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I have a rare condition called Perrault Syndrome & I’m sharing my journey. I noticed I was having problems with my hands early 2020. It’s a slow progressive disability. The slower I go is ok. Seen my videos before?? Besides eyeliner, what did I forget??

I have a rare condition called Perrault Syndrome & I’m sharing my journey. I noticed I was having problems with my hands early 2020. It’s a slow progressive disability. The slower I go is ok.

I have a rare condition called Perrault Syndrome & I’m sharing my journey. I noticed I was having problems with my hands early 2020. It’s a slow progressive disability. The slower I go is ok.

I have a rare condition called Perrault Syndrome & I’m sharing my journey. I noticed I was having problems with my hands early 2020. It’s a slow progressive disability. The slower I go is ok.

I have a rare condition called Perrault Syndrome & I’m sharing my journey

I have a rare disability called Perrault Syndrome & I’m voicing my journey. I may have stopped using another pl@tform, but boo 👻

Wednesday 23rd September 9am 2021 AEST Dear diary…week, what week is it?? I started these weekly lives 2nd Wednesday of September in 2020, so a year ago!!Their like a diary and document for my rare disability journey. I don’t always do these lives longer than 5 minutes for I have noticed I have a respiratory condition which I spoke to my speech therapist yesterday. It may be longer sometimes, i...

Water testing. I had to convert onto here for the Facebook live interrupted 🤷‍♀️

Wednesday 1 September 9am 2021 AEST Dear diary…DECLUTTERING. I’m no hoarder but it’s refreshing to do Please read the bio 👇👇👇 Fist of all, Thank you for taking the time to watch this live. I started these weekly lives 2nd Wednesday of September in 2020, so a year ago!!Their like a diary and document for my rare disability journey. I don’t always do these lives longer than 5 minutes for I have n...

Wednesday 11th August 9am 2021 AEST Took time (as always 😆) to add subtitles then the app I use played up, sorry 😞 no subtitles Dear diary…I noticed a small change Please read the bio 👇👇👇 Fist of all, Thank you for taking the time to watch this live. Comment #replay if on the replay. So people know, try to reach me after the live, I have my do not disturb on, handy doing a live with it on too, ...

Wednesday 18th August 9am 2021 AEST Dear diary…What’s in my bag I call a luggage?? Sorry it took so long to do, hayfever got in the way but I got there 💪 Please read the bio 👇👇👇 Fist of all, Thank you for taking the time to watch this live. Comment #replay if on the replay. I started these weekly lives 2nd Wednesday of September in 2020. Their like a diary and document for my rare disability. I...

Wednesday 25h August 9am 2021 AEST Dear diary…Mental Health, I didn’t know 😟 (Copy and paste from Facebook bio 🤓) Please read the bio 👇👇👇 Fist of all, Thank you for taking the time to watch this live. Comment #replay if on the replay. So people know, try to reach me after the live, I have my do not disturb on (handy when doing a live with it on too) I don’t turn it off until after 12pm so I don...

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