I AM BREAST CANCER PATIENT, I HAD IBC SYMPTOMS AFTER MY CANCER TREATMENTS FINISHED 5 YEARS LATER I HAD ORANGE PEEL COLOUR ON MY RIGHT BREAST. BUT MY ONCOLOGY IGNORED THAT ORANGE PEEL COLOUR SIGNED. THANK YOU FOR IBC FOUNDATION I SAW MY SYMPTOMS ON FB PAGE. THAT TOUGHT ME WHAT IS IBC SYMPTOMS.
Why not show pictures? I had an inflamed breast with orange peel skin for several days but by the time I finally got an appointment it had cleared up . It was less than a year after a double lumpectomy. I still have thickened skin in an area. My surgeon just shrugged her shoulders.
I agree. Show pictures. Tell us if it can come and go. Ridiculous. I was in pain for 2 months... stabbing pain. Red , purple bluish veiny rashes. I finally after bring tortured by my primaries saying "it's nothing" the surgeon didn't want to do a biopsy and sent me to wait more weeks for blood work to rule out fibromyalgia. ....... it was my breasts that were hurting . Not my body.... the night before my finally arrived appointment I got sick like the flu night before . Went away. About 5 days after my appointment I'm developing red splotches on breast again. Still have discharge. .... still in pain.. my spine hurts now and developing a cough. ... I'm so fking tired of this. Are these ppl insane ?
I’m going through this now too it’s symptom looks like inflammatory beast cancer on antibiotics now was told it’s lymphodemia in the breast cause from my hormonal breast cancer two years ago I’m really nervous though worrying about IBC it could be
My IBC was found following schingles gone wild, turned inward. God awful pain, and it had already invaded my bones also very painful. I was dignosed within 2 weeks of ER visit. In addition to all the imaging, i was given 6 biopsies as they didnt know what they were dealing with. Both surgery & radiation were ruled out, but i underwent experimental radiation during my chemo treatment. After 6 mo, chemo turned on me but TG new hormone treatments were approved & i met critea. Btw i was sure it was a flesh eating bacteria hard to believe it was such a rare cancer.
Did you have Shingles or was the rash mistaken for shingles? What was your symptoms? I went to the doctor with a rash, the rash looks like it’s almost gone now. Just a little pink discoloration, but the doctor said she thought it may have been shingles and gave me some steroids. I’m hoping I get better in a few days 🙏
I just had a Routine mammogram in April or June and was normal. On August 15, 2023, I developed a weird looking rash on my right breast. It doesn’t hurt or itch but bleeds easily and is a bit scaby. Almost like water blisters on the breast. I had Petechiae but that went away. I messaged my PCP and sent photo and she restricted my secure messaging. Now, I cannot get the care I need, and I’m a Veteran at the Veterans Affairs hospital in Virginia.
EVERY VIDEO I HAVE WATCHED SAYS MAMAGRAM DO "NOT"!!!! SHO IBC SO WHY DO IT THEN JUST GO STRAIGHT TO THE BIOSPEY I WOULD SAY. ESPECIALLY WITH TIME BEING HUGE FACTOR.
I was diagnosed with breast cancer last summer 2019. I went through a lumpectomy and developed a serious infection. Before radiation began I developed a large red cicular shape on the opposite side if the breast. I spoke with the radiation people and they sluffed it off. I spoke my concerns with the radiology oncologist and he sluffed it off. After radiation this area is thick and hard. I shared my concern with the oncologist and she has sluffed it off. This is the only area of the breast that got thick and hard. I have a mammogram scheduled in July. Will this mammogram show if this area is of concern. It will be 1 year since my last mammogram or ultrasound. It still bothers me very much.
What happen when doctors dismiss all your concerns?
Nothing you die they live
Sad, but true. Only good thing that _may_ come out of it, is that they learn enough to save the next person.
Are you okay? Font give up. Nag nag nag them . You're not crazy. Yore not wrong. You're worried for a reason.
Get another dr
Get another opinion, change dr.
This interviewer his very amazing he asks very well
I AM BREAST CANCER PATIENT, I HAD IBC SYMPTOMS AFTER MY CANCER TREATMENTS FINISHED 5 YEARS LATER I HAD ORANGE PEEL COLOUR ON MY RIGHT BREAST. BUT MY ONCOLOGY IGNORED THAT ORANGE PEEL COLOUR SIGNED. THANK YOU FOR IBC FOUNDATION I SAW MY SYMPTOMS ON FB PAGE. THAT TOUGHT ME WHAT IS IBC SYMPTOMS.
