person so o shall stay positive.
This hits home. Remember a close family member aflicted with this syndrome. It is quite bizarre. One day you are walking and next day you are paralyzed. No explanation, no obvious signs. just bed ridden. I am glad that it resolves on its own but during those times you are confused and highly stressed out. You honestly don't know which way is up and that is for the family member. Its much worse for the patient.
a friend of mine has been hospitalized and I've just got the news it has spread to his eyes even. praying for a complete recovery
Nasıl oldu
My mother got GBS exactly 10 weeks ago... she used to not move at all but now she is only moving her head, even though she's not talking, it makes me happy that she's making progress.
Is she recovered now ?? because my brother as encountered GBS since 22 days he is in ICU only no recovery even after ivig injections
@@kavyamotapothula7393 She’s on her way. Unfortunately this takes a while. But she’s been able to talk for about 3 or 4 months and she just started eating soft food a few days ago. I hope your brother gets better, truly sorry.
Yeah and plasmapheresis is also started and it will be 4-5 days will it helpfull?
@@kavyamotapothula7393 Yes, that should help at least a little
I had it when I was 31 had a child with cancer and 2 other children to care for.I prayed 24 hours a day to get well so I could take care of my girls
I speak and release healing over you and your kids. May the healing touch of Jesus cover your family !
Thank you so much for your explanation of GBS. I appreciate having it explained so simply and clearly!
I was diagnosed with Guillain-Barre` Syndrome on May 24th 2022. I just got out of the hospital after having IVIG treatments. I was lucky that it was caught early but I am going to have a long recovery as I also have Ehlers-Danlos Syndrome. O'Joyous times.
You got this
I'm not a doctor or even a medical professional, but I'm determined to learn as much as I can before I start my medical degree. Thank you so much Thomas, these are great videos.
Glad to help. Good luck with the medical degree
That's amazing, this degree doesn't need smart people, it needs people with heart and determination like you. Keep it up
If you want to learn about GBS talk to me I can inform you since I had it
This is a great explanation of GBS. I can tell you from personal experience that a lot has been done re treatment since 1983, when I had GBS. I was hospitalized for 2-1/2 months in NYU and Rusk Institute and treated with steroid therapy back then. The steroids caused issues with my bones and I have avascular necrosis of both hips and shoulders, though I underwent a complete replacement of my left hip in 2010
The two types of transfusions mentioned in the video are life savers in my opinion.
I once nursed a 3- 4 year old child with GBS in 1982. He was diagnosed at age of 2. He was on positive pressure ventilator and hospitalized on an acute paediatric ward since then. All his development was affected.He was paralysed from neck downwards, his body didn't grow in size except his head. His speech not affected, could talk v.well, needed 24/7 nursing care. When he turned 4, we tried to wean him off the ventilator with support of an ambu bag, we trained his carer and parents how to care for him when he was finally allowed to have home leave. The time when I left my post, he managed to have short home leave for the weekend. Always wondering whether he is still alive today, that's the only and first GBS I nursed. This certainly was a sad experience to share. Medicine has moved on since then, prognosis probably much better these days.
Sad to say they can diagnose GBS and give the transfusions mentioned, the Neurologist was great and her Therapists terrific, 2 years later my wife is still
hoping to walk again without her walker and for more that a few minutes. Thank you for your service as a nurse, good nurses are hard to find in 2022.
@@charlesdavis7461 Thank you for your appreciation of our nursing service. I can reassure you there are still plenty of good nurses around in 2022 and in future. Keep up the good work with your wife. There is always hope!
Thank you for the information on this syndrome. My uncle died from GBS. It’s has been around 10 yrs. now when we knew nothing about this.
My Grandmother has been diagnosed with this. It’s been 4 days of treatment and intubation in Mexico. She had just left the US and a day later she fell I’ll.It’s been a horrible process. But today day four she has wiggled her toes and lifted her feet off the bed. I’m currently at her side feeling helpless as I watch her sleep. This video has shed some light and reading these stories have brought some relief. I hope that my abuelita will be home again soon! 💗
God bless you both. Have faith 🙏.
@@rongablue God called her home one week after I posted this comment. It took too long to receive the medication necessary to treat Guillen-Barre. Her heart couldn’t take the stress of the whole situation. I’ve never seen anything like it before her body just began to “give up”. I believe if she would have been in the United States she would have had access to the proper medication right away she would still be here today. But the What ifs don’t matter. I pray everyday for people fighting this condition. It’s truly traumatic.
