I'LL ALWAYS BE ME.
ฝัง
- เผยแพร่เมื่อ 16 ก.ย. 2024
- Visit our Online Store → thefreylife.com...
Yesterday's Vlog → • TRANSPLANT EVALUATION ...
See what we were up to in years past! ↓↓↓
1 Year Ago → • CHANGING MY FEEDING TU...
2 Years Ago → • ⚡️ DRONE IN CRAZY LIGH...
3 Years Ago → • MEDICAL GUINEA PIG! (5...
4 Years Ago → • TRANSPORT TO BIRTHDAY ...
Subscribe to our channel → goo.gl/LvdRdF
→ We post new vlogs everyday showing daily life with #CysticFibrosis!
↓↓↓ Learn more about The Frey Life ↓↓↓
What is Cystic Fibrosis → • WHAT IS CYSTIC FIBROSIS?
Draw My Life (the backstory) → • DRAW MY LIFE - CYSTIC ...
Service Dog Q&A → • SERVICE DOG Q&A
Cystic Fibrosis Q&A → • Cystic Fibrosis Q&A!
Are We Having Kids? → • Q&A - ARE WE HAVING KI...
Peter is a pastor & posts weekly sermons on his channel here → / livingwithhopepodcast
Want a personalized video message from Mary & Peter (and Ollie)?!? You can request a Cameo here! → www.cameo.com/...
OUR CAMERAS (affiliate links) ↓↓↓
Canon G7X → amzn.to/1WhMLbn
Canon 70D → amzn.to/1VHJmEf
Mavic Pro Drone → amzn.to/2ixXL4W
Other affiliate deals for things we love! ↓↓↓
AirBnB ($40 off your first booking) → airbnb.com/c/p...
Ibotta ($10 signup bonus) → ibotta.com/r/n...
Ebates ($10 signup bonus) → ebates.com/r/P...
Intro Music: "Better Together" by Praytell
→ Watch Music Video: • Praytell | Better Toge...
→ Download Better Together: smarturl.it/pra...
FOLLOW US!
Mary's Instagram → / freyliving
Peter's Instagram → / peterfreylife
Our Store Instagram → / thefreylife
Twitter → / thefreylife
Google+ → google.com/+the...
Facebook → / thefreylife
Ain’t no mucus gonna stop me from being ME!
positive attitude positive result😁
I had to Google how to spell mucous because I was genuinely confused 😅
I know typos happen all the time and normally I can understand them no matter what but this time I'm like okay, that's not how I spell mucous and if anyone should know how to spell mucous it's got to be Mary and Peter! I have a traumatic brain injury and encephalopathy so it's not at all unusual for me to get confused like that 😅
@@Yesica1993thank you I cheat lol 😅
I always use predictive text and/or Grammarly. It let's me know when there is a mistake. I almost always check before I hit send but I've made many mistakes like that and I was in honors English, taking college English classes in high school but my IQ and brain capacity has seriously diminished since then! I often forget how to spell simple words and it's scary! If it weren't for the computer or phone I type on, it would most likely be a mess of mistakes 😄
Totally !! 💪😎🤗👊💜
God bless and love from Oklahoma
Peter needs to start adding "how to treat your significant other" or "how to support your loved ones when they're struggling" in some of these videos. I know many people that can learn from him as an example.
I was a caretaker to my dad and my grandmother. It is important to take extra care of yourself so that you can care for your loved one. I let my own health slide and ended up in the ER, so that was not good. I wasn’t perfect at it, but you do what you can, and there is help out there (support groups, hospice, home health workers, social workers, etc) who can help too. In my dad’s case when he had cancer, looking back I wish we would have utilized palliative and hospice care earlier. But of course you pick what is appropriate for the person’s point in their illness.
I also think Peter’s pastoral work and being able to take breaks with his own hobbies helps. It seems like he and Mary have reached a perfect balance, and I think they also have support from friends and family. They both seem very emotionally strong.
If you don’t have outside support or outlets (many of us lose contact with friends and family when we are dealing with illnesses because “people don’t want negativity in their lives” or whatever) it can get overwhelming. My advice then would be to talk to a therapist. You are a strong person by being there for your loved one when they need you, but you can’t forget to take care of yourself too.
@@jessicah3450 I'm talking about how he treats her. How to treat a person who is chronically ill or struggling with an illness. I said I know people that can learn from his example. Your comment has nothing to do with mine, I think you missed my point completely. I'm chronically and terminally ill, I would like to be treated better by my "loved ones." I don't want or need advice on how caregivers cope. Peter can set an example by talking about being kind, understanding, and supportive of someone who is dying.