How did it go?
Why not show pictures? I had an inflamed breast with orange peel skin for several days but by the time I finally got an appointment it had cleared up . It was less than a year after a double lumpectomy. I still have thickened skin in an area. My surgeon just shrugged her shoulders.
I think it was nothing
I agree. Show pictures. Tell us if it can come and go. Ridiculous. I was in pain for 2 months... stabbing pain. Red , purple bluish veiny rashes. I finally after bring tortured by my primaries saying "it's nothing" the surgeon didn't want to do a biopsy and sent me to wait more weeks for blood work to rule out fibromyalgia. ....... it was my breasts that were hurting . Not my body.... the night before my finally arrived appointment I got sick like the flu night before . Went away.
About 5 days after my appointment I'm developing red splotches on breast again. Still have discharge. .... still in pain.. my spine hurts now and developing a cough. ... I'm so fking tired of this. Are these ppl insane ?
@@ookipuki don't you have a diagnosis yet?
I’m going through this now too it’s symptom looks like inflammatory beast cancer on antibiotics now was told it’s lymphodemia in the breast cause from my hormonal breast cancer two years ago I’m really nervous though worrying about IBC it could be
My IBC was found following schingles gone wild, turned inward. God awful pain, and it had already invaded my bones also very painful. I was dignosed within 2 weeks of ER visit. In addition to all the imaging, i was given 6 biopsies as they didnt know what they were dealing with. Both surgery & radiation were ruled out, but i underwent experimental radiation during my chemo treatment. After 6 mo, chemo turned on me but TG new hormone treatments were approved & i met critea. Btw i was sure it was a flesh eating bacteria hard to believe it was such a rare cancer.
Did you have Shingles or was the rash mistaken for shingles? What was your symptoms? I went to the doctor with a rash, the rash looks like it’s almost gone now. Just a little pink discoloration, but the doctor said she thought it may have been shingles and gave me some steroids. I’m hoping I get better in a few days 🙏
@@jaymieshaw9483 . Sl
I just had a Routine mammogram in April or June and was normal. On August 15, 2023, I developed a weird looking rash on my right breast. It doesn’t hurt or itch but bleeds easily and is a bit scaby. Almost like water blisters on the breast. I had Petechiae but that went away. I messaged my PCP and sent photo and she restricted my secure messaging. Now, I cannot get the care I need, and I’m a Veteran at the Veterans Affairs hospital in Virginia.
EVERY VIDEO I HAVE WATCHED SAYS MAMAGRAM DO "NOT"!!!! SHO IBC SO WHY DO IT THEN JUST GO STRAIGHT TO THE BIOSPEY I WOULD SAY. ESPECIALLY WITH TIME BEING HUGE FACTOR.
The itching!!!
I wish you had images
Question. Can strong antibiotics bring the redness down ? And then the infection returns with weeks and days ?
What about nutrition?
I’m 16 and today I saw that I have a purple almost bruised and nobody touches me so I’m kinda scared
Has it gone away or have you had it checked?
Please get checked if you haven't already, There have been women 16 years old with IBC.
I also have the same thing. Have you had it checked?
Hello. Are you okay??? Please update us. I Hope you are
How about those who got misdiagnosis and died
Currently fighting reoccurrence
You asked every dank question exept what is te survival rate
59% for five year survival
I have a tumour and a swollen red breast, both.
Did you get it checked?
Did you have any covid vaccines before your discovery!
Excellent
63 yr female here, redness around nipple that appeared overnight, sore nipple, no other symptoms. Any thoughts.
Same happened to me... All of sudden... Are you ok now. Waiting for your kind reply
I was diagnosed with breast cancer last summer 2019. I went through a lumpectomy and developed a serious infection. Before radiation began I developed a large red cicular shape on the opposite side if the breast. I spoke with the radiation people and they sluffed it off. I spoke my concerns with the radiology oncologist and he sluffed it off. After radiation this area is thick and hard. I shared my concern with the oncologist and she has sluffed it off. This is the only area of the breast that got thick and hard. I have a mammogram scheduled in July. Will this mammogram show if this area is of concern. It will be 1 year since my last mammogram or ultrasound. It still bothers me very much.
If you have implants can you still be diagnosed with ibc?
I think yes.
What about in men?!
Peel of an orange
Excellent