Talking with People Living with Schizophrenia - Episode 5: Medications
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- เผยแพร่เมื่อ 7 ส.ค. 2024
- *Apologies for the quality of the lighting in this video. The sun shifted quite drastically while recording.
Welcome to our new series, Talking with People Living with Schizophrenia! Join Lauren, Vicki, and Peter as they discuss topics concerning what it's like to live with schizophrenia or schizoaffective disorder.
In this video, we discuss what our experiences with medication have been like.
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This series is so great. Thank you for spreading awareness!
Schizophrenia has been the culprit for my whole life, my mother, brother and Aunt. I worked in the pharmaceutical company for many years selling anti depressant and anti psychotic medication, I have seen and experienced horrific side effects, and believe that this approach is only one piece of the pie, this diagnosis is vastly misunderstood and there are other ways to address treatment and well being. My mom passed away yesterday and after all the years I saw her suffer, her life has taught me the most lessons. I won’t ever advocate for medication, however I am not an adversary either, if it is working and the side effects are tolerable then continue doing what works, but also know that for many cannot tolerate the side effects, and the benefit of the medication has minimal to moderate effect, and for some is outright harmful. We need to be empowered and come together with authentic connections. Have you read the book “One day the voices just stopped” by Ken Steel. His story is quite profound, and interestingly enough his voices stopped as he developed a trusting relationship with a therapist, this trust was a threat to his voices. Anyway as I prepare to come out with my life story and to address this topic in a less conventional way, I can only hope that it brings truth, perspective, insight, and hope to all those who are afflicted. We are loaded with such great potential and purpose, and any and all contributions that I make will be in honor of my beloved mom, but also my brother,aunt, myself who suffered so deeply, and my whole family.
I'm on an injectable as well. It is so important to me to understand the benefits of my medications. Recapping and listening to all three of you talk really made a difference in my day. Thank you for your time and care.
this is so cool. it really comes through how great it is to just be able to talk to people who get it. thanks for sharing!
Really nice job with these videos, guys! I had a trusted therapist tell me once that with meds “the oldies are the goodies.” I am on a 50mg monthly injection of Haldol and am grateful to have found the right med at the right dose. I have been on the shot for the most part since 2008. The only relapses happened when I tried to switch meds. I am hospital free for 4.5 years and very stable now. Compliance is key and injections are a great option. Also, my mental health has improved dramatically since getting sober and quitting smoking 2.5 years ago. Meds work so much better without abusing substances. Keep up the great work Lauren, Vicki, and Peter!
Yea, I understand the weight gain part I'm struggling with weight gain and people think it's because I eat unhealthy
Same, but the medicine makes me eat like an animal!!! I crave food so bad sometimes.
I love this series, I've finally committed to taking my meds, and besides the weight gain, fatigue and restlessness I'm doing great. The key for me was taking an anti depressant with my anti psychotic to stave off some of the worse side effects.
One way of remembering to take medication that I use is to use a daily pill box with S-M-T-W-T-F-S printed on the lids. It is easy to see at a glance if you have taken that day’s medication or not.
just need to remember to fill up the pill box once it's empty... :D
Very helpful to see how meds are received by each individual. Thank you.
My doctor gave me a medication that the side effects of having lots of acne, I gained weight and sleepy. Can you make a video on how to cope with all these side effects.. A million thanks to all your enlightenments it helps me a LOT! ❤️
Dear Peter, i am so sorry you have had a traumatic experience in your treatment. I could see how hard it was for you to talk about it. I think psychiatry has come a long way since then. Even in the early 2000s, when i was first hospitalized it was very different to now. Thank you for opening up to us. Greetings from germany
Where I live in the US, its taken me two months to get in to see a Dr. During that time I started vaping THC to help my symptoms (helps tremendously) and because I tested positive for marijuana use, I was denied medication. I give up. I would do anything to just have month off the rest and get my house rented out so I can move in with a friend for awhile to focus on getting better. Thanks for reading if you did. :)
I'm sorry but you suffered from psychosis but smoking marijuana isn't such a good idea because it can pre expose you to having a really bad time but no one deserves psychosis
thc usually worsens the effects of psychosis in the long run so please be careful :( cbd vapes are much better for people suffering from things like that so id suggest giving that a try if you can,, and im sorry you were denied help after such a long wait thats awful
I'm so sorry to hear you were denied medicine without my many yrs of being
on meds, I know that I wouldn't have
been able to handle school, let alone
work. Don't give up, God bless
Am so loving these talks. So informative and am so grateful that you are all so open to Sharing your experiences. Thanks to all.
