Fampyra walking test - 2nd trial

As my disease has progressed, I have decided to retry Fampyra. I have nothing to lose! I thought that maybe the drug would work better at a different stage MS. It seems it has.
In short, I noticed an increase in walking speed over a distance of about a kilometre.
I continue to take vampira and I do not get any side effects.
Best of luck to anyone who is trying.
The reason why my hair is so long is barbers closed during the Covid lockdown 😄

[@craiglewis6145]

I've been offered this drug. I know that it can improve speed slightly but does in also improve the distance that you can walk?
I'm lucky to be able to walk 100 metres these days. I'm not concerned about speed for that distance but I'd love to walk further.

[@johnMacdonald-em7bj]

James great work doing this video. I have also sec progressive. It increases my walking speed by 30% .however I get more fatigued and my balance is terrible.

[@iloffys7798]

Hello James! I’m having the exact same experience. Im trying out Fampridine. Without fampridine: walked 1.74 km on 26 min, at an avg. speed of 3.9 km/h while with fampridine: walked 1.70 km on 21 min, at an avg. speed of 4.6 km/h.
Problems with gait started at aprox. 1km with fampridine vrs. 700 m without. Whats your opinion?

[@jamesms8351]

Hi I loffys, I think that you should keep on fampridine while are you feel like it is helping. It's not a disease modifying drug so you can come it without your condition (so think) so it's worth trying out later on in the year if still helps you or not.
That's what I think!

[@simoncandler9127]

Hello James, that's great news you've had some benefit no matter how small. Couldn't believe it when you said your only 32, that's such rubbish for you mate. The main thing is your a fighter mate so don't ever let that drop.
Are you still managing to work mate?
I'm still working but had to reduce my hours, still not stopping though lol
Keep fighting mate 💪👍🙂

[@jamesms8351]

Hey Simon! Yeah I'm 32, bit of an upset for me alright. For some of my life goals and plans I've had to slow down and for other plans I've had to speed up! Adapt and overcome! Mind over matter 😄 totally, a win is a win so I'd recommend to anyone to at least try Fampyra. I'm working from home full-time because of the virus. I hope when the virus goes eventually go I will still be able to work from home a few days per week 🤞
I'll never give up! Too much to do yet 😄 we'll be here when we are grey and old. Hopefully we'll have some real good news by then 😅