@@amparotorres8588
I’m so sorry for your loss and pray your grandmother is now resting in the arms of the angels 🙏.
It is indeed a cruel disease.
I got this due to Covid 19 as I spent two months in a coma and I had all the symptoms. My arm on my left side was paralyzed and had to learn to walk again. I'm still recovering and trying to get stronger.
My friend did as well
@@beachinhonolulu5136 have they recovered completely? I am going on a year and my left arm is still paralyzed and I have foot drop and still get tired after walking for a while.
@@raydiokilla honestly her recovery is remarkable. She was in a coma for almost a year and had to relearn how to walk etc. she still gets tired easy and can’t stand too long but she can walk and talk and eat. It’s amazing she is so young too only 27. I wish you luck on your healing journey
@@beachinhonolulu5136 yeah that's amazing thank u and good luck with ur friend I pray she makes a complete recovery
How are you? Are you better???
Thanks for the info about gbs i was a victim of it 3 yrs ago but i have recovered by 95%
Hey, glad you've recovered. If you found the time, I'd appreciate if you could elaborate on the 5% you think you're missing from your recovery after a few years.
My son-in-law developed GBS on a walking holiday in Nepal - he had a 'flu vaccination which may possibly be how he received the virus but not possible to tell that definitively. His legs and arms were paralysed and he was brought back to England straight into hospital. It took a long time, hard work and lots of determination to exercise his way back to normality. Now in his fifties he still plays golf and football - also coaching young people. Shaking hands when very tired is the only indication left of this dreadful syndrome.
amazing story! i had gbs when i was 5 right after i had my first flu shot. We still aren’t for certain that the shot is what caused it. I still get really bad pains in my hips and sometimes knees.
@@PurpleHermitcrab it is certain after reading yours and above comment..
My loved encountered GBS exactly couples of hours later after vaccine shot..
Drug in shot, vaccines effect differently into each humans body ..
Therefore I draw my conclusion never take vaccines when your 100% perfectly healthy..
But if you have to take vaccines neccesrly just make sure it is minimum quantity to try the effwcts
excellent synopsis...I'm a medical assistant...we ask patients before vaccinations like influenza if they've ever had "Guillain-Barre" syndrome...some patients have asked me..."well what exactly is that?"...so I thank you for the concise synopsis...I'm thinking of checking out the med books to use as a reference...thank you!
So glad you liked it!
What does vaccination has to do with this Syndrome ?
Just lost my friend to Guillain-Barre. He leaves behind a 2 year old son and a wife. Devastating and shocking. All happened with in a week. Rest in peace my friend.
This was sooo helpful!! Thank you I hope you never stop putting these videos or get demotivated, and best wishes!!!!!
thank god i recover in that syndrome
i didn't know what that means when the doctor said i have that syndrome i have no reaction cause i don't really know that type of syndrome but thank god i recover
and i couldn't even walk when i have that but now I'm fully recover and can walk again
I was diagnosed with Guillian Barre in 2004. I was first told that maybe my pants were too tight when I went to the ER because I couldn't walk... 3 days later I was almost completely paralyzed and progressed to my throat.. and inability to swallow. I was given 2 vials a day of IVIG for 5 days and had months of physical therapy. At the time doctors knew little about the syndrome so they predicted that I would not be able to live my life without assistance for the rest of my life, I was able to recover 90% of my mobility back. I have been very fortunate to have regained what I had lost.. I am curious though as to how many people were diagnosed with GBS and then diagnosed with another auto immune diseases later. for me 2004 GBS then 2009 Diagnosed with Lupus SLE, Sjogrens, And RA.
I got GB in 1996 back when very little was known.
I went to ER and was sent home only to get worse and present with facial dropping, paralysis. Since I've had a 3 part iskemic stroke, lupus anticoagulant disorder, fibromyalgia chronic, campylobacter gastro infection, and this year severe vascular disease (PAD). I live with chronic pain and state of constant flu like state.
I have 2 good days per week. Meditation and Tai chi helps, massages/soft tissue, low stress, and no meat at all diet, no fried foods, low sugar and salt.
