Crohn's Disease; Things I Wish People Knew

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  • เผยแพร่เมื่อ 16 ธ.ค. 2024

ความคิดเห็น • 224

  • @anthonyderosa7730
    @anthonyderosa7730 6 ปีที่แล้ว +75

    I get called lazy constantly. The worst to me is when someone has a little stomach ache and a small issue when they eat something bad. And they try to say "ugh i guess this is how you feel when u flare up". No first of all im always sick. And second of all food poisoning is a joke to the pain i feel.

    • @dragonandbunnygreenchild6910
      @dragonandbunnygreenchild6910 6 ปีที่แล้ว

      Hey news flash everyone is getting poisoned eating this garbage sold as food.

    • @dragonandbunnygreenchild6910
      @dragonandbunnygreenchild6910 6 ปีที่แล้ว +1

      Why dont y'all cure yourselves???Proper DIET. ORGANIC NON GMO. Most of the stuff is killing us sold in the guise of food. Endocannabonoid system research it.RICK SIMPSON OIL Cannabis oil cures cancers and auto immune Dis-ease. My Wife cured her chrones when they almost killed her with chemotherapy and other bullshit the doctors dont know anything they mearly push pills for pills it is a vicious cycle and they should be jailed for killing us. RESEARCH SPIRULINA. CHORELLA .

    • @jiminslostjams507
      @jiminslostjams507 6 ปีที่แล้ว +12

      @@dragonandbunnygreenchild6910 IT IS A LIFE LONG ILLNESS

    • @100divalove
      @100divalove 5 ปีที่แล้ว +5

      @@dragonandbunnygreenchild6910 I've was a raw vegan, I had to stop because it was not helping and it was causing me too lose even more weight. So...

    • @larahilton7417
      @larahilton7417 5 ปีที่แล้ว +7

      I had to go back to the specialist today. It’s all got too much. Ten hours sleep feels like one. I load the dishwasher and need to lie down...and then I end up sleeping another three hours. Along with the symptoms, it’s the attitude of others. It’s not a bit of IBS nor is it like a tummy ache. I took my son to football for the first time in months last weekend. Hadn’t felt confident enough to do it recently as I’d had an accident in Liverpool as a woman wouldn’t let me use the disabled toilet as her child needed it. But while i was watching my son’s football game I suddenly needed the toilet. So I ran to the car and drove to a chemist I’d seen on the way. I asked if I could use the toilet. Explained that I had Crohns etc etc. The woman declined saying it was rules and regulations but ‘if I drove into town there might be a toilet near the supermarket’. The town was at least ten minutes away. No concept of the urgency or pain. This has happened so often recently. People using the disabled toilets as they don’t want to queue, people not letting you to the front of the queue ‘as they’re desperate’. I now have anxiety, which I never use to have, because there are so few places to go if you attempt to leave the house. Im so worn down by the lack of kindness and consideration. It’s not okay that we’re forced to squat behind trees, carry bags, run behind recycling bins. It’s degrading, humiliating and soul destroying.

  • @Nopee906
    @Nopee906 4 ปีที่แล้ว +11

    Thank you so much.
    I was diagnosed a few years ago, and it's been really rough. I can't keep a job because I keep getting fired because of Crohn's. One of my bosses told me I was too much of an "investment" if I get sick and can't work for the company anymore. Another manager (different job) told me to wear a diaper to work because I was 15 minutes late. Still not sure how a diaper would help....
    Thank you so much. I don't feel nearly as alone anymore.

    • @suesue48
      @suesue48 4 ปีที่แล้ว

      Their selfishness & ignorance is astounding, isn't it?

    • @Србомбоница86
      @Србомбоница86 3 ปีที่แล้ว

      Omg those people from your job are assholes

  • @madisongriffin1542
    @madisongriffin1542 7 ปีที่แล้ว +8

    I just found your account while I'm stuck in bed with a horrible flare up. Thanks for being so real about IDB and for sharing your experiences. It's nice to be able to see I'm not alone because this can be a very isolating illness.

  • @LucyJaneFashion
    @LucyJaneFashion 7 ปีที่แล้ว +31

    Can 100% relate to this, wish the world knew more about IBD!

  • @rae7158
    @rae7158 7 ปีที่แล้ว +45

    I love that you get it! I feel so less alone

    • @moselymcdowall1877
      @moselymcdowall1877 6 ปีที่แล้ว

      I have it but all i can tell u its a very mestup disease, loose all my friend my family now am a laugh at but ill try my best to heal my self but tell me about your life with it

  • @freddiemeyer4563
    @freddiemeyer4563 6 ปีที่แล้ว +2

    thankyou for making this...iv had crohns for 11 years, it ruined my life and i just want to say i really appcriate u makin this vid..u handled it sensitively this made me less alone xx

  • @emblalo
    @emblalo 6 ปีที่แล้ว +8

    ”Guess what honey i’m gonna be ill for a while” haha love your humor in all of this! You inspire me a lot, i dont know if i have chrons, i probably dont but i feel sick all the time and have stomach pains pretty much everyday. I’ve tried so much stuff and nothing works, but watching your videos makes me feel less alone!

    • @pastthecastlewalls1786
      @pastthecastlewalls1786 4 ปีที่แล้ว

      Are u ok

    • @emblalo
      @emblalo 4 ปีที่แล้ว +1

      Past the castle walls 17 got some meds that worked really well actually!

