My elevated IgM was found summer of ‘16. My IgA is now elevated. My ESR/SED was discovered to be at 86 & CRP 55 in ‘14?! I have all sorts of fun pain & 🙃 fatigue. Was dx 3c cc ‘07. Considered 10 yrs cured, but every 1-3 yrs w/ colonoscopies the most dangerous flat sessile polyps are removed. My paternal gpa died from cc. My mother has OA, some RA, & new vasculitis of ILD/PF. After IgM spike was discovered, I had a bone marrow biopsy & no protein found. I’ll be seeing my oncologist for the rest of my life! Thank God she’s my favorite Dr! 🙂
Btw...I’m so preoccupied listening to your video that I forgot to thank you for making this video! You are so right about focusing on who & what really matters, etc! Also, my rheum said a cpl yrs ago that I could end up w/ a Lupus dx. 🤷🏻♀️
I'm in construction, so I've had my share of bumps and bruises and brought up in the cliche that men don't cry or buck up and get back on the horse. So I've had issues through the years like shoulder surgery on both shoulders and back pain, the kind that you are hospitalized with but no surgery. So in the case of back pain, chiropractitioners and masseuse care along with Asian medicine seemed to do the trick. Why am I telling you all this, well it's because I want you to get an idea that I don't go to doctors unless something is really messed up. There was a period of time before I was diagnosed with MGUS that I was living on ibuprofen, Aleve,Tylenol and aspirin, even some stronger things after Doctors got involved. The latest issues involved hand and foot pain. The pain in my Thumbs especially ( this lead me to complete disability ) I was unable to work at all and just barely able to care for my personal needs. It's like walking around ( without ) hands because it hurt so severe to touch the thumbs against any objects let alone hold or grab anything at all. Going to the bath room? Major chore for sure. It hurt just to pull up my underwear. It was through doctoring for my hands, that lucky for me, someone decided to do some extra blood testing. This form of blood testing found something, that's all they would say but we need you to see an oncologist to hear the results. I had to wait 4 weeks to even see the oncologist so the fear built up waiting and I feared the worst, just like all of us during that time. The waiting - yikes, right? First sentence out of his mouth was you want the good news or the bad news first? I said, I've been waiting and preparing myself for 4 weeks, tell it like it is. I remember him saying MGUS, no cure, nothing he could do for me but to monitor my blood and how aggressive it maybe in years ahead . Then, it was as if, I was in a fog and things he was saying a blur in my mind and more fear. Live your life fully now, you have time, your going to be around for a while so don't panic but make the best of each day, I've seen other patients exactly like you and you may not be with us in 5 years but then again some, like yourself, could live as long as or until age 75 but that's about it, you will have numerous health issues, but you may pass from some of those health issues, in which MGUS is the factor causing those health issues. My head was trying to absorb and deal with what my ears listened to but I was in a fog and all was blurry, I felt like I wanted to faint but I didn't. Much of the medical words just went over my head and I didn't understand much of it and still don't have a solid grip on that most of the time . He never once brought up chemo therapy or radiation therapy, so I did. That won't work for your issues, was his answer. I had already made up my mind previous to my appointment that if it came down to having chemo or radiation that I would not anyway under no circumstance from things that I had looked up. It was sort of a relief to find out, he was the kind of doctor that wouldn't use those Therapies or so called remedies just to make a buck. Thank goodness but he did say that much later on when I was really unhealthy if I wanted to buy myself an extra month or two that maybe then chemo may be an option for me but he highly recommended that I forgo that and just let nature take its course and spare my suffering. Wow right , truth be told. I'm actually quite appreciative of this particular doctor, I mean what if I ran into a real greedy sob. Hehe Well again all he had for me was to monitor my illness as it progresses and it is something I do. When I got home after that appointment just like many of you, you can imagine how traumatized I was, I really didn't want to tell my family in detail what was happening I just said, nothing to worry about short term a wait and see game to monitor in the future. My hand and Thumb pain was more the issue now and we concentrated on trying to resolve that. But secretly I was a mess inside and didn't know where to turn or what to do, I was losing hope. There was no protocol after leaving the oncologist to follow, no real hope and one day I decided to see what the internet had to say. Wow, Wow, Wow!!!! Hope restored YES !!!!! Thank goodness!!!! All kinds of homeopathic, Health and Wellness things to discover and ReDiscover. Tumeric, curcumin, sodium