My First OCREVUS Infusion
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- เผยแพร่เมื่อ 11 ก.ค. 2019
- Hey guys! Just wanted to share how it went with my first Ocrevus infusion. Enjoy!
Please feel free to ask me any questions you may have down below and i will get back to you!
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Main Channel Auntie Coo Coo:
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Hi sweet Val
Stay strong dear you tube friend. Chronic illness is so very daunting. I've mentioned before to you I am also a professional nurse and we've had chronic disease in our family too. One moment and treatment at a time right? Holy molly........that steroid dosage is massive. My sweet husband is steroid dependent due to history of pituitary macro adenoma. Successful surgery but incomplete resolution of symptoms so far. Therefore replacement medication is life saving. You're such a positive gal,especially with your knowledge base. It makes this even more difficult on us in my opinion. Your a blessing to others with like disease. You're an excellent educator. May you be blessed with improved health,resolution of symptoms and remission of disease. I will pray for you. Have a lovely vacation and be well.
Patti
So happy your infusion went off with minimal untoward effects. Keeping you in my prayers! Have an awesome vacation/cruise, I'm sure you all will have a blast! Thank you for the update.❣️
Thank you! It was very nice.♥
So glad you did well. Enjoy your trip. Have a great time.
Glad you are doing well,thanks for the update !
Thank you Lynda!
That's wonderful that everything went well!
Glad all went well with your infusion. Hope you enjoy your cruise. Thanks for sharing your journey.
Val, this make me want to cry. I've been down for weeks with my spinal issues, but feel guilty that I have not been watching u-tube much at all and missed this. So glad that you had no reaction to this infusion and hope that eventually it helps your fatigue. It's hard to want to do things in your mind when the body can't get up and do it. Your attitude is so amazing and I have no doubt that plays such a big part in your treatment. We love you and just kbow that you are in our prayers. ❤
Enjoy your cruise! I am glad the infusion went better than expected. 💜
Hi val!!! So glad the infusion went off without a hitch!!! Thanks for sharing the experience with us all!!! SMOOCHIES ALL AROUND!!! 😊❤🍒
So glad that over all it went well. You sure do look beautiful I must say.Continued prayers for your treatments and hoping your vacation is wonderful!
Thank you Casey!
Love you. You are remarkable and brave. Yes, post how ms is affected by heat. Thank you for sharing with us. This helps me immensely..God bless you.
So nice to see you. I m glad your treatment went well. You look well and beautiful. 🙏💖
Awe thanks!
So happy that everything went well, prayers for a full recovery 🤓🤓🤓
Thank you so much Aidee!
I’m so glad your treatment went well and that you decided to start this channel. I hope you are feeling well after your surgery. It takes time that’s for sure. Would you consider doing your journey to diagnoses? 💕
Hi! So glad the infusion went well. Please try to rest and take it easy. you are a very sweet person always with a sweet and happy attitude in your videos. I know you are in a lot of pain and the worst is the fatigue. Try to stay in the shade or in cooler places until the temperature gets better and the humidity goes down. Hugs, Lisa S
Great video! I get my first infusion in early August.
Hi Val hope this does help your fatigue you look great and I love your up-beat attitude with this wishing you the very best friend hugs !
Hi Auntie Coo Coo,
Is this the MS drug that for the first treatment it is broken into two doses, 3 weeks apart? Then following that every six months? I nanny/babysit and I had a Mum earlier this year (Feb/March) who has MS. She is an absolute hoot!!! She is British, that’s why I called her a “Mum”. 😊 I began keeping her little boy for her three days a week for her to go to the gym for her to prepare for her first ever MS Walk. She was diagnosed in her mid to late 20’s and is now 35. She has what I believe is called a drop foot, so she has an orthotic that goes up the back of her leg when she is having more trouble than usual with the drop
foot. I absolutely loved spending time with her, learning things about MS and all things British. She had her first infusion on a Saturday, before my last week keeping her sweet little boy. Seeing your video, I need to call her and catch up.Thanks for the update and continue to keep us updated. You are a beautiful lady inside and out. Thank you for all that you do. Terri in S.C.
Yes it is! What a SMALL WORLD! So the first dose is broken up into 2 doses 2 weeks apart and then again every 6 months. Hope she has wonderful results! ♥
Wonderful news that you did not have any reaction to the infusion. I pray that this infusion will help you with your MS🙏 🌴💝🌴
did you say you received total of 150mg of benadryl? That is quite unheard of, please clarify
I’m glad it went well for you. I’m not sure what this is, it’s for your MS but what are you hoping for in results?
Yes it is for MS. My hope is it will help with my fatigue.
The medication takes 3 months to work. Then ur Docs should be doing a base line MRI