I’m a solo home hemodialysis patient and this is my routine 4 days a week, on the exact same machine. Thank you for posting your video. It’s so nice to see other people going through the same thing 😊👍
I am a HHD training nurse. You did an amazing job!! I always tell my patients that they (you!) are the experts. I learn something new every day. Thank you for giving your time to help others. God Bless!
HHD patient here as well. Just switched from PD, to in center HD, to now HHD. Currently in training, and this video is a hiuuuge help. Thank you for the video!
I am a HHD patient and i thank you for your video. This will help so many ppl. This goes to show that, we have all been taught the same pprocedure and always, SAFETY FIRST.
Thank you so much for creating this video; I do HHD for my husband. We currently use a Quanta machine (research project), which cannot be used for travel. I am now training to use this machine for our travel in June, so this will be so helpful to have as a refresher each time I set up the machine.
I started training on this machine this week. oh wow after a year on the big hosp machines this is a life changer . I have spent the past year felling so unwell during and after treatment. this is so much kinder
Very good. I've not read through all of the comments so apologizing in advance if this is a redundant question: I didn't see where the drain line connects to the NxStage machine? We are going to begin home dialysis and we'll only use the hanging bags as back-up. Our standard use will be done with the Pureflow system.
My husband has just started dialysis and I am his partner in the project. This general process--your materials are somewhat different from ours--was really helpful to see. I appreciate the effort you put into this and it is yet another way to learn the procedure.
First: Thank YOU for putting this video together. Next: Consider switching to the Tablo hemodialysis machine. It’s a new disruptive tech machine that has been shown to greatly improve patient comfort and overall satisfaction. Looking through your video, I don’t think the vast majority of people are able to or are willing to do the home dialysis due the complexity of the set-up and the difficulty in using the machine you are now using.
How kind of you to make such a meticulous step by step video - I haven't begun any of this. Weighing my options so I will be informed when the time comes. Right now I'm at 27% function. I don't know if that means I have one year or five before I have to face this stage of the process. Hospitals don't bother me, surgery doesn't bother me, ambulance rides don't bother me - THIS? I'm scared S****LESS! I THINK I have too much anxiety to do it myself and I don't like the fact I will see my own blood and the waste products. I THINK right now I will opt for a Nocternal In-Patient Dialysis Center Solution Until I understand the entire process and get a grip on knowing more about what is going on. ONE PART I WANT TO SEE IS THE ACTUAL HOOKING UP TO THE BODY. Have An Idea of what that may look like but Havent seen an example yet. SELF INFLICTED AND STRESSED OUT RESEARCH PROJECT. GeeeeZZZzzeeeeeZE. AGAIN< THIS WAS SO KIND OF YOU - THANK YOU!
Thank you so much for posting this!! We just started training for my husband to do at home dialysis on Monday and this is very close to what I learned today. Great reinforcement for my learning.
Thanks for this! I’m going to start dialysis soon so this has taken out some of the anxiety for me. Also great to see you in good shape! I’ve lost so much muscle mass since my function started deteriorating. I’m hopeful I’ll be able to get back some of what I’ve lost once I get settled on dialysis.
I’ve been on dialysis for two weeks. Today was day two training on “my” machine. Yesterday it was already set up when I got there. Today I watched your great video before I went. You gave me so much more insight on what to expect. I watched it again with my wife tonight. She said you did such a wonderful job and your so easy to listen to. Thank you so much for taking the time to help out newbies. Also is there a reason you didn’t go with a fistula for access? I’ve heard it’s a lot less risk of infection. Or is that not a normal thing on the other side of the pond lol. Thanks again Luke!
Thanks Luke! I start my first day of training (and first dialysis session) tomorrow. This was a terrific overview. Like Tiffany below, I plan to revisit this video as I go through my training for reinforcement. Great job! Hope to see more!
Thanks for your comment Dave, I really appreciate it and I’m so glad the video was helpful for you. Wishing you good luck and sending you positive vibes for your first dialysis session tomorrow. I know it can be daunting at first but once you start to feel better with the treatment, you’ll be flying and I know your smash it bud. Let me know how it goes, all the best!
What an amazing contribution for home dialysis patients everywhere! You have a great demeanor. And a great smile! Thank you for sharing your experiences!
Thank you for this training. I have been doing peritoneal dialysis for the last 18 months, although my catheter is no longer working due to adhesions. I am interested in home hemodialysis and your video helped me understand I am able to do it. Thank you!!!
