♿️ pt2. Your disability survival guide. Start here, I got you
ฝัง
- เผยแพร่เมื่อ 3 ก.ค. 2024
- My disability survival guide part 2. Don't miss part one: • ♿️pt 1. Life as a new ...
This video is not to be missed if you have found yourself disabled, or a new wheelchair user. In this video Im sharing with you all the benefits and schemes that you may be entitled to, to help you with your daily living. From taking a carer at no extra costs to many of the UK's attractions, to apply for Personal Independence Payment.
This video is designed as a guide only, I am not a benefits expert, but hopefully this can set you up on the right track to navigating a new life with a disability and help make things a little simpler.
💎About me:
I’m Gem, and after my spinal cord injury at the age of 9, • ♿️HEART SURGERY PARALY... my life has taken me on many twists and turns, and finally led me to combine my passions of media and disability advocacy, et voila! Wheelsnoheels was born.
👨👩👧I live in the UK with Shaun, my Australian husband, Daisy my Daughter. And our fur babies Tink & Bindi. All of whom make an appearance now and again.
♿️My Wheelchair Stats
GTM Jaguar
Aluminium Fixed Rigid Frame
9kg (Including cushion, wheels,& castors)
Spinergy LXL Wheels
Carbo-life curves push rims
Single fork castors
That cool power wheelchair attachment is a Batec
🎥 On this channel you will find videos on:
Disability hot topics
Choosing a wheelchair/mobility aid
Traveling as a wheelchair user
Making a home accessible
Wheelchair access in Disney
Shop my favourite products featured in my videos
www.amazon.co.uk/shop/wheelsn...
These are off links
If you feel I have given you value today consider buying me a ko-fi, or giving a super thanks, just think of it as a tip.
www. ko-fi. com/wheelsnoheels
📱FOLLOW ME ON📱
INSTAGRAM @WHEELSNOHEELS_
TWITTER @WHEELSNOHEELS
FACEBOOK WEELSNOHEELS
TIKTOCK @WHEELSNOHEELS_
📩CONTACT ME📩
gem@wheelsnoheels.co.uk
Did you Know you can Hire me?
press@wheelsnoheels.co.uk
*TV & Radio Presenting
*Motivational Speaking
*Collaborations
*Filming and Producing
*Modeling
♿️VIDEOS YOU MAY ENJOY ♿️
DISABILITY CHATS
• DISABILITY AWARNESS ♿️
PARAPLEGIC LIFESTYLE
• WHEELCHAIR ETIQUETTE ♿️
BASIC WHEELCHAIR SKILLS
• ♿️BASIC WHEELCHAIR SKI...
VLOGS: LIFE ON WHEELS
• DISABILITY PRODUCT REV...
MY TEDx TALK
• From teen despair, to ...
My disability survival guide part 2. Don't miss part one: th-cam.com/video/CWLF5yLGMLs/w-d-xo.htmlsi=8tOyjv2rnf5xmV12
This video is not to be missed if you have found yourself disabled, or a new wheelchair user. In this video Im sharing with you all the benefits and schemes that you may be entitled to, to help you with your daily living. From taking a carer at no extra costs to many of the UK's attractions, to apply for Personal Independence Payment. Im sure I have missed some, so please feel free to let us know bellow, Or what’s available in your country.
Hi. 👍👍👍
hello
@@wadelinn3059
As a Mexican American... it was interesting to see how British people make guacamole.
Oh dear I was worried there may be Mexican American people watching. Was it bad? @@wheelieblind
How are you doing today. Hun 💟@@Wheelsnoheels
I’m 20 years into this disability malarkey, and still learning new things every day! I wish I had a video like this in 2004.
Most of the time you will be refused at the first application for disability payments. (Every one i know who has it and deservedly so), was refused at the first application. So don't give up! Reapply.
That's discouraging.
Honestly applying for ESA and immediately being put in the support group, made me realise just how ill I was. I mean I knew I was ill, but I just hadn't properly admitted how badly to myself until then
@kimwilding8444 that's why you should talk about it, and not do (what I did) and bottle it up.
I luckily got mine first try but my mom helped me a lot even got help by talking to a layer
@@walkingtowheels so true, it took me another 6 years to get some counselling about it - and I'm only just beginning to pick it all apart now - that's such important advice for people who find themselves in life changing situations, but somehow always gets lots in the chaos.
