The Best Tips on Coping With Tamoxifen Side Effects - The C List

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  • เผยแพร่เมื่อ 22 ต.ค. 2024

ความคิดเห็น • 51

  • @joyjones-carmack5261
    @joyjones-carmack5261 7 หลายเดือนก่อน +4

    I’m so happy to find this video. I will spend the end of my 40s on this terrible drug. I should be enjoying the rest of my youth right now, but no, I’m in menopause after a horrible year of fighting cancer. It’s frustrating too because everyone thinks your done at the end of treatment.

  • @khaliddurrani6432
    @khaliddurrani6432 ปีที่แล้ว +5

    Dr Liz is a consultant breast surgeon in Ipswich UK with Phd in cancer biology. She herself had breast cancer twice and runs an advisory for breast cancer patients. Bravo to the good doctor, God bless her.

  • @susiepingleton3614
    @susiepingleton3614 ปีที่แล้ว +6

    We all have been so gullible! I refused chemo! Praise God! I had double mastectomies with 21 lymph nodes removed. 19 bad!! I have been on anastrozole 4 years. I will be 73. I was a hospice RN 18 years. I learned too much about the lying! The money making priority blew me away! Why were all of my breast cancer patients bald?? Because chemo is a cash cow! May God give us courage!!

    • @jenniferenage9263
      @jenniferenage9263 หลายเดือนก่อน

      @susiepingleton3614 Best comment.

  • @nadineshende7659
    @nadineshende7659 2 ปีที่แล้ว +9

    My oncologist wanted me on this drug. Instead I went to Oasis for Hope in Tijuana Mexico. Had Dendritic cell vaccines and Lymphocyte Activated cancer killer cell vaccine. Also, high dose IV vitamin C, K and ozone therapy. My oncologist there in Mexico told me Tamoxfen would interfere with their vaccine therapy. So I didn't do it. At , my stay there, there was a lecture by one of the doctors. He said within 10 years chemo will be a thing of the past (with the exception of some blood cancers). I hope he is right.

  • @nancykowal7544
    @nancykowal7544 2 ปีที่แล้ว +7

    I'm so happy I came across your video. I've been taking tamoxifen for about 1,5 years now and when I talk about my side effects at my breast surgeon it is as if he doesn't hear me. Not only my surgeon, even the nurses, psychologists, etc... do not seem to realize how it affects my quality of life. So nice to hear that my fogginess and not being able to function 100% anymore is something 'real' and not something that's only in my mind. Thanks for that and keep well.

    • @carolineowen7846
      @carolineowen7846 2 ปีที่แล้ว +1

      My oncologist want me on this, I have asked again and again about how side effects are manged ... they don't answer other than 'not everyone gets all the side effects you can read about on the internet' - or they just stare me out, like it was never said. Any how, I'm not going to take it.
      After reading 'How not to die' & 'Eat to beat diease' I'll continue to not eat refined sugar, (just what is in fruit, not jiuce), not eat diary, or eggs. (the word easter comes from eostrogen, from when the hens start laying.) Plant based foods that contain eostrogen like soya milk, actually block the eostrogen receptors, but don't give the side effects of no eostrogen. A table spoon of flax also helps, its all in the bmj ...

  • @rosemarybanner
    @rosemarybanner ปีที่แล้ว +3

    Very good info. I have experienced the same thing. No brain fog but OMG my joints feel like they are filled with concrete.

  • @michaelacurran-cox528
    @michaelacurran-cox528 10 หลายเดือนก่อน +1

    Thank you so much for sharing your valuable information and expertise ❤ I have stage 3 breast cancer and MS and had a hysterectomy recently. I am on Tamoxifen as letrazole caused joint stiffness more than the Tamoxifen. Tamoxibollocks now being the new brand 😅. It is so hard to get good honest information so thank you 😊 🙏

  • @irisc8737
    @irisc8737 2 ปีที่แล้ว +4

    Tamoxibollocks!! Love it. It’s new name in our house. I feel like I’m 90! Pain in my ankles and feet is so much fun. I’m on Tamoxifen and Zoladex which is quite difficult. Still better than the alternative. ❤️❤️❤️

  • @janebrown896
    @janebrown896 ปีที่แล้ว +3

    Really informative, no nonsense. Thank you 😊

  • @katerinapas3632
    @katerinapas3632 3 ปีที่แล้ว +3

    Thank you so much ladies you have given me so much support. I've been taking tamoxifen for 10 days now and I experience some dizziness and I'm so afraid of what it will bring me in the future.