bicarbonate therapy, peroxide, pH level alkalizing your body, foods that help you battle against life-threatening illnesses such as cancer and others. Cellular healing nutrition getting to know our bodies better than ever before and what feeds them and restores them instead of the toxic and corrosive, chemical crap full of GMO and preservatives most of us ingest. We can also find how to help fortify our immune system naturally there is so much on the internet to explore and discover. I want you all to know that in my research to help myself I have found wonderful products that I know scientifically are helping me and I have blood testing that proves the results I have been in touch with other people who are using these products and have a variety of Wonderful news to share in there own recovery. As you all do your own research you're going to come across stories of doctors that have been jailed and locked up and even murdered because they found things that definitely help. There are people in the past that you will find that have said out loud that they have found a cure for Cancer but that is how they ended up in trouble. I'll say, read their stories and listen to what they had to say and judge for yourself. I myself will not use the word cure for I am still living with MGUS but at low levels, much lower than most of you. My M-spike level in 2018 is a .02 and my Thumbs are extremely better however I was diagnosed with degenerative joint and bone illness. I am no longer disabled I still working construction part time. Part-time of my own choosing. I am working very passionately with folks that are helping others, we all have our own stories to share but we have found products that we know without a shadow of a doubt will help. I say again, Help. I want to help each and everyone of you that are interested in New Information and a New Product , now available in the USA and 34 our Countries. So please send me a personal message. All the information is Free. I ask only that you research the information and make the best decision for yourself. Thank You
I was diagnosed with MGUS initially this month, but have had problems for years with pain getting worse. The doctor isn't quite sure what else is going on and I had a second blood test done yesterday to determine if my Polyneuropathy is related to the MGUS. I have periods of nausea, fatigue and bone pain so I'm obviously concerned that it might be more. I don't what is more frustrating, the symptoms or the tests and waiting. He said I am a zebra where he usually sees horses in his cases, I'm that complicated. Thank you for your video.
Hi Brtiney - Fellow young person here with MGUS (37m). I also have IGG Lambda MGUS. Low risk for now with no known organ issues or bone lesions detected as of my lasts tests (around 9 months ago). Ironically my Kappa numbers are high too, even though the Lambda numbers are higher. My FLC was normal at last check. I also have noticed some odd symptoms - I've had numbness in my hands and feet (but it really comes and goes). I know this video was posted around 4 years ago but have you had any developments or any other insights since you were diagnosed? I've only known about my own MGUS for a couple of years now, so only 2 to 3 rounds of tests have been done. I've wanted to ask my hematologists about viruses, auto-immune issues, Amyloidosis, inflammation as well but when I bring these issues up, they don't seem to really take them into consideration much. Do you have any sources of where there might be more information on these topics? I wasn't aware people had MGUS that went away - all my my doctors have told me it's incurable, so that's really fascinating to hear about. I went to Thailand a few years ago, got really sick after accidentally drinking the water there and then not long after that (maybe a year later), the MGUS appeared during routine blood-work. A genetic test also revealed that I'm at risk of Celiacs too. I've always wondered if my MGUS might be a result of these other issues but have no idea where to find more information about these topics at. Any help / updates would be great!
When mgus is a result of autoimmune diseases they are at a lower risk of progression, and some clear up on their own. I will post links to studies I've read and a life/health update soon. It will be in about a week!
Thank you so much, Britney Nicole... For sharing your experience with MGUS... You answered more questions for me than my Hematologist did...God Bless....
Lucky those who have been cured. Thank you for your information. So last year to my surprise got diagnosed with Mprotein in my bloodwork via my parathyroid. Might you know if there are support groups. So you suggest get tested additional bloodwork like autoimmune. Glad you're at peace I'm not but I guess I'm letting my anxiety take over.
Hi. My partner has had MGUS for 5 years with no activation of the disease as yet🤞 Hoping for the best for you. CBD oil is said to work wonders with Myeloma. ❤
Look into and research ( Omega-3 and Omega-6 Balance ) , Cellular illness and healing , MGUS, Cancer, bone pain. Then contact me and I'll explain what I found out.