Hence the "how to treat your significant other" or "how to support your loved ones when they're struggling." Not "how do you cope with taking care of someone who is sick." I thought I was pretty clear about that 🤔
It's kind of hilarious because I posted about people not paying a damn bit of attention to what they're reading anymore before they jump in with a reply. They're just so eager to get their opinions and/or unsolicited advice, which you just gave, out there as fast as they can they read INTO the comment they're replying to, they don't READ the comment.
In this video more than any other I see Peter’s pastoral heart. He listened to Mary, really listened, and was able to provide a second insight as to what she was saying. I’ve watched your journey for a couple of years, and have been so inspired by your strength and your weakness. No matter what your health, I’ve always seen the joy that you have in each other and with your audience. God bless you I what lies ahead and may God’s wisdom shine thru in your decisions.
one thing Peter is one incredible pastor. He's not ego driven, he's people driven. His ability to express what Mary is trying to express....shows how deeply this very young man understands this world. I am very impressed with him. (as always).
I agree. I don't open up to very many people and when I do it is hard. However I could see myself opening up to Peter, in spite of our big age gap :)
Yes, I love who you are so much!!!
I always find Mary’s reaction to peter communicating her jumbled thoughts so funny 😂💖💖
Man does God shine on you....its like an aura all around you. Bless you both with all my heart! 💞💞💞
Hi Mary and Peter,
Thank you so much for the wise words and encouragement!
I hope everything went well for you this week, Mary. You have done it!
Wish you all the best!
I wear your t-shirt all the time. Im going through endemetrial cancer and just suvived sepsis. You are so dear to me. You give me courage. Thank you.💜
Charlotte Luecke I really hope that things can go more smoothly for you from now on ❤️
Charlotte Luecke I am thinking about you and sending the best wishes to you.
@@Eileen-kx8wy thank you so much. Its been a teary day.💕
You are such an inspiration to all. I can’t imagine living with a chronic illness. Our youngest daughter was very sick from the day she was born till almost 3. I remember like it was yesterday when they mentioned cystic fibrosis could be causing her being so sick. I was relieved with her sweat test didn’t show anything but we still didn’t know why she was so sick. Thankfully a new specialist found that her esophagus was connected to her stomach correctly. So after 4 tries performing fundoplication surgery on her it finally worked. Unfortunately she was so small they had to perform all of those surgeries open instead of laparoscopically but in the end she was a fighter. Her body did learn how to burp again after several years but she is still unable to throw up. Caylin is now almost 23 and the scars on her tummy that were huge when she was little are almost non existent now and and she is as healthy as she can be raising her little boy.
I love this!
I HAVE depression and I don’t like when people say I AM depressed.
We are not our illness. I am me. 💕
Can't wait to hear about the week. I hope you are doing well and processing everything well. Let God lead the way, His plan is always perfect, even if we don't understand it. Love and prayers ❤️
so true. Thank you for expressing that Casey. I sometimes get upset that I'm not "normal" and can't do ALL I want to do, and not often enough do I think of all I can do.
Happy Birthday Peter. Just got home from the Franklin Graham Northeast tour. It was awesome. David Crowder band did worship, Franklin preached and just as he finished and people accepted Jesus the sky’s opened with rain (water baptism). As we all ran to the cars they set off the firework display (huge) . Like Independence Day celebrating our independence with Christ. Great eventing. Everyone should go when the tour is in your area.
Peter you are so good at encouraging Mary and helping her communicate what she’s feeling. You are both SO right, we are not our diagnosis or our imperfect bodies. Praise the Lord there is much more than this life.
Constantly sending love and light your way. You've GOT this, Mary!
" bundle of Joy and Courage" beautiful, sweet words of Peter for his lovely Mary 💟
What a great message, and something I’ve been trying to teach myself. I’ve been learning that I am not my body, I am my soul. My body is my vehicle, that I care for and need, but it isn’t my being.
Thank you so much for your words of encouragement. As a chronically ill teenager trying to find a summer job, it’s been a frustrating process that leaves me feeling pretty useless. But I’m not useless just because my body is less than perfect! Thanks for the reminder :)
I joined your online family about a year ago now & have found it a privilege...your so natural normal & tell it how it is. I love to follow your journey & how you always find the joy is fabulous...keep doing it....love from Scotland.