Daisy is super talented! She should draw some things for Wheels No Heels merch!
For anyone wondering, conditions like fibromyalgia are recognised by pip. I have fibro and although the process was emotional and I had help from my dad and citizens advice, I did get awarded pip.
im glad you got what you needed .
This is wonderful content. We can easily get overwhelmed and confused. Don't feel alone y'all! Irishman here, and have lived in Florida 18 years now. Since becoming paraplegic in 2019 following an automobile accident, I've had to meander the many obstacles of our system here. Finding out my entitlements etc. It's a headache, that's for sure. United Spinal Association here in The US, I have found to be an excellent resource for information.
I'm waiting for my direct payment to hire a PA to help me engage with the community without needing to rely on my family. It can take a really long time, but it's definitely something people need to know about more. They can be really helpful :)
Oh well done. I hope you get what you need. 💙
I hope they do not charge you much
As long as score 8 points on certain part of the mobility part of pip you can get a blue badge as i have one and I don't currently receive the higher rate. You right when you say it is not easy to get these benefits. I feel I have been fighting ever since I became disabled to get the help I need, and it is just draining and frustrating
unfortunately that isn't the case in all areas of the uk as different areas do it differently:( i am full time wheelchair user on higher rate mobility pip and only got accepted for blue badge after like 10 months of trying, however other areas in the uk are different. i totally understand the last bit though and i hope you are okay and that you get all of the help you need soon x
@theosaurus_rex thanks for tell me that I didn't know I Guess it must depend on the council x
yes your right ,the general consenses is that applying is so difficult, you just have to keep at it , it shouldn't be that way though
Would love a video on things that are maybe are second nature to you like practical guides for accessing the world in a wheelchair!
thx for your comment, have you seen my video on first time out in a wheelchair th-cam.com/video/al2RSYajzgY/w-d-xo.htmlsi=_74uWoy72hNSeK_v
0:00 Life stuff
8:26 January 13, disability survival guide
Thank you. I hope you found it useful. 👍🏻
@@Wheelsnoheels Im in Canada but love your videos!
Thank you so much for this series!! Becoming disabled is such an arduous journey and the work you've put in helps so much in making that a little easier 😄
OMG! I haven't even fully finished the video but I just had to say as a young adult with a new found physical dissability in the care system with no one to help and advocate for me, this video is so helpful. Thank you so much!
I had to give up my driving licence, but along with the blue badge we're entitled to a bus pass, and that has genuinely been my lifesaver
Gem, I really enjoy your vlogs,and I have learnt so much from them, I have primary progressive multiple Sclerosis and it means everyday life is getting harder,but we are going back to Florida this August to see the mouse and Harry P! The rim grips are so good I bought some as soon as I seen your vlog! And I got a Vlogging camera 📸 for my birthday, we are total amateurs at it but we will be using it, it won’t be as good as yours but we want to use it on all of our trips and vlog it! Going back to what disability benefits you can get is bloody hard work I was refused 3 times until I managed to obtain it! But I kept at it and finally got it and now I have the enhanced part which means we are able to get a 🚗, but it wasn’t easy
wow Florida sounds awesome , i hope you've seen my videos on the rides and transferring , its my favourite place ,i think as you say you have to keep at it when it comes to what your entitled to
Daisy’s colouring was fab love the video thanks for all the advice.
This was really helpful thank you so much Gem, also I love how your cat just turned up trying to get in the video or maybe just hungry lol.
Oh I’m glad it was helpful. Probably a bit of both. Did you see her walk over my notes!!!! When I was writing them, she actually plonked her fury bum on them so I couldn’t write!! I think she was hinting at food 😝
@@Wheelsnoheels yeah just like a cat. can't tell you how many zoom meetings I have had where my cats have shown up just because they can.
If you live in London you can apply for a freedom pass with your proof of PIP, which lets you use TFL for free. Outside of London, disabled bus passes work all over the UK and some trains depending on county!
For any immigrants to the UK with no recourse to public funds, note that even though you aren't eligible for most benefits (no PIP, DLA, etc), you CAN apply for Access to Work funding!
thanks for sharing that
Thank you!!!!!! So much extremely valuable information in one video. ❤
I never care about video quality-TH-cam is (was) meant for everyone!
thanks for your comment
Thank you for mentioning about having a social worker help you with PIP. I have epilepsy & A-typical autism. I have tried for DLA in the past but it has gone to appeal & back then I didn’t have any help to go to appeal. But I have just gotten a social worker who I will see for the first time this week. I will definitely ask them if they can assist me this time I apply for PIP.
