Pauline: LGi1 Autoimmune Encephalitis Lived Experience

Pauline was affected by autoimmune LGI1 encephalitis in 2015 and then again in 2017. Here she shares her story and experiences with us.
This film is part of our My Brain and Me Project.
You can learn more about LGI1 here: www.encephalit...
------------------------------------------------------------------------------------------------------------------------------------------------------------------
If you have been affected by encephalitis and are in need of some support, please visit www.encephalit...
If you would like to stay up to date with our news and events please sign up to our mailing list here: www.encephalit...
Support our work providing help and assistance to families affected by encephalitis by visiting: www.encephalit...
------------------------------------------------------------------------------------------------------------------------------------------------------------------
Follow Encephalitis International:
Facebook: / encephalitisinternational
X: / encephalitis
LinkedIn: / encephalitisinternational
Instagram: / encephalitisinternational
TikTok: / encephalitisint

[@paulwoolfries3101]

Thank you for sharing your story with us Pauline. It's great to hear you are making good recovery and doing really well.

[@encephalitisinternational]

Thank you so much for watching and for your lovely words, Paul.

[@hannahfarrell8557]

Thank you for sharing Pauline!

[@encephalitisinternational]

Thank you for watching Hannah :)

[@rhysrocke7530]

Thanks for sharing Pauline. I hope you make a full recovery.

[@encephalitisinternational]

Thank you for watching, and for your kind words Rhys.

[@brittanylightbourn8896]

It 's great to hear you're doing better,And,All is well with you.

[@encephalitisinternational]

Thank you for watching, and for your well wishes Brittany :)

[@brittanylightbourn8896]

@@encephalitisinternational You’re welcome ,&,Thank you 🙂

[@paula_morton912]

Hi Pauline! I'm ever so sorry to hear that you had the same type as me in 201 that you were having focal seizures and being a charge nurse in the sane hospital as being treated My Lord you were still working during this time. 💔 I'm not surprised you felt strange then going ton to having had LGI1 Encephalitis so soon after. Aww it breaks my heart that you have lost your memory 💔.
I don't know how you had the guts to speak up publically at a London conference that's wonderful! I'm pleased to hear that you saw a neuropsychologist when you did and the MRI as well. I totally agree my friend you have made a brilliant recovery and it's good that you have a positive outlook on life (even if it is your new life) and living in the present.
You were one of the first lovely volunteers I have met and we have kept in touch on Twitter as well as on some volunteer zoom and some weekly zoom calls.
I wish you all the best for the future in all that you do. Keep fighting and stay positive my friend.
Paula

[@beeboo3648]

Thank you for sharing ☺️
Am I the only one who survived encephalitis at a very young age ( 9 months old )

[@encephalitisinternational]

Thank you for watching, and for your comment, Hbib. Alexander was the youngest person affected in our video stories to date, at the age of 6. You can watch his film here: th-cam.com/video/D32a69TrA10/w-d-xo.html. There are people affected at a wide range of ages active on our Encephalitis Community Forum: healthunlocked.com/encephalitis-society, or you can sign up to our connection scheme to be connected with others affected by encephalitis at a similar age: www.encephalitis.info/connection-scheme

[@user-qd7nv7zx1u]

Hi how long did it take u to wake up my sister is goin through this

[@encephalitisinternational]

We are so sorry to hear of your sister's encephalitis. You are not alone - we are here for you and your family. If you have any questions please don't hesitate to reach out for some support at [e-mail]

[@user-qd7nv7zx1u]

My sister is in Michigan it’s been a month where she’s in a coma after all the seizures and now she has a tube in her throat the doctors did her a surgery cuz they said cuz of nmda she had a tumor in ovarian they removed that tumor but she still isn’t waking up it’s been a month we are so worried for her 😔

[@paulinemurray3196]

Hi, I never lost consciousness, our journeys are all different. The staff at ES will help and support you if you call the support line. Best wishes