Real Families: Heartfelt Stories from Temple Street Hospital
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- เผยแพร่เมื่อ 5 ก.ย. 2024
- This week at the Temple Street children’s hospital, Matt a patient who has been diagnosed with Cystic Fibrosis comes in for his regular check-up. In accident and emergency, a young boy has been brought in from having a seizer and the doctors are trying to find the cause. Alannah has a blocked tear duct and is having surgery to fix it.
The highs and lows of daily life on the wards in Temple Street Children's Hospital. See inside the theatres of the Dublin hospital, providing an insight into the work of staff who dedicate their time to the children in their care.
Real Families brings you stories of modern day family life from around the world through the eyes of children, parents, and parenting experts.
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![เปิดใจ พี่ญา คนรุม หลังทัวร์ลง หนักสุดในชีวิต!! l [Nickynachat]](http://i.ytimg.com/vi/2-OJZRtclro/mqdefault.jpg)
I suddenly remeber Claire Wineland😢❤ I miss her😓
she fight CF for 21 years
R.I.P Claire👼
who else know her?
I miss Claire!! ❤️❤️❤️
Same I miss her I knew her from TH-cam I wish I could have met her in person
Who is she
@@gracegonnelly She was an inspirational young woman with Cystic Fibrosis, she had a youtube channel and did public speaking too. She went into surgery not too long ago for a double lung transplant to prolong her life expectancy and the surgery went well and then she had a stroke due to a blood clot from the surgery and sadly passed away.
It's me Vianca I didn’t know she was dead, how come she is still posting videos?
The Cystic Fybrosis team in Temple Street are phenomenal
Just for anyone interested, the life expectancy for Cystic Fibrosis is now over 47 years, with 50% of patients living past 48. Modern medicine is such a cool thing the fact that in 10 years children born with cystic fibrosis have had their life expectancy doubled!
Finally a Dr team who listens and explains everything you got 5 stars. I have lung issues due to being a premiee.
Sarah Nixdorf omg sameee lung issues from being premmie
I love the attitude of the father with the boy with lung issues. Living with family members I understand the concept “ IF YOU WANT TO MAKE GOD LAUGH, TELL HIM YOUR LONG TERM PLANS. Living with a heart patient I learned long ago to take one day at a time.
It’s great to see a video like this to spread the awareness of CF. When people get diagnosed and how it effects not just the sufferers but also the family’s
Poor little guy. He feels so bad... its heartbreaking to listen to him cry
My son has CRMS/Cystic Fibrosis mutations f508del and R117h it make me happy seeing awareness being brought to this subject :)
The first mom saying her kid was born in '98 made me realize how long ago this was. I was born in '01.
I hope Matt is still in good health 💕
By far one of the best hospitals on the planet! 💗
Katie x Clearly their CF protocol isn’t.
Skyler Gray In my experience, it is. I’ve witnessed them uncover and treat things from minor injuries to terminal brain diseases.
Katie x certainly one of the most TKC I have ever seen.
Katie x the USA has very good children hospital’s and their protocol is fantastic.
Boston ma . children's hospital is the best in the. 🌎 world only for children.best doctors ever
Poor dear children I hope all is well with them
I follow several American CF patients on TH-cam.
Every one of them wear a mask when entering any
hospital to cut down on germs. The staff also wear
protective masks, gloves & gowns. This young mans
only protection was using a hand sanitizer when he
entered the unit🎈
Critter T yes I agree, especially since he will touch things that can easily be covered in germs after he uses the hand sanitizer. Also it is a children hospital, this is important because little kids sometimes forget to cover their mouth when they sneeze or coughs, and now germs are on an object that a CF patient will touch and that could be life threatening to that CF patient, this also includes the common cold.
Spottedtime - You said it better than I did honey.
I don’t have CF but do have respiratory problems
and follow the same standard protocol as they do.
Love your name.
Peace to you my friend🎈
I agree!! Infection control is rather concerning!!
Critter T do you watch the Frey life? They are one of my favs
Nooby Cuber - Yep, I watch them🎈
Matt is 20 years old now 😲
How did you work that out?
@@danielledewitt1 he was born in 1998 his Mam says it at the start
@@margaretdonovan6085 Congrats for having perfect hearing.
Alana has the beautiful green eyes I've ever seen!!
I know!!!!!!!! I thought the same thing!!!!! 💕💕💕💕💕💕
I have CF and I am glad that they are spreading awareness for it. Good documentary
My brother had CF & I had two good friends that had CF. It boggles my mind on how the doctors didn't see the signs when he went for routine check-ups. CF patients have distinctive club looking finger's and toes. Their cough is recognizable & the parents should have noticed a strong salty taste when giving him kisses.
