Keeping my disabled daughter cool | Stem fair

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  • เผยแพร่เมื่อ 2 ต.ค. 2024

ความคิดเห็น • 102

  • @suemuster9826
    @suemuster9826 3 หลายเดือนก่อน +8

    Freya enjoyed the outside. I can't get over how long Jesse's hair is. Looks like you all had fun.❤❤❤❤

  • @colleenford5398
    @colleenford5398 3 หลายเดือนก่อน +2

    Marci....I love your hair color! Was out of the loop for a bit. I FINALLY got a new cell phone! The girls looked so cute! Love to all....now, on to your next video!

  • @lindasprettypressons
    @lindasprettypressons 3 หลายเดือนก่อน +4

    That vest is such a great idea! I’m glad it worked out. I absolutely love watching Freya in therapy, so I would definitely be interested in a video! 💜

  • @klarasarosi8159
    @klarasarosi8159 3 หลายเดือนก่อน +1

    Hey Marci looking lovely and summery gonna be fun day .and yeah poor little gorgeous Freya that's very hot but you think of everything obviously to keep her comfortable so she's nice cool .and you give her what you want to give her she's your child and you have four gorgeous ,funny kids so think you know what your doing. Lol .koolade is fine .Freya looks so cute and happy your girls are so pretty and Liam very funny cool young man .can't imagine 90 degrees so so hot I luckily live in the UK so only 21 ATM . Glad you all had a really fun day and good one Chris getting pizza he's such a good one .❤ To you all .til next time

  • @user-InspireEllen
    @user-InspireEllen 3 หลายเดือนก่อน +5

    Fiona your hair is lovely. Oh Jessie your hair is really long now. A real hair day today Mum. Little Freya was kept lovely and cool. Contingency plans are the best plans, Mums are the best Marci aren’t they?

  • @MarjorieFlohr
    @MarjorieFlohr 3 หลายเดือนก่อน +8

    Yes, I like seeing Freya do her therapy. Her vest made me think: do they come in adult sizes? Women who have hot flashes from menopause could really use something like this.

  • @user-InspireEllen
    @user-InspireEllen 3 หลายเดือนก่อน +6

    Physical therapy is good Marcy thank you.

  • @christinavonheidenstam3206
    @christinavonheidenstam3206 3 หลายเดือนก่อน +2

    it doesant matter i can loock at fisicle therapy

  • @denisewilliams7018
    @denisewilliams7018 3 หลายเดือนก่อน +4

    You and Fiona looked so cute with the beach waves. So glad Freya kept cool in the heat.🤠

  • @patriciaharkin1571
    @patriciaharkin1571 3 หลายเดือนก่อน +16

    The cooling vest is a great idea and worked very well. I have to say your hair is gorgeous Marci, love the curl in it.

  • @blo1314
    @blo1314 3 หลายเดือนก่อน +3

    Your HAIR IS AMAZING!! so pretty!!!

  • @Roro19609
    @Roro19609 3 หลายเดือนก่อน +4

    Yes, I love to see Freya in her therapy sessions. She is always so interested and gets involved. What a great time at the university. The only one who looked comfortable and 🆒 off was Freya. Nice to end the evening with a pizza for dinner ❤ lots of love and hugs from Bradenton, Florida 😊

  • @donnataylor980
    @donnataylor980 3 หลายเดือนก่อน +2

    Those little vests are so cool😊 looked like a fun day❤ I like any video you post😊 y'all have a great❤ weekend

  • @kat1368
    @kat1368 3 หลายเดือนก่อน +7

    Such cute outfits ❤ So glad her vest is working . The wedding is going to be so fun now, especially with Freya so relaxed outside. Her lounging in the stroller looked super comfy. Now the five of you have to figure out how to stay cool and relaxed like Freya. Have a great summer!!!! Stay cool and covered in sunscreen!

