My mother had scleroderma and died in 2011... she was a registered nurse and lived with this disease all my life. She orchestrated the first scleroderma walks here in Nashville and continuously had educational booths that I helped with at conventions
My mother was diagnosed last year with scleroderma. I work as a registered nurse, and just knew her life was no longer going to be the same. Least to say, I was terrified knowing how debilitating this disease is. Fortunately we have a great support system, and a fantastic rheumatologist whom helped her tremendously. Thank you for spreading the awareness and educating the world of this disease💙
Looking into the AP Protocol is worth it. The book written by Henry Scammel explains why using certain antibiotics such as Minocycline, can put patients with Scleroderma into remission for long periods of time. Best wishes!
I have 4 of the 5 features, and I was also diagnosed by my rheumatologist recently, after I described issues that I’ve been feeling with for 10 or more years, depending on which symptom I was talking about. I didn’t tell him that I had acid reflux, but I didn’t know that had anything to do with rheumatology, I do have acid flux. I have puffy hands, telangestasia, raynaud’s and acid reflux.
These doctors say Scleroderma is not heredity but as her daughter i had symptoms since 14 years old . I'm 19 now and waiting to be diagnosed. She had Systemic kind
Hello, I am seeing dr's for some things they have diagnosed yet. I am worried about this condition being a possibility & have been trying to get feedback from someone actually experiencing this. Would you mind if I had some questions? I dont mean to be intrusive. It genuinely is for myself & would help if I could find someone willing to discuss it w me.
My mother had scleroderma and died in 2011... she was a registered nurse and lived with this disease all my life. She orchestrated the first scleroderma walks here in Nashville and continuously had educational booths that I helped with at conventions
😭
😭💔
My mother was diagnosed last year with scleroderma. I work as a registered nurse, and just knew her life was no longer going to be the same. Least to say, I was terrified knowing how debilitating this disease is. Fortunately we have a great support system, and a fantastic rheumatologist whom helped her tremendously. Thank you for spreading the awareness and educating the world of this disease💙
My father died of this disease he was an outdoorsman I’m convinced it came upon as a result of a reaction to Lyme disease
Looking into the AP Protocol is worth it. The book written by Henry Scammel explains why using certain antibiotics such as Minocycline, can put patients with Scleroderma into remission for long periods of time. Best wishes!
I have 4 of the 5 features, and I was also diagnosed by my rheumatologist recently, after I described issues that I’ve been feeling with for 10 or more years, depending on which symptom I was talking about. I didn’t tell him that I had acid reflux, but I didn’t know that had anything to do with rheumatology, I do have acid flux. I have puffy hands, telangestasia, raynaud’s and acid reflux.
These doctors say Scleroderma is not heredity but as her daughter i had symptoms since 14 years old . I'm 19 now and waiting to be diagnosed. She had Systemic kind
Accompanying music is way too loud, almost can’t hear what is being said.
My Uncle died from this and an elderly friend lost his wife to this.
I was diagnosed with scleroderma
I have scleroderma ... please give me suggestions ....
I just got diagnosed with this, I'm very stressed out about it. I have Raynaud's syndrome now:(
Me too😥
T Moores i hope you feel better praying for you
Hello, I am seeing dr's for some things they have diagnosed yet. I am worried about this condition being a possibility & have been trying to get feedback from someone actually experiencing this. Would you mind if I had some questions? I dont mean to be intrusive. It genuinely is for myself & would help if I could find someone willing to discuss it w me.
I hope you’re doing well?
My mom has Scleroderma. She just died June 2020. She was a nurse .
I'm sorry for your loss.
I lost my aunt to scleroderma😪😪
I have lupus and my hand and feet change color and swell up
BR Whitehead Be strong. God is with You 👍
Is that a symptom of lupus or have they since diagnosed it as scleroderma? I am going thru similar symptoms but they have not diagnosed yet.
Hat!