Glad it helps. I hope you get what you need. Yes ask if they can help. If they can’t contact scope as they might be able to point you in the right direction. ☺️
Also my doctor was really helpful, he wrote me a letter to go with my application.
Love your videos, so informative. Well done Gem xx
I can't afford a wheelchair at this time, but I hope to purchase one in the near future, but as for right now, I am okay with using my cane and rollator walker.
Great tips, btw.
Happy birthday to Sister NoHeels
Anyone who is planning on visiting Pembroke Castle, they allow a supporter for a disabled person to get in free. Also fairly accessible as an attraction, as long as you can get to the Castle itself OK
sounds great thx for sharing
This is awesome Gem. from my experience the professionals are pretty bad at givin out this info. I have recently discovered a disability travel company called Limitless Travel. So if any viewers are in need of a break that does not smack of traditional respite I would highly recommend them. I've just had a week in the Cotswolds visiting The Roman baths in Bath, Hereford Cathedral and Gloucester Cathedral.
Approach local theatres and check out their own policies. They also do free carer seats. Local carparks can be free if your vehicle is registered with the council, and blue badge, so means not just limited to road parking though extremely handy being able to park close to destination. Register with Transport for London, and places like Dartford Tunnel for more discounts. Can register two vehicles I believe.
Absolutely life saving thank you!
Oh, i wish you were over here in the USA to inform me on these rules
I'm curious about movie theaters where you are and how it's handled. The last time I went to the theater, the seats had to be reserved in advance and I had to reserve the squared of spot on the floor reserved for wheelchairs, there were 2 of these spots in the theater and if I wanted an actual seat, then I was supposed to reserve the space for my chair and the seat next to it. I was told this was because putting my chair anywhere else would be a hazard in case of evacuation. Ok, I understand that but for those that can transfer to a seat and find it more comfortable to do so . . . well I didn't like the policy. I absolutely needed to be in that back row because I couldn't get down the step. So what we did was I reserved my seat in the wheelchair spot and my husband and child reserved seats in the row below me, then when we saw the theater only had about 10 people in it, my husband came up and helped me transfer into the seat next to the wheelchair spot. They call those spots carer spots but reserving them is only allowed with the reservation of a wheelchair space and both spaces are full charge. I'm in the USA
Yes! And Heaven forbid you want to go to the movies with your family, if you have a couple of kids, or more. You can't all sit together.
yes i have experienced this swell in the Uk it can be tricky
"noice!" (with the pens) 😀 "Oh yeeeah" (with the guac) - detecting some Aussie accent there? hehehe
I'm in Ny state and the ACCESS program there is a program that works at the state parks for free parking and sometimes discounts on overnight stays or other programs, I think it's a every 2 year renewal, but it's possible that is just for children that there's such a short period before renewal (my kids both have it). I think there's something similar for the National Parks but there aren't any national parks close to us so I haven't looked into that.
Ahhh. Thanks for sharing 🤍
Yes, there's an Access Pass for National Park Service sites, and the benefits range from getting free entrance for sites that charge an entrance fee (more and more are getting rid of the entrance fee, but many still have one) to getting half off camping, plus a bunch of other things. It's free to get (if done in person - there's a postage fee if done by mail) and never expires - all I had to do was show my ID and an official letter stating that I had been diagnosed with a disability, and that was back when my mobility was still 100%, so you don't have to have a mobility disability in order to get one. I got mine at the entrance station in the Tetons the day after the eclipse in 2017 and have used it at 30-something NPS sites since then. You can get them at most NPS sites, but not all, so contact the park you're going to ahead of time to make sure they issue them.
Really helpful ive shared it with a friend. Your right applying for these bennifits is stressful
I never knew about the Winter Fuel Payment, I always thought it was for people who were born before a certain year. That's so interesting! I'm hoping to get my first motabilty car in the next year or so if I'm lucky enough to get my provisional license 🤞they refused me last time because of my POTS
Winter fuel payments really depends tho, i got it in 2020 & before however they changed the rules now you need to qualify AND your property has to have a efg rating of d or below. My apartment is rated b, i have higher costs due to needing heating and to recharge my electric wheelchair but i no longer qualify apparently. Have a friend in the same situation, her husband uses a mobility scooter and both daughters have dla but they don't get winter fuel payment as her house is rated c. I believe that rented housing nowadays HAS to be at least rated d to be able to be privately rented, so unless your renting a rated d home, all other rented homes would mean you don't qualify for the fuel payments
thx for sharing ,good luck with your license.