Hey I’ve been diagnosed with mgus a year ago.. I pray that all is well with you. I’ve experienced being fatigue . Will you give a update on your journey. Thanks 🙏🏾
Yes! I do plan in filming soon. I'm sorry you've been dealing with fatigue, it is miserable feeling there is a difference in your body that you cannot control. I hope you and your physicians are able to address it and find some ways to combat it❤
Attila Sarfi my appointment is March 26, I believe (I have to double check lol). I haven't had my m-spike checked since my last oncology appointment in March 2017. It was .27 d/L I believe. I know other people use the g/L (??) conversion and I think it would be a 2.7. It was very low when found in Oct 2016 (.27 d/L), fluctuated a bit at 3 month check up (my light chains have been continually high) and then dropped back down to .27 in March 2017. There has been talk of Lupus on and off for 4 years now because I have weird systemic inflammation and issues that look a lot like Lupus. I am going to push for a bone marrow biopsy this year because I am very curious to see what exactly is going on.
Britney Nicole I think they measure in grams per deciliter (1/10th of a liter) so if you were low it was likely .27g/dL... or .027 g/L. Mine was .7 g/dL in October/ November when my Neuro was looking for reasons for my neuropathy..... sent to blood Dr oncologist.... so SO many tests, marrow aspirate done but they could not get the marrow biopsy.... guess my tail is as hard as my head. I'm just learning about all this lambda IgM stuff... going to my Neuro on Monday. Fingers crossed I get done answers.
Attila Sarfi well hard bones is a good sign with a monoclonal gammopathy! Lol and thanks for clarifying the measurements! I can remember the numbers, it is all the letters afterward that trip me up. 😂 I will be keeping you in my thoughts and prayers! I know from what I read an IgM gammopathy can cause neuropathy more consistently than other types (although we can get it too).
Britney Nicole I want to say I have the IgM lambda but my IgA is running low. A lot of my numbers fall within "ref range" but are just on the cusp of highs or lows.... my creatinine clearance was 4x the upper limit but my blood doc wasn't phased by it at all... high sedimentation rate... white cells slightly out of whack.... but here's the real kick in the pants: I have a slew of "different" medical diagnosises (plural, I know that's not correct spelling) yet none are related to the others? Come on! I firmly believe that there are 1 or maybe 2 root issues that are causing all of the chaos going on in my body. I'm gonna bring it up to my Neuro doc since he actually seems to care to get at the problems and help me out. I'll try to update if he's got anything of value to add.... I reckon more blood work, maybe other scans, etc.... who knows. And not being able to donate blood is a bummer for me too.... I'm ab- which I think is one of the "desirables"... take care, be you, & thanks for posting your vids. I subbed and turned on my notifications so I should get your next update. Be blessed.
Britney Nicole saw on one of your vids how to connect to you on fb. Would like to connect without spilling all my beans on a public forum. Found a good group tho in fb-land.
I have read a lot information I see very little different between mgus and myeloma just the amount of cells,,, I’d be interested to know more from what you have found out ,,,
thunderstrike2525 odinson I have dug around quite a bit looking for studies. American Cancer Society had a really good article on monoclonal gammopathies.
Yes I have two I have a lot understanding now the cell lines were the cell line seems to be valuable to mutation,,,it would seem all imflmation seems key to this And the chromosomes specially chromosomes 2 ,,, 6 ,,, 22 ,,, seem to have a big part to play,,, I be asking for my cell line to see where the exact mutation is,,,, I see,,, that ,,, immunetherpy witch looks very interesting,,,, but they all look at myeloma,,,, I think they should definitely look at mgus,,,, this seems to be the first stage ,,,, we’re it all happens,,,,, I do think that..... I see new criteria other than crab now,,,,, I have a lot what you have,,,, I really don’t see the difference,,,, between mgus smouldering myeloma and mm,,,,, I thinking that it’s the same deaisees but just at a different stage,,,, I see interferon is been looked at for mgus and myeloma,,, treatments,,,, I also see nhl none Hodgkin Lymphoma is also linked to mgus,,, and a frew others as well,,,, can you do a video on your symptoms that you have,,,,,, please,,,, the monoclonal antibody,,,, is a very interesting research,,,,, on this,,,, 😏❄️❄️,,,,, very interesting on the blood,,,, giveing,,, very serpised,,,, thankyou very much,,,, I seee you on the right track with mgus and myeloma,,,,,,, 🤭😋,,,,,,
If the diseases stays at the MGUS stage the person has close to average life span... There is no significant shortening of life!! 🖤🖤 Mgus acts almost as an autoimmune disease for some patients, others may see some chronic kidney issues, especially as they become elderly, and some develop osteoporosis, but MGUS does not present significant issues like Multiple Myeloma or related late stage diseases. I hope that helps. 🖤🖤