    • @pastthecastlewalls1786
      @pastthecastlewalls1786 4 ปีที่แล้ว

      @@emblalo congrats doll :) what are the names? I need some bad lol

    • @emblalo
      @emblalo 4 ปีที่แล้ว +1

      Past the castle walls 17
      I’m so sorry hun! I take Esomeprazole and Elavil everyday, and if I’m still feeling nauseous I can take Primperan but I don’t need that very often anymore. Esomeprazole did wonders for me honestly! Of course I still have bad days but it’s tolerable. I really hope you find something that helps ❤️

    • @Србомбоница86
      @Србомбоница86 3 ปีที่แล้ว +1

      @@emblalo that's acid reducing drug ,you probably have hiper acidity,that can cause pain and nausea and elavil is a good antidepressant,good for you

  • @cheezewheel
    @cheezewheel 7 ปีที่แล้ว +34

    Thanks for your updates, it's nice to have someone to relate to.
    My sister and I both have Crohn's, though each of ours is very different, I was diagnosed at 9, my sister was in her 20's.
    Currently she's not on any treatment for Crohn's and she's doing really well so I'm happy for her.
    I'm currently on remicade, azathioprine, vitemin d, and vitamin b, I'm doing alright, mostly I have energy but I have bad days and bad weeks that cause me to miss work and make me feel like a worthless person, I try to stay positive and happy despite those feelings.
    Sibling rant to follow be warned
    My sister is one of the worst for preaching cures, first it was probiotics, I tried them they didn't work, but she seemed to be very judgy telling me I hadn't used the right kinds. Later I was vindicated when she discovered they weren't doing anything for her, so I thought she'd maybe take a break from the preaching of cures, but now she's into a keto lifestyle as her cure all for everything, and everyone needs to do this. Of course brother and sisters don't always get along, but I wish I felt like I could talk to her without getting a new way to fix myself.
    thanks for listening to my rants :D I love your videos, I haven't read too maybe of your blogs but I do enjoy them also, keep up the fight and the videos you're amazing :)

    • @jj4christ
      @jj4christ 7 ปีที่แล้ว +1

      Caleb My Brother and I have Crohn’s. We are way different too. Crohn’s has a wide spectrum. I was diagnosed at 16 but it was active since age 9 at least. My brother first flared at 19 but was not diagnosed until age 38. He takes some stuff for maintenance and in in remission. I have had 15 surgeries and am on my last biologic available to try. I have not been in remission for almost 5 years now. So yes my case is very severe. Hugs Crohnie Warrior.

    • @jj4christ
      @jj4christ 7 ปีที่แล้ว +1

      Oh and ask your sister if she understands that Crohn’s is caused by genetic abnormalities and that over 100 genetic variants play a role in the disease process. That the first signs of the disease happen at the cellular level within the walls and structures of all of our cells in the body up to 7 to 10 years before bowel symptoms and diagnosis. At least based on the most recent research. Diet is not going to fix that. Inflammation does not cause the disease, it is a symptom of a very complex process in those genetically predisposed for abnormal permeability of the cell walls. I may not have explained it very well because that is a very abbreviated version of a major study from NIH. The Keto diet can actually be very dangerous for many Crohn’s patients especially any who have issues with their livers, bile ducts and/or gall bladders.
      The best way to help find a Cure is to participate in some of the gene pool building happening in US and UK, where they collect DNA samples to help identify how all those genes react to various treatments. That is why there is such a large difference between patients. There are so many different variables in a very complex disease.

    • @dragonandbunnygreenchild6910
      @dragonandbunnygreenchild6910 6 ปีที่แล้ว

      Why dont y'all cure yourselves???Proper DIET. ORGANIC NON GMO. Endocannabonoid system research it. Cannabis oil cures cancers and auto immune Dis-ease. My Wife cured her chrones when they almost killed her with chemotherapy and other bullshit the doctors dont know anything

    • @eternitiesx
      @eternitiesx 4 ปีที่แล้ว

      @@dragonandbunnygreenchild6910 excuse me sir. This is a life-long disease and can NOT be cured. We can be symptom-free for some time but not for long.

  • @raina.s
    @raina.s 7 ปีที่แล้ว +42

    My father outright told me I'm faking it, and maintains this belief since my diagnosis 6yrs ago till today 😑. He doesnt believe in diabetes, high blood pressure, blood clots, asthma, etc either, and will force folks with these illness to eat sugar or salt 😒 I also told an aunt out of frustration that I've got crohns due to her nosy self (I stayed home for almost 2yrs after high school cuz of ibd) and she just looked me up and down and said "oh you're imagining it all, youre not sick"😡

    • @renarizaki
      @renarizaki 6 ปีที่แล้ว +1

      rainasparkles wow. Thats so rude..

    • @anthonyderosa7730
      @anthonyderosa7730 6 ปีที่แล้ว +3

      rainasparkles im sorry you go thru that. But it just made me feel so much better that im not the only one who had a fucking dad growing up constantly telling me get out of bed your fine.

    • @dragonandbunnygreenchild6910
      @dragonandbunnygreenchild6910 6 ปีที่แล้ว

      Why dont y'all cure yourselves???Proper DIET. ORGANIC NON GMO. Endocannabonoid system research it. Cannabis oil cures cancers and auto immune Dis-ease. My Wife cured her chrones when they almost killed her with chemotherapy and other bullshit the doctors dont know anything

    • @coyote520
      @coyote520 6 ปีที่แล้ว +5

      @@dragonandbunnygreenchild6910 Weed does not cure everything. Please stop promoting that bullshit.

    • @coyote520
      @coyote520 6 ปีที่แล้ว

      Tell him to go fuck himself. I had a few people, even a few doctors say that shit to me. I let them know they were incorrect in their words. And I was not polite about it.

  • @precioushopeatchison
    @precioushopeatchison ปีที่แล้ว

    Amen to this. I have Crohn's and have a ileostomy. I have had Crohns for 46 years. It is hard enough to go through the pain of this illness, let alone not be believed. This is chronic and oils and cardboard food will not make it go away. You are beautiful and I believe that it can take Herculean strength to dress up on days that are hard. I celebrated 45 years of having my ileostomy. It saved my life and besides being challenging it is s gift. Keep on talking we hear you.

  • @oliviaallen2213
    @oliviaallen2213 7 ปีที่แล้ว +6

    Hey!! Ur awesome! I experience these probs too, and it's so annoying when people do these things. One time someone told me I can "cure" my crohns by only drinking smoothies, and I wanted to say there is no cure, so that info is wrong, but u can't bc there just trying to be nice. Also I just got surgery and everybody seems to think I'll be cured forever after this, but it could come back in a year. I just wish people would stop acting like they know everything about my crohns bc they don't. Ur videos really make me feel better that I'm not the only one who experiences these things and gets annoyed about them. That others think they r annoying too. Also my sisters always act like I'm lazy when I feel bad too. It's like ur not dealing with pain, fatigue, etc so u should just deal with the fact that I won't do something with u bc I'm the one with the disease not u. Ur videos r really relatable and I hope u keep making them. Also ur hair looks rlly good short.