L O V E this message. So fitting for anyone dealing with an illness or crisis or situation. A seemingly simple statement with a powerful impact. My disease DOES NOT define me. Thanks Peter & Mary ❣️
This video was very inspirational for me ( I'm a teen with cystic fibrosis) please never stop making videos🙏
Thank you so much
I love this one so much I watched it twice, might be my favorite ever. I remember when I went for my neuropsych evaluation to figure out what had been wrong my whole life, (undiagnosed learning disability), one of the first things she (neuropsychologist) said to me was "This changes nothing about you." My disability changed everything about my circumstances, and I wish I could've heard in those million and one moments of my life collapsing around me that I was still who I had always been and that my value as a person had nothing to do with what I was losing. I don't think you can say this to someone enough and it's in times of existential crisis and uncertainty that we need reminded of it most.
this is the sweetest video ever! You two are such a light in this broken world and just create such a positive outlook on life! I am thanking God that you two are able to share these things with everyone here on TH-cam!!
You guys are amazing!! Keep staying strong!!🕊🙏❤️❤️
This is beautiful. Thank you. 🧡
Thank you Mary for giving me the words to tell my family and friends when I am struggling with the circumstances of chronic illness, "It's still me." This video really spoke to me and brought me to tears.
Thank you Mary and Peter. You guys uplift us so much even though so much is happening in your world. What salt and light you are reflecting who we should be like ❤️
You both are awesome at communicating joy and optimism.
You have often given me courage by the way you handle your rough times. Prayers for you and Peter.
Yes! Love this, had to cancel family plans because I couldn’t do it. Praying for y’all, this journey ain’t easy but we are still us!
Wonderfully put Peter - praying always for you both
So dang grateful for Peter being part of my life through the Internet ah he’s amazing, both of you are amazing. No matter WHAT happens I am always here and I will always love you!
I just have to say thank you. I’m going through infertility with my partner. At times this thing we lack feels like all we are. You reminded us that we are still US. Thank you❤️
Laura I get this on such a deep level. For me, it’s not infertility but I feel that my illness can sometimes be all that I am. Prayers that you and your partner are able to have a baby soon.
You are not a burden... thank you for that reminder 💕
Such a GREAT MESSAGE! You both know where your strength comes from-Christ.
It’s important to note that not everyone (believers included) will be able to have the same outlook and they need our compassion and understanding.
thank you for being so wonderful and real, i love the real mary, the mary that we always see. you guys brighten my day, never lose your joy :) God bless you today
Hi Mary and Peter, you are both in my daily prayers, thank you so much for sharing your life with us, the good, the bad and the difficult times. I’m sending you so much love from Tennessee 🧡🧡🧡
Stay strong💜
I just did a video for the mother daughter banquet at our church my husband has been the senior pastor here for about 10 years now. Thanks to my health I have been able to go, so I did it by making a video for it. Anyway I’m praying for you guys ! Love ya
I am sick right now and every morning it feels like my lungs are full of mucus. I cough and cough and it even made me throw up! I can't imagine dealing with this all the time! You are amazing and so strong!
As I’m laying in bed on a “horrible pain won’t go away no matter how much pain meds I take day” I really needed this reminder. My joy comes from the Lord every day because He and my loved ones love me every day. Thank you for this in the midst of your own crazy health issues this week. I can’t wait for tomorrow’s ‘live’(not pre recorded) video to see how you are doing (other than insta stories). Love to you both
This is what I needed to hear today :). I’m having a rough day with anxiety and hearing you say this is so true! Yeah I’m having a rough day but I’m still me! This, along with the joy of the Lord will be a reminder that no matter what curveball is throw my way, I’m still me regardless ❤️. You understand that everyone has burdens and we may feel like that there is no hope, but we need to realize that we can do this! Ain’t no anxiety going to stop me!!!!!!!
As someone with severe chronic illnesses, I say this ALL THE TIME! Wishing you well!
You always have such a beautiful joyful positive message to share no matter what! I enjoy your videos daily! ❤️🙏🏻 Continued Prayers as you recover from everything your mind and your body went through last week! ❤️
You just said what I need to follow. I am suffering mentally. Please pray for my son Jacob and I pray for you everyday. Love you guys
In sickness or health, I always want to give you a great big hug, Mary... BECAUSE of who you are. 😘💕💖
Beautful scenery
One of my most favorite episodes yet! I feel like I just went to church! Thank you both for sharing this moment and these thoughts!
I use the same terminology... “ it’s still me” ..... I used to avoid people on bad days but now most of my days would be classed as bad days so I try and make something good happen every day. 🤗😘👏👍🥰
The McGowen family will be praying for you, Peter and Ollie boy during this journey, Love from Illinois!
I enjoy your channel so much. I love that you stay positive and maintain your faith through all of your struggles. You have helped me accept my chronic illnesses, and daily I turn them over to God.