Hello, Gem.
My wife and I enjoy your content and have learned much from you.
We will be in London in the near future and are looking for recommendations regarding a reliable establishment for wheelchair maintenance (Tilite) and where we may purchase tires (Schwabb), tubes, casters, and bearings.
Thanks for any help you can offer.
new Guy here, From Indiana U.S. I am waiting for my first chair just learning what kinds of help there is out there and I am feeling overwhelmed
Have you found a local support group yet? I find those the best places to start. They know what is available where you're at and how to go about getting it.
Best of luck!
have you watched my first video pt 1 ? that might be helpful also yes the comment on finding a support group is great adviceth-cam.com/video/CWLF5yLGMLs/w-d-xo.htmlsi=YJCM5u2NiO-zEe_E
@@Wheelsnoheels The biggest problem I am going to have with finding a support group is I live in a rural area, Nerast City which would have one is a little over 160 km. I can't remember the last time I even saw another person in a wheelchair outside the hospital. I talked to my therapist about it today they are going to look into it for me.
I think I saw part one But I going to rewatch it again. Thank you
@@cpr58 There are some support groups that meet virtually, which might be a good option if you have trouble getting to a larger area.
@@msrants234 thank you, I will look into that. In the beginning, I just survived, I never thought ahead. I never thought it would be this hard mentally after this many weeks. T
You can also get power wheelchairs or scooters on Motability, like what I do
I am already receiving PIP from a stroke. Trouble is I can’t talk…(aphasia ) Number two.. I need a electric wheelchair left hand only….Completely can’t do anything my right hand & arm, my right leg which has a sore on it; which after numerous a visits to the hospital refuses to heal. What I would like to see more how you make a video you go about using a electric wheel chair, and a hoist. And how to apply for a grant
I’m from the UK
i try to speak from my own lived experience ,and accommodate as many disabilities as I can .With regards to the hoist i would contact your social worker or your occupational therapist who may be able to help and asses you , i hope this helps
Granted I mentioned it before but I have wondered if a guide on navigating the world of dating, relationships and so on with a disability would be helpful.
Thank you for your request. I have had other people asking me about this. But shaun and.I met nearly 20 years ago. (WOW) and there wasn't the online dating there is today. I feel dating has changed so much since I was on the scene, I just don't feel it's a topic I can confidently talk about. If anyone out there is reading this and can offer advice that would be most welcome.
@@Wheelsnoheels Thank you for the honesty and congratulations on your life together.
Hi Gem, I love you and your family and I love your content.
I know that not everything is perfect, or seems to be, about the aid, health system and culture of people with English/European disabilities, but I confess that my dream is to live there and to be able to fight for these rights as they seem much better to me than that we have here in Brazil.
Just yesterday I spent just over 6 hours in a public emergency care unit and left there without being able to do all the tests and without being referred to a hospital or any other doctor and with yet another diagnosis of thrombosis in my leg. It was extremely exhausting and frustrating.
Here we do not have public policies for people with disabilities that are as effective as they seem to be and what little we do have is very difficult to access even though we have legislation regarding these topics.
a big hug! 💞
we are very lucky to have the national health service over here ,thanks for your comment and i hope your dreams do come true.
I did not expect a mixed video when you call it a guide - for the algoritm it would have been better, I think, to seperate your life and the guide. I live in Denmark and it is always interesting to see what can be done elsewhere, thanks -that Key would really matter here ...
💗
If you would like to Demo and review some electric wheelchairs let us know, we would be more than happy to allow you to fully test some of our electric wheelchairs we have over 100 in stock to test :)
💙
For a part 3 the fun of holidaying with a disability
Rule one lol, choose your colours (or maybe you spell that 'colors...') the point is the colours of your wheelchair etc. carefully choose them, unless you are stuck with red... I personally would not get it in red but when I think about it red is actually fine.
2 get some lights unless it comes with it... either way you look at this rule, point is to be visible if you are using a flashlight/torch like someone who has no disability. I know the UK etc. does not say flashlight but anyway point is have lighting... and some reflective tape to put on the chair etc. Some people have an orange flag too.