I really liked this series. I learned a lot. Thank you for sharing
This is a very good channel
I find this channel very helpful in self acceptance and feeling less isolated. Thank you, keep it up!
Thanks for sharing, good people :)
I admire all 3 of you. So far no response back. Its cool. You are bright nice people. Bob
No need to apologise, lighting was fine. Informative as always xx
Love the nature-background!
Its so nice to get to hear from other people who experience some of the things I live with. Medication is a big part of my recent struggle to recover from my first episode. I need to be consistent with my medication!
Very interesting and informative!
Truly amazing. Thank you.
Love your vids. The doctors told me I might have schizophrenia or schizaffective disorder even though I haven’t been diagnosed. Ur vids have helped me understand the illness
I hope we get more of these episodes soon. 😁
would love to see more of this series!
Thank you Vicky & Peter for your willingness to share your experiences. Is it possible to do a follow up video on meds that address more specific areas like your 1st month on the injection...adjustment & sx reduction, what to expect...when sx reduction is most noticable? Also, Lauren, how has the transition from injection back to oral meds been? Sorry to request so much, but I think that it would be quite helpful to have a session with family or friends of persons living well with schizophrenia. As a therapist, I see struggles with med management from the viewpoint of both families/patients and it is very tough. Thanks again for this video....and thanks for normalizing the fact that families do not attempt to control the lives of persons living with MI but really do try to just help those persons to live their best life : )
Schizophrenics are literally human garbage. They don't deserve anything.
The videos I have seen are awesome, help me understand my condition way better, I think the girl that made most of the videos is from canada, a big thank's to you.
When I was younger, I dreaded being on meds. They would dull me, remove my function. Now that I'm older, there is nothing I appreciate more. They allow me to be relatively normal. I'm so glad to have access to health insurance for them. Without them, I'd probably be on the street, not on TH-cam.
I just discovered this channel, and thank you.
@@darkknight4078 lol dude your life must really fucking suck.
@@incarnateflame3462 hope you grew up.
My medicine for Schizoaffective disorder has been a total game changer for me. Currently on Invega Sustenna injection, Rexulti, Wellbutrin, Trintellix, and Guanfacine.
One thing I do for that profane realisation experience that I have schizo is burning incense over my schizo shrine and having feelings about it, this experience I find stabisers greater than the meds
Beautiful advice
I have just been diagnosed (ha nose) with schizoaffective bipolar type.
I'm currently taking Lithium for a mood stabilizer, Risperidone for an antipsychotic, and melatonin as a sleeping pill. This cocktail I take at night and luckily I have had no side effects for over a year of taking them with perhaps the exception of the internal restlessness you guys mentioned in the video. I'm a very fidgety person too and I also bob my knee and need to move around at my work a lot. I've been on plenty of other medications and I can say I'll never take seroquel or olanzapine again. They're antipsychotics that caused massive weight gain in me. Now I'm at a healthy BMI and want to maintain that. I've had dry mouth as an unpleasant side effect briefly on other medications. I've never been anti-medication but sometimes the medicines have stopped working and I would need to be hospitalized until the adjustments necessary were made. I'm fine with taking medications now because after having survived a third mixed episode in my life anything is better than that hell on earth. I highly recommend melatonin. Maybe I lucked about but all my vivid dreams on that medicine are just happy dreams that leave me in a state of contented bliss when I wake up.