  • @rae7158
    @rae7158 7 ปีที่แล้ว +2

    I am sitting home stuck with symptoms right now and I'm so happy I found your channel

    • @nlptrader8320
      @nlptrader8320 6 ปีที่แล้ว

      Rae, the Coimbra Protocol has a success rate of almost 95% for Crohn's Disease. Look for "Coimbra Protocol Bowel Diseases" on google. I know 3 people that are following it and they never had a flare up again. It is only based in Vitamin D and other supplements.

    • @Raiinsoup
      @Raiinsoup 5 ปีที่แล้ว +1

      @@nlptrader8320 ITS A LIFELONG ILLNESS IDIOT

  • @Kristjan519
    @Kristjan519 7 ปีที่แล้ว +3

    Thanks for the video.
    IBD can be annoying disease - fever , pain in the abdomen , lack of energy and of course it can fuck you up mentally and people with IBD have higher risk to get other diseases and so on ...
    English isn't my first language but I hope my English is understandable.

  • @kendramccrory-bush4559
    @kendramccrory-bush4559 4 ปีที่แล้ว +6

    Someone finally understands how I feel.

  • @taraberger1296
    @taraberger1296 7 ปีที่แล้ว +7

    I got diagnosed last year at the age of 39. Didn't have a clue but it made sense once doctors could no longer just say I was crazy. Went years of hospital visits. Most of my family and friends shunned me and because of my age they act like "well you made it this long without knowing it" GRRRR Your videos are great and it's given me a way to show others that this is a REAL disease and I'm not faking sick.

  • @liekek1810
    @liekek1810 4 ปีที่แล้ว +1

    I've been diagnosed last week and now I understand why I'm tired etc. I'm 14 so it's pretty difficult, because I go to school etc.
    These videos help me a lot!

  • @LitMe1
    @LitMe1 6 ปีที่แล้ว +2

    thanks, been dealing with crohns for 10 years, since I was 18. its been ok with some worse periods than others, thanks for making this !

  • @jasonhoffman1351
    @jasonhoffman1351 5 ปีที่แล้ว +3

    After a while people get tired of hearing you scream in pain. So you grab a towel and muffle the sounds. Then they get down right annoyed because you can’t get out of bed. Then they get angry and resentful. My mother in law actually said that I shouldn’t be in bed all day because that’s no way to live. Gee thanks. I hadn’t even thought of that. Thanks for pointing that out.
    Really changes your whole perspective and shows you just how weak and flaky people can be.
    Thanks for this video. Also - your hair is flawless gurl. Get it.

  • @RandiLynBates
    @RandiLynBates 7 ปีที่แล้ว +4

    i just want to say that i LOVE your videos! i was just diagnosed a little over a year ago and no meds worked for me until i started remicade a few months ago. i was so so so sick for so long and i had such a hard time with that but it was even worse that it was very hard for my family and friends to understand what i was going through. i always share your videos to my fb so that they can watch it and i really think that it has helped them understand more! and it helps that the videos are educating but also funny and entertaining for them to watch. thank you so much for putting yourself out there and helping other crohnies find some comedy in this crappy disease and help our loved ones understand just a little more of what we go thru!

    • @sidneyandrews8632
      @sidneyandrews8632 6 ปีที่แล้ว

      Randi Lyn Bates yess remicade is the best. that’s what i’ve been on for 6 years

    • @alexsamarie8379
      @alexsamarie8379 6 ปีที่แล้ว

      Aw man. Remicade worked for only a few months for me. Didnt go well

    • @dragonandbunnygreenchild6910
      @dragonandbunnygreenchild6910 6 ปีที่แล้ว

      Why dont y'all cure yourselves???Proper DIET. ORGANIC NON GMO. Most of the stuff is killing us sold in the guise of food. Endocannabonoid system research it.RICK SIMPSON OIL Cannabis oil cures cancers and auto immune Dis-ease. My Wife cured her chrones when they almost killed her with chemotherapy and other bullshit the doctors dont know anything they mearly push pills for pills it is a vicious cycle and they should be jailed for killing us. RESEARCH SPIRULINA. CHORELLA .

    • @UncleLingLing
      @UncleLingLing 5 ปีที่แล้ว

      Best thing is yoga fr ibd

  • @fredmizyed8392
    @fredmizyed8392 7 ปีที่แล้ว +6

    When you look good one day in the whole week and all of a sudden your cousins come over and is like you look great, I told you that you're getting better. Then you just say thx because you were brought up right, but in your head you're like "thisssss guuuuyyyy" the feels are real

  • @lelanievanheerden1744
    @lelanievanheerden1744 6 ปีที่แล้ว +3

    I absolutely LOVE how you use humor to make this shitty illness less shitty to talk about! I tend to do the same.. Great work girl! You are a massive inspiration..

  • @Ryan_11990
    @Ryan_11990 7 ปีที่แล้ว +4

    I’m glad to hear about others experiences with Crohn’s disease. It helps us feel like we’re not alone. I was diagnosed at 14 in 2004/2005 and I’m 27 now. I have a pretty severe case with a lot of fistulas. The last 5 or so years have been the worst. I almost lost my life twice in the past 4 years. Fist bc of severe heart failure from malnutrition and last May bc of an infection in my PICC line that cause really bad staph pneumonia that went to my heart. I wish Crohn’s would get more publicity like other diseases. You are beautiful! Stay strong!

    • @nlptrader8320
      @nlptrader8320 6 ปีที่แล้ว

      Ryan, the Coimbra Protocol has a success rate of almost 95% for Crohn's Disease. Look for "Coimbra Protocol Bowel Diseases Testimonials" on google. I know 3 people that are following it and they never had a flare up again. It is only based in High Doses of Vitamin D + other supplements + Diet. It does not use any toxic drug.
      It really works!!!

  • @cassiejohnston1815
    @cassiejohnston1815 7 ปีที่แล้ว +1

    I’ve recently started azathioprine and finished a 8 week liquid diet but it annoying because everyone thinks I’m all better now since I finished the diet but I’m still ill and they don’t understand I have it forever, love your videos!!!!xx

  • @misstigz2933
    @misstigz2933 6 ปีที่แล้ว +1

    I’ve just found out that I have Crohns...From being really unwell for nearly 2 years. Came across your video and everything you have said, Is so right! Most people just don’t understand the struggles especially with the invisibility of Crohns.