  • @amyspencer2673
    @amyspencer2673 3 ปีที่แล้ว +3

    Just about to complete my last chemo and start tamoxifen. This is truly scary stuff but really useful to hear worst case scenario stuff. Thank you. This was so informative. Fingers crossed I have a smooth ride on it ☹️

    • @florancedias2630
      @florancedias2630 ปีที่แล้ว +1

      I ve just started on it post chemotherapy... so far so good..

  • @dsenfeld
    @dsenfeld 2 ปีที่แล้ว +2

    Thank you so much for sharing this information. We need more people like you ladies sharing experiences!!!

  • @elizabethschwanderlaventan298
    @elizabethschwanderlaventan298 2 ปีที่แล้ว +3

    Thank you for this fantastic video. I been taking tamoxifen for 2 years and at the beginning I was prescribed letrozol. This gave me join pain and it seems my body can handle tamoxifen much better. I use aromatherapy, herbs and lots of oils, Sage really helps in any form but specially the essential oil, I keep a mixture of oils on my night table. I also keep sage bonbons no sugar! I am 60 years old and probably my counteracting medicine is being positive and very busy! I’ve learned to meditate and practice Qi gong for beginners. I follow Qi gong on TH-cam 💖 Shaolin. The very best for all the women who goes through this.

    • @JL-kk9hl
      @JL-kk9hl 9 วันที่ผ่านมา

      Do you work? How do you cope?

  • @sarahjohnson2466
    @sarahjohnson2466 3 ปีที่แล้ว +10

    Would have loved to hear about mg. 10 verses 20mg.

    • @elizabethbeth9930
      @elizabethbeth9930 5 หลายเดือนก่อน +1

      I took 10 every other day and still had horrible side effects

    • @elizabethbeth9930
      @elizabethbeth9930 5 หลายเดือนก่อน +1

      And it raised my estrogen levels. My estrogen levels were 422.!

  • @sarahcharlesworth8240
    @sarahcharlesworth8240 ปีที่แล้ว +2

    This was very helpful. Thank you.

  • @Calmspaces
    @Calmspaces 10 หลายเดือนก่อน +1

    What about just taking half a dose? I read that there have been tests to prove that 10mg is as effective but less toxicity. Trials took place at karolinska hospital

  • @nancyhamilton1993
    @nancyhamilton1993 2 ปีที่แล้ว +3

    Thank you so much for this video! I stopped taking Tamoxifen 2 weeks ago after taking it for 6 months, secondary to horrible side effects. How long does it take for the side effects of: extreme hip pain, peripheral edema, lower metabolism, lack of libido and high blood pressure to go away? Most of these side effects aren't mentioned in the literature or I would have never taken it or would have stopped it sooner if I had realized that was what was causing it. I am 65 with a stage one lobular ca, no lymph node involvement. Thank you for a response. I have ordered your book as you are the first female breast surgeon I have run across who has the the medical background plus personal experience to discuss these issues. I am actually considering checking if I have any estrogen and progesterone left to help with these side effects.

    • @bourgsusan
      @bourgsusan 2 ปีที่แล้ว

      I am also stage 1 lobular no node involvement Triple positive. Lumpectomy 72 yrs old. I'm on Arimidex 1 yr now. I hate it and want to go off if it too, but I'm scared to do it.
      I heard that if you are post menopause you don't take tamoxifen.

    • @LB-zc1hj
      @LB-zc1hj 9 หลายเดือนก่อน

      I’m 68 stage 1 invasive breast cancer no lymph node involvement. I had a lumpectomy beginning of Oct last year still waiting for radiotherapy…Drs strike ? After a lot of thought I have decided not to take any hormone therapy.