Gypsy Dover Presents differently and lotta people. And honestly if you’re not looking for it many people don’t see about checking it out. I could see if they missed it if his younger sister had it so hopefully she got tested
I have heard of milder conditions, even ppl not diagnosed until adulthood.
ERKHEMBAATAR IS A CUTIE PIE
I agree with you, Joanna
@Zoe Le Guillermic Thought he was a little girl at first. 😂
@@hypnoticsdraws9537 same
Poor Mongolian baby hope his ok and hope all the kid's will be Okey
He was OK. It's very common for young children to have seizures if they develop high temps, when they are ill. They just need watch him and make sure they have drugs to bring down the temp again, on hand at all times. Paracetamol is what they use here.
Nomin Amarbayar I thought he was a she. I hope he gets well.
All kids are pretty adorable typically, but I thought he was just so precious!!!!! His Dad was amazingly caring and attentive and was so sweet too! Bless them. I hope he is well going further 🙏🏼💕
I thought he was a girl at first. Hope he feels better.
I pray for Matt and his family that soon he can receive a lung transplant,, My young neighbor Casey had battled CF all her life in 2018 she was so sick and didn't have long when she was blessed with a double lung transplant in Durham NC, she is amazing and well and living a beautiful life !! Prayers and blessings to the donors family, they are hero's ❤America 2021
I hope he was able to get on the trial drug for CF. It has changed the lives of so many sufferers of CF.
Awww poor little angel 😭
I feel for the CF mom and boy. I in no way want to be disrespectful, but how did doctors miss this for so long? 😢
KittyMom 419 unfortunately it happens, I wasn’t diagnosed until the age of 15, they always misdiagnosed me lol
Julie B My heart breaks for you. I respect you. Stay strong and positive and fight.
I was diagnosed at 3 weeks but I know people who were diagnosed later. I was lucky being diagnosed so early, but my numbers are lower than the people that were diagnosed later
It depends on the severity and the presentation. It's a progressive disease, so babies may have no symptoms. Frequent lung infections and failure to gain weight are often the presenting symptoms, but they may not become severe enough for a hospital trip for years. Salty sweat and greasy stools are also key features, but those aren't things parents will usually take their kid to the doctor for. Fortunately, many states in the US are starting to offer testing at birth for CF and many other diseases where early diagnosis are important.
I'm wondering that too. That poor boy, I feel so bad. I had a friend pass away from that at age 10.
Thank you for raising awareness for CF! It is important to get an early diagnosis if at all possible! As for the other children, I am glad that they are healthy and have no further issues to deal with! God bless these families!
The little boys daddy is so attentive😍😊
It's a girl not a boy
@@anthraxpurdy2395 You don't have very good listening skills do ya >>;;
Anthrax Purdy he’s a boy
I hope the boy with CF has started trifecta!! It would change his life! Bless all the children.
Matt keep on keepin on friend!
I feel for that little Mongolian boy. I am Caucasian and was in Tehran when I fell in a manhole at 5yo. I remember all these foreign faces around me and was terrified because I didn't understand what they were saying or doing.
Matt is adorable!
There was a girl at myself school who just recently passed from cystic fibrosis.🙏
Bless erk and his family
A lot of people who have Cystic Fibrosis are most likely to die especially in the lungs. I'm one of those people who have Cystic Fibrosis, but not in the lungs that I have right now. That's why I had a doubled-lung transplant just 11 years ago. I'm so relieved and thankful to be alive.
CF is a terminal diagnosis poor boy
Terminal, but treatable. Life span is now about 40 because of a new miracle drug released called “trikaffta”! Hopefully more and more research will be done to find more info! 😊
Last time I did a lung function test, the doctor kept making me redo it cause apparently I wasn’t “breathing good enough” despite me like nearly passing out from forcing myself to breathe more than I can
aidey s not good that the doctors are not listening to you. BE MORE FORCEFUL WITH THEM, and hopefully they will begin to listen. I battle this fight all the time with my husbands heart condition. Everybody wants to fix the unfixable.
Wait what??!???!?!! Isn’t that the whole reason that you’re having the test in the first place???????? I mean it would be funny if it weren’t atrociously concerning on the part of that doctor’s ability to make that logical analysis of the situation but ok…… I’m glad you’re ok and I agree with the above commentor always always make sure to state anything you were wanting or needing or your concerns or anything else like that as many times as much as it needs to be done in order for somebody to hear you because you are the most important person to be listening to and the only one that actually knows how you are really feeling and it’s up to them to listen to you so don’t forget that 💕💕💕💕💕💕🥰🥰🥰🥰🥰🥰 It took me a long time to learn that lesson so I understand how frustrating it can be sometimes! I hope you are doing really well!!!!!!!!
