Yeah, It Was Cancer - Rectal/Colorectal Cancer - Survivor's Story of Diagnosis, Treatment, Recovery

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  • เผยแพร่เมื่อ 27 พ.ย. 2024

ความคิดเห็น • 16

  • @TakeTimeToTravel
    @TakeTimeToTravel 7 หลายเดือนก่อน +3

    So glad to hear that your cancer was stage 1, and that your check-ups have been good! I'm also so grateful to my partner Mike, for being with me through my prostate cancer diagnosis, and the treatments...don't think I could have done it on my own. For us, it's all about experiences now, not about "stuff". Cheers :)

    • @TravelByNumbers
      @TravelByNumbers  7 หลายเดือนก่อน +1

      I see you're travelling the world now! Good for you. So important to experience this planet and not "wishing" you had done more when it's too late. We'll catch up on your episodes and look forward to vicariously experience the destinations you reach. Thanks for watching!

  • @michellelanigan1964
    @michellelanigan1964 7 หลายเดือนก่อน +4

    I can relate. I was stage 3 N 2 in ‘07. Chemo caused a blood clot in my upper vena cava. I had radiation, then an LAR with a J- Pouch, and ileostomy for 12 weeks. The leakage was very frequent-to several times a day. After reversal I stayed in the bath tub for hours soaking to relax the spasms. I am also an MS patient! Started urgency about 15-20 times a day til 2020. Had been in severe pain with no diagnosis for 3 years. Finally had to go to the ER and realized I was septic. My reconnection had torn open. I was in 3 hospitals 10 times in 2020. Being served IV antibiotics, having surgeries, tests, rehab, blood clots, and Chronic heart failure. I am 61. The infection has made permanent damage to my body. The anxiety and panic attacks have ended because I’ve been through all this and more. I should be dead! I can handle anything…I’m not scared any more, nor am I gonna worry about the little things. I was mixed in with Covid 19 patients and could have no family with me. For months!!! Our stories are unbelievable!!!!! Can you believe we did that?

    • @TravelByNumbers
      @TravelByNumbers  7 หลายเดือนก่อน +3

      My gosh you've been through a LOT! That's the thing though, there will always be someone - with cancer or other maladies - that is worse off than ourselves. I'm glad you've reached some stabilization though and acceptance to concentrate on just living. Mankind, up until only a few hundred years ago, only lived until about age 40. We've been able to extend that through better hygiene, better (and worse) food sources, medicine and improved living conditions, so I've always felt that any life expectancy over 40 was a bonus anyway. Some still don't get to live that long. Yay us! Thanks for watching and good luck in the future. :)

  • @Nothingness-vb5dv
    @Nothingness-vb5dv 7 หลายเดือนก่อน +1

    Oooohh, what an ordeal. Losing 52 pounds wow, that's brutal. You have an awesome upbeat mentality that comes through on your video, but it must have been so hard. Thank you so much for walking us through this nightmare, it's incredibly helpful for people who are facing similar situations, and to know what to expect. Also, it takes a certain toughness to revisit I'm sure. Yeah Shawn! Great job during tough times, especially during the emotional ups and downs. Take care guys, and looking forward to your next instalment from your upcoming trip! Oh, loved the "smoke" hahaha, that was an unexpected funny during a grim time.😀 Thanks for this!

    • @TravelByNumbers
      @TravelByNumbers  7 หลายเดือนก่อน +1

      Hahaha. You noticed the "smoke"! I had to try and figure out a way to represent something you can't see, but you certainly can smell! Unfortunately, for the sake of brevity, I've had to skip over a multitude of details, but I think this is a good representation of what someone else in my circumstance would likely have to endure. It's a journey for sure. Thanks for watching!

  • @theidiotquilter
    @theidiotquilter 7 หลายเดือนก่อน

    Did not realize what an ordeal you and Sean went through but very happy that the outcome for the most part has been positive. You are a brave soul and I hope this is the worst thing you will ever have to deal with.

    • @TravelByNumbers
      @TravelByNumbers  7 หลายเดือนก่อน

      Thanks so much for the kind words. My "Lucky" t-shirt says it all. Thanks for watching!

  • @SoapboxBob
    @SoapboxBob 7 หลายเดือนก่อน

    Am so glad you are still here to talk to us about your experience. Thank you for sharing. And I now understand your silence and absence from social media. I look forward to some clips about your April 2024 adventure with Sean.

    • @TravelByNumbers
      @TravelByNumbers  7 หลายเดือนก่อน

      Thanks. I have a love/hate relationship with social media. Mostly hate. Most of the time it's completely pointless despite significant work being put into it. Thanks for watching!

