cane and braces user over here... my doctors worry about becoming dependent on braces, but i'll take dependence over pain and lack of mobility any day. good luck with the braces!!
My spina bifida is not as severe as other people I can walk but it’s really not that good and hurts to do so sometimes. If I’m going in a store or somewhere where I’m gonna have to walk a lot I will take my chair but if I’m around my house I use my electric scooter. But since I’m getting my wheelchair very soon I will use that more. You are a really big inspiration from everything I’ve seen you do in your wheelchair and I’m exited to see if you can get back to walking with the C brace. I started watching this channel back in August and watched a lot of your videos since. Thank-you for everything you have taught me and everything you have taught other people and showing people you can be independent and you can live normally.
I am similar situation, c brace is great but the price tag is what makes it impossible for many to access decent technologies like c brace. I am in uk and I have tried plastic kafo, afo and now its coming to self fund but thats impossible for many ..... Hope this c brace helps and to work with Ottobock would be great for you and followers.
@@Make_the_day_better yeah, it’s pretty sad how things that are made for disabled people cost so much, my friend who has issues with his hands bought a spoon that is made for Disabilities and paid 75.00, seems like we are taken advantage of, hope all is well, peace and a God Bless
yo that’s super amazing. Being a wheelchair user and able to walk short distances. I’m excited for this brace and research in the medical field. I’m know I’m won’t be the only OG that will contribute to the cause. Keep pushing bro.
I've been diagnosed with a femoral nerve disfunction/ femoral neuropathy... I had knee surgery back in August of 2019. Since surgery I have lost the ability to extend the knee all together. After 1 year of numerous scans, multiple failed therapies, x-rays, etc; we finally found what was going on. It was nearly another year later to conclude why it happened. Now that it has been 2 year the atrophy in the quadricep is unreal. About a year ago I received an extension assistant knee brace which really changed the game for me... for a little while. Today as I was getting new padding put in my brace and new straps I was told to check out the C-Brace by Ottobock.. this could give me so much of my life back. I have 3 small children and as a father one of hardest things to do is tell my kids I cannot interact with them when it comes to activities like biking, hiking, and more. I still do it but I constantly feel like a fun spoiler because my pace is 10 times slower than their's... I seriously hope this is something I could get my hands on in the greatest desire to get my life back. No more fighting steps, hills, knee buckle, falls, gait, etc.
Go for it! Like I said in the last video you posted, I’ve been watching a lot of videos with people using the brace, and it seems that they get quite a good results. There’s no surgery that will take the pain away from my knees and my legs, but I do use knee braces to take some of the stress off.
Hey there! I just wanted to reach out as a resource for the C-Brace. I just picked mine up Saturday morning. I had a spinal cord injury in the Army that left my left leg about 70% paralyzed. If there are any questions or help I can offer in regards to the brace or anything else, reach out!
The only disadvantage to being able to walk once you have a spinal cord injury is that you expect more out of yourself and think you can do more intern you hurt your back further
Every time I see your knee hyper extend I cringe and get phantom pain 🤣 I use a wheelchair because I have Ehlers danlos syndrome so when I walk my legs hyper extend like that too and my joints pop out so I totally understand why you don't want to be using that knee. X
Dang! You totally just explained all the obstacles I have to go through on the daily when I don't use my wheelchair, hope you get it and they can help you out. 👍👍
The C Brace sounds amazing! And how you deal with the stairs brought back memories. I can go up stairs but down? 😓 I'm not paralyzed or anything but I am unsteady on my feet and going down stairs makes me nervous. I have hold onto the guardrail and go one step at a time too. C-Brace's sound amazing for those who need help to walk or pain management. The only braces I have are for my hand and foot on right side (old injuries that lead to Osteoarthritis and other issues). I used to have the G Clavicle Brace too and that helpful for my back. I need something good for my shoulder though.
I've walked with braces on my legs before that I couldn't stand because it didn't help me walk all the better if any better than I was doing before I got put into them,so I was just wondering with that said do you think the c-braces would be something to mention to my orthopedic doctor on the 16th of November by any chance?