As someone with chronic illness I can’t tell you how much I needed this video now. Thank you for sharing Mary, I love your answer especially as I’ve been struggling lately to come up with something to say in response to the questions. Peter, thank you so much for reminding me that I am separate from the circumstances of my health. You had me in tears. Your words were a message from God.
❤️❤️❤️This really hit home for be specially when Peter talked about the ‘burden’ feeling. Been praying for you all so hard! Love you guys! Thank you for all you do and always putting feelings into words, so many people understand including me. Really touches my heart. Hugs
What a wonderful video - thinking of you both x
I live in sweden and I really feel with you every singel time your crying or laugthing. In my heart i feel like family to you. Thank you for beeing you ❤️
We are all still ME!!! this is so wonderful. Of course I am worried about you, and Peter. I know often though I often hide away when I am not feeling well, because I think "I'm not me. I'll wait until I'm feeling better." But, of course I'm always ME. Why do I hide so much when I feel truly bad? I'm just afraid I might upset people, or I don't want to worry them. I plan to try to say more often "I'm STILL ME!" THANK YOU, as always.
I so appreciate this video and the encouragement that circumstances do not change who we are. I don't have a chronic health issue as such but have dealt with chronic depression for years. It's hard to keep that from defining who I am under in spite of it. I really need to order one of your courage shirts.
That’s a good thing. My illness, while not as severe as what you go through, is wearing me down and I feel changed somehow. Almost like I have become my illness because it has taken over everything I can and can’t do. Good video to see right now when I’m struggling.
I can not Express how much this message has touched me and gave me joy and insight, as I often feel a burden or hindrance to my family so your message was exactly what I needed.
You are an amazing woman, Mary. You’re so blessed to have each other. Peter, you have the perfect insight in Mary’s words.
Yes, you are still you! Blessings and thoughts.
Love you both 💖
ca
Wonderfully , beautifully said! What a great team you both make and are such an inspiration not matter what the circumstances!
Thank you Mary and Peter! "As Always," ... you zeroed in on the things that I need to hear. I am still me and I will still be me through the crazy stuff ahead.
I’ve always said that for me happiness is circumstance driven but joy comes from Jesus! You can feel joy in the midst of extreme pain thru Jesus.
The two of you are amazing! We love you⚘🌻💕
Stay strong!
Im so proud of your strength. Both of you are an amazing pillar in the community. Keep being a bright spot in my day. If you ever need anything please reach out. We are all here to help you.
Wow... that’s so well said. You guys are amazing human beings. Always in my prayers.
I love who you guys are!! I love that you are you-just as God made you-and you don’t hide that or make light of it!
Reminds me of the quote, "we are not bodies with souls, we are souls with bodies" not sure who said it though. Your soul is still full of joy, regardless of how your body behaves.
Many blessings, Courageous Woman
That was a timely reminder. Thank you for this encouragement. I needed to hear it, just now.
I needed to hear the end of this video. Thanks!
This spoke to me on a personal level...i have a diagnosis of PTSD but I don't want people to just see that...like I told my doctor, "I am still me...I am still in here" in the good and bad, when I am happy or out of control in anger, I am still in here somewhere 😢
Wow 😮 you totally took my jumbled thoughts and made sense of it! I don’t have CF but I do have a couple Chronic disabilities. Thank you for sharing: your life, your pain, your sorrow, your joy; it makes the rest of us feel not so alone 😇🙏🏻
Sending you both lots of love, hugs & prayers! God will light the path ahead for you both, even though the way ahead right now may not seem incredibly clear. We are cheering for you both, & know, U GOT THIS guys!!!
Good luck, Mary and Peter! You can do it! You are Mary not just that lady with Cystic Fibrosis. It bugs me when people define us by our illnesses. Even when I was very depressed and moody from being sick nearly everyday, I knew I was still in there somewhere. And who wouldn’t be depressed when they feel awful? I was still me inside. People tell me I am lazy when I am not feeling well, because I look okay. They don’t know how I feel inside and that I really want to be doing this and that, but I just can’t right now because my body has to focus a lot of energy on trying to get well. Bless you both 👐💕
I love this message. I have been watching your videos for years. I'm have been constantly inspired by your positivity. October of 2017 my 27 year old daughter was diagnosed with Acute Myeloid leukemia (AML). She fought very hard and has been in remission since last June. However her body is very weak and she is constantly sick. Recently tests were done and confirmed that her immunoglobulin levels were dangerously low. The treatment is IVIG. I had my daughter, Elizabeth, watch several of your videos to ease her anxiety. I am so thankful we had you as a tool for our situation. Elizabeth had her port in and a week later her first treatment. It helped Elizabeth to know what was going to happen from watching you.....again a gift you gave us. Unfortunately, a blood clot has formed in the catheter so now she is in blood thinners and Tylenol for pain. Her next scheduled treatment might be pushed back of the clot remains. although this is a setback for sure, we are taking a note from your book in that...this is a process and your body needs to do what it needs to do. So from the bottom of my heart I want you both to know how much you have helped our family (many times) during a nightmarish time. I am so bless to have found your channel. I honestly believe I was guided to it before Elizabeth got sick so in would see how positivity influences outcomes. I held strong to that for the 9 months she was in the hospital. You will never know how much you prepared me for the worst year of my life. The things I learned in your channel, while not due to CF
Yes, we feel like a burden!