@@BritneyNicoleandMyeloma my husband is suffering from monoclonal gammopathy in renal significance...doctor prescribed CTD...and diet for kidney...he has pain and numbness in his body....any remedy? Please support
@@mylifemyrules349 I have neuropathy as well (pain and numbness) topamax was prescribed and has helped my nerve pain tremendously. I also have adopted a lot of lifestyle changes to support my body now that it is fighting the monoclonal gammopathy. I rest when I need rest. When the weather is nice I try to sit out and enjoy the weather as it helps with my energy levels and mood. I practice gentle exercise and when I feel well do more rigorous exercise. I try to eat mostly vegetables and fruit as it agrees with my digestive system the best. I also receive physical therapy throughout the year to keep me active and well. Every person is different. With the support of your physician, you and your husband can experiment and find therapies that can help his body feel better. Unfortunately, there is a good chance he won't feel like he did before the monoclonal gammopathy, but he can feel better than he does now. ✨✨ Blessings to your family.
You must love Jehovah your God with all your heart and with all your soul and with all your mind and with all your strength. You must love your neighbor as yourself. Jesus the Anointed is Lord! Repent and be baptized and believe the gospel.
My elevated IgM was found summer of ‘16. My IgA is now elevated. My ESR/SED was discovered to be at 86 & CRP 55 in ‘14?! I have all sorts of fun pain & 🙃 fatigue. Was dx 3c cc ‘07. Considered 10 yrs cured, but every 1-3 yrs w/ colonoscopies the most dangerous flat sessile polyps are removed. My paternal gpa died from cc. My mother has OA, some RA, & new vasculitis of ILD/PF. After IgM spike was discovered, I had a bone marrow biopsy & no protein found. I’ll be seeing my oncologist for the rest of my life! Thank God she’s my favorite Dr! 🙂
Btw...I’m so preoccupied listening to your video that I forgot to thank you for making this video! You are so right about focusing on who & what really matters, etc! Also, my rheum said a cpl yrs ago that I could end up w/ a Lupus dx. 🤷🏻♀️
Thanks for watching and sharing your story! The immune system is a fickle little thing isn't it? I hope it never gets worse for you! 💕
I'm in construction, so I've had my share of bumps and bruises and brought up in the cliche that men don't cry or buck up and get back on the horse.
So I've had issues through the years like shoulder surgery on both shoulders and back pain, the kind that you are hospitalized with but no surgery. So in the case of back pain, chiropractitioners and masseuse care along with Asian medicine seemed to do the trick. Why am I telling you all this, well it's because I want you to get an idea that I don't go to doctors unless something is really messed up.
There was a period of time before I was diagnosed with MGUS that I was living on ibuprofen, Aleve,Tylenol and aspirin, even some stronger things after Doctors got involved. The latest issues involved hand and foot pain. The pain in my Thumbs especially ( this lead me to complete disability ) I was unable to work at all and just barely able to care for my personal needs. It's like walking around ( without ) hands because it hurt so severe to touch the thumbs against any objects let alone hold or grab anything at all. Going to the bath room? Major chore for sure. It hurt just to pull up my underwear.
It was through doctoring for my hands, that lucky for me, someone decided to do some extra blood testing. This form of blood testing found something, that's all they would say but we need you to see an oncologist to hear the results.
I had to wait 4 weeks to even see the oncologist so the fear built up waiting and I feared the worst, just like all of us during that time. The waiting - yikes, right?
First sentence out of his mouth was you want the good news or the bad news first? I said, I've been waiting and preparing myself for 4 weeks, tell it like it is. I remember him saying MGUS, no cure, nothing he could do for me but to monitor my blood and how aggressive it maybe in years ahead . Then, it was as if, I was in a fog and things he was saying a blur in my mind and more fear. Live your life fully now, you have time, your going to be around for a while so don't panic but make the best of each day, I've seen other patients exactly like you and you may not be with us in 5 years but then again some, like yourself, could live as long as or until age 75 but that's about it, you will have numerous health issues, but you may pass from some of those health issues, in which MGUS is the factor causing those health issues. My head was trying to absorb and deal with what my ears listened to but I was in a fog and all was blurry, I felt like I wanted to faint but I didn't. Much of the medical words just went over my head and I didn't understand much of it and still don't have a solid grip on that most of the time . He never once brought up chemo therapy or radiation therapy, so I did. That won't work for your issues, was his answer.
