Learning to walk again and hEDS diagnosis story!

Hiya!
I’m Ellie and this channel follows me on my journey through life, navigating chronic illness and disability in a world that wasn’t designed for us.
I was diagnosed with hypermobile ehlers danlos syndrome (hEDS) when I was 15 and it has since been part of my daily life. I am now an ambulatory wheelchair user and it has changed the course of my life completely. There was a 3 month period where I couldn't walk and was in hospital due to nerve damage while working with physiotherapists. This is my EDS diagnosis story.
Riley's Facebook page
/ loveforriley
Instagram; Small_and_strong

[@LadyInWhite741]

Sweetheart, I’m 38 years old and was diagnosed with hEDS, Cranialcervical Instability, Mast Cell Activation Syndrome and PoTS last year. What you said about Riley’s Mom, “having to find the new normal” is something that I needed to hear. I’m 27 weeks pregnant with my 1st and I have no clue how we’re going to adapt but what you said hit home. Thank you for sharing your story with the world.💞

[@SmallandStrong66]

Congratulations! I’m so glad I could pass on her message, she was great for me when i needed to hear the truth about my future. I hope all is going well for you!

[@Jennypegz]

Hey, I understand. I managed it. You find new ways of coping. Don't be afraid to ask for help or use aids to get by. 🦓

[@samrobinson5130]

I am absolutely stunned some of the doctors insisted you were faking. I swear some doctors will do the bare minimum for figuring out what is going on then take it out on the patient for not being easier. I’m sorry you went through that, especially so young.

[@katieannamcconnell5365]

Seeing you go from there to here has been so amazing and I am so proud of you for sharing this story 💜

[@ambergibbs3303]

You have done amazing 💕

[@jwilleseries7764]

I am lucky that a medical profession is serious and are trying to get me evaluated for EDS and I have a hard time walking while my friend who does not have the same problem with walking as I do but got ever more obvious EDS Have a really ard fidning any medical professional to take him seriously

[@SmallandStrong66]

I hope it gets sorted for your friend! So many people have a difficult time with doctors not taking them seriously. I was fortunate to spend all that time in hospital which meant they couldn’t ignore me and saw the symptoms first hand

[@SMARTIE-CLAPZ]

What meds do you take for the pain? I suffer also

[@SmallandStrong66]

I have been prescribed naproxen and codeine

[@annaswanson5903]

Great video! New subbed here and I hope we can support each other ❤️