  • @drewgibbs283
    @drewgibbs283 6 ปีที่แล้ว +11

    I'm 13 and in the next 6 weeks I'll be having my endoscopy, my colonoscopy and MR scans ect. The doctor says that there is a chance of it being Crohn's due to my excessive weight loss as I have gone from about 9 stone to 6 stone in 3 years and other factors that have been affecting my daily life (I have anemia). The one thing I'm not looking forward to is the liquid diet as I'm probably going to be on it for my birthday this year. However there is still hope. Fingers crossed that it isn't Crohn's, but if it is I'm am pleased to know that I'm not alone as I related with you so many times throughout this video, I too am told at school that I'm being lazy because I'm not going on to the field to play rugby and instead sits in the library where I am quite happy just to be on my own. Wish me luck. 🙂🙏

    • @marareimer6335
      @marareimer6335 6 ปีที่แล้ว

      Drew Gibbs a few months ago i also had to get an endoscopy and a colonoscopy and when i woke up i had a tube in my nose. I had to do the liquid diet thing because i have crohns.

    • @AnonyMous-pj3bx
      @AnonyMous-pj3bx 6 ปีที่แล้ว +1

      You sound almost like me. When i was 13 i had to have a colonoscopy and an MRI I also had anemia too. Good luck !

    • @maddycolson6536
      @maddycolson6536 6 ปีที่แล้ว

      This is literally the se a me I was diagnosed 5 weeks ago I only know that cos I'm counting down the weeks I'm on my liquid diet for but I'm 14 I also had an absess in October which is when they suspected it was cos I also had anemia

    • @nlptrader8320
      @nlptrader8320 6 ปีที่แล้ว

      Drew, the Coimbra Protocol has a success rate of almost 95% for Crohn's Disease. Look for "Coimbra Protocol Bowel Diseases Testimonials" on google (thisisms forum). I know 3 people that are following it and they never had a flare up again. It is only based in High Doses of Vitamin D + other supplements + Diet. It does not use any toxic drug.
      It really works!!!

    • @dragonandbunnygreenchild6910
      @dragonandbunnygreenchild6910 6 ปีที่แล้ว

      Why dont y'all cure yourselves???Proper DIET. ORGANIC NON GMO. Endocannabonoid system research it. Cannabis oil cures cancers and auto immune Dis-ease. My Wife cured her chrones when they almost killed her with chemotherapy and other bullshit the doctors dont know anything they mearly push pills for pills it is a vicious cycle and they should be jailed for killing us. RESEARCH SPIRULINA. CHORELLA .

  • @stephen6whitehead398
    @stephen6whitehead398 5 ปีที่แล้ว +4

    What's with the 11 dislikes.?How can you dislike an informative video,if you don't want to watch it,DON'T.

    • @GUTINSTINCT
      @GUTINSTINCT  5 ปีที่แล้ว +2

      LITERALLY! Thanks for the support :)

    • @stephen6whitehead398
      @stephen6whitehead398 5 ปีที่แล้ว

      @@GUTINSTINCT your welcome.Keep up the GOOD WORK.I subbed some time ago.

  • @Isabelle-ki1tj
    @Isabelle-ki1tj 7 ปีที่แล้ว +2

    Thank you for making this video! I am currently trying to get back to work after being on sick leave for quitte a while. I was dealing with depression because accepting this chronic illness was hard for me.. now I am dealing with my manager. She wants me to try recovering so that I can work fulltime again. But that was before I got sick. After being in hospital with a bad flareup, I’ve been on remicade and purinethol and the side effect for me is mainly fatique. I am so tired. I don’t see myself working fulltime again, especially in this stressfull workplace.. it seems like people can’t understand that my life has changed and that this disease is for a lifetime.. I want to work parttime so that I can have some time to rest in between workdays.. fingers crossed..

    • @dragonandbunnygreenchild6910
      @dragonandbunnygreenchild6910 6 ปีที่แล้ว

      Why dont y'all cure yourselves???Proper DIET. ORGANIC NON GMO. Most of the stuff is killing us sold in the guise of food. Endocannabonoid system research it.RICK SIMPSON OIL Cannabis oil cures cancers and auto immune Dis-ease. My Wife cured her chrones when they almost killed her with chemotherapy and other bullshit the doctors dont know anything they mearly push pills for pills it is a vicious cycle and they should be jailed for killing us. RESEARCH SPIRULINA. CHORELLA .

  • @Mobe3669
    @Mobe3669 6 ปีที่แล้ว +7

    Thank you for this!! Totally resonates whey my experience with Crohns

  • @debbxnicole
    @debbxnicole 4 ปีที่แล้ว +1

    This is a really helpful vid, and it means so much as a caretaker of a loved one to understand the internal emotions and battles of those with Crohns.
    I also think it’s important to shed light on the care takers and parents who are doing their 100% best and receive a lot of anger, lack of sleep, lack of common respect, moods, blaming, and daily demands to accommodate and still serve and care for with humility.
    Mental wellness I feel should be a focus on both sides. Nothing can be worse than the pain and symptoms and life adjustments of inflammatory diseases to the individual , but I also think it’s important to add awareness of the bruises it leaves on caretakers who give up much of their lives to dedicate and poor themselves to well being of loved ones and (understandably of course) receive more distance and demands and less of the beautiful relationships and friendships they’ve had in their lives with that loved one. It hurts and sleep is just a five letter word these days, while a running mind daily is the norm. And God knows it’s not easy by I try to encourage myself and my mom by saying we’re doing good job...but it’s rare and we don’t have support to let us know this either. Again thank you so much for this video.
    P.S. I’ve been up since 4 AM watching videos on how to help my adult sister and she’s been impacted by this for years. Please help me and family lift her up in prayer to God for help as her flare ups have returned and ... it’s just really tough. I’ll pray for y’all as well. Thanks all. 🌻💛

    • @harleyadam8787
      @harleyadam8787 3 ปีที่แล้ว

      please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did

  • @daniddon1986
    @daniddon1986 6 ปีที่แล้ว

    Had crohns since I was 10 and now I'm 32 and this video nails everything I go threw. I had surgery last year and now my flare ups starting to come back worse.