  • @turtley8883
    @turtley8883 หลายเดือนก่อน

    I'm 41 and had a double mastectomy due to ER+ cancer. I found out I'm BRCA2 positive, so I should remove my ovaries to prevent ovarian cancer. I'm on tamoxifen. I can only take 10 mg due to horrible stomach pain and psychological issues when I try to increase the dosage.

  • @gingerjoy5836
    @gingerjoy5836 2 ปีที่แล้ว +2

    Great info! Thank y’all!🎀🙌🏼💗

  • @Cairo21
    @Cairo21 3 ปีที่แล้ว +1

    Ian on tamoxifen and zoladex and I am 34 I absolutely hate it. Thinking of stopping zoladex

  • @susiepingleton3614
    @susiepingleton3614 ปีที่แล้ว +5

    Suzanne Summers died of cancer returning after 23 years. Moral of the story. Enjoy your life. Love and most of all seek Jesus Christ because we will live in eternity either in Heaven or Hell!

  • @samienos1891
    @samienos1891 2 ปีที่แล้ว +1

    I wish I could stay on tamoxifen but it's side effect of uterine cancer is too high of a risk. That's why they put me on anastrozole. Anastrozole made me lose my hair, pain in my hips, knees, shoulders and back. Sporadic and different stages of pain even when I'm sleeping. The pain would wake me up.

  • @katenickels617
    @katenickels617 9 หลายเดือนก่อน +1

    what about taking a lower dose? Some studies indicate that a lower dose is just as effective. Your thoughts?

    • @JL-kk9hl
      @JL-kk9hl 9 วันที่ผ่านมา

      lower dose has plenty of side effects....

  • @ireneswan1050
    @ireneswan1050 ปีที่แล้ว

    I started tamoxifen at 76 and every day is miserable. However, I am susceptible to cancers, 4 times in various areas in 11 years.

    • @ireneswan1050
      @ireneswan1050 ปีที่แล้ว

      I'm in my second year now and not looking forward to 3 more years.

  • @threadfix
    @threadfix 10 หลายเดือนก่อน +3

    So glad I am not taking tamoxifen!

  • @elizabethbeth9930
    @elizabethbeth9930 5 หลายเดือนก่อน +2

    Yea! Not taking it!

    • @JL-kk9hl
      @JL-kk9hl 9 วันที่ผ่านมา

      Right? Also, these women don't work, unlike many of us.

  • @shylocat
    @shylocat ปีที่แล้ว +1

    Thank you x

  • @SCLana
    @SCLana 2 ปีที่แล้ว +2

    Can we control Estrogen naturally? Like food?

    • @threadfix
      @threadfix 10 หลายเดือนก่อน +1

      Refer dr kristi funk

    • @jenniferenage9263
      @jenniferenage9263 หลายเดือนก่อน

      Yes , broccoli sprout. DIM supplement which has the sulforaphane the main chemical compound of broccoli sprout. Or take Sulforophane.

    • @jenniferenage9263
      @jenniferenage9263 หลายเดือนก่อน

      Make sure you are detoxing all detox pathways. Kidney. Liver. Skin. Lungs . Lymphatic system . To make sure you don’t have excess circulating estrogen in your body. Sauna. Walking. Massage . Working out. . Put more muscles in your body. More muscles , less fat less estrogen as estrogen are stored in fats . Eat a lot of protein . Eat a lot of green vegetables cruciferous to make you eliminate the estrogen.

  • @gdwitch
    @gdwitch 3 ปีที่แล้ว +2

    I can handle everything except the insomnia

  • @christinevaseer9122
    @christinevaseer9122 8 หลายเดือนก่อน

    Unfortunately once people know the bulk of your treatment is over - surgery etc..they think you are all better

  • @Candlewick14
    @Candlewick14 2 ปีที่แล้ว +2

    Cut the carbs but wine is ok? Wine is a carb, and makes estrogen difficult to excrete. Smh

    • @hannahroebem2820
      @hannahroebem2820 ปีที่แล้ว +1

      DO NOT DRINK ALCOHOL!! !

    • @Candlewick14
      @Candlewick14 ปีที่แล้ว +1

      @hannahroebem2820 after getting a bad scan I wish I hadn't. Fuck