I had already made up my mind previous to my appointment that if it came down to having chemo or radiation that I would not anyway under no circumstance from things that I had looked up. It was sort of a relief to find out, he was the kind of doctor that wouldn't use those Therapies or so called remedies just to make a buck. Thank goodness but he did say that much later on when I was really unhealthy if I wanted to buy myself an extra month or two that maybe then chemo may be an option for me but he highly recommended that I forgo that and just let nature take its course and spare my suffering. Wow right , truth be told. I'm actually quite appreciative of this particular doctor, I mean what if I ran into a real greedy sob. Hehe
Well again all he had for me was to monitor my illness as it progresses and it is something I do.
When I got home after that appointment just like many of you, you can imagine how traumatized I was, I really didn't want to tell my family in detail what was happening I just said, nothing to worry about short term a wait and see game to monitor in the future. My hand and Thumb pain was more the issue now and we concentrated on trying to resolve that. But secretly I was a mess inside and didn't know where to turn or what to do, I was losing hope. There was no protocol after leaving the oncologist to follow, no real hope and one day I decided to see what the internet had to say.
Wow, Wow, Wow!!!! Hope restored YES !!!!! Thank goodness!!!!
All kinds of homeopathic, Health and Wellness things to discover and ReDiscover. Tumeric, curcumin, sodium bicarbonate therapy, peroxide, pH level alkalizing your body, foods that help you battle against life-threatening illnesses such as cancer and others. Cellular healing nutrition getting to know our bodies better than ever before and what feeds them and restores them instead of the toxic and corrosive, chemical crap full of GMO and preservatives most of us ingest. We can also find how to help fortify our immune system naturally there is so much on the internet to explore and discover.
I want you all to know that in my research to help myself I have found wonderful products that I know scientifically are helping me and I have blood testing that proves the results I have been in touch with other people who are using these products and have a variety of Wonderful news to share in there own recovery.
As you all do your own research you're going to come across stories of doctors that have been jailed and locked up and even murdered because they found things that definitely help. There are people in the past that you will find that have said out loud that they have found a cure for Cancer but that is how they ended up in trouble. I'll say, read their stories and listen to what they had to say and judge for yourself. I myself will not use the word cure for I am still living with MGUS but at low levels, much lower than most of you. My M-spike level in 2018 is a .02 and my Thumbs are extremely better however I was diagnosed with degenerative joint and bone illness.
I am no longer disabled I still working construction part time. Part-time of my own choosing. I am working very passionately with folks that are helping others, we all have our own stories to share but we have found products that we know without a shadow of a doubt will help. I say again, Help.
I want to help each and everyone of you that are interested in New Information and a New Product , now available in the USA and 34 our Countries. So please send me a personal message. All the information is Free. I ask only that you research the information and make the best decision for yourself.
Thank You
I find that Omega-3 and Omega-6 Balance is important.
Mark Orvik thank you
I have MGUS, don't worry, and haven't even done my bood tests last year. Playing with fire? No, I just want to live a normal life.
I was diagnosed with MGUS initially this month, but have had problems for years with pain getting worse. The doctor isn't quite sure what else is going on and I had a second blood test done yesterday to determine if my Polyneuropathy is related to the MGUS. I have periods of nausea, fatigue and bone pain so I'm obviously concerned that it might be more. I don't what is more frustrating, the symptoms or the tests and waiting. He said I am a zebra where he usually sees horses in his cases, I'm that complicated.
Thank you for your video.
I'm sorry you have dealt with some health issues, I hope you find a pathway to manage your symptoms! Thank you for watching!
