#54: MRI guided Focused Ultrasound (FUS) for Parkinson's Disease
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- เผยแพร่เมื่อ 15 มี.ค. 2023
- The Secret Life of Parkinson's: If you haven't heard about MRI-guided Focused Ultrasound (FUS), listen to our guest, Mark, a 60-year-old living with Parkinson's for 14 years, talk about his experience with the procedure. DBS was an option, but he wasn't thrilled with the idea of having wires in his head, so he decided to go the Focused Ultrasound route. He explains his outcome as "a second chance"...that it has been life-changing for him.
Dave had 1 side with amazing results. So glad they are now doing both sides
Welcome back Brian Yay 😀🎉🎉
This is a very encouraging vlog. Thank you for sharing!
I have had mild symptoms for at least ten years, fine motor was the first I noticed, but didn't realize what was going on. A year ago the MD said possible dementia, but I have trouble walking in a strait line. She had me walk, noticed I didn't swing my arms. I started to and I walk strait now. I'm in PT now to improve my balance issue. I have other symptoms, just too many to list.
Happy birthday!
Great video
My father is suffering from a Parkinson in India and this videos are really helpful and educational. Thank you.
I'm so glad these help more than just the PD patient, but the family is well.
Very informative
Looking good guys ❤I’m scheduled for a phone appointment for dbs on May 31st. I saw another video of a gentleman who had the focused ultrasound..didn’t look too good..meaning the results. I would go for dbs. I’m still very active, and boxing hard core! Best shape of my life. But the off times are brutal.
Good luck on the 31st!
I pray my husband could get this. 🙏Right now his insurance company is not approving it. He was all set to get it.
I wonder if his Neurologist can send clinical data to the insurance company, to make the case that this would reduce or eliminate meds. I hate when they get therapies approved but then no one can afford it because insurance companies won't help. Good luck!
What about Parkinson’s plus patients? Would it work for them?
Can you look into the vibrating glove therapy created by Dr Peter Tass at Stanford University?
I reached out but haven't heard back from them yet. But I did look into it further and spoke to my neurologist about it. Unfortunately, there is still a lot of research they need to do. Apparently the study was very small and while it was shared on the Today Show, they are still far out from any kind of FDA approval. www.apdaparkinson.org/article/vibrating-gloves-to-improve-parkinsons-symptoms/
Does any one in your group do High Dose Thamine, i have found a lot of positive information about it. I would love to find others who have some experience with it or are actively following the HDT protocol.
Not that I'm aware of but I'll ask around
I need to know about insurance. I’m on Medicare is it covered
That I'm not sure. You would probably have to ask your doctor.
Cost ?
I'm sure it depends on your insurance
Thought your story,, you give me hope. I was diagnosed with parkinson 2018,. I take oral medications but I feel the progression of the disease. Does this treatment available in the Philippines. How much it cost?
The FUS seems to be an oblation of a part of the brain. Does it work in the long run or does the brain work around the oblated part and then the tremors return?
From individuals I know who have had FUS, they were told that the benefits could last between 5-7 years I believe. But then the brain works around the oblation.