Mentally, I'm stronger than ever as I take one day at a time. I have adopted an open mind to being patient with myself. I do fun things like walk short distance on beach 🏖️, listen to soothing music, physical therapy periodically, ASMR helps, and rest when tired. Sending you my very best, positive energy. Living in the moment each day 🙏😇
I can relate to this, been on the merry-go-round
I have had GBS and had 2 neurologists and both did none of the treatments you describe. In fact I was not given any medication. Nor did it start in the lower legs. It started with severe back pain that eventually made my whole body go numb. I was on a walker for 3 months again the specialists said I would need it for over a year. My immune system was strong and I got full recovery with not any form of medication at all
Hi. What u did? Just do healthy diet? Some comments fasting also it can help to recover
My father WAS totally recovered from GBS AT the AGE OF 80 YEAR OLD
IN INDIA
How?
What did he do
@@tofujelly Ivig & physiotherapy
Most important is WILL POWER
Hi shashikant, My mother also got an acute GBS four days back. She is receiving her IVIG dose and 4 days are completed as of today. Can you tell me how much time it will take to recover? Also of you can suggest some good practices otr medicines which were used in treatment.
My partner at 68 has just been diagnosed today. How long does it take for a person to recover from it
I feel so fucking lucky to have gotten Guillain-Barre and got out of hospital after only two weeks or so and then went on to make a full-recovery in around a month or so, I am really REALLY thankful for it 🙏 and I hope the people who do still suffer with it could make a full-recovery too.
did you use immunoglobulin while in the hospital? if yes how many vials did you use if not what therapy did you use? thank you please answer
@WarHelmetCombine
@@muhammadfaruq9182it depends on the weight, it's 0.4 g/kg/ day for 5 days.
@@muhammadfaruq9182 The protocol in the hospital l work in, firstline is plasma exchange, then immunoglobulin IVIG this all alongside the supportive treatment of any clinical manifestation.
@@muhammadfaruq9182I wish you the full recovery.
I've had GBS several times in my life.... unfortunately. Oddly enough, I'm in a hospital like facility with GBS right now!! I've been sick for almost 3 years...I have breathing tube called a trache tube that's inserted into my trachea through a hole in my neck..I also have asthma!! So that's how I take my asthma breathing treatments as well....the scariest part of all, in my eyes, is that I've been out of my mind for that WHOLE time!! I just got my mind back ALL the way, TODAY!!
I did have what I thought were just bad dreams about being in a hospital... but then I realized that I couldn't wake up from these "dreams". That's when it hit me... something wasn't right!! Come to find out, I WAS RIGHT about this situation NOT being just a bad, terrible dream!! THIS is real... I could've died!! My family told me that I stopped BREATHING at one point...clearly they were able to bring me back, but I just can't believe this craziness actually happened to me, to my family, AGAIN.... This is my ACTUAL FIRST DAY of full consciousness...or as I seem to be calling it, (based off of reading my text messages that I have between me and my family) I'm back in "My Right Mind"!! This is so freakin' crazy to me!! This is definitely NOT the position that I wanna be in right now, but at least I'm ALIVE and back in my MIND, to be able to say that!! I just want this mess to be over and done with and I want to FINALLY be able to go home and get MY LIFE back!!! Normally I don't put myself out there for anybody to "see"... but I figured, "Why not?!? I might as well".. so here I am... this is ME!! Hopefully I've been able to help SOMEBODY, SOMEHOW!!! Hopefully I've been able to help MYSELF somehow.... thanks for letting share my story with y'all. Hopefully I've been able to help someone else out there that's going through some tough or crazy times!! Whatever you do, don't get discouraged or depressed!! TRY to keep your head up and stay as positive as you possibly can!! Even if you have to fake it!! It may not seem like it and it may not be clear right NOW, but it WILL get better!! I'm telling myself this as well... this is for ANYONE that needs to hear this!! God bless you and stay safe out there!!! Amen AMEN 🙏🏽😇🙏🏽!!!
Thanks for your comment. Ive been having an insane time dealing with Pneumonia from Covid 19. With the Pneumonia, I feel so damn weak, like ive never felt in my whole life, and also makes it really hard to get any sleep at all especially with having asthma. I was looking at this video because ive been having weakness in my hands and muscles.....
Just read your message. Hope you are feeling alot better now. 💪💪
Video is excellent and more than that the explanation with momentary pausing of voice which enable to catch the concept is out of the box...hence subscribed...
Kudos to the team...expecting more like such
Our 29 year old son has been dealing with this since 8/2021. It's been 8 months now and he still can't walk and can barely use his hands. He's been in continuous therapy since 9/2021 and although he is getting better, he's a long way from walking again.
