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My stomach is a mess!!! Jackhammer esophagus, LES is stuck open and inoperable, gastroparesis, severe gerd (just had bravo done and GES). It’s very hard to eat and have lost 40 plus pounds. I vomit so much! I’m meeting with a nutritional Dr, neuro gastro Dr and dietitian in Jan at Cleveland Clinic. My hope is for the gastro poem and if food will stop backing up in stomach then maybe the jackhammer will calm down. Right now the reglan is helping but cannot take for long as I already have neuro issues (seizures). Quite a mess!!!!! Luckily I go to the Cleveland clinic in Miami (Weston)

Super informative video. My story - I am a 44 year old white female in Tucson, Arizona. I have suffered with EOE for over 15 years - went through all the ER nonsense of being told it was in my head, that it was GERD, that I was eating too fast, you name it. I had 5 food impaction events leading to endoscope to remove them with 5 separate biopsies - my biopsies were always in the higher end but never "positive" until my last one which was off the charts. Until then I was in heavy doses of Prilosec for years and eating basically baby food type foods and suffering daily with chest pains and feeling like food was stuck. The anxiety is intense. Fast forward to 24 months ago I was in hospital again for food impaction and finally got the diagnosis. I had my esophagus stretched as well during this endoscopy. My GI doctor sent me to the asthma and allergy specialist who put me on Dupixent 300mg once a week injections. It was a Godsend. I was feeling so normal and so much better .... I had my life back - but then after 24 months I had a food impaction event with chicken and ended up in the ER with chest pains and a panic attack - this was 2 weeks ago and since I have been dealing with it - I have made 4 separate appointments for my PCP, GI doc, 2 allergy specialists. They can't see me for about 4 weeks so I am just eating soups and oatmeal. I have had a full food allergy panel and environmental allergy panel which indicated I am allergic to a lot of trees and grasses here. Food panel came back normal. I'm going to push for the more advanced food allergy panel after listening to this podcast and also look for a trial in town. I have also decided to do the elimination diet and have started to explore vegan options. This is a living hell and I pray for a cure but also realise I have to help myself and do my own research. I need to do the work and find out my food triggers. Not much I can do about the environmental allergies which is depressing. I'm already on a ton of RX allergy medications, sprays, inhalers, you name it. Anyone out there who is suffering and being told by doctors that it's all in your head - trust me it is NOT and you have to speak up and be your own voice and get that biopsy. Even if it comes back negative but you have all the symptoms, keep pushing.

I don't believe I heard the difference between Celiac and Gluten mentioned. When I eat any food labled gluten free, I still get Ataxia. I've fallen after leaving restauranrs many times and ended up with staples in my scalp ( 3 to the most 10 staples). This is a dangerous issue and aught to be disussed in your forum.

good

I've had EOE for about a year now and have tried PPI's along with Fluticasone Propionate for two 30-day periods. I haven't felt any relief and took my first Dupixent injection last week. Your video has given me hope that this will be a helpful treatment for me so that I can improve my quality of life. Are there any other suggestions you have for taking Dupixent, such as dietary restrictions or the period of time I should be taking it?

Thanks for the analysis! I need some advice: My OKX wallet holds some USDT, and I have the seed phrase. (alarm fetch churn bridge exercise tape speak race clerk couch crater letter). How should I go about transferring them to Binance?

I'm 25 years old and got diagnosed with this about a year ago, thought it was stress and anxiety induced, but after getting an upper endoscopy done they saw the buildup of scar tissue in my esophagus as well as eosinophils present. It often interferes with my college and work life because after I eat, I'll feel food get stuck in my esophagus and have to rush off to the bathroom to vomit. It's really scary to feel food always getting lodged, but dieting and identifying trigger foods has helped me out a bit. Thanks for the video, it's validating to see that I'm not alone in dealing with this struggle.

But what does the dr do… to help it

I got diagnosed at the end of October I went on a gluten free doctor. I still have the symptoms when will I stat feeling like myself again?

I have been subconsciously drinking after every bite of food for an unknown amount of time.. at least 9 years, my wife noticed it when we had been dating for a while when we would go out to eat. I would actually stop eating until I was able to get another drink. Currently going to GI specialist because of big change in my ability to swallow anything, i get very tired in the throat. Waiting for appointments, my primary care suggested to slow down and small bites.. he was leaning achalasia but my son does have EOE so i am curious now...

this is interesting, my son was diagnosed very young not much older than 1.. its been a struggle, but currently in remission. I on the other hand, a several weeks ago started to notice a tired feeling in my throat as well as not being able to swallow while laying down. Went to my primary care, and i have been referred to a GI specialist.. my primary care is leaning to achalasia and not EOE, but time will tell once I get evaluated. Great Video!

Farah fawcett had the same cancer

I don't eat out, I don't trust people with my food, period!

so important to note themental stress too!

Thank you for your Podcast, and all the guest you have on. Can you find an expert(s), on after Covid affects and do a video on Covid and the effects on the digestive system, Acid Reflux and Constipation.. What studies are being done, are there any new treatments or do we, people with Long Covid, have to just keep treating the symptoms for life ? Thanks

Hi, Thank you for making videos on EoE. I am a parent of a child with EoE. One of our integrative medicine doctor recommended BPC 157 peptides as a treatment (not FDA Approved, its still under trials I believe). Has any of the experts you interviewed mentioned about this being studied on? Or any research going on? Not a lot of resources available on this when I tried to look for answers on this particular peptide. Thank you for your time! ❤

I had CVS for 17yrs and eight years before I was officially diagnosed. It just so happens that the worst of my abuse lasted 17 years as well. The episodes were debilitating from 16 to 33yrs. I had my daughter at 33 and never had an episode. I live like a sick person for five years after afterward, though always terrified that my next episode with around the corner. It never came.

