I feel you! We are vegetarians and to find food within this category was very tough. Today marks 3 months since her diagnosis. It took my kid about 3 weeks to get used to Oatmilk. She doesn't crave Pizza or milk anymore. Her pain in esophagus and stomach has reduced ! I can't wait to see the results of her next endoscopy! So, HANG in there and it will take TIME for this to kick in. If you ever need a list of what I feed my kid let me know and I can post it here. Good Luck and if anyone hasn't already told you, your going to kick EOE in its behind and come through for your kid!
Thank you so much for the comment and kind words! Here are some additional resources you may find helpful: education.giondemand.com/courses/a-nutritional-approach-to-eosinophilic-esophagitis GG Podcast episode "Growing Up With Eosinophilic Esophagitis (EoE)" podcasts.apple.com/us/podcast/growing-up-with-eosinophilic-esophagitis-eoe/id1545993954?i=1000522137258
Typically, yes; please see this informational video for more insight on this education.giondemand.com/courses/a-nutritional-approach-to-eosinophilic-esophagitis Here is a good article with more info fg.bmj.com/content/13/e1/e51
@@masonmalaguti3463 Yes, repeat endoscopy is one of the main challenges of dietary management of EoE. But each patient must work with their providers to find what works best for them. Here is an excerpt from a recent paper "Development of a Practical Guide to Implement and Monitor Diet Therapy for Eosinophilic Esophagitis" by Dr. Joy Chang et al www.sciencedirect.com/science/article/pii/S1542356523001866 "Many patient-level factors must be assessed when considering candidates for EoE dietary therapy, such as patient motivation, preferences and values, age or stage of life, lifestyle, work and living situation, willingness for frequent endoscopies, and possibly finances and insurance coverage for several endoscopies and dietitian costs (Table 2). Screening for cost or adherence barriers to implementing the diet, taking an inventory of the patient’s diet history, and assessment of current nutritional status are important in this decision.63 In addition to offering diet as an effective and viable alternative to medication, one must work with the patient to weigh these factors in choosing a therapy plan that is concordant with patient preferences and successful. Although not addressed in detail here, particular care and involvement with a dietitian is necessary for pediatric patients on dietary therapy given specific considerations for growth, development, feeding ability and screening for feeding aversion disorders, and parent and family preferences."
@@GastroGirl the only people that are able to do endoscopies for food like this aree the one percent im in eoe reddit and facebook groups ive talked to hundreds of people and less then 0.001 percent of them were able to afford to scope after every food I only been eating beef, rice, chcken, blueberries, pineapple, water, salt, and i still havent been able to lower my eosonophils TOns of eoe patients get screwed by the medical system and not taken seriously ive seen dieticians they didnt know what to do gastroenterologists dont seem to know what to do and allergist just be saying dupixient which im going to have to do bc nothings worked for me and when nothing works the medical community just ghosts you
I am sickened by how america has all these deseases and it is because of what is done with the food here they want some people to pay just to eat @@GastroGirl
Can it be caused by environmental allergens and not food? It's been 2 years that I get the symptoms when I am at my workplace. When I am away from work for a long period I feel much better and symptoms go away after a few days. I go back to work and the symptoms come again! 😢 Can it be linked to hyperhomocysteinemia?
They have to play a factor. I've been eating the same foods and haven't had issues since a flare up 7 years ago . And all of a sudden I'm unable to eat anything solid. Already lost 10bs of muscle in 3 weeks. They need to do more studies
Thank you for your question. This is a tricky question as it depends on what foods trigger your EoE symptoms. The only way for you to know for sure what your esophagus is allergic to is to consult with your gastroenterologist and do an elimination diet with repeat scopes to determine what foods to avoid. Generally, whey is milk derived and milk is one of the top allergens which triggers EoE. You may want to look into a protein powder that uses other ingredients and/or consult your healthcare provider or a registered dietitian with GI expertise who can guide you through the elimination process. Hope that helps.
Non-soy plant protein powders might be best, but even then, my allergy doctor said you need to be careful about the potential for cross contamination. I'd ask the company if there is any possibility of cross-contamination of allergens
Very informative & well explained video! Dealing with eosinophilia can be exhausting, but thanks to the informative content on this channel. Personally, Planet Ayurveda's supplements gave relief. My cousin, who also struggled with this condition, saw significant improvements after incorporating these natural remedies into his routine. Here's to better health for all! 🌿
I did elimination diet twice in my life, the first time was for IBS, second time was for fructose intolerance, I am waiting for pathology report about EoE, my GI Dr had to introduced a dilator on my endoscopy, I am lactose intolerant but as far as I remember I have digestive issues
I was diagnosed in june but I have had espoghaus issues for 20 years.I am on PPI's and have another scope in Oct.How do I get my Dr on board with food elimination, finding out what my allergens are ? I don't want to be on medication the rest of my life.
