Focused Ultrasound Treatment for Essential Tremor | Jordan’s Story
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- เผยแพร่เมื่อ 2 ต.ค. 2024
- Individuals with essential tremor (ET) may experience significant tremor of the hands, which can impair a person's ability to perform daily tasks, such as writing, drinking coffee, and eating.
Focused Ultrasound is a medical imaging treatment for patients who suffer from essential tremor.
Focused ultrasound is performed while the patient is awake. It is a non-invasive, non-surgical procedure that involves radiofrequency-focused beams of acoustic energy-to heat and destroy a small, targeted area of tissue in the brain without harming adjacent tissues. To ensure patient safety, focused ultrasound uses an MRI thermal imaging system that measures temperature changes in the skull.
This procedure allows the physician to perform a safe and effective non-invasive therapy with little to no harm to the surrounding tissue and with minimal side effects.
Cheers to Jordan who can now drink, eat, and write after his focused ultrasound treatment!
Learn more about Focused Ultrasound Treatment:
Sign up for Focused Ultrasound Updates: bit.ly/2sqxNtH
#EssentialTremor #MovementDisorders #PennMedicine
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My father has horrible essential tremors in his hands and head. He’ll be having this procedure done later in the summer and I’m anxious of the results.
I Have Also Essential Tremor From 7, 8 years old now on 28 in Genetics. Daily Exercise, Running, Walking, Talking With Peoples and Avoiding Negative Thoughts Is the Best Treatment Yourself!
Angry and Fear is The Dangerous Thing in Essential Tremor Prople Avoid It with Negative Thoughts.
Relax ur Body When Shake Start Cool Down Urself in Sit
Focused ultrasound is the best
I truly appreciate the video presentation of FUS treatment. I am suffering for over forty years from either parkinson or essential tremor and I'd love to have my condition corrected. But unfortunately the FUS procedure is not avilable in my country Papua New Guines. Wish I have money to come over to USA but sadly I don't have it and thinking of the cost involved could be beyond my reach and is very frustrating. Would very appreciate your advice and how to go about it. Thankyou so much and God bless.
i’m 22 and i have a tremor as he described in is his youth. because of my age i get people asking me if i’m okay once or twice a month which is frustrating. i hope the treatments improve by the time I really need it. :( i wanted to be a tattoo artist…
Same here, I'm 25 and have tremor too, but now just a few days ago they announced here in Finland that they will start with ultrasound treatment in May, so I'm gonna check it out.
@Krizpy Kriz Tech Hi bro ... I am from India.. 25 also having some issue.. mine is head tremor. Have you gone through treatment.. Any?
The worry just lifts off the patients’ faces.
That is so me! I have had these tremors since the age of 14, which have worsened as I age. I am now 70 yrs. of age and can no longer drink from a cup without holding it with both hands and can no longer write. My head shakes all the time and my stomach jumps as though a baby is kicking very hard. No medication seems to help and typing is getting difficult as well. Unfortunately, there is no such treatment in Maine. :(
I’m exactly the same. Currently awaiting treatment at the Walton Centre in the U.K.
Is this short terms treatment? Or permanent solution for ET?
That'a wonderfull treatment
Didier
Treatment for Parkinson and essential tremor are completely different. How they present is also different. Pls see a doctor to see if there are medications that can help you.
How long can we expect the treatment to last?
Please do your due diligence with this procedure! I had mine done in S. California and only met the Dr
in person the day of the procedure. Otherwise only by internet. If you can’t eyeball the Dr before the procedure, run! I met him just before the procedure and i immediately felt uneasy about him. He was aloof, seemed unsure of himself. At that point what was i to do? Anyway, I was on the gurney prepped and ready to go.
The Doc starts the ultrasound and zaps me 5 times, for 3-4 minutes stopping for a couple minutes to check my progress. He increased the intensity of the ultrasound each time. By the fourth zap the ultrasound was bouncing around on my forehead giving me great pain down to my eyes. I hit the emergency button and it took them about 20 seconds to turn the ultrasound off. Back to the 3rd zap: the ice water cold pack on top of my scull stopped circulating and I could feel my skull warming up. They stopped the ultrasound and fiddled with the coldpack. Then back to ultrasound. I was feeling pretty uncomfortable, but the 4th zap happened as described above. The team coerced me into the 5th zap where I again hit the emergency button. The long & short was a $1200 bill, a stroke and inability to walk for 4 weeks. Didn’t find out about the stroke until a week later at home!
REALLY check out your Doctor’s expertise and ask many detailed questions about the procedure itself. By the way, my tremors are worse than before! Good luck!
I live in CA. Can you please let me know the hospital and doctor treating you?
IT CHANGED MY HUSBANDS LFE. He had the HIFU - High Intensity Focused Ultrasound on his brain to burn the area causing his Parkinsons tremors. It not only helped his tremors but his cognitive, feeling of falling forward, does not drag his leg and his arm moves again. IF YOU HAVE PARKINSONS LOOK INTO IT. I have my husband back and while it does not cure Parkinsons it has enabled him to get back to a normal life.
how much time gone since ur husband had this focused ultrasound and how much improvement is he feeling. which place and which doctor you got this treatment from
Pam. Thank you so much for sharing such positive information. Could you let us know where did your husband had his HIFU? Also the cost. Is it covered by insurance? Gratefully.
In the literature that I have read there is significant risk to the focused ultrasound treatment. I had lived with essential tremors for more than 20 years. A year ago I underwent a surgical procedure called Deep Brain Stimulation. I judged it a much safer procedure because not only was it preceded by an MRI, but the surgeon could physically determine the location do the motion center in the brain by manipulating the probe. The real bonus was that both sides of the brain were corrected in the same procedure.
How much of a reduction in your tremors did you experience?