His GBS came on very quickly. He was literally walking at the store at 9pm, by 12:30am he noticed he was stumbling a great deal and by 3:30am, he was paralyzed from the chest down. He was very lucky we got him in to the ER so quickly.
The doctor said his damage was extensive with damage to the protective layer around the nerves and to the nerves too. They started him on an IVIg and when that didn't help they did the plasma dialysis, but with no real change.
Has anyone else had a quick onset like that? I've not talked to anyone with an onset that took place over hours; has anyone on here experienced this? If so, what was your prognosis? I'm just praying he will get back some resemblance of his life before.
Mine took like 2 days for my hole body to paralyze I had it when I was 15 I’m 34 now and still have some aftermath your son will need a lot of support mentally and physically don’t let him down cheer him up on his therapy!!!!!
My father got it 10 years ago. A week prior he had a stomach flu. He woke up in the morning and suddenly could move his entire body. He could only move his head. There were no other symptoms before.
My son was diagnosed with this a month ago, has severe nerve damage was in full paralysis but can now move his head and face, slight shoulder movement and can get a foot to wiggle every now and then, it happened so quick we took him to the ER they sent him home with antibiotics saying he had strep and stomach virus, 2 hours later we drove him to childrens hospital and by the time we made it there he could not stand and had to be put on a vent immediately!!!! It’s scary because of how fast this happened, went from walking that morning to not being able to stand or breathe that night and then after being in the ICU his body went into full paralysis…I pray more info comes out for this and more awareness because I had never heard of GBS until he had gotten it, it still seams surreal because it happened so quick and you never think it will be your kid, we’ve been in the ICU for a month now still on the vent with some small improvements, they’re wanting to put a trach in so they can get him out of the ICU to the physical therapy floor to work with him, I hope no one has to ever go through this with a child or loved one and if you are goin through this I pray for you and just know you’re not alone ❤
Oh Lord!
I pray that God shows mercy to your son and your family. I pray for miraculous recovery right now. I speak complete healing in the mighty name of Jesus. No weapon will prosper against your son because God has great plans for him! I rebuke every sickness right now and release healing and joy and peace over you in Jesus name !
@@dessimartinovski thank you very much 🙏🏻
Who’s here after hearing about FDA’s possible announcement about J&J relation to GBS?
😂 yepppp
Me!! Luckily I haven't been vaccinated.
Me lol
Yes! Are they are saying the J&J vaccine increases susceptibility to the bacteria that causes GBS? Or does the J&J vaccine induce GBS all by itself? I got the Pfizer vaccine that will probably have issues too. J&J only has 21.4M shots with 12.7 used. The vaccination rate has gone down so low it's depressing.
@@johnconway4389 LOL nah whats depressing is the unvaccinated are going to have to stay away from the vaccinated to avoid getting sick from yall LOL yall are going to carry every disease known to man soon.
My friend has this now in hospital 😢it is so scary but she's slowly improving
Thank you
I got GBS in 1997. Still can’t walk without elbow crutches and have no balance. It really has destroyed my life as I knew it. If you get it bad it has unbelievable effects on your body.
Where u taken treatment
@@mohitsrivastava3381 not taking treatment now. Still do my own physio. Just a really difficult situation. Should have said I use elbow crutches to get around. I live in Melbourne, Australia so had my initial treatment in the local hospital.
had it from may 2023 when i was in a coffee shop. when i was trying to stand up, my knees are so weak. then, i fell. everyone thought i was drunk or just joking but when they knew that i wasn't playing, they immidiately call the paramedic and i was rushed to the hospital for two weeks. now i still have the residual/long-term with pain around my knees or sometimes weakness but they come and go. i hope that my disease won't reoccur in the future.
My mom had this. She was in hospital for a long time. They had her on a blood machine. Then she went into rehab. Made a full recovery. But then had heart attacks and cancer and died. 😢 I miss her so much.
Keelen I am so touched with your story. Pray that the Lord ease your loss.
@@mohamedhassen1389 thank you. I miss her.
@@DontLookBehindU13 I'm so sorry.
Note: Guillain Barre isn't always ascending and shouldn't be presented as such. 30 % of patients report symptoms starting from both upper and lower extremities. In addition, 15 % of patients report symptoms proceeding distally i.e. towards the extremities.