  • @viola.x.t2693
    @viola.x.t2693 6 ปีที่แล้ว +15

    I have Crohn’s and I’m 12. The second one is really annoying especially at school.💖

    • @maddycolson6536
      @maddycolson6536 6 ปีที่แล้ว +7

      Viola Tata yess I miss lessons cos I'm tired and I have hospital appointments and people are like oh I wish I was u I'm like nah no u don't believe me u don't

    • @_VictorGrantz_
      @_VictorGrantz_ 5 ปีที่แล้ว

      MiaSophia I have crohns too but I’m homeschooled because of how bad it got.

    • @eternitiesx
      @eternitiesx 4 ปีที่แล้ว

      I got it a year ago (when I was 10)

  • @raina.s
    @raina.s 7 ปีที่แล้ว +11

    There is one thing I wish people would understand, esp people whom you've known for awhile, and that is that I am not the old me anymore. Like I get you're used to me being the independent capable bright person you knew, but that's not me now. Yes I am still the bright person that I am, but not on days when I have brain fog and cannot form a coherent sentence. I can still be independent and capable but in some areas/aspects of my life I do need to depend on someone, esp on days I am not able. And I have to take things one at a time.

  • @yonatanelgad903
    @yonatanelgad903 4 ปีที่แล้ว +2

    I can do relate!!! People always tell me how they know someone who “cured” themselves doing all sorts of random stuff and I’m just being lazy and stubborn not to do those things.

  • @brendanallen9095
    @brendanallen9095 6 ปีที่แล้ว +1

    Thanks for the video. Having Crohn’s I totally agree these things are so annoying to explain. And I hate how everyone pretty much thinks it only toilet issues.

  • @theprettyguardian8161
    @theprettyguardian8161 6 ปีที่แล้ว +1

    After more then eighteen years with Crohns and going to remicade treatments, people still don't get the huge impact that it has over you, and it's not an illness that you can't "get over".

  • @ariesdragon355
    @ariesdragon355 6 ปีที่แล้ว

    I totally relate to you i have crohns and when normal people pretend to understand what's crohns is they really don't know. And thank you for making this video you inspired me.

  • @aleishalapsley7272
    @aleishalapsley7272 7 ปีที่แล้ว +86

    the "Ugh I'd kill to be as thin as you" sorry but malnutrition and weight loss ain't fun!

    • @6DrumMajor
      @6DrumMajor 6 ปีที่แล้ว +5

      Aleisha Lapsley amen!

    • @jasonhoffman1351
      @jasonhoffman1351 5 ปีที่แล้ว +13

      Yas! I can’t walk from my bed to the bathroom without feeling like I’m going to faint. But hey at least I look like a hot skeleton. Every girls dream.

    • @demidoes9902
      @demidoes9902 5 ปีที่แล้ว +6

      Same! My brothers and mom were saying they wanted to try my “Miralax” before my colonoscopy because “they need a good cleanse too”.... 👀 They didn’t do it- but I was like...this isn’t fun. Why’re you saying that. 😂

    • @sumaiyah9407
      @sumaiyah9407 4 ปีที่แล้ว

      Hi I was wondering what causes weight loss for IBD because I found out I have IBD and my symptoms are losing weight

    • @Talapia03
      @Talapia03 4 ปีที่แล้ว +1

      @@sumaiyah9407 when you eat your body is not processing food properly so nutrients aren't getting where they are needed leads to weight loss

  • @marias1834
    @marias1834 6 ปีที่แล้ว

    PREACHING WITH #2!!! I dont have crohns, but i have type 1 diabetes and I HAAAATEE when people get upset about me canceling plans or not feeling well enough to do things

    • @larahilton7417
      @larahilton7417 5 ปีที่แล้ว

      Maria S sadly I’ve lost a few friends that live further away as I just can’t nurture the friendship. I can’t drive long distances because I get too exhausted and find it hard once I’ve arrived at the other end. I can’t go out on the town as I’m constantly anxious about whether there are toilets nearby; I can’t drink, I’m constantly exhausted. I no longer plan in advance because I just don’t know how I’ll feel. People still think it’s like a bit of tummy ache. I’ve managed my Crohns well over the past fourteen years but it’s other people’s perception of what Crohns is; and the lack of public toilets that has made this disease so, so difficult.

  • @sandimcquinton5876
    @sandimcquinton5876 5 ปีที่แล้ว

    This is one of the best explanations about crohns that I have seen. For me. It is very difficult to express myself to my family about what I'm going through.

  • @renarizaki
    @renarizaki 6 ปีที่แล้ว +1

    Agreed.
    I was diagnosed when I was 7, been fighting for 4, almost 5, years.

  • @tortoisetom1
    @tortoisetom1 6 ปีที่แล้ว +1

    I have had Crohns since 1982 (give or take a few months).Great video.

  • @allibell6795
    @allibell6795 6 ปีที่แล้ว +1

    omg thanks so much I am 24 and I have been experiencing symptoms since like 14 and everyone said I was lazy and a hypochondriac I would constantly feel sleepy and sick and people thought it was In my head and I have been in chronic pain for so long

  • @brontevstheworld3223
    @brontevstheworld3223 7 ปีที่แล้ว +1

    I can relate to Number 3 so much!! I've been told if i change my diet it'll go away...

  • @mfable1985
    @mfable1985 7 ปีที่แล้ว +2

    Your videos are good and informative, i wish more people were open but for me this has not been the case. I changed job last year and had a flare while on probation so i lost that job. Also looks like the partner is going also as i do not have the same earning potential, its funny though how people surprise you, i usually get your boring now and its been three months ( meaning a flare up) and your still feeling like that i want to go to the hospital and hear what the doctors saying, are you not doing what the doctor said or cant they give you something else, many people get sick and they go out. In my head most of the time i am thinking wow.
    Your video really hit home with me and put a smile on my face.

  • @maite2287
    @maite2287 6 ปีที่แล้ว +2

    Oooh my goood 😂 this made me laugh, cry and scream at the same time because... this is exactly it!

  • @demidoes9902
    @demidoes9902 5 ปีที่แล้ว

    It is quite ironic how once you are diagnosed with a chronic illness- everyone that doesn’t have a chronic illness is ready to give the “solution.” 👀 I appreciate my family that’s just simple there for me... the people who say “we will get through this together“ and just stays by your side even on the bad days! If you’re someone that does not have Crohn’s and you want to know how to best help someone struggling- just BE THERE for them... mentally and emotionally... This isn’t necessarily something to try to problem solve. That is the persons own personal journey which they’ve probably already started.. I have a hard time when people ask how it is going... I mean- it’s definitely going... still!