Thank you for your comment. One suggestion is to ask him about the elimination diet and let them know you are interested in trying this. Just start the discussion. Check out this informational video for some more insight to share with your doctor education.giondemand.com/courses/a-nutritional-approach-to-eosinophilic-esophagitis
Thank you for your question. In some people, eosinophilic esophagitis can lead to the following: 1. Scarring and narrowing of the esophagus. This makes it difficult to swallow and more likely that you will have food get stuck. 2. Damage to the esophagus. Because of inflammation of the esophagus, endoscopy can cause perforation or tears in the tissue that lines the esophagus. Tearing also can occur in connection with retching that some people experience when they get food stuck in the esophagus. (Source: Mayo Clinic) If left untreated, eosinophilic esophagitis is a progressive disorder in some patients, according to a 2021 research paper. Source: www.gastroendonews.com/In-the-News/Article/07-21/Eosinophilic-Esophagitis-Progressive/63919
Loved this episode. My 6.5 year old got diagnosed with EoE and it's been a challenge because how can you tell a 6 year old they can't eat Pizza and cake anymore! The modified version doesn't "taste" the same! 😫. I am working with a dietician now.
Thank you so much for the comment and kind words! Here are some additional resources you may find helpful: education.giondemand.com/courses/a-nutritional-approach-to-eosinophilic-esophagitis GG Podcast episode "Growing Up With Eosinophilic Esophagitis (EoE)" podcasts.apple.com/us/podcast/growing-up-with-eosinophilic-esophagitis-eoe/id1545993954?i=1000522137258 💗💗💗
My husband was diagnosed with this. We are working with a natural doctor to heal his gut and eliminate food allergies along with supplements like aloe vera juice, albizia and betaine.
@@GastroGirl I did not know that. Thanks for the info. I was recently diagnosed having a lot of belching and and stomach aches. I am currently on an elimination diet trying to find my triggers.
I’m so glad I found you! My son just got diagnosed with EOE and I just went nuts trying to find what to feed him especially for lunch
I feel you! We are vegetarians and to find food within this category was very tough. Today marks 3 months since her diagnosis. It took my kid about 3 weeks to get used to Oatmilk. She doesn't crave Pizza or milk anymore. Her pain in esophagus and stomach has reduced ! I can't wait to see the results of her next endoscopy! So, HANG in there and it will take TIME for this to kick in. If you ever need a list of what I feed my kid let me know and I can post it here. Good Luck and if anyone hasn't already told you, your going to kick EOE in its behind and come through for your kid!
Thank you so much for the comment and kind words! Here are some additional resources you may find helpful:
education.giondemand.com/courses/a-nutritional-approach-to-eosinophilic-esophagitis
GG Podcast episode "Growing Up With Eosinophilic Esophagitis (EoE)" podcasts.apple.com/us/podcast/growing-up-with-eosinophilic-esophagitis-eoe/id1545993954?i=1000522137258
@@apshah2008 please post some ideas? My wife has EOE and it is hard to watch her suffer
Ive used banana and flax to replace eggs but not apple sauce? Hmm
Do you have to repeat EGD every time you reintroduce a food after eliminating?
Typically, yes; please see this informational video for more insight on this education.giondemand.com/courses/a-nutritional-approach-to-eosinophilic-esophagitis
Here is a good article with more info fg.bmj.com/content/13/e1/e51
that isnt possible for basically everyone scoping after each food@@GastroGirl
@@masonmalaguti3463 Yes, repeat endoscopy is one of the main challenges of dietary management of EoE. But each patient must work with their providers to find what works best for them. Here is an excerpt from a recent paper "Development of a Practical Guide to Implement and Monitor Diet Therapy for Eosinophilic Esophagitis" by Dr. Joy Chang et al
www.sciencedirect.com/science/article/pii/S1542356523001866
"Many patient-level factors must be assessed when considering candidates for EoE dietary therapy, such as patient motivation, preferences and values, age or stage of life, lifestyle, work and living situation, willingness for frequent endoscopies, and possibly finances and insurance coverage for several endoscopies and dietitian costs (Table 2). Screening for cost or adherence barriers to implementing the diet, taking an inventory of the patient’s diet history, and assessment of current nutritional status are important in this decision.63 In addition to offering diet as an effective and viable alternative to medication, one must work with the patient to weigh these factors in choosing a therapy plan that is concordant with patient preferences and successful. Although not addressed in detail here, particular care and involvement with a dietitian is necessary for pediatric patients on dietary therapy given specific considerations for growth, development, feeding ability and screening for feeding aversion disorders, and parent and family preferences."