My wife is a pediatric PT who treated a few patients with Guillain-Barré years ago. She is currently admitted to a hospital and suspected of having Guillain-Barré. Hopefully she will be getting treatments like IVIG soon.
Soon? I was started on IVIG within a few hours of being diagnosed. That is not something they hold off on.
Stop vaccinating and live longer
Bedankt Tom was heel duidelijk. 86 jaar en 5 jaar met rest verschijnselen.
I was diagnosed with small bowel cancer last year .I am on chemotherapy after having half my bowel removed .The chemo can cause similar symptoms to GB .I have numbness in my toes and fingers they are so weak i cannot open any packaging or do up buttons or press studs on clothing etc .Even cant get the cream out of the tube the McMillan nurses gave me to use on my feet and toes .I was told to take Vit B6 perodoxine hydrochloride .
How are you doing now? I hope you are feeling better Kathryn. If possible plz search Metaphysical Anatomy channel on youtube and Listen to Evette Rose plz. I wish you healing and good luck 🙏🙏.
@@AwakeningVibes-369 does she help
I really love the way and the organization of the presentation of the topic very well done and THANK YOU! ❤❤
I wanted to learn more after recently hearing that some doctors believe Franklin Delano Roosevelt had Guillain Barre Syndrome instead of Polio as originally believed.
Didnt know that!! Wow will research.
Well my dad had GB after the flu shot and it was a very difficult time for my family. And a client who had disappeared for almost a year had guilliam barre. His wife came into the salon to book an appt and said it's been a horrible year. She Explained that he also got GB from flu shot per his dr. I know it's rare that it could occur "that way" but it's worth knowing about.
I m a gullian barre sydrone patient in 22nd 2016 i collasped now 5 years i still no balance bad foot drop claw fingers Pls pray for me i want to normal
God bless u.....
You will be fine
Dear Lord I pray that you heal this person and that you strengthen them and support them physically mentally and spiritually. Glory be to the highest the king of all Kings hallelujah. Amen
my mom had gbs but now she recovered fully
Plasma therapy
Just discovered your channel and loved it. Wow, so good with what you deliver and how you do it.
2001 got guillain-barre and it hit my respiratory, where I couldn't walk talk or see for 3 years. Had two neurologist that was clueless. The pain I had lasted all through the years and continue, but not as bad. I aspirated all my drink and food. My mylon sheath was affected so bad, the pain!
I saw 4 yellow lines a two white lines when I drove down the road. We really have medical idiots out there. I should be dead.
Praise God you can inform others. Hope you feeling better. Sure scares me, the drs today. Blessings.
How did u recovery what type of treatment
Same here. I still can't walk. God bless you. Hope you have a full recovery.
@@Rmveber my treatment was heat. I took many hot baths and had a rice pack wrapped around my right arm seemed like forever. The pain was so bad I was in tears constantly. I did stretches everyday and was on vitamins that my chiropractor put me on. I went to the chiropractor every 2 to 3 weeks. I was on steroids and aspirating pills for 3 years. If I don't go to the chiropractor every 4 weeks it gets harder to breathe. I took myself off of the steroid and the aspirating pills once I was able to eat and drink normally. I still have nerve pain in my right arm and sometimes I still use the rice pack that I made. You put the rice pack in the microwave.
You all r probably living alive for those medical idiots. You got a life back. You could have been dead instead.
I had an acute (within hours), purely sensory (non-motor), diffuse neuropathy that was extremely painful and on every inch of my body after a car accident. It felt like I was being electrocuted, burned, or stung. I never had motor issues. But everything else presented itself as GBS. It started in my feet and spread to the rest of my body hours later. My EMG was normal. My symptoms did not get better. 15 neurologists didn't know what it was. 1.5 years after the wreck and onset of symptoms, my EMG started showing demyelination. I was diagnosed with CIDP. I also had a nerve biopsy that showed Small FIber Neuropathy. I started on IVIG a year ago and it was helped the pain a lot. I get frustrated because there's nothing in the medical community about a sudden onset of purely sensory, diffuse, neuropathy. Well I had it and it never went away. IVIG helps me manage, but I suspect I will be on it for years now. I wish they had given me this right after the wreck ... insurance would have never paid for it right away before an abnormal EMG though... weird that it took that long to show abnormality in my EMG, but my symptoms were acute. Does a purely sensory GBS exist?