Did my own at-home session by myself for the first time last night. Very empowering. We call the small connector, the peanut. :) Do you always use the six bags or do you also use the PureFlow SL? I use ten bags so I prefer the PureFlow SL, it takes 6 hours to make a batch of 50g of dialysate. I tried PD, but it almost killed me. Great stuff.
You’re an awesome instructor! Very detailed. I appreciate this video so much as I am preparing to do home treatments for my husband. I am a retired in Center Hemodialysis Tech where are the training for this is different. I am excited and grateful that I’ll be able to help my husband.
Thank you for your lovely comment and good luck to you and your husband. When I first trained I saw the couples there, one training to look after the other and I think that’s a beautiful thing. I’m glad my video could help.
Thank you for this video I was so overwhelmed at first. I just started training I am only 2 days in. Learning how to do it for my daughter. I know I will be fine. I guess I am a little nervous because it’s all new to me. But the more I keep doing it I will get better.
I’m starting to do some research for my father in law who has to use dialysis and wanted to inquire as to the price of the machine because this will be a gift.
Thank you for posting this video. I have been on dialysis since 2019 and I just started my home training. It is a lot of information but as my trainer says it is repetitive and it will become second nature. But your video definitely helps.
Now that the pure flow filtration system is in place, do you still use all those bags? I assumed it was mainly when traveling with that machine. What about that warmer that sits on top? Does the pure flow filtration replace the warmer?
Great explanation! I’m about to go on home dialysis. Can you also show how to cannulate your buttonhole fistula and how to disconnect from the machine? Thank you!!
Hola, espero lea este mensaje, ya que me interesa saber donde adquiere usted los cartuchos, ya que voy a necesitar comprarlos y no tengo idea de donde adquirirlos. Saludos espero se encuentre bien.
Hey, hope you’re well and thanks for the kind words. I’m still on dialysis, currently in hospital as I’ve just had to have a new line in but doing ok thanks.
Thank you for this video! So helpful to understand what's going on, better than a lot of resources I can find online. I'm curious what the volume is of the 6 distillate bags you are using? I've heard lots of different numbers about approximately how much fluid (liters) is needed for one session of treatment. Thanks!
Hi Grace , thanks for your comment and I’m really glad the video was helpful for you. My fluid volume is 30 litres but I think it varies from patient to patient. My treatment time is 3- normally 3.5 hours. I can’t imagine it goes much less than 30 litres as I was still using that volume when I was doing 2.5 hour treatments. Thanks again 😊
One big note please make sure your gloves are stored in a clean area! Always wash your hands with soap and water for at least 30 seconds before reaching in to get gloves. Gloves in a hospital setting are used for the nurses protection not to avoid infection unless they are sterile Gloves which will be clearly marked. It's easy to forget about bacteria on Gloves when you have the wrong mind set about Gloves intended purpose.
I’m a solo home hemodialysis patient and this is my routine 4 days a week, on the exact same machine. Thank you for posting your video. It’s so nice to see other people going through the same thing 😊👍
i am in training to do home dialysis. connecting the machine is the hardest.
@@dereckdavis6955 Thankfully it gets easier the longer you do it. Hang in there!
I am a HHD training nurse. You did an amazing job!! I always tell my patients that they (you!) are the experts. I learn something new every day. Thank you for giving your time to help others. God Bless!
so much asier to follow than the official NX stage setup video... Thank you!
HHD patient here as well. Just switched from PD, to in center HD, to now HHD. Currently in training, and this video is a hiuuuge help. Thank you for the video!
I am a HHD patient and i thank you for your video. This will help so many ppl. This goes to show that, we have all been taught the same pprocedure and always, SAFETY FIRST.
I'm a home training nurse and I wanted to tell you that you did an awesome job. You'd make a great trainer.
Thank you so much for creating this video; I do HHD for my husband. We currently use a Quanta machine (research project), which cannot be used for travel. I am now training to use this machine for our travel in June, so this will be so helpful to have as a refresher each time I set up the machine.
I started training on this machine this week. oh wow after a year on the big hosp machines this is a life changer . I have spent the past year felling so unwell during and after treatment. this is so much kinder
Very good. I've not read through all of the comments so apologizing in advance if this is a redundant question: I didn't see where the drain line connects to the NxStage machine? We are going to begin home dialysis and we'll only use the hanging bags as back-up. Our standard use will be done with the Pureflow system.
My husband has just started dialysis and I am his partner in the project. This general process--your materials are somewhat different from ours--was really helpful to see. I appreciate the effort you put into this and it is yet another way to learn the procedure.