Hi Brtiney - Fellow young person here with MGUS (37m). I also have IGG Lambda MGUS. Low risk for now with no known organ issues or bone lesions detected as of my lasts tests (around 9 months ago). Ironically my Kappa numbers are high too, even though the Lambda numbers are higher. My FLC was normal at last check. I also have noticed some odd symptoms - I've had numbness in my hands and feet (but it really comes and goes). I know this video was posted around 4 years ago but have you had any developments or any other insights since you were diagnosed? I've only known about my own MGUS for a couple of years now, so only 2 to 3 rounds of tests have been done. I've wanted to ask my hematologists about viruses, auto-immune issues, Amyloidosis, inflammation as well but when I bring these issues up, they don't seem to really take them into consideration much. Do you have any sources of where there might be more information on these topics? I wasn't aware people had MGUS that went away - all my my doctors have told me it's incurable, so that's really fascinating to hear about. I went to Thailand a few years ago, got really sick after accidentally drinking the water there and then not long after that (maybe a year later), the MGUS appeared during routine blood-work. A genetic test also revealed that I'm at risk of Celiacs too. I've always wondered if my MGUS might be a result of these other issues but have no idea where to find more information about these topics at. Any help / updates would be great!
When mgus is a result of autoimmune diseases they are at a lower risk of progression, and some clear up on their own. I will post links to studies I've read and a life/health update soon. It will be in about a week!
Thank you so much, Britney Nicole... For sharing your experience with MGUS... You answered more questions for me than my Hematologist did...God Bless....
Lucky those who have been cured. Thank you for your information. So last year to my surprise got diagnosed with Mprotein in my bloodwork via my parathyroid. Might you know if there are support groups.
So you suggest get tested additional bloodwork like autoimmune. Glad you're at peace I'm not but I guess I'm letting my anxiety take over.
Hi. My partner has had MGUS for 5 years with no activation of the disease as yet🤞 Hoping for the best for you. CBD oil is said to work wonders with Myeloma. ❤
What is dis cbd oil?
It’s nice to meet you I have mgus ,,, as well
thanks thats helpful
Look into and research ( Omega-3 and Omega-6 Balance ) , Cellular illness and healing , MGUS, Cancer, bone pain. Then contact me and I'll explain what I found out.
Thank-you for your videos they are really helpful 🥰
I'm so happy you have found them useful! 💗
Hey I’ve been diagnosed with mgus a year ago.. I pray that all is well with you. I’ve experienced being fatigue . Will you give a update on your journey. Thanks 🙏🏾
Yes! I do plan in filming soon.
I'm sorry you've been dealing with fatigue, it is miserable feeling there is a difference in your body that you cannot control. I hope you and your physicians are able to address it and find some ways to combat it❤
When in March is your Dr appointment? Also wondering what your m-spike level was/ is?
Attila Sarfi my appointment is March 26, I believe (I have to double check lol). I haven't had my m-spike checked since my last oncology appointment in March 2017. It was .27 d/L I believe. I know other people use the g/L (??) conversion and I think it would be a 2.7. It was very low when found in Oct 2016 (.27 d/L), fluctuated a bit at 3 month check up (my light chains have been continually high) and then dropped back down to .27 in March 2017.
There has been talk of Lupus on and off for 4 years now because I have weird systemic inflammation and issues that look a lot like Lupus. I am going to push for a bone marrow biopsy this year because I am very curious to see what exactly is going on.
Britney Nicole I think they measure in grams per deciliter (1/10th of a liter) so if you were low it was likely .27g/dL... or .027 g/L. Mine was .7 g/dL in October/ November when my Neuro was looking for reasons for my neuropathy..... sent to blood Dr oncologist.... so SO many tests, marrow aspirate done but they could not get the marrow biopsy.... guess my tail is as hard as my head.
I'm just learning about all this lambda IgM stuff... going to my Neuro on Monday. Fingers crossed I get done answers.
Attila Sarfi well hard bones is a good sign with a monoclonal gammopathy! Lol and thanks for clarifying the measurements! I can remember the numbers, it is all the letters afterward that trip me up. 😂
I will be keeping you in my thoughts and prayers! I know from what I read an IgM gammopathy can cause neuropathy more consistently than other types (although we can get it too).
Britney Nicole I want to say I have the IgM lambda but my IgA is running low. A lot of my numbers fall within "ref range" but are just on the cusp of highs or lows.... my creatinine clearance was 4x the upper limit but my blood doc wasn't phased by it at all... high sedimentation rate... white cells slightly out of whack.... but here's the real kick in the pants: I have a slew of "different" medical diagnosises (plural, I know that's not correct spelling) yet none are related to the others? Come on! I firmly believe that there are 1 or maybe 2 root issues that are causing all of the chaos going on in my body. I'm gonna bring it up to my Neuro doc since he actually seems to care to get at the problems and help me out. I'll try to update if he's got anything of value to add.... I reckon more blood work, maybe other scans, etc.... who knows.