  • @lorimurdy1215
    @lorimurdy1215 6 ปีที่แล้ว

    Bravo Chickadee I'm going to send this to everybody I have Crohn's disease and I don't think anybody understands how I feel and I don't want to get out of bed and I do work 7 days a week and yes I'm tired, so give me a break if I want to sleep all the time !!!! Grrrrrr

  • @playinghooky2352
    @playinghooky2352 4 ปีที่แล้ว +2

    Your absolutely beautiful I have Crohn's for three years now one day I pray for a care

    • @harleyadam8787
      @harleyadam8787 3 ปีที่แล้ว

      please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did

    • @playinghooky2352
      @playinghooky2352 3 ปีที่แล้ว

      @@harleyadam8787 thanks you so much for the information where are you guys from

    • @harleyadam8787
      @harleyadam8787 3 ปีที่แล้ว

      @@playinghooky2352 we're from LA, buh the doctor is from Africa, so we placed an order

    • @playinghooky2352
      @playinghooky2352 3 ปีที่แล้ว

      @@harleyadam8787 good luck with everything I feel like I'm alone a lot I wish I could meet people like me and he's so lucky to have you it's so hard to meet a girl that will love me just for me have you guys ever been to Michigan

    • @harleyadam8787
      @harleyadam8787 3 ปีที่แล้ว

      @@playinghooky2352 nope, haven't been to Michigan, been sad on yourself,won't do you any good, get that medicine and chase your dreams, who knows, when you are well, you can get that girl of your dream

  • @TheUnknown06
    @TheUnknown06 2 ปีที่แล้ว

    My roommate has IBD. He's in his room all day every day. He won't wash his clothes unless it's done for him, even if there's food he won't eat properly, he doesn't take his medication or see his doctor like he's supposed to, he dropped out of high school 5 years ago and still hasn't started his GED, he lives off of other people, whenever family gives him money he doesn't give at least 5 bucks for gas despite me letting him live in my apt rent free (he spends it on door dash). Is this normal behavior for someone with IBD? I've looked into it and a good portion of people are active and are trying to do something with their lives...my roommate just rots in his room

  • @EmmaBrinkleyCrohnsWarrior
    @EmmaBrinkleyCrohnsWarrior 6 ปีที่แล้ว

    Just stumbled across this and wanted to say well done! From one Crohnie to another I'm so pleased there are people out there like you doing stuff like this. Unless you've lived with it I think it is hard to process but hopefully though these videos others might have a chance at being a little more understanding! 👍

  • @zico8509
    @zico8509 6 ปีที่แล้ว

    Big inspiration im also a crohn patiënt , directly no what you mean , you get to know people realy good when its not turning out in there favour especially the closer ones family etc 😔 , excuse if im making mistakes in the texting im from the netherlands this made me smile , i wish you alot of happy days and joyfull moments greetz

  • @lottyjibson4554
    @lottyjibson4554 7 ปีที่แล้ว +3

    Hi! I have Crohn's disease too and am going to be starting azathioprine soon! I am 13 years old and have been diagnosed for 6 months now! I have started to get symptoms back! I am really worried that I am going to lose my hair from azathioprine! Have you got any advice or tips?? Please reply it would really help!
    I love your videos! You are the only person who posts videos on Crohn's that I know of because most people who have posted videos posted them 2 years ago😂

    • @jennykate8610
      @jennykate8610 7 ปีที่แล้ว

      Lotty Jibson hey! I’ve been on aza for three months now and it has definitely helped! A few tips I found were take it after big meals and try to stay away from sick people. As for the hair thing, my hair was falling out anyway from being sick and aza did make it a bit worse, but it is now growing back better than ever so I wouldn’t worry. You might lose a bit but it comes back pretty fast. My hair is quite thick so it wasn’t noticeable. Good luck! :)

    • @x_shxkira_x
      @x_shxkira_x 7 ปีที่แล้ว

      I was diagnosed last year . Im 12 now. As i had thin-ish hair i was noticing it was falling out at the start but dont worry , your body gets used to it xx good luck

  • @whitneyl8085
    @whitneyl8085 7 ปีที่แล้ว

    Hope to see more videos soon - Your videos really help - you are making a difference :)

  • @kimberlysolomon8489
    @kimberlysolomon8489 7 ปีที่แล้ว

    I have recently begun Stelara So far my symptoms are much better controlled than before I love ur videos and ur hair is adorable 😊

    • @Nniicole22
      @Nniicole22 7 ปีที่แล้ว

      Kimberly Solomon Stelara helped me so much for quite a while. I hope it keeps working for you!!

  • @annar6871
    @annar6871 7 ปีที่แล้ว

    Ive just discovered you as i was searching for azathioprine side effects.
    Please do more vid! Absolutely love them. Its nice to relate ☺

  • @amd23lovinglife
    @amd23lovinglife 6 ปีที่แล้ว

    I’ve been deali with a lot of health issues this year and I’m about a month I’ll be going to my first GI DOCTOR I’m super anxious to hear what he has to say. But new subscriber here , love your accent.
    I can really relate to the just because you can’t see it doesn’t mean it’s not there I’ feel like crap most days but everyone around me is always like your so happy you seem fine, when really I’m miserable. I hope I don’t have it but I just want answers at this point .

  • @michellegillis5400
    @michellegillis5400 7 ปีที่แล้ว +1

    love the hair cut.. looks great

  • @brendaquattromani8339
    @brendaquattromani8339 6 ปีที่แล้ว

    My bosses are the worst. They don’t understand when i have another surgery for an abscess or fistula, that don’t mean that’s all I had to do and now I’m fixed forever. “So after your surgery you all good now?” “No, that wasn’t to cure my disease, just treat a problem it caused...” gahhh!! You’re stunning by the way. Currently my 4th day in hospital feeling like an obese chipmunk on cortisone injections 3x per day, giving me hope that Crohn’s won’t make me feel and look terrible forever.