I just started meds like little over month ago so far my complaints its me scared of one but because i grew up working in the med field so far i trust my doc no delusions around that i have a fear the side effects will be really bad with me! Im tired very tired but they keep upping my antipsychotic the first anti depressant made me shake sweat really bad and made me over energy and more depressed and im about to start a different one scared to start it
Maybe a workout routine or a nutrition episode would be interesting?
She only wants to talk about “medications” (big pharma drugs) because she’s clearly in cahoots with the mental illness industrial complex.
What I hate is when I'm in the middle of a project and I fall to the floors. My triggers don't make sense. Bob
@@medicalcivillibertiesproje3760 you’re a fucking moron if that’s what you think. Meds are IMPORTANT dumbass
Hi Lauren,
First of all, i really like all your videos. They are full of positivity.
My mother has schizophrenia but the worst part is that she doesn't even have any realisation of it. She thinks she is perfectly well. She never agrees to visit any Dr or psychiatrist as she thinks we have some negative intentions behind it. Last week we somehow managed to take her to the psychiatrist. After the session, the psychiatrist confirmed that she has psychosis and advised us to admit her in the hospital asap as the condition is not really good. We couldn't admit her then and there, as we had to do the arrangements of hospital fee first. Now we are not sure whether she would agree to get admitted or even visit the hospital again or not. The psychiatrist informed that even if she doesn't agree, still we have to admit her anyhow now.
Would it be okay to admit her against her will?? Kindly advise.
Those situations are rough. How did it go? Love from austria
Could you do a video about substance abuse?
Try supplementing lysine as an adjunct to medication. I have schizophrenia and it helps
Thank you guys said I am struggling on whether I should take medication or not. I'm also struggling on do I actually have schizoaffective or schizophrenia or bipolar. One of my biggest issues is I want to understand why I am being told that I am schizoaffective. I can understand that I tend to meet the criteria oh, I do have some of the cognitive effects or the MCI, I do experience something like katatonia I do believe but nobody can explain to me how it is or is not catatonia I have a bunch of medical issues that seem to line up but the doctors can't find anything. I can understand that some of it could be somatic. I also understand that some of the medical issues could just not be explained but does that make it psychotic? one of the biggest things I struggle with in understanding that I could be psychotic is lack of hallucinations and very few delusions. But the delusions could also be very well explained by the relationship issues and very possibly BPD instead of schizophrenia or something else. but my point is nobody can give me examples besides the general BS of the behaviors that need to be changed to fit into society. I am an extrovert although I tend to be introverted I try to stay active. I go out and socialize I do all the things that society says I should do to try to stay healthy except go to the gym which I can understand can help a lot. Like I tell my friend who is trying to push me on the meds give me the examples of the symptoms that the meds are supposed to help with so I can start tracking them to see if the meds actually do help if I get on them. just telling me I need meds for generic symptoms that I don't seem to be experiencing that's not telling me I need the meds, I need specific examples for me.
Stoney Vowell This sounds very valid. I would push the issue with the doctor and be very specific, just like you were here, so there’s an understanding and the doctors don’t just think you’re resistant. If they’re not listening, get a second opinion from a different Psychiatrist who listens more and isn’t just a professional prescription writer.
What was the outcome of this?
@@scotchmist... not sure what you're asking?
@@stoneyvowell1239 Just wondering how all this worked out? I have similar symptoms and struggle to accept the diagnosis that has been given as have no hallucinations, voices or anything like that. Also a bit med resistant.
I think psychiatrists try and pigeon hole people into a diagnosis if they aren't sure...
@@scotchmist... really nothing's changed, except that the medical doctors treat me like s*** now. Apparently they've been trying to tell me that for years but just kept trying to push me into Behavioral Health. I'm not sure if there was a psychiatrist on the team of psychologists that gave me my diagnosises. I went in for an evaluation to check for autism and narcissism to get some help for a little bit of suicidal ideation because of my toxic relationship. They don't push the meds on me so much anymore oh, and I think my general practitioner it's starting to come around that it may be something neurological and infection-related not just schizophrenia.