I've had a couple spontaneous seizures in my older years. They were quick and I found out that my migraines were part of the issue. I have terrible migraine with aura, and sometimes they cause these short seizures. Also, Erkhembaatar is the coolest name ever.
Getting seizures is a quite normal way for childrens' bodies to reduce their temperature because they aren't able to cope like an adult, yet. I used to have them all the time.
CF patients have to wear a mask when transferring in a hospital.
Depends on the hospital protocol and patient acceptance though. Or, it was in my experience. Don't know what this hospital's protocol is though.
Not necessarily
Jessica B I’ve noticed that things are done quite differently in the UK. They also often stop covering central lines after a few months! (And I don’t mean ports, I’m talking about Hickman and broviac lines). You wouldn’t catch me without a dressing over my broviac!!
@@mariekedufresne53 When I googled average CF life expectancy for the UK, the most recent numbers I got were not even 40 years old, though! Here in Canada the average is about 50. I don't know what precisely the differences are though since there are so many variables.
Marieke Dufresne I’ve noticed this as well! I would *never* allow for my line to not be covered with a sterile dressing! It terrifies me every time I see it on these UK medical shows. I have definitely noticed that the UK seems to be quite behind in keeping up with proper sterile protocol and infection prevention. It really makes no sense to me, especially when it comes to children with such serious health conditions. They should be doing everything in their power to prevent infection and additional illness in such fragile bodies, going above and beyond adhering to sterile procedure. I’m so thankful that my hospitals and nurses in the US are extremely diligent and proactive about preventing infection and always following sterile procedure. It’s crazy and frightening to see things being done so differently, especially on children.
I pray that the CF kid is ok
A TH-camr called "Frye life" she has cf. It's a good channel. Quite educational.
Sadly you can't even spell their name right..
@@diie_lisaaa I'm pretty sure Mary and Peter would be happier if you'd nicely correct her instead :)
@@diie_lisaaa sadly you dont realize typos exist:)
Rusty: "(Shy) (Rusty Wears His Long Sleeve Pajamas And He's With His 29 Siblings And They All Wear Their Long Sleeve Pajamas) I Subscribed To Their Channel! 🧡🤍!"
His 29 Siblings: "(They All Wear Their Long Sleeve Pajamas) Rusty Subscribed To Their Channel! ❤🧡💛💚💙💜💖🖤🤍!"
I have FND which means the messages from my brain dont get sent properly I also have tourettes and I lost all movment in my limbs and the ability to eat I was in hospital for over 3 months. I also began having seizures. During that time I was able to eat again. I got out of hospital and I got movment in my right arm. I have just regained movment in my legs and left arm and I am able to start to walk again.
I am surprised about the late CF diagnosis. Hopefully he continues to do well. Treatment is quite different here in the USA.
Kentucky 1950 how is treatment different?
Depending on the type and the severity of symptoms some people with CF aren’t diagnosed for years.
P M we have newer meds than other countries. One that was just approved is trikafta.
ArmySister2 you don’t. Trickafta is only one example of a drug that was fast tracked by the FDA. Other countries are still reviewing the drug before jumping to approval. One different drug does not equate a difference in treatment. You also do not have newer medications. That’s a failure to understand drug development and pharmaceutical companies. When a company produce a drug they don’t just hand it to the US population and nobody else. And just because a drug is newer does not mean it’s more effective. In my particular area of interest it’s quite the opposite. We have not developed good antibiotics in years that are superior to older discoveries.
Just like 5 feet apart
I watch The Frey Life. Mary Has cystic fibrosis
God bless these children.
I have fibroids too and it’s annoying because my time of month is so heavy so you’re losing iron
I like Alana's stuffy friend.
My cousins have this but they found out about it when they were baby’s
MY SOULS PRAYERS FOR ALL WHOM SUFFER FIGHT STRUGGLE N LIVE THIS LIFE/
🌍.... WITH THIS BAFFLING HORRIBLE DEHABILATATING CONDITION📿🙏 I MY SOUL ACHES WITH SADNESS GRIEF N 100%UNDERSTANDING I ALSO HAVE THIS CONDITION I MY SOUL WISHES N PRAYS N HAS FOR A FEW YRS TO TAKE ALL DISEASES AILAMENTS DISABILITIES PAIN N SUFFERING FROM ALLLLL N PUT IT IN ME MY SOUL "✌ FOR ALL HERE ON EARTH THATS ALL MY SOUL HONESTLY WOULD ENJOY SEEING N WITNESSING.PRAYERS TO ALL YOU (US) ANGELS,SOLDIERS OF GOD
Like it. video Katy leeson. south west devon 👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍👍
My sister had a seizure that lasted 35 minutes.
furyfox13 she’s fine, it happened over a year ago… But it did lead to kidney and liver failure. But she’s fine now.
