Hazel is one of 30 people in the world diagnosed with Bohring-Opitz syndrome. Watching us meet for the first time will make you question how you perceive humans with differences.
As the parent of a child who passed away from difficulties with Bohring Opitz Syndrome, I thank you. Not many people know about the ASXL 1 mutation and the special moments it bring.
@@MagnumDragon Amazing little boy my god bless you and your family, please continue to share his story, I have had news this week my son has BOS🥲 at first I cried but I'm trying to stay positive and take each day as they come❤
@@lavinaking9164 that's all you can do. Take 1 day at a time. I'll give you the same advice my primary nurses gave us. It'd like the cha cha. 2 steps forward, 1 step back. I will keep you and your family in my thoughts and prayers.
Hazel is absolutely beautiful. . Chris you are wonderful & soooo gifted in this area of your life 🇺🇸 Love from Perth Australia 🇦🇺 I watch these videos over & over again , my ❤ goes out to each & every one of them & There families , Chris i had a autism son who i lost 9 years ago & my heart continues to ache , , as my heart aches for each of these beautiful people , you are just wonderful !!
If more people in the world had your kindness and compassion, the world would be a better place!! You have a beautiful soul sir!! Thank you for this channel and thank you for your example!! ❤🌻
It's special personality and love that you, and so many other people give, that makes children's days more bearable. And it is something that the world can not be without. This is a wonderful video as always.
This was the sweetest video. It made me tear up when she looked at you Chris and talked in her way. Wow! Thank you for all you do to let us see all these special people like Hazel. 💜 I have a question. I noticed that some of the special people you meet make that sound with their mouth. What is the sound? I have worked with people who have many different disabilities and some of the nonverbal people make this sound. I at first thought it was them grinding their teeth, then I thought maybe clicks. I just thought I'd ask so I can better understand.
Chris ur acc so respectful to everyone such as sofia, adalia Hazel literally everyone! ur a good guy and now i know my brother with autism fits in with everyone else
This is so sweet. Communication doesn’t always have to be speaking & interpreting language. An exchange of positive energy is enough as evidenced here. ❤
🥰🥰🥰 Que niña tan dulce !!! Me hizo acordar a la protagonista de la película : "Gaby" , con Norma Aleandro. Que es basada en un hecho real !!! Saludos desde Uruguay 🇺🇾.
Hazel, you are so smart and beautiful. Thank you for sharing your story with us. You are wonderfully made by God, and Jesus loves and accepts you just like Chris does ❤️ have an amazing day
I don't care I love Hazel and who doesn't she's amazing. I love how she is holding your hand. Everyone communicates differently I hope others can understand that about her. I'm sure people are jealous that you get to meet her. 🥰
Poveracstella una bimba nn è giusto avrebbe diritto di giocare e diventare grande serenamente quante ingiustizie che ci sono al mondo le auguro di guarire ❤️🩹🐞🤩
Translate español a su idioma atención lleva 20 años en los hospitales le enseñó a la gente y yo lo hago cuando los médicos dicen no hay alivio no hay remedio para usted se está muriendo se muere está agonizando se mira al cielo puede ser un primo un tío un amigo o el el mismo enfermo se dice espíritu santo con el mismo poder que hiciste el sol la luna las estrellas la tierra al ser humano los animales y las raíces con ese mismo poder sáname sáname ya regálame la salud completa que yo te juro que voy a hacer sacrificios te juro que toda mi vida de la obra de caridad sáname ya se sale de la vanidad el orgullo se aparta de la sociedad aquello que guardamos para ir a tomar trago para parrandear para bailar para gozar se lleva a cargarle hambre a unas personas bien pobres y empieza el milagro con rapidez a mí me han aparecido a las 6 horas 5 horas milagros grandes delante de toda la humanidad y delante de los médicos que dicen que no hay remedio y que estoy agonizando
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As the parent of a child who passed away from difficulties with Bohring Opitz Syndrome, I thank you. Not many people know about the ASXL 1 mutation and the special moments it bring.
How old sorry to hear.❤
@@lavinaking9164 Was 6 months old. And he fought hard for all 6 of those months. I'm still extremely proud of him.
@@MagnumDragon Amazing little boy my god bless you and your family, please continue to share his story, I have had news this week my son has BOS🥲 at first I cried but I'm trying to stay positive and take each day as they come❤
@@lavinaking9164 that's all you can do. Take 1 day at a time. I'll give you the same advice my primary nurses gave us. It'd like the cha cha. 2 steps forward, 1 step back. I will keep you and your family in my thoughts and prayers.
@@MagnumDragon I appreciate you ❤️
It is heart warming to see all the affectionate comments about my little cousin. Thank you.
I love being able to re-watch these videos and how we can all leave supportive comments now that we can comment 💚
Hazel is adorable. Her glasses are so cute. This makes me happy to watch.
❤❤❤❤
Hazel is absolutely beautiful. .
Chris you are wonderful & soooo gifted in this area of your life 🇺🇸
Love from Perth Australia 🇦🇺
I watch these videos over & over again , my
❤ goes out to each & every one of them &
There families ,
Chris i had a autism son who i lost 9 years ago & my heart continues to ache , , as my heart aches for each of these beautiful people , you are just wonderful !!
This is the most beautiful channel of youtube.
"Positivity and Acceptance"
That, alone, would make the world a completely better place for everyone.
