🎉 Weekly Facebook Live 🎉

Wednesday 28th July 9am 2021 AEST
🎉 Weekly Facebook Live 🎉
Preparation
Please read the bio 👇👇👇
I started these weekly lives 2nd Wednesday of September in 2020. Their like a diary and document for my rare disability.
I don’t always do these lives longer than 5 minutes for I have noticed I have a respiratory condition. I also noticed, which is a pain in the butt 😣 my connection on knowing how much voice to use and the strength of forming words does take a bit out of me 😒 Doesn’t help that being in the spotlight freaks me out but I do these lives for confidence, tell my story, mention what helps me that may help you. I stuff up words or how/what to say and i have a thought stutter (brain fart 😂) andI’m ok with that. I do have an older brother that has this disability more advanced than I have.
The next step in my journey I have noticed and am in the process of is I getting a scooter. My walker helps but a scooter will give me more freedom to get around. I don’t want to not move for it’s easier so I will get off my butt and do something while I can but if I’ve had enough, I’ve had enough of walking.
I have spoken to my OT and we’re in the process of getting one 💃 It will make my life a lot easier. Yes it will mean I have more things to think about how to transport and using my walker still is another thing to lug around. When I spoke to my OT we also discussed the difference between an electric wheelchair (I will need in time, definitely not now) and a portable scooter for eating will be a problem. Not being able to get up and into a dinner chair. The difference in transport is the chair will be around 150kgs and a scooter is definitely under 20kgs.
Every step about my journey may not look or seem like much but for me, it is. I’m honest about what is happening to me for as I mentioned above it is also for another.
I started getting meal prep assistance. I’m Open for any meal ides. I do the ketogenic diet so I will swap and change 😊
I have to wear glasses for long distance and it’s ok to wear 24/7, I checked. Instead of taking them on and off, I choose to wear then 24/7.
Here s a link I found, awesome to follow if your on a video call and don’t want the reflection shown
• How to Look Good on Zo...
Don’t hesitate to ask me anything
Questions are welcomed by commenting down below or private message if you feel more comfortable that way
Find value in my lives?? Feel free to share away for I am only one person and are so grateful that you do 🙏
Thank you for taking the time to watch this live. Comment #replay if on the replay.
I like to add my online shopping link to lives. Variety of products based on science 💃 I’m grateful for any support towards my business
jfk1984.mynusk...
Want to watch my weekly lives direct that is on every Wednesday 11am AEST?? Here is my Facebook link / jfk842
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#weeklylive #justfollowkindness #gettingitdone #positiveandconsistant #motivated #raredisability #disabilitylife #perraultsyndrome #hearinglossawareness #justkeepswimming🏊‍♀️