@@GastroGirl the only people that are able to do endoscopies for food like this aree the one percent im in eoe reddit and facebook groups ive talked to hundreds of people and less then 0.001 percent of them were able to afford to scope after every food
I only been eating beef, rice, chcken, blueberries, pineapple, water, salt, and i still havent been able to lower my eosonophils
TOns of eoe patients get screwed by the medical system and not taken seriously
ive seen dieticians they didnt know what to do gastroenterologists dont seem to know what to do and allergist just be saying dupixient which im going to have to do bc nothings worked for me and when nothing works the medical community just ghosts you
I am sickened by how america has all these deseases and it is because of what is done with the food here they want some people to pay just to eat @@GastroGirl
Can it be caused by environmental allergens and not food?
It's been 2 years that I get the symptoms when I am at my workplace. When I am away from work for a long period I feel much better and symptoms go away after a few days. I go back to work and the symptoms come again! 😢
Can it be linked to hyperhomocysteinemia?
They have to play a factor. I've been eating the same foods and haven't had issues since a flare up 7 years ago . And all of a sudden I'm unable to eat anything solid. Already lost 10bs of muscle in 3 weeks. They need to do more studies
what kind of protein powder is ok ....whey? vegan?
Thank you for your question. This is a tricky question as it depends on what foods trigger your EoE symptoms. The only way for you to know for sure what your esophagus is allergic to is to consult with your gastroenterologist and do an elimination diet with repeat scopes to determine what foods to avoid.
Generally, whey is milk derived and milk is one of the top allergens which triggers EoE. You may want to look into a protein powder that uses other ingredients and/or consult your healthcare provider or a registered dietitian with GI expertise who can guide you through the elimination process. Hope that helps.
Non-soy plant protein powders might be best, but even then, my allergy doctor said you need to be careful about the potential for cross contamination. I'd ask the company if there is any possibility of cross-contamination of allergens
Really helpful. Thank you
Very informative & well explained video! Dealing with eosinophilia can be exhausting, but thanks to the informative content on this channel. Personally, Planet Ayurveda's supplements gave relief. My cousin, who also struggled with this condition, saw significant improvements after incorporating these natural remedies into his routine. Here's to better health for all! 🌿
I did elimination diet twice in my life, the first time was for IBS, second time was for fructose intolerance, I am waiting for pathology report about EoE, my GI Dr had to introduced a dilator on my endoscopy, I am lactose intolerant but as far as I remember I have digestive issues
@@monicalararodriguez2594 hi, how did you find that you were fructose intolerant?
I was diagnosed in june but I have had espoghaus issues for 20 years.I am on PPI's and have another scope in Oct.How do I get my Dr on board with food elimination, finding out what my allergens are ? I don't want to be on medication the rest of my life.
Thank you for your comment. One suggestion is to ask him about the elimination diet and let them know you are interested in trying this. Just start the discussion. Check out this informational video for some more insight to share with your doctor education.giondemand.com/courses/a-nutritional-approach-to-eosinophilic-esophagitis
@@GastroGirl Thank you !
What happen if EOE is left untreated?
Thank you for your question. In some people, eosinophilic esophagitis can lead to the following:
1. Scarring and narrowing of the esophagus. This makes it difficult to swallow and more likely that you will have food get stuck.
2. Damage to the esophagus. Because of inflammation of the esophagus, endoscopy can cause perforation or tears in the tissue that lines the esophagus. Tearing also can occur in connection with retching that some people experience when they get food stuck in the esophagus.
(Source: Mayo Clinic)
If left untreated, eosinophilic esophagitis is a progressive disorder in some patients, according to a 2021 research paper.
Source: www.gastroendonews.com/In-the-News/Article/07-21/Eosinophilic-Esophagitis-Progressive/63919
Stricture
Loved this episode. My 6.5 year old got diagnosed with EoE and it's been a challenge because how can you tell a 6 year old they can't eat Pizza and cake anymore! The modified version doesn't "taste" the same! 😫. I am working with a dietician now.
Thank you so much for the comment and kind words! Here are some additional resources you may find helpful:
education.giondemand.com/courses/a-nutritional-approach-to-eosinophilic-esophagitis
GG Podcast episode "Growing Up With Eosinophilic Esophagitis (EoE)" podcasts.apple.com/us/podcast/growing-up-with-eosinophilic-esophagitis-eoe/id1545993954?i=1000522137258
💗💗💗
My husband was diagnosed with this. We are working with a natural doctor to heal his gut and eliminate food allergies along with supplements like aloe vera juice, albizia and betaine.
Aldo include giloy juice
She said it never goes away however my doctor told me it could go away.
Interesting
It can go into remission, but EoE is a life-long condition. Management includes avoiding the foods or allergens that cause the allergic reaction.
@@GastroGirl I did not know that. Thanks for the info. I was recently diagnosed having a lot of belching and and stomach aches. I am currently on an elimination diet trying to find my triggers.
This hit me out of the blue.
Hayden Square
Might as well have your paycheck start being direct deposit to the doctors