Thank you, was so easy to understand and compare to the treatment we give our patients on wards.
Guillain-Barré Syndrome happened to me when I couldn't stand up for all of a sudden, i tried to get up but no matter what I couldn't get up, I can't remember anything after but my mom helping me get up, after a while we've gotten to the hospital and after a while I was moved to a new hospital, My dad was always with me and my sibling and mom were at home, I didn't know what was going on when I was going to the hospital. It was so scary. Luckly I was treated and I have been good ever since I've left the hospital.
My partner is 68 and got diagnosed with it today. He's been put on dome autoimmuno therapy . We're u able to walk even when u had it. Just curious
I had it in 1979 at the age of 27. Never received any sort of IV. Put my mom through hell one night when I came close to needing respiratory aid...but thankfully it wasn't necessary and started my slow recovery process. I did have a full facial paralysis that recovered.
All in all it was an experience I don't wish on anyone.
This is more than spooky how TH-cam recommend this to me when I just had a patient few days ago with suspected GBS. Though didn’t know much about this condition, guess someone wants me to learn more about it 👩🏾💻📝
Same here!
@@eckobite same
Yes I was just talking about gB the other day and it just came thru my feed as well. Spooky. Nothing private but worse that you were with a patient. But then HIPPA no longer matters you know...unfortunatley. theres no privacy anymore
Have they taken the vaccine prior to the appointment?
That happens constantly to a lot of people, I think our phone listens to us, and programs the things we listen to.
HAVE FAITH!!!!! From onset with almost total paralyzation to complete recovery in 2 weeks in my daughters case. Standard Electrophorisis and Immuno infusions were used along with physical therapy.
I'm waiting to be diagnosed. My family doctor thinks I have the beginning stages of MS. One neurologist said he thought it was sensory neuropathy and wanted to give me medications that I turned down. I'm not diabetic. I don't smoke or use alcohol. I'm seeing a different neurologist now. Next week I'll do a nerve conductive test. Depending on what the results are he said I may need a spinal tap. I have lost some of my reflexes in my knees. My MRI results showed some flares that were called white matter disease. This Guillain-Barrr'e was also brought up. So I'm still going through symptoms that started awhile back. The fatigue started in 2017 and the doctor thought it was shift work disorder. The fatigue is getting worse. Pins/needles and numbness in my hands and feet. My lips have a buzzing feeling and have moved on their on for like a second. I get twitches off and on in my face. But no one can see the twitches. My right thumb has moved in the past by itself. My right side has been effected the most. But I have symptoms on both sides. I can park my car and sometimes it feels like the car is still moving. My balance is off sometimes but I haven't fallen. It's one thing to have to deal with a health issue. But adding the fear of not being able to keep your job is awful. I can't see myself not being able to support myself. I use to be a six mile runner and now just being out in the heat wears me out. My legs feel like my shoes are weighted down. It's like everything you are going through is invisible to others while you are hurting in front of everyone. My voice changed a year ago. First I thought it was allergies.I take medication for my thyroid. I've been to see different specialist and now it's in a neurologist hands to tell me what is going on.
Have you recently have the Covid vaccine? This has caused very similarly symptoms in me aswell as lots of other people. I am 33 years old and 3 days after my third vaccine I developed symptoms like yours.
@@proudmummy No
@@proudmummy my 68 Ur old partner took the pfeizer vaccine and has got diagnosed with gbs today. Stay away from that vaccine
Do not inject the MRI gadolinium dye..its toxic and causes pain and serious health problems.
MRI Gadolinium Toxicity Support Group online. No contrast dye!
@@proudmummy how long did your symptoms last?
When I was only 8 year old I suffered from gbs... I was in icu for 5 days took medication and after 2 months I was ok 👍
I had GBS in 1997 and fully recovered but had weakness and pain for several years, particularly after stress or tired. I found that i needed extra rest to cope and recover. I avoid most inoculations but recently had the Moderna jab for COVID. Although GBS is not common, I have known 4 people who had it, one of whom is still paralyzed after 25 years.
i had GBS in 2017. I am fully recovered. I took both does of my astrazeneca vaccine and so far i am good.
May me you were burnout simply
@@geetahussain8545 how are you now after being vaccinated by astra several months ago?
@@teacherkat7005 hi dear
Would not have chanced taking the Covid vaccines. I had GBS 5 years ago & the pain/recovery was terrible & long. Right now I personally know 2 people who’ve gotten GBS from the Covid vaccine. The number is much higher than what is being reported.