THANK YOU

I don’t have a doctor

Why do doctors still prescribe Clarithromycin if it’s more than like not going to help eradicate h.pylori. I have the bacteria right now and am on Sucralfate 4x/day; Esomeprazole Mag 1x/day; Clarithromycin/Metronidazole/Amoxicillin 2x day. Is there a chance this won’t be effective? BTW…I was diagnosed with the breath test.

Thank you for this podcast. My gastrointestinal doctor believes that's what I have an d took biopsies. I pray my pathology comes back it's this and not something worse.

AWESOME. Loved this discussion - so informative and as usual food, in this case ferments and fiber, is the way to go! Thanks for this.

Thanks for a great conversation, Jackie!

Could the increase in cases be a result of COVID?

I’m having the pelvic floor constipation I need help.

Shouldn't the small intestine be almost sterile anyway? Free of bacteria that would inevitably interfere with proper food absorption?

Great initiative, i am learning and enjoying your show.

Cost for preparation? It's your life! I paid $2.34 for my GaviLyte prep. Why are people so intent on free or low cost health care when they will spend gobs of money on fancy cars, clothes, shoes, cigarettes, booze, tattoos...

What was the medication that allowed her to evacute everything

Great information, on sbs. Only 150cm myself, no colon(Ken) & luckily never been on tpn, 5 operations & crohns at 16 too

Thank you for your podcast

As the doctor explains in the video, heartburn, despite its name, is not related to the heart. It’s a sensation of burning or discomfort that occurs in the chest area, typically behind the breastbone. This feeling is caused by stomach acid backing up into the esophagus (the tube that carries food from your mouth to your stomach), which is close to the heart but not actually part of it. However, the symptoms of heartburn can sometimes mimic those of heart-related issues, especially since both can cause discomfort or pain in the chest. Heartburn typically causes a burning sensation that rises from the stomach to the chest and throat, often after eating or when lying down. However, because the chest pain associated with heartburn can feel similar to heart attack symptoms, people may sometimes mistake one for the other. It’s important to note that chest pain, especially if it's accompanied by shortness of breath, sweating, dizziness, or pain radiating to the arm or jaw, should not be ignored. In these cases, seeking immediate medical attention is recommended to rule out any heart-related issues. The name "heartburn" comes from the location of the sensation, which can feel like it's in the area of the heart, but it’s related to the digestive system rather than the cardiovascular system.

At the age of 35, the skin on my hands began to crack, even bleed. For years, doctors didn't know what it was. A decade later, I started suffering from painless diarrhea and vomiting every few months. Even then, doctors didn't know what it was. So, a year ago, at the age of 52, I decided to look into it in depth and asked my doctor for a celiac test. He didn't understand why, but he agreed. Then it turned out that I had celiac disease. I stopped eating gluten, and it wasn't easy, but my hands healed and the vomiting and diarrhea went away. It's a shame that science hasn't found a cure yet, but I think the more people who have celiac disease, the more science will try to find a cure.

I just had a biopsy for EoE last Thursday. I’ve been struggling to swallow since April 2024. I had to give up the supplements because they got stuck in my throat. I tried to cut them smaller but the edges were sharp. I wake up in the middle of the night with violent dry heaves. I have an empty stomach so no vomiting. There was no narrowing of my esophagus but there was banding? I’m not sure I understand the notes. One thing I’ve noticed is that my husband finishes eating now way before me. So confusing

Wow! So much bad info.

I put this on my Dysautonomia International Support Group for Virginia, sent it to my neurologist (who treats dysautonomia patients), and my gastrologist. I asked them to share with others.

This is wonderful! I am new at this. I have learned a lot from this. This is the most recent and easiest to understand video that I have found. THANK YOU!

I just want to know if this happens to anyone else. I know when I’m about to have a episode because I’ll wake up super early in the morning, and my mouth keeps filling up with spit, to the point where I guess I swallow so much, it gets the vomiting going. Them for hours I throw up spit and stomach bile for hours, i usually pass out after a while and wake up fine.

I literally just got finished with a episode earlier. Wouldn’t wish it on my worst enemy.

My daughter is 12 she is celiac since she was little. It’s been few months that she complains that she feels sad all the time when her blood test vitamin D, B12, irons are perfect. I’m worried.

heartburn is not in the same area as the heart

There is a physiotherapist based treatment available in Australia. Google "Melbourne headache centre". I am about to try it

. "Such valuable information! For anyone suffering from heartburn, try Planet Ayurveda's capsules; they’ve been a lifesaver for me!"

"If you’re looking for a natural approach to Gastroparesis, give Planet Ayurveda’s product a try. I was tired of using meds that didn’t work long-term. This gave me sustainable results without any side effects. So grateful for finding this!"

Doing a Replay

Thanks for Sharing i went to the emergency room several times because of me having severe heartburn

Balloon dilation can be the treatment for this disease EOE...?

Hi there. Should a child ever be on a steroid long term? Can you go over 12 weeks or will it cause mood changes and other effects?

The reason why is the chemicals in the foods in the poisons that they put in them it's intentional how sad

I found myself here from mycology videos, I have wondered about this, sometimes I get sleepy/drunken -like from redbull after lunch or the seldom times I consume soda… understand there are many other factors.. I attribute it to being up early for work and a likely undiagnosed diabetic….