Cholangiocarcinoma patient Julie Thole's biomarker story

Julie talks about how getting biomarker testing changed her course of treatment after she found out she had the BRAFV600 E mutation. Learn more at biomarkersmatter.org.

[@nansiems]

I have the exact same thing!!! Thank you for sharing your story!!! I go to MD Anderson also, Dr. Javle!!!

[@maryjanebrown4667]

Julie - so glad you’re doing well. It’s looking up, and please keep up that positivity!

[@mickiegray6428]

Don't know if anyone will see this, but, I am having a MRCP next week. I had a CT scan of my abdomen and pelvic are and it showed a blockage in my billary duct and the duct was enlarged. Just wonder what I'm looking at. Help!!

[@deee9605]

Praise God. Bless your heart.

[@LinFromMinn]

God bless you....

[@DR3itmatters]

I would like to learn more of your early symtoms and also how you are doing now

[@joannekeenan8344]

Amazing xx

[@joannekeenan8344]

Amazing news xx

[@tevfikaslanbas5394]

Imazing

[@chichong4388]

Is md Anderson the best hospital for treat bile duct cancer?? Compare to Mayo Clinic or other hospital?

[@richardnassano623]

Just curious if in Minn. why not Mayo Clinic?

[@australiandiamondinformati7883]

Just been diagnosed too

[@lindamastropietro4429]

What is this type of cancer?

[@LinFromMinn]

Bile duct​@@lindamastropietro4429

[@user-vl8bb8wf3g]

I was diagnosed in 2019.
Had surgery in 2020.
I have had the biomarker
Since 2021..

[@pRQYifIQywIon0myDHH3qA]

what stage did you have

[@LinFromMinn]

I hope we can find out how things are now...2024...❤

[@OscarMPG1]

Is she still alive?

[@maureenmiller-delisle2505]

I was just diagnosed with Cholangiocarcinoma April 10, 2023 😢

[@ErvinSalla]

I'm sorry you, just be strong 💪

[@TheCoca84]

You can get through this 🙏

[@maureenmiller-delisle2505]

@@TheCoca84 thank you I have a positive attitude and an amazing support group that help to motivate me !

[@jaberissaad6408]

Hope u get better any updates? We're here for u

[@maureenmiller-delisle2505]

@@jaberissaad6408 thank you so much I finished 30 rounds of radiation two weeks ago and now only taking oral chemo twice a day two weeks on one week off repeat! I see my oncologist on Monday I’ve been sleeping a LOT more recently for instance I slept for 38 hrs starting Tuesday evening until this morning at 11:30am I got up 4 times to use the restroom and fell back to sleep right away! I have new enlarged lymph nodes in my neck and under my arm. My labs are elevated and my liver enzymes are elevated again they were back within normal range during my radiation treatments! My bilirubin is elevated which has never been elevated which all my doctors were shocked that they were never elevated especially how my intrauepatic ducts were full of cancer and tumor on hepatic artery where they had to leave margins or I would have bleed out on the table! I’ll have a reevaluation PET scan for treatment response. Has liver cancer spread and/or if tumor margins on hepatic artery are gone or decreased! I’ll have reeval PET scan mid September since radiation will continue to work for 4-6 weeks post last treatment

[@user-lr6xv7wj5o]

is bio duct cancer terminal?

[@GoodnightJLH]

It’s not always terminal. There are more and more cures these days.

[@MrCrf450rider]

I'm stage 4,and on gem/cis/topaz1,then onto targeted therapy for an fgfr2 fusion found in biomarker testing. Will be starting it in july.praying it works