Doctors in Germany could not diagnose me till now and im researching desperately to find such a correct video. I don’t know if Covid vaccines could have caused this issue or not
1919 this was known .
@@AllenBarclayAllen I'm not still sure. It seems I suffer from fungal systemic infection
Thanks for this video.
I like the way you spoke gently and clearly, easy to understand what you said. I've never heard of GBS until today, I read an article that said some people in the UK, Australia and India got GBS after taking the vaxx, so I searched for what kind of disease it is, and the symptoms. Well done.
I’m in Australia and got it from the vaccine
It’s ruined my life.
Any vaccination has risks because there is a very small minority who could have a reaction but so does not taking it, where the risk is far greater so don’t let that put you off vaccines, without them, polio etc would be rampant. Watch a video on the effects of polio.
i contracted GBS in 1999 and became quadruplegic,i have partially recovered but now diagnosed as an incomplete quadruplegic but still hete after 23 years aged 71, i was given a process called plasmapharesis several times a week to seperate the white blood cells from the red then replace white cells with plasma, its not fun, wishing all with this disease the very best
so this is an autoimmune condition of a sorts where the antibodies produced against and invader start attacking health nervous tissue, too.
My mother is currently under dx for GBS she received a flu shot two weeks ago and is now having symptoms. Waiting ST This video was helpful. Thank you
Love your videos and teaching style. Please keep up your wonderful work. Thank you
I had this, this year, after campylobacter and dysentery which also caused critically low phosphate. My speech is still affected when I’m tired. I get tired a lot. I still braved a trip to India (thanks to the pandemic my marriage was cancelled repeatedly for 1.5 years so I had to go there to marry my fiancé or we’d have prolonged our separation) … it would have cost more for him to come to the U.K. for us to marry … and then I caught another stomach infection in India - but I’ve been ok. No more nervous system problems … Just extreme fatigue. Now I’m working 6-7 days a week to get my husband over here - fast. We lost a lot of money in the past 1.5 years due to repeatedly trying to get together and failed plans so I now need to work overtime to help cover costs (which we are paying together but it’s a lot of money) otherwise I’m potentially waiting another 12 months to be reunited with my husband. So I’m killing myself with work when I don’t feel well enough to, just so I can have my husband with me. Only then can I reduce my hours down to acceptable levels to help me recover. It’s extremely unfair what we have to keep going through. Such a battle.
Wish you the best. Stay strong!
I had gbs when I was just 2 years old and thankfully recovered but came back just this Jan 2022 and I'm now 14 and I'm still at the hospital as I'm writing this comment currently recovering in rehab
Do not get any v accines..no matter what drs tell you..they are toxic!
This picture should be enough to make diagnosis, but my husband doctor refused to give plasma pheresis life saving treatment. Another doctor did testing and notice elevation of protein in spine. It almost cost my husband life because the delay in treatment one week after recuperating from covid
There are actually 5 versions and one starts from the head down.
I developed Guillain-Barre after a mmr vaccine. I was told if I didn't get it,I wouldn't be put on the schedule. I Received the Vax March 23 March 24th I was swollen with aches and pain. I'm ferious!
Really beautiful. Thank you 🙏🏼 Take care everyone ☮️
I had Guillain Barre Syndrome in 1985. Return home from 1st semester of college, recognizing extreme weakness in my legs. Not much was known then about GBS. Spent one night in the hospital and sent home. By the grace of God and an my family taking care of me, I recovered. It's an ordeal I would not like to go back through. I pray for all who are experiencing GBS.
What kind of treatment did you go through
In 1985, I recieved no treatments. The doctor asked my mother to monitor my breathing. I never saw that doctor again. There after, I eventually recovered on my own at home.
how months till you recovered?
@@jewinmacalalag1544 It took about 9 months to fully recover.
@@brendafore4309 can i ask again? i have this kind of syndrome right now. what were you doing at home when you had gbs?