  • @TeamBroccoli
    @TeamBroccoli 5 ปีที่แล้ว +1

    I’ve had crohns since I was 16, I’m 38 now. Fun times...not. Haha. Totally relate to this. 💜

  • @cadycolleen
    @cadycolleen 6 ปีที่แล้ว +1

    I'm in the process of being diagnosed with crohns/colitis. Sucks.

  • @entachill4268
    @entachill4268 6 ปีที่แล้ว +3

    What annoyes me extremely is if I tell people on work that I have to go because I don´t feel good they´re like really, you don´t look sick. Yeah I don´t have a flu, i´m fucking sick since 15y constantly, you get used to it and I won´t complain all the time about how i´m feelig. I feel bad for staying at home even tough I rally can´t work, because I always fear people think i´m actually okay.
    This disease is like an allergy, people who never had an allergy are like, yeah shure invisible stuff in the air is bothering you.
    Are you sure you have crohn´s desease? Maybe it´s an allergy or it´s all in hear head. Sure, I was in hospitals for month and got 30cm instestine removed, must be a psychological issue.

  • @LIZZYBANKSS
    @LIZZYBANKSS 3 ปีที่แล้ว

    This is a lovely video x

  • @suesue48
    @suesue48 4 ปีที่แล้ว

    Wow, so true! Best wishes with your struggle. I have it, too.

    • @harleyadam8787
      @harleyadam8787 3 ปีที่แล้ว

      please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did

  • @yasminezribi9997
    @yasminezribi9997 6 ปีที่แล้ว

    Omg thanks god there’s someone I can relate to. no one can understand what I’m going through

  • @larryepps3520
    @larryepps3520 7 ปีที่แล้ว +2

    Mood swings and ppl not believe in you when you tell them you can’t eat certain foods

  • @Kriiasmr
    @Kriiasmr 5 ปีที่แล้ว

    So relatable I got crohns too! Love your videos hope to do some of my own 🙌💜

  • @emmalouise4437
    @emmalouise4437 5 ปีที่แล้ว

    You are so beautiful, I love your channel. You're so great at explaining things !

  • @cmj20002
    @cmj20002 5 ปีที่แล้ว

    I have been sick for years. I lost so much weight. My brother is over weight and he was saying that I am as well due to my gut sticking out. I told him that I am not over weight. I am 6 feet tall and 163lbs. Not fat. I have Crohn's diease, degenerative disk disease, chronic pelvic pain syndrome and possibly Lupus. The odd thing is because I don't look like I am in pain most think I am fine, well if they lived in my body for one day they would be begging to get out. No one has any idea of how much pain people like myself go through daily. I get about two hours of sleep each night because I hurt so much. Sometimes I feel like I got ripped off in the body lottery. God gave me a defective one and now I have to live with it. I wish I had a warranty:(

  • @chrisromero5302
    @chrisromero5302 5 ปีที่แล้ว

    In my honest opinion I don't care if other people dont believe that I have ulcerative colitis I feel that I dont have to explain my illness to someone who doesn't get it or cares. I look at it in simple terms. I have the disease and I have to focus my time and energy to keep me going and taking care of myself.

  • @marias1834
    @marias1834 6 ปีที่แล้ว

    SHOOT WAIT AND NUMBER 3!!! i think autoimmune diseases are just so misunderstood in general

  • @megandaisy710
    @megandaisy710 3 ปีที่แล้ว

    You have a beautiful voice🥰😍🥳

  • @lauraw3338
    @lauraw3338 5 ปีที่แล้ว +1

    OMG....love love love this video you did because it’s my life!!😂😂😂😂😂

  • @dianelindenberger6941
    @dianelindenberger6941 3 ปีที่แล้ว

    Did you have a colonoscopy?........they say I have Crohn's and I am so skinny and I don't want to take medications....I didn't have any of this until my Mom died .......last year I was fine.....does stress cause Crohn's

  • @raina.s
    @raina.s 7 ปีที่แล้ว

    I've never liked the term "invisible illness" I've always felt it downplays the severity of the diseases. There must be a better way to describe it.

  • @piapetrick8077
    @piapetrick8077 6 ปีที่แล้ว +1

    Great . TH-cam forget to mention people WHO Always say IT IS all in ur mind

  • @emiitchi4232
    @emiitchi4232 6 ปีที่แล้ว

    Love this! Thanks sister

  • @christianwallace8996
    @christianwallace8996 7 ปีที่แล้ว

    I love your videos! I've been dealing with stomach issues basically my whole life. But it was 4 years ago (a month before I started high school) that I went to the hospital and was diagnosed with chrons disease.... I am going through one of my worst flare ups right now which has caused me to miss a lot of work... I've always been skin and bones but lately I've been losing weight on top of not being able to eat anything and being tired and losing strength. My family has always been supportive but I have realized that none of them understand what I'm going through. It sucks. Only 2 of my best friends know my problems but it's hard for me to talk to any of my other friends about this cause I feel embarrassed. My stomach issues have caused me to miss out hanging with my friends cause I'm always nervous that my stomach will start acting up any given time. Sometimes I just feel really, really lonely...... Do you have trouble telling your friends you have this disease? I have always been really secret about it and I feel like I'm trapped inside, not being able to tell any of my friends about my problems.....

  • @kimtaylor1878
    @kimtaylor1878 4 ปีที่แล้ว

    Please put a link to your polkadot top

  • @elcyralte1823
    @elcyralte1823 7 ปีที่แล้ว

    love your video...keep it uppp...

  • @kendramccrory-bush4559
    @kendramccrory-bush4559 4 ปีที่แล้ว

    Please make new videos these help me daily

    • @harleyadam8787
      @harleyadam8787 3 ปีที่แล้ว

      please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did

  • @jessicapeterson3962
    @jessicapeterson3962 6 ปีที่แล้ว

    Love ur hair how did u get that color

  • @nicolemcneil9427
    @nicolemcneil9427 7 ปีที่แล้ว +1

    Am going through this the now and just been diagnosed finding it hard to come to term with it any advice

    • @richardgoodison2364
      @richardgoodison2364 6 ปีที่แล้ว +2

      nicole mcneil
      Dont worry is the first thing i would say as this does not help
      Keep a food diary to see what plays you up as it is different for everyone
      Keep your bits clean im not being nasty it helps keep piles away
      Tell your doctors everything never be afraid or embarrassed they are there to help
      If a treatment is not helping keep going to your doctor it is the only way to find something that works
      Rest your bowel when you can for example go on a low residue diet occasionally even if you dont need to it helps.
      Speak to people on sites discussing crohns dont be afraid to ask questions or talk about your health if they take the piss ignore them and speak to those who are serious about helping you
      Good luck and take care

    • @larahilton7417
      @larahilton7417 5 ปีที่แล้ว +1

      Be prepared for it to take time. Be patient. Working out a safe diet takes time; as well as what meds’ suit you...and finding an understanding GP and specialist.
      I’ve had to go back to the specialist today as it’s it’s all got a bit much again BUT .... I was diagnosed fourteen years ago and although they’ve been huge challenges (and I’ll be honest, moments of despair), when I’m well Ive been able to do all sorts of lovely things that I thought would be impossible in the beginning. So please take care of yourself....I know it’s hard.