  • @wesleyluvsoktoberfest
    @wesleyluvsoktoberfest 2 หลายเดือนก่อน +1

    Thank you for sharing your experience with cancer. I have a very similar journey as yours. At 62 during my annual physical I had a colonoscopy and a mass was discovered exactly in the same location as yours. Mine was stage 2a and my treatments were the same. Other than the blockages you experienced I only had a minor blockage that cleared its self. I had an ileostomy for 8 months but had many challenges with it due to a retracting stoma. I was seen 3 times a year for the first 3 years and twice a year to year 5. Year 5 to 10 once a year. I’m coming up on my 5th year and so far so good other than I’m going to have a hiatal hernia surgery in a couple of weeks. My CEA as of yesterday is 3.0. I have found that Lomotil and cholestyramine have been a game changer for me in managing bowel movements and being able to extend trips to the toilet. Other than wearing adult diapers I have found that using women’s panty liners with my underwear helps extend the wait time to get to a toilet for leakages. I just returned from visiting family in Germany and have resumed my regular east coast west coast travel pretty much anxiety free. My spouse and I have been together 32 years and without his support it would have been an unsurmountable struggle. I commend anyone who’s going through this on their own. It is true that there’s always someone in worse shape than us. Your video is something everyone should see who’s going through the colorectal cancer journey for inspiration that against all odds the outcome can be positive and life can continue. I wish you continued good luck in your ongoing recovery and hope that future will remain bright and happy. ☮️🌈🙏🏻

    • @TravelByNumbers
      @TravelByNumbers  2 หลายเดือนก่อน +1

      Thank you, Wesley, for your wonderful comments! So glad you are now doing well and able to regain a quality of life that many of us lose. I think the key is to not give up and continue to seek remediation through physiotherapy, diet and through the breadth of availability of prescription and non-prescription drugs. Some might also pursue naturopathy if that's their thing. For me, it's now been 1.5 years since my ileostomy reversal. I'm 2.5 years post-first-major-surgery (cancer removal) and my numbers were 3.1, 2.6, 2.8 and now 3.1 - each taken at 6 month markers. I've just had my annual CT scan and nothing showed. On the urging of my oncologist, I've just started a 2 week trial of Loperamide Hydrochloride (1mg) (non-prescription Imodium in Canada) which is helping tremendously with trips to the bathroom and decreasing the number of "bad days" I'm having. I have much more confidence in leaving our home now and this is the "most normal" I've felt since this entire episode. I have to say that I resisted using this drug because a) it's an opiode based on morphine, and b) like alcohol, cannabis and other painkillers, it requires increasing the dosage over time to remain effective. But I've also just had a consult with a dietician and discovered I'm eating a large amount of insoluble fibre which contributes to the bathroom problem. So she's given me a list of foods I can eat, and ones I can't, with the goal of reducing the trips to the bathroom and providing an increase in bulk. I start that in another week at which time I will crease the use of imodium (so I can judge the effectiveness of a diet change). So hopefully these are all avenues to an improve quality of life. On a side note, my partner and I are also coming up to 32 years together and I completely agree that a caregiver's support is absolutely invaluable and appreciated beyond words. I met many cancer patients who had no one to support them (other than daily home nurse visits which are free in Ontario, Canada where we are) so the struggle is unimaginable. Employer support and accommodation is also vital. I met many whose income ceased because the employer didn't have a short term and long term sickness plan for pay continuance. I'm lucky in this regard, too, as my income was not impacted and I have graciously been able to work from home indefinitely (given the obvious circumstances). But all are not as fortunate to have a job where this can happen. I also have a hernia that needs to be dealt with at some point. And while I wear underwear nearly all the time, I will switch to a diaper if I'm having a challenging day or if I have to go out and the risk is elevated. I generally don't leak but the advice for use of a panty liner is good. There is also, effectively, a diaper-like underwear liner that is thicker than a panty liner. I have one but have not tried it - but probably a good solution for those who leak at the back or who have bladder issues. Anyway, enjoy your weekend and it was very nice to hear from you. :)

    • @wesleyluvsoktoberfest
      @wesleyluvsoktoberfest 2 หลายเดือนก่อน

      @@TravelByNumbers My 4 year anniversary was in August for my reversal. The first 2 years were challenging and I’ve found using the cholesteromine a great relief as it’s a binder and I only use the lomotil as necessary. I haven’t had to use the, as they’re known here, Depends for the last 18 months. I have been vegetarian for the last 4 years. I found that meat is too hard for my system to digest. It’s all trial and error and finding a regime that works for each individual. I suffered from what I called system malfunctions for 2 1/2 years before I found what worked for me. I been fortunate that I am a retired architect that was in private practice for 30+ years upon my retirement 10 years ago. The cost here in the states is astronomical. My billed rate for all my treatments to date is $1.3M. My treatment has been gold standard and I’ve had zero delays on all required therapies and surgeries. My tumor marker numbers are almost exactly like yours. I’ve always been a realistic optimist and have always had a positive attitude but those dark days of misery can certainly be a challenge. I live in the mountains and sometimes I go outside away from everything and scream as loud as I can. I do find it helps me release any stress and doesn’t get everybody else upset that I might be losing it; which I do privately. Then again a go hearty laugh and keeping drama and stress to a minimum has worked wonders for me. In looking back on my struggles and challenges they are becoming a fading memory in lieu of a painful reminder. I hope and wish the same for you. We’re lucky to have our anchors in the stormy sea of life for support and tolerance on this dark days to be by our sides. We do have visiting nurses here also but I refused them due to the onslaught of COVID when I was beginning my treatments and surgeries. I come from a family of doctors and nurses in Germany and they’ve been monitoring my treatment with my doctors here and feel that I have all my bases covered. It is most concerning that there are those patients who fall through the cracks or don’t have insurance that become casualties of the health care system. Canadian citizens are fortunate to have a health care system in place that puts people first instead of profits. It is something to be admired by many here. Germany also has a good health care system that I first considered for my treatment. My spouse doesn’t speak German and it would have been a greater challenge for both of us. We were lucky that he could take an 18 month hiatus from his work and monitor all my treatments and doctor visits and hospital stays, which like yours was numerous. I’ve just found your videos on TH-cam and can’t figure out why you both don’t have more exposure and followers. Your videos make me want to load up my RV with the dogs and spend the summer in Canada. I have been to Canada numerous times and love everything about it. I hope everyday gets brighter for you and it sounds like you’re making the best your time everyday. I have a motto that I live by: You only die once but you live everyday. Have a great weekend 🌈☮️