I had it when I was 21. One of the lucky ones, it didn't shut down my heart a s lungs.. I was told not to have flu vaccines as I could have a relapse.. I've never had a flu vaccine in my life and for that matter, I couldn't tell you when I've had the flu.. Meanwhile I've been told by many they get the flu shot but end up getting the flu... lol 🤔🤔
Are you an antivaxxer or is this just poorly worded lol
i caught mine 7 years ago from a sinus infection
Jeff, I've never had a flu shot in my life either, and as far I know, have never had "the flu". It appears the jury is still out on the safety and efficacy of some vaccinations. My thinking is, don't be messing with your immune system if you can avoid doing so. My own brother will not let me visit him because I haven't had the COVID vaccine shot. This, the same man I visited in the hospital with Epstein-Barr and he never once made an issue about passing on HIS infection, while I was in his hospital room. Go figure. All most of these videos prove is that the "scientists" are mostly guessing and jumping to their own conclusions. And that Fauci is just an over-paid fraud in my opinion. Makes more money than the president of the US and never leaves his administrative desk to step foot in the actual laboratories ... just another political bureaucrat with ties to the pharmaceutical industry.
@@goopypegasus-7740 well they literally can’t get the flu shot. my mom has GBS.
@@tabitham1057 I was talking about the last part where they said they’d never gotten the flu despite not having a flu shot but they know people who’ve had the shot and still got the flu. It kinda sounds like they’re saying vaccines don’t work
So the prognosis of full recovery is 80%? In school we were told it is 90%. Maybe our material isn't updated. Great video, thanks!
Here after anuj pachel video
Very good video. Clear, Concise, Instructive. Thank You.
Molecular mimicry,
B cells
Create Antibodies against the existing pathogen
Same antibioies match proteins on the Nerve cells
Target protein cells on the Myelin sheath (motor nerve or on the nerve axon itself) this targeting of the nerve cells creates the neuropathy
Thank u soo much.. a short video with all of the important informations present ❤❤
Yeah for me too tomorrow i have my exams it's really helpful for me
@@kishorekumars3963 good luck ,i hope u get the best highest marks ❤️
@@rehabali6968 thank you so much 😊
I contracted this 4 years ago. I went from being able to walk normally to unable to walk at all in 5 days. Very scary. Fortunately, my local doctor worked it out after 2 other docs couldn't. He got me to hospital rapido the next day. I was able to walk again after 3 weeks and have made a full recovery, as it was mild atypical, but scary enough at that!
Briefly tell me about the medication you used and the therapy coz my mum has just got it
As healthcare provider, particularly as a clinical ward pharmacist at neurological department, l have seen a lot of cases with GBS, generally any autoimmune disease with neurological manifestation, the recovery is pretty slow but there is noticeable progress. What l have noted that the patients with familial support and lighted sprit their response is way better on the treatment protocol. Yet, sadly most of them are depressed and helpless😢😢. I hope the complete recovery to each patient and everyone to stay healthy and sound. Ameen 🤲
I was admitted into an Intensive care unit with what they called COVID-19.
Intimated after 5 days. On the ventilator for 21 days. When I woke I couldn't move my arms and legs. I couldn't even turn myself in bed. That lasted another 26 days in an critical care unit . I was moves from there to an Acute Rehab Unit for another 26 days to relearn how to walk and use my arms. How to turn myself...etc.
Is it possible they misdiagnosed my ailment just to get the bonus money from the government as a covid patient?
The way they explain is appreciate
You have described it well in short and clear. I have been suffering from G.B.S.since August 2020. Thanks to Dr.Srinivas Reddy & Dr. Harish who gave me life. I have recovered almost but still under medication because I'm losing my voice whenever I'm stressed /tired. What may the best way to overcome this? Could you kindly suggest me.
I had GBS in 1984. Thankfully I recovered. I was in a wheelchair, then made it to a walker then a cane. It was hard for them to get me diagnosed I remember. But now since 2015 I have been diagnosed with CIDP, which is a "cousin ". I have been on IVIG, every 2 weeks since April of 2015. It still took 7 months to get diagnosed. But at this time I am maintaining.
It killed my sister. Total paralysis, took five years to die with a breathing tube in the throat flat on her back.
Which type of gbs she had?
My God, I'm so sorry for your loss 😢 *Hugs*
That's actually horrific. I genuinely am sorry to hear that, stay strong pal.
My sister died with in a month
I was diagnosed in 2017, ventilator, plasmapheresis, weeks in hospital, home in a wheelchair. I walk with bilateral afos and a cane. My new neurologist just told me in my 15min visit, that I never had gbs because at 41yrs old I would have been fully recovered at 3 MONTHS!!!!
Gee, thanks doc. (I think he bought his PhD)