3 When misusing sizes, they will try to adjust to the size they think your body will become as you might gain weight be mindful how they measure you, that is a hard one and I did not even want to go into it. I personally gained some weight and then later lost most of that but that is just me I can not tell you what is best for you, the point is be mindful, not that I want someone to over think that. Just be aware.
If you have a WAV mobility car (wheelchair assisted vehicle) then you can only change it every 5 years
Hi 👍👍👍
💜💜💜💜
☺️☺️
💙💙
Yay thank you 🤩
Any advice for Parenting (Particularly pregnancy and new baby) As a lady with limited mobility? (I can walk a small amount but rely mostly on a wheelchair outside the house) I've just found out I'm pregnant with my third baby (My older 2 are 6 and 8 years) and I was more able bodied with my elder two (Needed to use my crutches or walking stick on occasion but had a lot more mobility) And I don't know where to start, especially as I get bigger. EG Reaching for things in my wheelchair heavily pregnant, getting the baby in and out of their mosses baskets, prams with limited mobility ect.
here's my play list ,i hope it helps my Daisy was very petit in my belly haha,, th-cam.com/video/wMzEl8dVuc8/w-d-xo.html
I wish motability was a thing in the US!
It’s really helpful for me. One thing that keeps us in the uk 😝
In the US most insurance won't cover any mobility aids or equipment needed for work (even when the insurance is provided through your job), only equipment needed for "activities needed for daily living," needed in your home; or needed to get to medical appointments. It's very strange.
That is odd, you would think the government would like to help disabled people to work? 🤔 . Thanks for sharing.
I think it depends on the state you live in
@abou8963 That is possible, and different employers can require the insurance companies they partner with to cover specific things, but they often don't to "keep costs lower." It's a shame that the richest country in the world takes so little care of its citizens or doesn't at least require the rich insurance corporations to do better.
Pretty similar in Australia, mobility aids for in house use like rollators, don't know about wheelchairs. Some help with equipment at work from government, but given crap involved you may be better off buying your own.
If someone lives outside of the UK and has the equivalent of a blue badge, are our disabled parking tags honoured if we visit England or how do we go about getting a proper badge? When I’ve visited Canada, my tag was honoured without question. That works in reverse, too. It just sounds like it is difficult to obtain a blue badge as a resident. I just wondered about what a tourist would have to do. Thanks!!
do you have any advice for new chair users in brighton specifically? i’ve seen it mentioned in a few of your videos that you’re at the very least nearby, and i was wondering as i’m both new to the area and to using a chair (or my crutches)!
chicken liver gizzard and intestines tasty for me sir also cow tripe and intestines and dont eat bacon
Hi Gem you can no longer apply for DLA and ESA as far as I know x
Daisy wins!
Mayo in Guacamole?! Noooooooooo!
England takes such good care of their handicapped citizens. The USA is so far behind.
It may look like that with what I’ve listed, but not everyone who needs these benefits necessarily get them due to the applications and tribunals.
I've had to buy all my mobility aids. The only things I got help with was sofa raising blocks and a raised toilet seat. My shower chair, bed raising blocks, wheeled stool (tattoo artist stool), wheelchairs (manual and folding electric), sticks, crutches and walker/rollator I had to get myself. I've had to spend the best part of £2000 (couldn't afford really good wheelchairs) just to be able to do basic life stuff.
@bexie1992 I am a 100% disabled war veteran who has got things from the VA, thank goodness. My legs are paralyzed, and I have many, many things wrong with me. The heart doctor says that I shouldn't lift anything over 15 or 25 pounds. I have a wheelchair that is heavier, but the VA won't invest in a lightweight wheelchair for me. I am 77, and I don't have the time left for it to bother me.
@@johnbethea4505 my point was that we.arwnt looked after. The fast majority of us have to buy it ourselves. And the free stuff tends to break quickly.
@bexie1992 Yes, I understand what you meant and have been through this before, and I truly understand what you are saying, my friend.
🩷
Carers UK. Sign up family members or those who help care for you. They are interviewed usually over phone-asked questions related to caring for/duties etc…if awarded…They get their own carer card which is acceptable as proof for visiting places, they also get discounts all over the place, various stores etc and there us a wellbeing payment to enable them to undertake an activity for their own mental health…they bought my hubby a bike so he could go enjoy a cycle during his down time.
BE STRONG GEM
🩷
🩷
Awww db will be pleased 😀