  • @janetdunn8220
    @janetdunn8220 3 หลายเดือนก่อน +2

    Locve the cooling packs they work well and use them also. Love your hair and all of you. Hope you have a great time.❣️🦋❣️🐾🧸🥰

  • @Bindismom
    @Bindismom 3 หลายเดือนก่อน +4

    So nice to see the kids having fun. Freyas vest is great! Our daughter writes STEM curriculum for K- 12 and I’m always amazed at how much the children really gravitate to it. Well done Marci to involve your children in all you can. They are delightful🤗👍👍👏🏻👏🏻👏🏻👏🏻 YAY for science!!🔬 🔭 🧪

  • @DebbieDowd
    @DebbieDowd 3 หลายเดือนก่อน +2

    Love that she liked that vest hey Jessie see you in the background❤

  • @adelelenane6562
    @adelelenane6562 3 หลายเดือนก่อน +5

    Yes I enjoy the PT videos

  • @JeannetteSivill
    @JeannetteSivill 3 หลายเดือนก่อน +4

    Yes to physio please 👍

  • @toniavasseur9574
    @toniavasseur9574 3 หลายเดือนก่อน +1

    Yeah I got really thick and curly and fuller and lighter

  • @debbiegrose8979
    @debbiegrose8979 3 หลายเดือนก่อน +3

    Love the curly hair style!! Hello from Sw Washington state, where the sun is finely shining!😊❤

  • @melodysmithey3172
    @melodysmithey3172 3 หลายเดือนก่อน +5

    Jesse's hair looks just like my youngest Ginger, when she was 5...she even had a UGA cheerleader uniform! Brought back sweet memories. She saw a show where a ballerina donated her hair to cancer kids when she was three. The last day of pre k we went and cut her hair to her chin her hair was to her knees. She donated 14 inches!! She donated 3 different times. Her hair is now long like Jesse's, she is 24

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน +2

      Wow! That is amazing. Fiona donates her hair last time she cut it. Jesse likes hers long so that is the way it stays

  • @susanh3342
    @susanh3342 3 หลายเดือนก่อน +4

    There is nothing wrong with Kool-Aid. Back in the day, my kids drank it every day in the summer!! As long as you don't substitute it for juice.
    I have to add we had the children's museum right down the street plus a quick walk down city and we have a huge library 😊 I think my boys were so lucky. 😊

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน +1

      That is very lucky!

  • @katieweller5943
    @katieweller5943 3 หลายเดือนก่อน +1

    Be sure to take your disabled daughter on a trip by airplane to the state of Iowa the Hawkeye State named after Chief Black Hawk. She will love it.

  • @Susabel
    @Susabel 3 หลายเดือนก่อน +3

    Your hair looks fabulous!!

  • @toniavasseur9574
    @toniavasseur9574 3 หลายเดือนก่อน +1

    I have to have the cooling vest re-wet it because those ice packs will be melted by the time I get to UPS I work in over like 100° on the tarmac I wish I could use those

  • @alyssachestnutt4833
    @alyssachestnutt4833 3 หลายเดือนก่อน +4

    Love the hairdo Marci

  • @tinahauser8864
    @tinahauser8864 3 หลายเดือนก่อน +4

    I’m 59 years old, live in Florida and need one of those vests just to walk to the mailbox!!

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน +1

      You should get one!

  • @supersparkley123
    @supersparkley123 3 หลายเดือนก่อน +2

    Your hair looks amazing!!! 🤩

  • @karenligus8224
    @karenligus8224 3 หลายเดือนก่อน +2

    Freya's cooling vest is awesome! My daughter and I are both sun and heat sensitive due to medications. It really limits outdoor activities. Marci, your hair is gorgeous! You look like you're getting a nice tan! I'm glad the kids enjoyed their day out. Those are great programs. My niece is a STEAM teacher ( they added A for Arts ). She loves seeing the kids excitement for learning hands on! Hope you have a great week! ❤

  • @marilyngaeta1362
    @marilyngaeta1362 3 หลายเดือนก่อน +4

    I enjoy anything you post.

