Mother shares her story about losing daughter to D.R.E.S.S. Syndrome

แชร์
ฝัง
  • เผยแพร่เมื่อ 26 ธ.ค. 2024

ความคิดเห็น • 19

  • @ednabarker6501
    @ednabarker6501 4 ปีที่แล้ว +7

    I went through this, it was horrible, all my organs started shutting down, I was on a vent for 2 months! My heart goes out to all that have to deal with this!❤️

    • @esanchez1321
      @esanchez1321 3 ปีที่แล้ว +1

      Hi. My niece is going through this right now she is only 16yo. What is the name of the doctor and hospital where you are treated?

    • @ednabarker6501
      @ednabarker6501 3 ปีที่แล้ว

      @@esanchez1321 I went to university of Kentucky, they did a excellent job! My thoughts and prayers go out to your niece and her family.

    • @ednabarker6501
      @ednabarker6501 3 ปีที่แล้ว

      I can’t remember the name of my doctor, I’m sorry

    • @psychedforlife7176
      @psychedforlife7176 2 ปีที่แล้ว

      I'm glad you survived it. I hope you have continued to recover.

  • @abbygreil8548
    @abbygreil8548 3 ปีที่แล้ว +4

    It seems like nobody knows much OF dress syndrome. I’m 20 and was just diagnosed two days ago. It’s been so miserable.
    For your daughter my heart breaks, I am so sorry for what you both went through. So so sorry.
    Prayers.

  • @maryberon4193
    @maryberon4193 2 ปีที่แล้ว

    Thank you so much for posting this.

  • @shoegal4271
    @shoegal4271 8 หลายเดือนก่อน

    I'm so sorry for your loss. I was diagnosed with DRESS in Dec 2023. My kidneys shut down and I spent 3 weeks at the James in Columbus, OH.

  • @singhjaskaran987
    @singhjaskaran987 5 ปีที่แล้ว +3

    I lost my Mother to DRESS syndrome caused by Drug - Indomethecin .It was prescribed to her by Orthopedic doctor for Plantar Fasciitis. She took the Medicine for about 3 weeks and after that she developed DRESS syndrome and died after 10 days due to Myocarditis, Multi Organ Dysfunction

    • @hannahwashere6467
      @hannahwashere6467 4 ปีที่แล้ว

      Hello, Jaskaran, thank you for posting, I believe we spoke when she was in the hospital. I'm so sad for your loss. We are here.

    • @leiladixon9486
      @leiladixon9486 3 ปีที่แล้ว

      Im so sorry for your loss 🖤

    • @brandillysmom
      @brandillysmom 3 ปีที่แล้ว

      Indomethicin is a major drug that can cause DRESS Syndrome. I took Carbamazepine, which is also a major culprit. I was at a doctors office during my recovery. While talking to my doctor, she told me that a relative had a severe reaction to Tylenol. It wasn’t DRESS Syndrome. It was Stevens-Johnson Syndrome. We all must be very careful.

  • @brandillysmom
    @brandillysmom 3 ปีที่แล้ว

    Like everyone else here, I have much sympathy for you losing your daughter in this most dreadful way.
    I took a generic form of Tegretol for 2 weeks in 2011. I am still suffering the after affects and all bodily systems except my nervous system was profoundly affected. I still consider myself as fortunate. The ER that my daughter brought me to had an expert on DRESS Syndrome from Japan visiting Harbor-UCLA Medical Center to teach residents and medical students about this condition. This doctor saved my life. I spent 10 days in ICU and at least 6 months to functionally recover. I was on moderate doses of prednisone and other immunosuppressants for at least a year. I still have to go on prednisone periodically for skin flare ups. But like I said, the recovery is not complete.
    I am disappointed to realize that DRESS Syndrome is still mysterious to American medical institutions. I hope for this to change, much sooner than later.

  • @stickonroad3576
    @stickonroad3576 3 ปีที่แล้ว +1

    She is just 24 years old

  • @damiettes7140
    @damiettes7140 7 หลายเดือนก่อน

    Why doesn’t this video start with the definition of DRESS syndrome?

  • @stickonroad3576
    @stickonroad3576 3 ปีที่แล้ว

    Hii friend hai have the same dress symphony

  • @stickonroad3576
    @stickonroad3576 3 ปีที่แล้ว

    Can u help

    • @ednabarker6501
      @ednabarker6501 3 ปีที่แล้ว +1

      I went to university of Kentucky! They knew what they were doing. Excellent staff

  • @stickonroad3576
    @stickonroad3576 3 ปีที่แล้ว

    I m from india kolkata