FND Vlog 02: Walking, Struggles and Sunshine
ฝัง
- เผยแพร่เมื่อ 13 มิ.ย. 2017
- A second week in the life of having functional neurological disorder.
Information and support
FND Information neurosymptoms.org/
Australia fndaus.org.au/
UK www.fndaction.org.uk/
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Thanks for getting back to me so quickly I also have brain fog moments . X
Great video and advice. My faith helps me a lot too. 🙏❤️🩹🙏
Thanks a lot!! for sharing your experience....
Always love yourself....Love can heal everything....
I knows what it feels from doing physically awesome things to get paralyzed due to FND as I am suffered from last 11 Years.
For better recovery from FND, We can work on our breath by using techniques mentioned in books like The Oxygen Advantage...
Breath control can bring your brain and body in sync...
All the best.....
Can you please share what you have done to improve? I've been dealing with this for a year basically and just got diagnosed with FND.
You said so many valuable things. Thank you. I feel like I'm chilling at the park with you while the footballers practice. Love what you are doing! Xoxo
SELFIE STICK!! Love it!
I completely sympathise. I've only just been diagnosed with FND, like a few weeks ago, so at moment new symptoms are a pain in the arse, mostly spasms and twitching and because that's quite upsetting for those around you I try distraction techniques to not do it around them, which I think just makes it worse in the long run. So true though, "If you're going through hell, keep going." I wouldn't say I'm there yet, but I think I can see it on the horizon. Really glad you're vlogging though, so little information out there.❤
No blame. It is the thing I struggle with the most! I have made the decision to have the mindset that I am not 'wrong', ie. what is wrong?, my leg movement is wrong, I don't walk properly,, etc. I am just how I am. It does not mean that I will stop trying to find ways to manage to move through this world the best way that I can. I will stop placing blame and treat myself with compassion.
Ahhh, this helped me sooooo much today!! Thank you Lenny! You commented on my post on the FND FB page today & left me your vlog link, hence me watching some of them - so grateful! :-)
You are very welcome Jennifer!
Hi I have fnd and seizures my balance is so bad. It’s the shaking that gets me down . Thanks for the update
Seizures are really tough! It's hard to stay positive when your balance and inner sense of strength feels effected.
Dark lonely space is so TRUE 🇨🇦
Stopping the whys about being triggered....wow that's so good...I'm always looking to blame something.
Is your response to sensory overload the same as a focal seizure?
Do you also get pain?
I have been recently diagnosed and I’m having a hard time accepting it.
I get intense pain, stiffness, tremors and facial movements.
How can I accept this diagnosis I’m convinced it’s something else like a reaction from an antidepressant
Yes I do get pain, but not as bad as some people. Have you heard of fibromyalgia? It's often a diagnosis in addition to FND (or pain is seen as part of the FND). Have you talked to a doctor about potential side effects of your medication?
I was initially diagnosed with fibromyalgia due to the pain but now they say it’s FND as I also have some movements such as dystonia and facial spasms but they only come on if I’m in pain or anxious also the weather can. Bring it on.
Are you based in Sydney? Do you know of any clinics that specialise in helping with this disorder? I’m having a hard time accepting this
@@stephaniedoria2196 yes there should be recommended specialists on the website fndaus.org.au Dr Tejas Patel was my neurologist that referred me to other services