And not being able to donate blood is a bummer for me too.... I'm ab- which I think is one of the "desirables"... take care, be you, & thanks for posting your vids. I subbed and turned on my notifications so I should get your next update.
Be blessed.
Britney Nicole saw on one of your vids how to connect to you on fb. Would like to connect without spilling all my beans on a public forum. Found a good group tho in fb-land.
Hi Baby Girl this is Ms Joy how are you doing and feeling tonight with love and prayers to you and MOM MS Joy with love
I am feeling good. Thank you for reaching out 🖤🖤🖤 I hope you are doing well Ms Joy!
❤ ❤ ❤
I have read a lot information I see very little different between mgus and myeloma just the amount of cells,,, I’d be interested to know more from what you have found out ,,,
thunderstrike2525 odinson I have dug around quite a bit looking for studies. American Cancer Society had a really good article on monoclonal gammopathies.
Yes I have two I have a lot understanding now the cell lines were the cell line seems to be valuable to mutation,,,it would seem all imflmation seems key to this And the chromosomes specially chromosomes 2 ,,, 6 ,,, 22 ,,, seem to have a big part to play,,, I be asking for my cell line to see where the exact mutation is,,,, I see,,, that ,,, immunetherpy witch looks very interesting,,,, but they all look at myeloma,,,, I think they should definitely look at mgus,,,, this seems to be the first stage ,,,, we’re it all happens,,,,, I do think that..... I see new criteria other than crab now,,,,, I have a lot what you have,,,, I really don’t see the difference,,,, between mgus smouldering myeloma and mm,,,,, I thinking that it’s the same deaisees but just at a different stage,,,, I see interferon is been looked at for mgus and myeloma,,, treatments,,,, I also see nhl none Hodgkin Lymphoma is also linked to mgus,,, and a frew others as well,,,, can you do a video on your symptoms that you have,,,,,, please,,,, the monoclonal antibody,,,, is a very interesting research,,,,, on this,,,, 😏❄️❄️,,,,, very interesting on the blood,,,, giveing,,, very serpised,,,, thankyou very much,,,, I seee you on the right track with mgus and myeloma,,,,,,, 🤭😋,,,,,,
Yes so many things upto 60 known deaisees ,,,that seemed linked to it,,,, mgus
When someone has mugs how many years he or she can live?
If the diseases stays at the MGUS stage the person has close to average life span... There is no significant shortening of life!! 🖤🖤 Mgus acts almost as an autoimmune disease for some patients, others may see some chronic kidney issues, especially as they become elderly, and some develop osteoporosis, but MGUS does not present significant issues like Multiple Myeloma or related late stage diseases.
I hope that helps. 🖤🖤
@@BritneyNicoleandMyeloma my husband is suffering from monoclonal gammopathy in renal significance...doctor prescribed CTD...and diet for kidney...he has pain and numbness in his body....any remedy? Please support
@@mylifemyrules349 I have neuropathy as well (pain and numbness) topamax was prescribed and has helped my nerve pain tremendously. I also have adopted a lot of lifestyle changes to support my body now that it is fighting the monoclonal gammopathy. I rest when I need rest. When the weather is nice I try to sit out and enjoy the weather as it helps with my energy levels and mood. I practice gentle exercise and when I feel well do more rigorous exercise. I try to eat mostly vegetables and fruit as it agrees with my digestive system the best. I also receive physical therapy throughout the year to keep me active and well.
Every person is different. With the support of your physician, you and your husband can experiment and find therapies that can help his body feel better.
Unfortunately, there is a good chance he won't feel like he did before the monoclonal gammopathy, but he can feel better than he does now.
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Blessings to your family.
Thanks for your feedback... 💚💚💚
You must love Jehovah your God with all your heart and with all your soul and with all your mind and with all your strength. You must love your neighbor as yourself. Jesus the Anointed is Lord! Repent and be baptized and believe the gospel.
I did all those things a long time ago... this isn't a proselytizing space, honey.