  • @Brandy-dx1on
    @Brandy-dx1on 3 หลายเดือนก่อน +2

    Hi sweetie I just wanted to let you know I ❤ your hair style and all your kids looked very nice in there cheere leading outfits ❤❤❤❤❤

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน

      Thank you so much 🤗

  • @alexthesaintbernardlover5938
    @alexthesaintbernardlover5938 3 หลายเดือนก่อน +1

    Hope you had fun

  • @roseboren6747
    @roseboren6747 3 หลายเดือนก่อน +2

    Love the beach wave hair! The cooling vest is such a great idea. You are a great momma.

  • @cynthiacarter9336
    @cynthiacarter9336 3 หลายเดือนก่อน +2

    Jesse's hair is beautiful 🤩

  • @debmc369
    @debmc369 3 หลายเดือนก่อน +4

    So happy you have that cooler vest !!!❤

  • @jillipepper5353
    @jillipepper5353 3 หลายเดือนก่อน +2

    I’ve seen cool mats for pets , sounds like the stroller pads that would help Freya keep cool. 👍🏼

  • @tinas2597
    @tinas2597 3 หลายเดือนก่อน +3

    Thanks for another video. BTW, your hair looks beautiful!

  • @jessiespence2361
    @jessiespence2361 3 หลายเดือนก่อน +1

    More and more places have gluten free crust. Do you have a favorite when ordering out?

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน +1

      We have a local place called 5 buck pizza we love

  • @hazeleyes2479
    @hazeleyes2479 3 หลายเดือนก่อน +3

    I said the same about the girls outfits when Jesse was looking in the scope. Her hair is beautiful too! Glad to see you having a good time despite the heat, you can tell y’all got some sun. I love watching PT vids, you can really see how far Freya has come. I absolutely adore watching your family, you prove that life is in the living, even on ordinary days. Yay for pizza that you or Chris didn’t have to cook, sometimes you just take a break. You cook a lot more than most folks, especially with the special dietary needs, so it’s even more of a treat. ❤

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน +1

      We love pizza nights. The not cooking is great

  • @evaklaassen4907
    @evaklaassen4907 3 หลายเดือนก่อน +1

    Your hair look good! Greetigs from germany!

  • @carliecollette7165
    @carliecollette7165 3 หลายเดือนก่อน +2

    Marci: when you did the video on Freya’s cooling vest.. i immediately went Amazon looking for cooling packs that freeze at 65°f/18°c and they have many options for wearable ice rings for the wrist and neck I purchased a a couple and if you are out and not able to put the ice packs in a freezer if you make an ice water bath and stick the cooling packs in it it will freeze back up in 20 mins or less. Life changing especially in the summer temperatures ❤😊🎉

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน

      Ooh I will have to look for my bigger kids

  • @betsybabf748
    @betsybabf748 3 หลายเดือนก่อน +1

    I have been too busy to catch on on videos the last two weeks of school, but I love your hair like that. We are getting a heat break here in Boston. It is only 72 degrees right now, at almost noon. Loving it!

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน

      That sounds great! We are back to hot weather again

  • @heleenzuidhof8780
    @heleenzuidhof8780 3 หลายเดือนก่อน +2

    Is it also because Freya has CDLS that you need to help her regulate her temperature?. Is it also when she is getting to cold that you need to warm her up?. Or only the other way around?.

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน +1

      Yes it is a cdls thing. It is actually very common in alot of genetic syndromes. It is both hot and cold that she is sensitive to

  • @judyivie2215
    @judyivie2215 3 หลายเดือนก่อน +1

    Any chance your young girl getting a vest?

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน

      That was a vest she was laying on

  • @laurileiter8323
    @laurileiter8323 3 หลายเดือนก่อน +3

    Your hair looks great!Love your videos.