Kinda same as you, I don't have sci, but chronic pain, fibromyalgia and paraparesis, both my ankles are unstable and both my knees go to hypertension, I can walk very short distances without any aids, I can walk for 10-15 minutes with 2 crutches but for anything else I use my wheelchair. I have been using a wheelchair for 2 years now but I still hate it, I wish to be able go anywhere without it, by my feet, walking without crutches, anything is more difficult than before, I wish I could brought my guitar on my back and go but I can't and I still need someone who carry it to me, when I go out for a concert I need to ask someone to carry my guitar and my crunches 'cause were we go are never accessible places and I hate it! I hate to not being able to be independent and to need help and to disturb someone to do such things! I sow this video and now I'm gonna look this braces up, if they really could make me walk again I would be the happiest man in the world! So thank you for this and all other videos you brought on this channel, they are so helpful for people who has just started to use a wheelchair!
I'm just about to get mine....did you end up getting it? I love it. Just had my last tweak fitting and about to nail the community trial ( ahead of time i predict i will nail it lol). I am so excited ive been doing e-stim and activity-based therapy in prep her in oz. I have t10 incomplete paraplegia
Seeee It was a good idea! Maybe you don’t remembered me, I have the same condition same leg as you, I had dm you a few times a year ago or so on Ig and we both had gave each other solid advice, I am very glad that you wen’t trough getting the C brace🙌🏼, Men I’ll be watching and taking notes, when I get mine finally some day, on another note If is not too bothersome If you can give me a few tips of exercise tips routine so I can add to my daily routine I’ll be great for like balance and to strenghted my bad leg that inside muscle. Man I wish you the best and I’ll be here on the croud watching you succced my dude. 🙌🏼🙏🏼🦾✊🏼
Ottobok offers a free trial. I contacted them because of your video and they set me up with a local rep. Im going for a consult this coming week. Im not paralyzed but have dealt with progressive crps for 23 years.. headed for a full time electric chair so maybe this will be viable to give me more freedom. Thanks
Hope your not using your wheelchair to do those stairs or that rather steep hills. Just teasing ya bro. I really wish you well and that one day this technology will be more affordable for all whose life’s would be changed for the better. Stay safe!! Hugs
Thanks for explaining everything in this detail ,I have to complete a research for which I need screenshots from your videos can take screenshots from your vedios for my university project?
Hey there. I am in the O and P field. Did you ever get your C Brace??? There is a billable code for it now so the out of pocket shouldn’t be too bad, depending on your insurance. If you did get it could you post a video?
Braces hurt more .....I dont wear them on my knees or on my hands because they cause so much more pain...so I dont get the stability I need on the days were I'm weakest or in need of them...i wish there were soft braces instead of hard plastic and metal..ugh🥺 I feel ya...
I wish I had even a fraction of the function you seem to have in your legs. Never give up walking before you are absolutely out of options. Good luck and I hope you can say goodbye to that chair. It's a huge limiting factor for me and the things I can no longer do.
Hyper extension is really bad for anyone, including the able-bodied. When I work out, I always make it a point never to lock my knees & elbows, also because by not locking the joints, it actually works out the muscle more.
cane and braces user over here... my doctors worry about becoming dependent on braces, but i'll take dependence over pain and lack of mobility any day. good luck with the braces!!
I mean, I'm dependant on my glasses, but that doesn't mean that I shouldn't wear them.
My spina bifida is not as severe as other people I can walk but it’s really not that good and hurts to do so sometimes. If I’m going in a store or somewhere where I’m gonna have to walk a lot I will take my chair but if I’m around my house I use my electric scooter. But since I’m getting my wheelchair very soon I will use that more. You are a really big inspiration from everything I’ve seen you do in your wheelchair and I’m exited to see if you can get back to walking with the C brace. I started watching this channel back in August and watched a lot of your videos since. Thank-you for everything you have taught me and everything you have taught other people and showing people you can be independent and you can live normally.
I am similar situation, c brace is great but the price tag is what makes it impossible for many to access decent technologies like c brace. I am in uk and I have tried plastic kafo, afo and now its coming to self fund but thats impossible for many .....
Hope this c brace helps and to work with Ottobock would be great for you and followers.
Wow, it’s totally the opposite for me, going uphill is always easier in a sense of safety, thanks for the video and God Bless
Holly hell. I just found out that the cash price of this product STARTS at $75K and goes to $100K. I'm am most defiantly out.
@@Make_the_day_better yeah, it’s pretty sad how things that are made for disabled people cost so much, my friend who has issues with his hands bought a spoon that is made for Disabilities and paid 75.00, seems like we are taken advantage of, hope all is well, peace and a God Bless
I use my crutches in small buildings but, everywhere else it’s just a pain in the rear. I hope the c-brace thing works for you.
yo that’s super amazing. Being a wheelchair user and able to walk short distances. I’m excited for this brace and research in the medical field. I’m know I’m won’t be the only OG that will contribute to the cause. Keep pushing bro.