Hey everyone from around the world lol I was diagnosed with major depression 2 years ago . I was wondering if anyone could help me . Iam constantly having imaginary conversations with usually people who I know in my head all day and also switching unrelated topics . I imagine they have asked me a question then iam answering it . I also see distressing images . Does anyone know what the imaginary conversation is and switching unrelated topics ? My doctor has mentioned schizo affective disorder but he wants me to see the psychiatrist in a few weeks to diagnose me . The doctor has also prescribed me aripiprazole to settle things down . Any help or thoughts would be appreciated thanks 🙏
I have limited knowledge and no professional qualifications. Have you looked into disassociative disorders?
Did you ever find an answer?
I know ..writing...symbolic.....mine...
But it's a way of thinking...
I’ve been struggling with a lot of symptoms of schizophrenia and I’m terrified of revealing it to my dad because I fear of being judged or nobody believing me. I’m scared I’m gonna try to take my life.
Please if you read this I need advice and I’m scared
tell your parents.
you thinking no one will believe you or like youll get in trouble is just you over thinking, and i am not trying to insult you by saying this, but its delusional paranoia.
you are a human being and by the sound of it a teenager. you need help and the people in your life will help you.
Talk with the doctors or professional, is very important, please do it. Your life is important.
Tell people, there are good treatments nowadays. It’s very manageable if you are committed to treatment.
Better to detect early than go through a fear spiral.
I use to have mental health come to my house and make sure I took my medication and then I use to go into the hospital for injection
See it as a crutch as u heal ur Leg with food etc....calcium ...etc..
Both canada and india ..have conservative tinge?? A person going a bit off maybe accidentally screwed..?
Prolly wil stay in city......i was gonna go Toronto....
Can you do a video about schizophrenia and hypohondria? because I've been suffiring from anxiety, hypohondria and panick attacks for years now and sometimes I feel like my thoughts are so negative and almost like telling me what to do at times and when I hear/read about schizophrenic symptoms I immediately feel like I have the illness and I'm scared as hell that I'm gonna hallucinate etc., I even think so much about the sypmtoms like paranoia that I feel like I actually believe in irrational things. I don't know anymore if it is my hypohondria or I'm actually schizophrenic.
As someone with schizophrenia ocd (anxiety of developing schizophrenia), I also too get worried that I will start hallucinating or develop delusions because they seem very scary to me. I also get like what you said.. it’s no one voice but my own in my head but it almost feels like I’m telling myself to do awful things? Things that of course I’d never do but it scares me that it is schizophrenia. However, maybe it is... maybe it isn’t. Uncertainty for this kind of fear is great because whether we develop schizophrenia is unknown.
@@simones7055 It's awful to constantly be afraid of these things :( I don't even know what are the "symptoms" that I should be afraid about anymore. For example when I'm anxious I always hear my own name repeating in my head, like a lyrics of a song. I don't hear it physically but it's still annoying. My psychologist said I have OCD.
Studying science.....helps....it's physics impossible or extremely expensive that "all or many are in on it"
It's a very serious neurodevelopmental disorder, and I'm happy to see people getting some kind of support for this psychiatric disease that can completely control your life. ; )
1st
Injection if not oral...
If an alien were looking they wud b nodding their heads....
Why Lauren haven't gained weight? To not forget to take your medications putting them in a visible sight doesn't work? Like on the diner table?
Please be careful with comparing to other illnesses! A diabetic who doesn't take necessary medications could face severe consequences like necrosis leading to amputation of i.e. a foot or even death. But I get the point, with some illnesses it has far more consequences or is even dangerous to not take medication than with others :)
Still need 2 change the Scizoeffective name 2 poloreffective, keep Scizo out of it ,2 much stigma.
It helped changing manic depression 2 bipolar. 👍✌
Sorry bout what I said, bad day
I want to know who is funding these videos? NAMI? Treatment Advocacy Center? Please stop peddling this poison.
Thanks for sharing, good people :)