Would like to know the same, and if any side effects? What age are You? I'm only 27 but already tired of the shakes
What is the name of the procedure?
My father had the surgery as well. He still shakes terribly. I’m trying to research this now to see if he’s still a candidate after having a probe implanted in his brain. I do not want to see him go through brain surgery again. Not to mention they only did one side of the brain. They can only do one side at a time so I’m wondering about what you said. My father wants to get the other side done , I feel the risks of having brain surgery plus having 1 or two implants in the brain not to mention the box also implanted that you have to charge for the rest of your life and have future surgeries to have the battery replaced could be better. Also the cost is far greater if you can even afford it. This seems so much safer and better. I hope my dad is a candidate ❤
I would love an update on this patient. Supposedly the effects from this treatment diminish over time, and it cannot be repeated.
It is a very interesting concern. How long the treatmant last?
If this is true, then there is no point in doing it.
How much does the treatment cost in dollars
What if a person has extreme claustrophobia like me? Can you give them something like Ativan during the procedure to help them not freak out and still be awake?
Wow , I have had essential tremors since I was 15 years old. I am 63 now . My tremor is worse on my left side . It is so embarrassing drinking in front of people. I have been on propranolol slow release for years , but they don't help .
Can this work for dystonia hand tremor? My mom has it in her right hand, it shakes as soon as she grabs any object with it, and she does complain of pain in her neck and knee but no tremors. Would this work for her hand tremor? Please let me know so i can get a referral for this.
PARKINSON'S Disease has been said to start in some young teens. Might be worth checking out. I was having Tremors back when I was in my 30's but some of the symptoms went back even more years. It's more revealing as we age. There shouldn't be calcium in the Basal ganglia of the brain. I have Parkinson's now.😮
In 2017 I did DBS for tremors that I have in my both hands. I’m in pain from second part of surgery until now, I just find out about this. And I want to know if I remove my DBS. Is this going to help me? Please I need help
Hiii
We are going through same
Did anyone reply for you
Does this work with head tremor? I really need the answer, please.
From what I understand, it will help with arm, leg, head and voice tremors. It is a hard task convincing your doctor to do it. I'm trying to make it happen for myself, I'm only 30 I shouldn't shake like this
Hello, Linda.
Upon my research into this procedure, I found out that the Nuravive Treatment takes care of all aspects of Essential Tremors, as well as Parkinson's Disease related tremors. Further information could be found at usa.essential-tremor.com .
@@nottoday9182 I totally can relate to what you're feeling. I am 51 and had Essential Tremors all my life. (Back then, they didn't have a name for it.) If you're on medication and the tremors are still present, then this treatment is something to try. You need to find a neurologist that would be willing to send you out for the treatment. In the mean time, hang in there. When things get tough, step back, relax and try again.
@@nottoday9182 Why is it a hard task to convince the doctor to do it? Youre not asking for free
@@theanarchy4003 It is harder then you think, the one I was seeing think my head tremors are just anxiety
If my mri & EEG all scans are normal can focus ultrasound treatment works in such conditions kindly reply ... Please
My tremor is slight comparing with what I have seen in the internet, but I can feel it getting worse and stronger with time and I haven't visit a neurologist yet. Should I start my medication now or wait untill I got to the point where it affect my normal life activities.
.
Some times medication accelerate the progression process of se disease.
Hi Marwa. There are two types of medications for this disease which both just help you to manage it not curing it. I tried both. One of them is beta-blockers(slows down your heart rhythm which eventually slows down your tremors) and the other one is basically epilepsy pills(this blocks certain parts of your brain. I didn't like this one too much as I was feeling like dizzy all the time). After years, I decided to continue with half a pill beta blocker every morning. (for now)
We are 3 sisters with essential tremor from our father :) .My big sister she s 50 years old now ..she did not want to fallow the Beta -bloker tratament for the reson that get blood presure go down when she was taken. She is so much worse from Year to Year..I was starting propanolol beta blokers when i was 20 years old with 10 mg in the morning only ,now i m 37 and i m taking 40 mg 3 times per day ..i stop shaking in 30 -60 min after i take the pill ..I can have a normal life with them .When i m tierd or stress situation it getting worse and i have to take a new pill every 4-5 hours .I hope they will find a treatment for this .Our little sis She s 32 ..and she take beta blokers sometimes only ..when she have a bussy day or stress situation .Wish you all of you all the best 💕Sory for my english, i m not a native 🤗
@@cnpnrbs Hi Can! Thank you for the information, I haven't visited a doctor yet, I think I'm too scare to do that, but I'm somehow convenced with the beta-blockers. My question to you is how did you cope with this disease? + I know the medication won't cure it but does it stabilize it?
hi Ila!
So sorry for the late reply "I was traveling" and thank you for sharing your story, it gave me some relief and courage :).Hopefully, they find a final cure soon.
May God bless you and your sisters. stay safe!
Hey guys, I'm 20 and base on research. I think I've ET too. It's really stressful at the gym as I tremor a lot while lifting weights. Any lifestyle suggestions? Should I begin medication?
Thank you for the video,
It helped me a lot
Will this procedure work for head tremors ?
Where are these treatment centers locations in the USA?
I can’t wait to have this procedure
I am also a essential tremor patient since 55 years
Is this short term or permenant treatment?
Short-term, I believe. The effects taper off after several months or years, depending on the person.
@Дмитрий Кирсанов yes my hands is shaking
He is very fortunate
I need to find this in Houston Texas
See my comments above. ArtN
Is this treatment available in India.pl inform.
not yet, you have to get medical visa for treatment.
How long does the treatment last? Does Anthem cover it?
Hello, @WILEY EARLY .
The treatment could last from several weeks or months, to up to 3 years. It all depends on how successful the procedure is.
Thank you