I've been diagnosed with a femoral nerve disfunction/ femoral neuropathy... I had knee surgery back in August of 2019. Since surgery I have lost the ability to extend the knee all together. After 1 year of numerous scans, multiple failed therapies, x-rays, etc; we finally found what was going on. It was nearly another year later to conclude why it happened. Now that it has been 2 year the atrophy in the quadricep is unreal. About a year ago I received an extension assistant knee brace which really changed the game for me... for a little while. Today as I was getting new padding put in my brace and new straps I was told to check out the C-Brace by Ottobock.. this could give me so much of my life back. I have 3 small children and as a father one of hardest things to do is tell my kids I cannot interact with them when it comes to activities like biking, hiking, and more. I still do it but I constantly feel like a fun spoiler because my pace is 10 times slower than their's... I seriously hope this is something I could get my hands on in the greatest desire to get my life back. No more fighting steps, hills, knee buckle, falls, gait, etc.
Go for it! Like I said in the last video you posted, I’ve been watching a lot of videos with people using the brace, and it seems that they get quite a good results. There’s no surgery that will take the pain away from my knees and my legs, but I do use knee braces to take some of the stress off.
mollisuit for pain?
Hey there! I just wanted to reach out as a resource for the C-Brace. I just picked mine up Saturday morning. I had a spinal cord injury in the Army that left my left leg about 70% paralyzed. If there are any questions or help I can offer in regards to the brace or anything else, reach out!
What kind of movitity do you need to use a it. I can’t bend my knee.i’m going in next month to be test and maybe trail it.
The only disadvantage to being able to walk once you have a spinal cord injury is that you expect more out of yourself and think you can do more intern you hurt your back further
I say go for it. I hope the company is watching this channel and considers working with you. It will benefit both of you, good luck.
Every time I see your knee hyper extend I cringe and get phantom pain 🤣 I use a wheelchair because I have Ehlers danlos syndrome so when I walk my legs hyper extend like that too and my joints pop out so I totally understand why you don't want to be using that knee. X
For the knee hyperextension, there are knee braces to prevent that. They have a hinge at the knee and then straps around the thigh and calf
Is he not using it to lock the knee so it doesn't collapse though? That was the impression I got.
Dang! You totally just explained all the obstacles I have to go through on the daily when I don't use my wheelchair, hope you get it and they can help you out. 👍👍
Thanks for sharing your story and motivating others! It is so important people can see the options! I can't tell you how significant that is!
I really hope you end up getting this and creating content with it. I think this would literally get me on my feet again without crutches. 🙏🏻
The C Brace sounds amazing! And how you deal with the stairs brought back memories. I can go up stairs but down? 😓 I'm not paralyzed or anything but I am unsteady on my feet and going down stairs makes me nervous. I have hold onto the guardrail and go one step at a time too. C-Brace's sound amazing for those who need help to walk or pain management. The only braces I have are for my hand and foot on right side (old injuries that lead to Osteoarthritis and other issues). I used to have the G Clavicle Brace too and that helpful for my back. I need something good for my shoulder though.
I've walked with braces on my legs before that I couldn't stand because it didn't help me walk all the better if any better than I was doing before I got put into them,so I was just wondering with that said do you think the c-braces would be something to mention to my orthopedic doctor on the 16th of November by any chance?
I really hope that the brace works for you! Thanks for sharing and good luck
C67 quad incomplete. That makes my knee hurt from looking at it. Every time it gets locked out.
This is so good news :-) I am so happy for you!!! :-) I can't wait to see how it all turns out.
Do a video with Dr.Mike !
Kinda same as you, I don't have sci, but chronic pain, fibromyalgia and paraparesis, both my ankles are unstable and both my knees go to hypertension, I can walk very short distances without any aids, I can walk for 10-15 minutes with 2 crutches but for anything else I use my wheelchair. I have been using a wheelchair for 2 years now but I still hate it, I wish to be able go anywhere without it, by my feet, walking without crutches, anything is more difficult than before, I wish I could brought my guitar on my back and go but I can't and I still need someone who carry it to me, when I go out for a concert I need to ask someone to carry my guitar and my crunches 'cause were we go are never accessible places and I hate it! I hate to not being able to be independent and to need help and to disturb someone to do such things! I sow this video and now I'm gonna look this braces up, if they really could make me walk again I would be the happiest man in the world! So thank you for this and all other videos you brought on this channel, they are so helpful for people who has just started to use a wheelchair!