ANY kind of seizure is scary
Alana is so cute 😭🥰
How is Matt doing today?
God bless
Jesus loves you
Wow I guess that was missed. They cold detect cf as young as 7 days old or so, but I guess you would have to know to test.
When parents are preganant they offer a screening to see if mom carries the damaged chromosome if she does they usually want to test dad. My son was diagnosed 2 days after being born with cf. In 2 weeks we went for the retest. If both parents carry the damage chromosome its a 1 in 4 chance of the child having cf. Atleast in the United States thats what they do
I thought Erk was a girl o.O
So did I, those ponytails looked girly.
Kaitlin Hannah I did too. No further comment, other than I hope he (she?) survives.
They say he everytime the talk about him (erk)
It's really interesting to see the cultural differences regarding gender and the way people dress. Regardless, he is pretty darn cute.
i thought so as well. i was like "...why does the nurse keep calling her a him"
NO CLOSED CAPTIONING WILL NOT WATCH THUMBS DOWN
I didnt know cystic fibrosis was fatal, what a horrible thing! Especially the life expectancy.
Smoosh Goo they complications it can cause can be fatal yes
And yrs ago life you would live but passed 6th grade
The Asian Dr they always have him speaking with loud noise backgrounds. Has anyone else noticed this? I have watched him in many different shows.
Captions please
Yessssssssssss
😊hi Love
I know Claire Winerland she is beautiful Girl but this IS VERY VERY BAD Cf. BTW..I have too CF
They spelled seizure wrong in the description.. seizer, is how they wrote it.
Dalam nama Tuhan Yesus, kamu sembuh.
someone please get that Mongolian father some glasses, i thought he was squinting while looking at the book because of the language barrier, but he clearly couldn't see his phone either :(
I think the boy’s mom needs to stop worrying about how her son’s lung machine looks. It’s keeping him alive and healthy, so what if it looks a bit weird?
Because children with chronic diseases crave normalcy.
2nd whoohoo! Early squad!
Is the mother of the CF boy ill or does she also have CF?
I was wondering that too
She would be a carrier of the gene not affected herself
I’m a medical professional and I feel that the hand sanitiser alone is not going to protect this young CF Patient, he should be wearing gloves and a vog-mask as they are better then the hospital masks available. As for the nurses who treat him im concerned as to why they aren’t telling him or his mum this, also to protect him and other kids at school I feel that he schooled be home schooled because no one knows if any of the kids are carriers for CF,
Regarding to home: I’d like to know who has the gene that caused him to get CF because they should both be separated or at least not go to close - 6 Feet to be exact
As for the hospital they act as tho he has a Chest infection, I wonder who played with the Xbox controller before he did?? GERMS 🦠GERMS 🦠 GERMS 🦠
Isn't CF a recessive gene? So he may be the only one in his family with CF. His parents can carry a copy of the gene but have completely normal lungs etc themselves.
Natasha Chillaxing Melts, Candles & Body Products CF carriers who only have one copy of the damaged gene are safe for CF patients to be around. They do not have the disorder, meaning they do not carry the dangerous germs.
What type of med professional?
Why where they referring to the little girl as “he”?
Cos it's a boy...
But yeh he looks like a girl
That "boy" at around 5:00 that's not a boy
RandomslimeAnd MoreThings Just because he had long hair that doesn’t matter and boy is just a subject it doesn’t define who you are
@@CrazyCrazy-es7xe boy is a noun
@@lafl1380 That doesn't really contradict what they said. Grammatically the subject of a sentence _is_ a noun.
Theater
In Ireland and the UK it's spelled theatre
The baby that was crying was a little girl
No, he is a boy. His father, if you had listened said "him" "he" alot.
Just because he had long hair does that mean he’s a girl no it doesnt matter
It's a male but definitely looks like a female. Not because of the long hair, but the entire package. Odd looking child.
Anthrax Purdy A boy with long hair.
Pretty sure that erkie one was a girl. did not look like a little boy..
I thought so too but at 12.40 his dad says he/him a number of times.
Lesson to be learnt here never to judge till we hear the full story 😊
The only way you can tell to be sure is to look in his diaper. Long hair does not always a girl make.
He's a boy but a very strange looking one.
It’s a little boy 👦
Rusty: "(Shy) (Rusty Wears His Long Sleeve Pajamas And He's With His 29 Siblings And They All Wear Their Long Sleeve Pajamas) I Subscribed To "The Frey Life" Channel! 🧡🤍!"
His 29 Siblings: "(They All Wear Their Long Sleeve Pajamas) Rusty Subscribed To "The Frey Life" Channel! ❤🧡💛💚💙💜💖🖤🤍!"