You guys are always an inspiration. God Bless.
Sending love and prayers. You’re both amazing Mary and Peter ❤️
Mary you inspire me every day to get up and keep going with a smile on my face or to just be okay if I'm not doing well. You always shine brighter than your CF and you are an amazing woman!
Always Sending Prayers Mary I Know The Best Is To Come Thank You Guys For Always Sharing!!
Well said, Mary and Peter❤️🥰. Our chronic illnesses, although they impact our lives in many ways, do not need to define who we are. We are much more than our illnesses. Thank you both for you kind words and your great example of love and understanding.🥰🥰
Lots of love to you and all your family
I have cystic lung disease as welll and you guys are my inspiration!! Thank you and bless you guys.
Love you ! Praying for you! We just had a series at my church titled “God Uses Imperfect People”. So very true. Some of the greatest people in the Bible were people who were imperfect at one time in there lives.
.
Praying for u
You guys are amazing...stay strong....GOD BLESS you both
I have become so attached to hearing from you and Peter (and seeing Ollie) that I look forward to it every day. You are the sweetest couple and your love is such an example of what loving someone through the sickness and health really exemplifies. I love the way Peter looks at you and cares for you with such sincerity. May God continue to cover your sweet family through all your days ahead and allow you to Bless us, through sharing your life perspective as you forge ahead.
So needed this message today. Chronic illness can be a real downer but you give me hope. God bless both of you. 😇
Hang in there you guys. Lots of love and prayers 🙏
In releasing tears i find im admitting im vulnerable. When i admit i am vulnerable, those are the times i find Jesus in the storms to carry me through.
😭 thank you so much for this! I have Cerebral palsy, and my greatest fear is being a burden! 💚
After a mental health wise challenging day like today it almost brought me to tears, but i think i really needed to be told, that my health issues don't define me. Thank you guys :)
It is okay not to be okay. I also have a lung disease and know there are better says and my "normal" days. Good luck to and Peter.
I'm so glad my message helped u. God bless you and your family. I believe I can be better with my health issues knowing you are keeping a great frame of mind.
I just want to say thank you, I needed this video and the reminder that I'm still me despite my circumstances. I have been chronically and terminally ill since I was 10 and I'm now 27 with 26 surgeries and just getting sicker. It's hard. I hope and pray that this week at the hospital and all your testing went as well as possible, i have only been a subscriber for about a year but you both are always in my prayers! Keep having courage and know how many people care about you!
I live with chronic pain and I feel bad for my son because sometimes I can't do things with him. You didn't end the video with Oliver I love to see his face. 🐾🐾💋 😁 God bless you all.
Awww Mary....you and your family are a gift from God. Thank you for helping my girls and I. You often say what's been on my heart and mind but far more eloquently. Thank you for being a part of our world ( even if you don't know us)
Mary and Peter you r both so so incredibly strong regardless of what life chucks at you, and ur statement of still being u despite all this truly resonates with me. After watching your Vlogs since day one, it gave me hope in that having a chronic illness, particularly a chronic lung disease, doesnt mean you are not you. It doesnt define you. Thanks to you guys, I decided to set up a youtube channel with my wife, to share our journey with chronic illness and to show others that it's ok not to be ok, there is a community of people that r going through similar situations and are there for you. It's my dream to have a channel with as many followers as you guys so I can help and support others with every day chronic illness life. Thank you so much for sharing your story, your life and tour heart with us xx
i havent watched yalls vlog in a very long time, ngl. but you came up in my recommended again after a year, and i subscribed to see what yall are up to. this is the first video i seen since then, and gosh dang i needed it. this morning, i couldnt open a jam jar, and my grandpa had to help. i often feel guilty bc i should be taking care of them, being in their 60s, not the other way around. i often feel pathetic that at 19 i cant do most things my friends can. but this made me feel a lot better. now i cant remember why i left yalls channel in the first place. youtube may have unsubbed me, idk. but im just glad i found yall again. thank you so much 💕