Thanks for the video. I'm my husband's care helper and just started training. You did a great job. 👍👍
First: Thank YOU for putting this video together. Next: Consider switching to the Tablo hemodialysis machine. It’s a new disruptive tech machine that has been shown to greatly improve patient comfort and overall satisfaction. Looking through your video, I don’t think the vast majority of people are able to or are willing to do the home dialysis due the complexity of the set-up and the difficulty in using the machine you are now using.
Love to hear about progress in this tech, Home HDD myself, dialysis eventually killed my mother in 2003. (PKD family).
Excellent job- thank you!
I’m training so my husband can have home dialysis. Found your tutorial easy to understand and informative. Thank you.
Thanks for the video. I'm on my fourth day of dialysis training
Ive just finished training will be dialysing from home next week
How kind of you to make such a meticulous step by step video - I haven't begun any of this. Weighing my options so I will be informed when the time comes. Right now I'm at 27% function. I don't know if that means I have one year or five before I have to face this stage of the process. Hospitals don't bother me, surgery doesn't bother me, ambulance rides don't bother me - THIS? I'm scared S****LESS! I THINK I have too much anxiety to do it myself and I don't like the fact I will see my own blood and the waste products. I THINK right now I will opt for a Nocternal In-Patient Dialysis Center Solution Until I understand the entire process and get a grip on knowing more about what is going on. ONE PART I WANT TO SEE IS THE ACTUAL HOOKING UP TO THE BODY. Have An Idea of what that may look like but Havent seen an example yet. SELF INFLICTED AND STRESSED OUT RESEARCH PROJECT. GeeeeZZZzzeeeeeZE. AGAIN< THIS WAS SO KIND OF YOU - THANK YOU!
I’m new. I’m starting train8ng on the 26th September. I’m very nervous. I’m sure I’m going to be watching this over and over. Great thank you
It’s interesting how the setup is mostly the same, but there are some differences. I enjoyed watching.
Thank you so much for a great tutorial!! You helped me so much on my home dialysis journey with my husband!!
Thank you so much for posting this!! We just started training for my husband to do at home dialysis on Monday and this is very close to what I learned today. Great reinforcement for my learning.
Hey Tiffany, you're welcome and I'm really glad the video has helped. The very best of luck to you and your husband!
Thanks for this! I’m going to start dialysis soon so this has taken out some of the anxiety for me. Also great to see you in good shape! I’ve lost so much muscle mass since my function started deteriorating. I’m hopeful I’ll be able to get back some of what I’ve lost once I get settled on dialysis.
I’ve been on dialysis for two weeks. Today was day two training on “my” machine. Yesterday it was already set up when I got there. Today I watched your great video before I went. You gave me so much more insight on what to expect. I watched it again with my wife tonight. She said you did such a wonderful job and your so easy to listen to. Thank you so much for taking the time to help out newbies. Also is there a reason you didn’t go with a fistula for access? I’ve heard it’s a lot less risk of infection. Or is that not a normal thing on the other side of the pond lol. Thanks again Luke!
Thanks Luke! I start my first day of training (and first dialysis session) tomorrow. This was a terrific overview.
Like Tiffany below, I plan to revisit this video as I go through my training for reinforcement. Great job! Hope to see more!
Thanks for your comment Dave, I really appreciate it and I’m so glad the video was helpful for you. Wishing you good luck and sending you positive vibes for your first dialysis session tomorrow. I know it can be daunting at first but once you start to feel better with the treatment, you’ll be flying and I know your smash it bud. Let me know how it goes, all the best!
Thank you, first week for us 👍👍👍
What an amazing contribution for home dialysis patients everywhere! You have a great demeanor. And a great smile! Thank you for sharing your experiences!
Thanks Mark 😊
Excellent video.
God bless you.
The “dialyser” is actually just a - filter.
Thank you for this training. I have been doing peritoneal dialysis for the last 18 months, although my catheter is no longer working due to adhesions. I am interested in home hemodialysis and your video helped me understand I am able to do it. Thank you!!!
Did my own at-home session by myself for the first time last night. Very empowering. We call the small connector, the peanut. :)
Do you always use the six bags or do you also use the PureFlow SL? I use ten bags so I prefer the PureFlow SL, it takes 6 hours to make a batch of 50g of dialysate. I tried PD, but it almost killed me. Great stuff.
You’re an awesome instructor! Very detailed. I appreciate this video so much as I am preparing to do home treatments for my husband. I am a retired in Center Hemodialysis Tech where are the training for this is different. I am excited and grateful that I’ll be able to help my husband.
Thank you for your lovely comment and good luck to you and your husband. When I first trained I saw the couples there, one training to look after the other and I think that’s a beautiful thing. I’m glad my video could help.