Oh boy I feel you with the stairs
Didn't expect this video so soon.
I'm just about to get mine....did you end up getting it? I love it. Just had my last tweak fitting and about to nail the community trial ( ahead of time i predict i will nail it lol). I am so excited ive been doing e-stim and activity-based therapy in prep her in oz. I have t10 incomplete paraplegia
Seeee It was a good idea! Maybe you don’t remembered me, I have the same condition same leg as you, I had dm you a few times a year ago or so on Ig and we both had gave each other solid advice, I am very glad that you wen’t trough getting the C brace🙌🏼, Men I’ll be watching and taking notes, when I get mine finally some day, on another note If is not too bothersome If you can give me a few tips of exercise tips routine so I can add to my daily routine I’ll be great for like balance and to strenghted my bad leg that inside muscle. Man I wish you the best and I’ll be here on the croud
watching you succced my dude. 🙌🏼🙏🏼🦾✊🏼
Looking great
Ottobok offers a free trial. I contacted them because of your video and they set me up with a local rep. Im going for a consult this coming week. Im not paralyzed but have dealt with progressive crps for 23 years.. headed for a full time electric chair so maybe this will be viable to give me more freedom. Thanks
Loved the video!!!!
Good luck to you and your gorgeous “cheeka”👻
Welcome back
Sounds like a short term solution be would like to see how you progress with this.
Hope your not using your wheelchair to do those stairs or that rather steep hills. Just teasing ya bro. I really wish you well and that one day this technology will be more affordable for all whose life’s would be changed for the better. Stay safe!! Hugs
Thanks for explaining everything in this detail ,I have to complete a research for which I need screenshots from your videos can take screenshots from your vedios for my university project?
Hey there. I am in the O and P field. Did you ever get your C Brace??? There is a billable code for it now so the out of pocket shouldn’t be too bad, depending on your insurance. If you did get it could you post a video?
Interesting
I feel very sad about the death of my brother Ahmed
Me watching you go up and down stairs and hills and just feeling the pain
Richard do you think you’ll be the next Alex Honnold free soloing El Capitan?
Id try building the posterior chain if thats possible..?
Braces hurt more .....I dont wear them on my knees or on my hands because they cause so much more pain...so I dont get the stability I need on the days were I'm weakest or in need of them...i wish there were soft braces instead of hard plastic and metal..ugh🥺 I feel ya...
I find going up stairs and hills painful but going down stairs and hills terrifying because my knee wobbles and tries to collapse. 😵💫
Life is still good!
God my knee hyperextends like that too and it hurts like a bitch after a while. Maybe I'll have to look into something like this someday
I have a problem with hyper extending my right leg instead of my left
Instead of that big Otto box, what happened to a regular knee brace?
I would LOVE to know the cost of this device to see if I have any shot at all. Hook us up. Thanks! You are the best.
I wish I had even a fraction of the function you seem to have in your legs. Never give up walking before you are absolutely out of options. Good luck and I hope you can say goodbye to that chair. It's a huge limiting factor for me and the things I can no longer do.
Omg my dad work's at ottoback
Hi buddy
I just wanted to know do you got your c-brace
What it's cost
Hyper extension is really bad for anyone, including the able-bodied. When I work out, I always make it a point never to lock my knees & elbows, also because by not locking the joints, it actually works out the muscle more.
Do you have a date for the brace?
Curious. What about ankle fusion to permanently stabilize the joint so the foot won't roll?
Fusing an ankle just causes different problems!
Can this thing support the hips as well?
That's how I am walking but with AK prosthetic.
Could they make a brace for your knee so it doesn’t hyperextend?
They can. You can normally buy them and they are not that expensive.
I am L1-L4, i can walk with caliper and crutches ...can i walk like you without calipers?
Everyone is different
First
🍪
The hyperextension looks so painful all the time.
I have it too. IT doesn’t hurt .. but MAN it makes walking a pain in the butt. It messes with your hip too.
🐕🐕
How to driver my car with my left leg
You are crazy even getting hit by are car gets twisted into a good think.
Who came here from tacotruckk to see the brace she is getting
Soooo, useless for paraplegics and quadriplegics. Yea, we dont need help.
Different things work for different people
@@ecologist_to_be you think ? I would have never known that if you hadn't pointed it out.
He is paraplegic, just incomplete, AFAIK. Anyway it sounds great for the people it does work for.