Thanks a lot kate dont worry your spelling was right 🙂🙂 thank you for answering my question. Now tell me When you will going to start this medicine worldwide? Living with this disease is almost near to death!!! So we are waiting for the great news eagerly. Thank you!!!
This is more a follow-up (and please pardon the username, I never merged my youtube account with google plus), but I'd never heard specifically of social difficulties with NF1. I have it and have seen a bunch of stuff related to my learning disabilities, sleeping issues, possibly depression/anxiety, but have never seen social development mentioned. I'm in my late twenties, so outside the demographic you were discussing, but it's something I've struggled with my entire life (I've even had a lot of people ask if I was on the autism spectrum over the years). I was wondering if you could elaborate more on that (either about children/adolescents or adults I'm sure both would be insightful)?
Thanks for your comment Christina. Kate also made this video, about the prevalence of autism in NF1 patients, which might answer some of your questions: th-cam.com/video/XZ1pP2Vm7jw/w-d-xo.html
Thanks a lot kate dont worry your spelling was right 🙂🙂 thank you for answering my question. Now tell me When you will going to start this medicine worldwide? Living with this disease is almost near to death!!! So we are waiting for the great news eagerly. Thank you!!!
This is more a follow-up (and please pardon the username, I never merged my youtube account with google plus), but I'd never heard specifically of social difficulties with NF1. I have it and have seen a bunch of stuff related to my learning disabilities, sleeping issues, possibly depression/anxiety, but have never seen social development mentioned. I'm in my late twenties, so outside the demographic you were discussing, but it's something I've struggled with my entire life (I've even had a lot of people ask if I was on the autism spectrum over the years). I was wondering if you could elaborate more on that (either about children/adolescents or adults I'm sure both would be insightful)?
Thanks for your comment Christina. Kate also made this video, about the prevalence of autism in NF1 patients, which might answer some of your questions:
th-cam.com/video/XZ1pP2Vm7jw/w-d-xo.html
ik this is late but i have nf 1and aim 14 years old it is getting harder for me