Thank you. Again😊 blessings from God on your dialysis journey 🙏🏾
Excellent ! 20:49
I am hemo nurse You did a wonderful tutorial!
Thanks so much 😊
Thank you for your video. Very helpful as I prepare to be my husband's dialysis caretaker in our home.
Thank you for this video I was so overwhelmed at first. I just started training I am only 2 days in. Learning how to do it for my daughter. I know I will be fine. I guess I am a little nervous because it’s all new to me. But the more I keep doing it I will get better.
I’m starting to do some research for my father in law who has to use dialysis and wanted to inquire as to the price of the machine because this will be a gift.
This was really good information. I'm training to do this for my Mom. Thank you & God Bless!
Thank you for posting this video. I have been on dialysis since 2019 and I just started my home training. It is a lot of information but as my trainer says it is repetitive and it will become second nature. But your video definitely helps.
Now that the pure flow filtration system is in place, do you still use all those bags? I assumed it was mainly when traveling with that machine. What about that warmer that sits on top? Does the pure flow filtration replace the warmer?
Great explanation! I’m about to go on home dialysis. Can you also show how to cannulate your buttonhole fistula and how to disconnect from the machine? Thank you!!
Glad for video, so when I go to training I at least know what to expect
Hola, espero lea este mensaje, ya que me interesa saber donde adquiere usted los cartuchos, ya que voy a necesitar comprarlos y no tengo idea de donde adquirirlos. Saludos espero se encuentre bien.
Really great instructional video. thanks dude.
Thanks for a great instructional video. I'm in training now. 2nd week.
Thanks Edward, good luck my friend. You'll smash it 😊
Best video on here!! I’m new to Nxstage and will be going home hemo- are you still on dialysis? Did you get transplant?
Hey, hope you’re well and thanks for the kind words. I’m still on dialysis, currently in hospital as I’ve just had to have a new line in but doing ok thanks.
Thank you, just started my refresher training for hhd. Learned some new tips
What price this meachine
Excellent my brother.
Thank you for this & GodBless you brother.
Great video bro,I'm new to dialysis and want to do home treatment, your video good procedure.
Is there a blood warmer device on this machine ?
So that the blood going back “in” is at a proper temperature ?
Thank you for the video
Stay healthy
The dialysis solution is warmed on top of the machine and that is what regulates the temperature of the blood.
Thanks for your comment, take care
Week 2 solo training. Come here at night to.memorize. thanks
Hey fellow dialysis warrior 😊 I’m so glad this video is of use to you, good luck with everything and thank you for your comment
Great video thanks for taking the time to do this x
Nice demo.
Hi , How do you input settings on machine . Uf goal and ufr . Kindly do demonstrate
we do CRRT in the ICU i didnt realize people can do this at home too
Thank you for this video! So helpful to understand what's going on, better than a lot of resources I can find online. I'm curious what the volume is of the 6 distillate bags you are using? I've heard lots of different numbers about approximately how much fluid (liters) is needed for one session of treatment. Thanks!
Hi Grace , thanks for your comment and I’m really glad the video was helpful for you. My fluid volume is 30 litres but I think it varies from patient to patient. My treatment time is 3- normally 3.5 hours. I can’t imagine it goes much less than 30 litres as I was still using that volume when I was doing 2.5 hour treatments. Thanks again 😊
Hi Luke awesome video🥳💯
Best video our there
Good video. Just started training.
Thanks for your comment, all the best with your training.
Thx for the video
Are you eligible for transplant? Did home dialysis with my husband for 2 years
Hi Michele, I’m still waiting for a transplant.
One big note please make sure your gloves are stored in a clean area! Always wash your hands with soap and water for at least 30 seconds before reaching in to get gloves. Gloves in a hospital setting are used for the nurses protection not to avoid infection unless they are sterile Gloves which will be clearly marked. It's easy to forget about bacteria on Gloves when you have the wrong mind set about Gloves intended purpose.
In training now
Good luck, you’ll smash it! 🤩
I live in India, how can I get one?
Why are you on hemodialysis and not on peritoneal dialysis?
I'd rather be dead 😢 I'm on my way. I pray for a miracle 🙏🙏🙏🙏🙏🙏🙏
To me, it seems Home Dialysis is a lot of work. I guess I will just continue to head over to the Dialysis Center.
The freedom is worth it and it is a much gentler form of treatment so better for your heart.
Thanks so much, Luke, for sharing! Hoping you are doing well, maybe you've even gotten a kidney by now! Best of luck!
There has to be a simpler way. Western Medicines need to catch up with the times to a more efficient way for this process to me simplified