YES!!!!!!! 🙌🏽❤️🙌🏽
That was a spirit to spirit moment. It is illuminating.
Hazel, you are so adorable and really smart for finding ways to communicate. I hope you always get the best of everything in life.
If more people in the world had your kindness and compassion, the world would be a better place!! You have a beautiful soul sir!! Thank you for this channel and thank you for your example!! ❤🌻
It’s beautiful to see this special connection and communications. Sometimes we don’t need our language to understand each other. Lovely, lovely Hazel.
So cute. And her little aqua colored glasses 🥺
It's special personality and love that you, and so many other people give, that makes children's days more bearable. And it is something that the world can not be without. This is a wonderful video as always.
You are always so respectful to these children ❤️❤️❤️❤️
Hi everyone: It's so nice to see you all again on TH-cam. I want to meet you all one day. Take care and stay safe.
This was the sweetest video. It made me tear up when she looked at you Chris and talked in her way. Wow! Thank you for all you do to let us see all these special people like Hazel. 💜 I have a question. I noticed that some of the special people you meet make that sound with their mouth. What is the sound? I have worked with people who have many different disabilities and some of the nonverbal people make this sound. I at first thought it was them grinding their teeth, then I thought maybe clicks. I just thought I'd ask so I can better understand.
It is tooth grinding and very common.
Brought tears to my eyes 😭
My grandpa is John Opitz, one of the men the syndrome was named after.
That's really cool!
Hazel is a beautiful little girl
Chris ur acc so respectful to everyone such as sofia, adalia Hazel literally everyone! ur a good guy and now i know my brother with autism fits in with everyone else
This is so sweet. Communication doesn’t always have to be speaking & interpreting language. An exchange of positive energy is enough as evidenced here. ❤
You are amazing Hazel. Thank you.
I believe she does indeed read people's energy♥️
Such a beautiful moment between you and Hazel❤️
Thank you for sharing❤️
Sending love❤️
🙂🥰Hazel is really cute and lovingly special.
What a beautiful little girl. What a beautiful creation from God. 💗
Ummm... I don't need to say it? Do I?
Hazel is a little angel 😇
🥰🥰🥰
Que niña tan dulce !!!
Me hizo acordar a la protagonista de la película : "Gaby" , con Norma Aleandro. Que es basada en un hecho real !!!
Saludos desde Uruguay 🇺🇾.
May god be with Hazel and god bless her family.
I think she understood everything you said and appreciated it
She's constantly communicating in her own way. We as humans need to learn different ways to connect to people.
She's absolutely adorable! God bless her
She is so adorable and so unique💕
I would love to meet her, I'm In Love 💖
God bless you all abundantly 🙏
so cute. how does she make that sound?
Shes grinding her teeth!
@@Katieluvsyou709 oh! ty!
Bohring opit syndrom
@@kamranriaz4661 opitz
Hazel, you are so smart and beautiful. Thank you for sharing your story with us. You are wonderfully made by God, and Jesus loves and accepts you just like Chris does ❤️ have an amazing day
So sweet.
I don't care I love Hazel and who doesn't she's amazing. I love how she is holding your hand. Everyone communicates differently I hope others can understand that about her. I'm sure people are jealous that you get to meet her. 🥰
wow truly amazing
Empathy and understanding
She’s so cute! :))
Hazel is such a cutie 💕💕💕💞💞💞
Ciaoooo comunicatore divulgatore di sani principi benz
That's priceless that money can't buy .
What these "clicks" she did ,were?
Wow, so amazing
How do I register to be on your show?
❤❤❤
What are the clicks by the way? Sounds like some sort of jaw grate or something
Support from me!
My baby sistsrr had it!!
she sounds like a cute dolphin!
I might be the only person in the world that truly wanted to watch this video, but the teeth grinding made me nausead.
Poveracstella una bimba nn è giusto avrebbe diritto di giocare e diventare grande serenamente quante ingiustizie che ci sono al mondo le auguro di guarire ❤️🩹🐞🤩
♥️💙♥️
❤❤❤❤❤❤❤❤❤❤❤❤
Boring or bohring?
Bohring. It is most likely a European name. Probably German.
Ancient German, it means 'to fight'. The Slavic version means pine tree. Ancient personal names.
Translate español a su idioma atención lleva 20 años en los hospitales le enseñó a la gente y yo lo hago cuando los médicos dicen no hay alivio no hay remedio para usted se está muriendo se muere está agonizando se mira al cielo puede ser un primo un tío un amigo o el el mismo enfermo se dice espíritu santo con el mismo poder que hiciste el sol la luna las estrellas la tierra al ser humano los animales y las raíces con ese mismo poder sáname sáname ya regálame la salud completa que yo te juro que voy a hacer sacrificios te juro que toda mi vida de la obra de caridad sáname ya se sale de la vanidad el orgullo se aparta de la sociedad aquello que guardamos para ir a tomar trago para parrandear para bailar para gozar se lleva a cargarle hambre a unas personas bien pobres y empieza el milagro con rapidez a mí me han aparecido a las 6 horas 5 horas milagros grandes delante de toda la humanidad y delante de los médicos que dicen que no hay remedio y que estoy agonizando
Buttate le armi e pensate ai vostri figli yes seno vi facciamo la stessa cosa che fate agli altri nn conviene pentitevi Dio forse ne terrà conto .
You 2 are the best humans in the world.God has special things waiting for you both I'm sure