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 3 หลายเดือนก่อน +2

    Good morning 🌞 ❤

  • @carolynwalker9920
    @carolynwalker9920 3 หลายเดือนก่อน +2

    That vest looks awesome

  • @donnathomson4048
    @donnathomson4048 3 หลายเดือนก่อน +2

    Lookalike that beautiful smile 😍

  • @heleenzuidhof8780
    @heleenzuidhof8780 3 หลายเดือนก่อน +2

    Ooooh Marci, i love your hair!. Wooow. Handsome!.

  • @allthatglitters4111
    @allthatglitters4111 3 หลายเดือนก่อน +3

    LOVE your hair xx

  • @junegrimley5697
    @junegrimley5697 3 หลายเดือนก่อน +3

    Your hair looks amazing xx

  • @Carolhealthfan28823
    @Carolhealthfan28823 3 หลายเดือนก่อน +2

    Good morning

  • @paulinebowers6065
    @paulinebowers6065 3 หลายเดือนก่อน +1

    Love your videos and enjoy watching your children grow and develop, also by the way I’m loving your hair Marci xx

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน

      Oh thank you! I decided to try curly and was surprised with the results

  • @becky758
    @becky758 3 หลายเดือนก่อน +2

    Let her be a kid too. She already has enough restrictions. Koolaid didn’t kill my kids or grandkids. Throw in an ice cream cone WITH sprinkles! It’s summer!

  • @dollfactory
    @dollfactory 3 หลายเดือนก่อน +2

    Jesse and Ya looked so cute in the cheerleading outfits. I can see them both being little cheerleaders when they're older. You looked very pretty like always as well Mom. I love the curls!! I hope you all have a fantastic weekend!!😊❤

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน +1

      I love their little outfits 💜

  • @wandasmith1723
    @wandasmith1723 3 หลายเดือนก่อน +3

    They should make those cooling vests for adults

  • @andreacarlile-thompson2511
    @andreacarlile-thompson2511 3 หลายเดือนก่อน

    Can you post a link for the large blue ice packs please? Got pizza, when you have a pizza oven😆

  • @SusanKuncher
    @SusanKuncher 3 หลายเดือนก่อน

    Love the hair!!! Looking sexy mama!!!

  • @mariajesusmorales6121
    @mariajesusmorales6121 3 หลายเดือนก่อน

    💌

  • @knabljohann9710
    @knabljohann9710 3 หลายเดือนก่อน +1

    Good moring

  • @sarabinkiwitz7094
    @sarabinkiwitz7094 3 หลายเดือนก่อน +1

    Yes I enjoy

  • @KimChain-jl9xc
    @KimChain-jl9xc 3 หลายเดือนก่อน +1

    Marci do you pack Freya snacks when you go out

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน

      We have some crackers in the diaper bag but she honestly doesn’t eat a lot of solid food.

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 3 หลายเดือนก่อน +1

    Hi Freya ❤😊

  • @goofusmoofus9455
    @goofusmoofus9455 3 หลายเดือนก่อน +1

    yes pt

  • @biddiemutter3481
    @biddiemutter3481 3 หลายเดือนก่อน +1

    Serious question about the ice vest. A, do they come in adult?
    And b, does it say anything about medical use? My mum broke a rib and I am wondering about it.

    • @Freyasluckyarm
      @Freyasluckyarm  3 หลายเดือนก่อน +1

      They do make it in adult sizes. I’m not sure about medical use. It is polar products

    • @biddiemutter3481
      @biddiemutter3481 3 หลายเดือนก่อน

      @@Freyasluckyarm thank you 😊

  • @JaniceTaylor-it3ed
    @JaniceTaylor-it3ed 3 หลายเดือนก่อน +1

    Yes

  • @biddiemutter3481
    @biddiemutter3481 3 หลายเดือนก่อน

    8:46 I think it's a Tesler with a ' tent ' on the back!

  • @christinavonheidenstam3206
    @christinavonheidenstam3206 3 หลายเดือนก่อน +1

    ❤💖🙏😊🌞👋🏻