    • @TravelByNumbers
      @TravelByNumbers  2 หลายเดือนก่อน +1

      @@wesleyluvsoktoberfest What you've been writing here is not only helpful to me but others who will read these threads months and years from now. I was actually in the hospital during covid and saw first hand the stress and danger health staff were placed under, as well as understaffing due to staff illness. Twice I was put in a private room because they thought I had covid - but I didn't. I was, however, on a floor with covid patients so I felt the danger too and wore a mask, as required (not that it did much as we now know). Like you, the many details of the challenges I faced fade, and now others seem more impressed with what I've been through than I do myself. It becomes a blur of pain and success, improvement and failure. Graduating from diapers to underwear was a huge relief and major marker of positive change. Other than that, one seeks small signs of improvement - anything, really, to show progress so as not to remain stagnant with the hand you've been dealt. Extremely important, too, is consideration for your partner/caregiver and trying, wherever possible, to return your life back to a (new) normal and do the things you used to do. We've been able to travel twice in the last 12 months. Extremely high anxiety for me, but important for him and us as a couple. One of the things I tell people is that when you get a diagnosis like we did, you have to be comfortable with your life and all you've accomplished. I am. That makes all the difference. We, too, are disenchanted by TH-cam's algorithm which, among other things, seems to take consistency of posting - no matter the actual content - over inconsistency but high quality. This is not a career for us and never was intended to be. But TH-cam could go a long way to help promote creators like us who spend an inordinate of time and money creating our videos for the benefit of others (again, we're not monetized). We see other videos of the same travel locations, shot on a cheap smartphone with little or no post production, terrible audio, no music or sound fx, no colour grading ... and yet thousands of views vs 10s or 100s for us. We try to hope that it's not the "2 old gay men" optics, but unconscious bias is a thing and it's difficult to disprove that it doesn't play into our views. Pathetic, still, if it were conscious bias. TH-cam, either way, has to do better. Anyway, thank you for the kind words. We're lucky the followers we do have are kind-hearted and positive. Take care!

    • @wesleyluvsoktoberfest
      @wesleyluvsoktoberfest 2 หลายเดือนก่อน

      @@TravelByNumbers thanks for your kind response. I’ve felt I’ve been on borrowed time for the last 40 years. Having survived the AIDS/HIV crisis of the 70’s & 80’s and taking care of friends who were not so fortunate makes one appreciate life even more. This of us a certain age went through what most people go through at this time on life’s journey. Losing close friends, partners and spouses. And then out of the blue, wham, here comes another challenge. We’re both fortunate that we have partners/spouses that did stick by us as many during the AIDS/HIV crisis were abandoned by them and family sometimes too. I did always remind the medical team and others that this not only affects us but takes an inordinate toll on our other half and the caregivers since this is not what they are trained to do. Hang in there good times are coming again. It’s ironic that things such as ditching diapers and going back to underwear would be such a satisfying accomplishment. Just goes to remind us that it’s the little things we take for granted that really mean so much and who’d thought that something that doesn’t cost any money could bring such joy. I’m a couple of years ahead of you on this continued journey but it’s good to look at the map and see how far we’ve both come. There will come a time when I’m sure my progress will reverse due to aging but I’ll cross that bridge when I get to it. In the meantime I plan on getting out as much as possible and not be concerned what others may think. If I really cared what strangers thought I’d jumped off the bridge many years ago. Be kind to yourself and forgiving of others who aren’t so. I do try but some times I just came forgive meanness. When they ask me what I’m allergic to in the hospital or doctor’s office I always answer mean or bigoted people. Now to get ready for my massive hiatal hernia surgery in a couple of weeks and then back to life. Make a special memory today with the ones you love…we never know if it’s the last. 🌈☮️🙏🏻

  • @marciaprevost
    @marciaprevost 7 หลายเดือนก่อน +1

    Please educate yourself on the Proper Human Diet by listening to Dr. Ken Berry on U-Tube. That diet is also known as the carnavour diet. It might help you tremendously.