Tetralogy of Fallot: Rafe's Story. Part 1: Diagnosis
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- เผยแพร่เมื่อ 27 ส.ค. 2024
- In the first in a three-part series, Catherine shares her experiences of finding out her second son, Rafe, has congenital heart disease (CHD) when he was diagnosed with Tetralogy of Fallot (TOF) at her 20-week scan.
Part two covers Rafe's birth and first few weeks and in part three Catherine talks about Rafe's surgery and life after surgery.
Watching this helps but still scary af my son has tof found in utero where I knew most of the possibilities. Today at 9 days old is his first surgery I’m scared of the worst but hoping for the best.
We hope surgery goes well Elizann, thinking of you and your little one ❤
@@tinytickers6423 it was such an emotional day full of ups and downs. I thought I was mentally prepared but I don’t think anything can mentally prepare to see your 9 day old have surgery. After a 4 hr surgery and 4 hr recovery told by all he is doing great Drs are very happy with the outcome. He is still sedated a bit saw him they say his breathing tube will be removed this morning. So here Jasper goes on the road to recovery
@@elizannpoetry4538 We're so glad to hear he's doing well. ❤ Well done to your little heart hero and to you for getting through it. Wishing Jasper all the best with his recovery. ❤ If you haven't seen our website, we have lots of information and support for heart parents: www.tinytickers.org/support-info/family-support/
I am 24 weeks along and my baby has been diagnosed with TOF. Do all TOF babies have chromosomal abnormalities?