  • @christopherkin6
    @christopherkin6 5 ปีที่แล้ว +1

    At least you know how I'm feeling 😥

  • @leemartin9893
    @leemartin9893 7 ปีที่แล้ว +1

    I’m on azathiroprine for three weeks now .. my hair is falling out !! How bad was yours ? And does anything help

    • @jennykate8610
      @jennykate8610 7 ปีที่แล้ว

      Lee Martin I took vitamins and waited. That’s all I really could do but it came back super quick (like two months) so don’t worry

    • @luhattan3524
      @luhattan3524 7 ปีที่แล้ว

      Lee Martin Try some Biotin vitamin supplements! Just avoid anything with iron in- if you get constipation as well as the shits with Crohns.

    • @leemartin9893
      @leemartin9893 7 ปีที่แล้ว

      I will get some from my naturopath! Thank you !!

  • @simonmaverick9201
    @simonmaverick9201 6 ปีที่แล้ว

    Superb vids.

  • @sofiamendes6647
    @sofiamendes6647 7 ปีที่แล้ว

    Love you girl! I'm 13 and I have crhon's too

  • @pennym6601
    @pennym6601 5 ปีที่แล้ว

    Love your video. Fun funny and so true.

  • @TessDays
    @TessDays 7 ปีที่แล้ว

    this video is sooo good!

  • @klaaguiby1225
    @klaaguiby1225 4 ปีที่แล้ว

    The more I find my tribe- The Cronies/UC Warriors
    / or Celiac Savages who just GET it. Without a single explanation...
    There isn’t quite anything that compares to having those connections. We’re not alone. This sh*t includes sheer battery of the WORST things that could happen to your body- and the ability to continue on in spite if it all.

  • @pcy2826
    @pcy2826 5 ปีที่แล้ว

    OMG thanks for that 😭💕💕

  • @mile.9768
    @mile.9768 6 ปีที่แล้ว +2

    I have a fun ”trick” so lets say if my friends call and i answer and say sorry im sick cant talk rn they ask when will u be fine? Probably never.
    See if ur friends go WTf +1 point to people with crohns that use this trick lol

  • @iliasali1610
    @iliasali1610 7 ปีที่แล้ว

    What is the most simple way to tell people who don't understand about our crohns?

    • @Talapia03
      @Talapia03 4 ปีที่แล้ว +1

      Hey
      For those who dont need detail It's like a constant stomach bug.
      For those that actually care it's a disease where the body doesnt recognize the gut and attacks itself

    • @iliasali1610
      @iliasali1610 4 ปีที่แล้ว

      @@Talapia03 I found out that ulcerative colitis has very much the same symptoms aswell, so i tell people to go google that lol

    • @Talapia03
      @Talapia03 4 ปีที่แล้ว +1

      @@iliasali1610 the difference between uc and crohns is where in the gut inflammation happens

  • @MariaThereseCarlsson
    @MariaThereseCarlsson 7 ปีที่แล้ว

    Love this!

  • @emd1494
    @emd1494 4 ปีที่แล้ว

    It is causing me insomnia.. I don't know if this is a symptom or I just have it and insomnia

    • @harleyadam8787
      @harleyadam8787 3 ปีที่แล้ว

      please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did

  • @xXMidnightInsomniaXx
    @xXMidnightInsomniaXx 6 ปีที่แล้ว

    YEEESSS S P E A K ESPECIALLY THE PREACHING PART OMG

  • @saradidonato5684
    @saradidonato5684 6 ปีที่แล้ว

    I was just diagnosed. 😞

  • @Natalieogriffin
    @Natalieogriffin 6 ปีที่แล้ว

    Oh my goodness! Yes! We've been on the hunt for whats wrong for forever it seems, and people do the magical fixing so much! I mention a possibility of what it is, and BOOM! Someone's distant relative has it and fixed it by going salt free. Or something. And now that we are awaiting the biopsy results (should be in within the next few days!) and it really looks like crohns...
    "Edward has it! And he changed his diet. He's fine now! You'll be fine!" *pats me on the back* As a response every time I mention the word and try and explain what it is. And if I manage to explain how it's a serious issue, they disregard it completely. Thanks... I already can't eat milk, eggs or wheat without getting worse. If that didn't fix me, I don't know what you want me to do.

  • @annmarielowe9253
    @annmarielowe9253 7 ปีที่แล้ว

    Wow your videos are so Good you talk about it all and you give sound advice thank you I don't know wot I would of done if I hadn't seen ur channel months ago I smile wen I see your videos as you say it how it is your so right over family I've lost Every one after not being able to go to there party's get together soon birthdays the list can go on for ever all I'm told is get out off bed as it makes you I'll and put some clothes on were going my family's house or meet up I have to say no well all I get is come on it will make you better yes
    it destroys my mind wen Im told just come to the party you need to get out and stop staying get in bed I have just had two brain surgeries plus my other illness so wen I was told I have chrons it destroyed my family and husband and kids I found it so hard them one day I came across your website site wow you saved my body and soul so that's why I follow you as your speaking up for us all. X

  • @hawktuahsigmafan21
    @hawktuahsigmafan21 4 ปีที่แล้ว

    i didn’t know about a lot of this and i got crohns at 5

    • @harleyadam8787
      @harleyadam8787 3 ปีที่แล้ว +1

      please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did

  • @nymeriarosepallas6193
    @nymeriarosepallas6193 3 ปีที่แล้ว

    I wish everyone could see this cause like me 100 percent