I have had chronic leg pain due to MS. Showers are excruciating. Clothing just brushing my shins feels like I’m being scratched by a beast. Only thing that has helped is opioids unfortunately. I don’t really want to be on them but this day and age I’m treated like a junkie just for wanting to live my life with a little less pain. Have had some very cruel drs. Had one ‘pain specialist’ actually laugh and make fun of me in the hall with his staff. Goodluck to you all. Glad I’m not alone. God bless
Hey there, I'm so terribly sorry to hear that you've been made fun of and by Dr's as well!!. SO UNPROFESSIONAL. I for one can totally understand where your coming from, especially with clothes brushing on skin, for me it's bed sheets also etc. It's really horrible isn't it. Pain is just HORRIBLE .. and when you're in a lot of pain I tend to not care what I take as long it helps take the edge off. The side of effects are quite often not very good though, but hey we have to cope don't we. You most certainly ARE NOT alone Angie, please don't ever think that for a minute. Anytime you fancy a chat, please feel free to pop back. Best to you - Neil.
I used a pulsating medic heat wand for days...Voltaren emulgel and heating pad. This eventually stopped the pain. At first is slowly lessoned the pain the first day/night, then each day a little less pain and so on. I had the pounding pulse set at the highest level, to which my husband found extremely uncomfortable on his hand when he tried it...I had highest level on almost constantly first day, then used it less times each day thereafter but always on the highest level...i didnt feel any discomfort at this level due to numbness. It works to you other sufferers..it must pulse or pump to work best though. Try it for severe leg pain. Mine was in my right outside thigh. ❤
Hi there, not so much now but I have in the past suffered terribly with burning thighs. Almost to the point of bringing tears, hours and hours of no relief. I’m sorry to hear you’re currently going through this torture.
For me a drug called Pregabalin helps massively, you might know this as Lyrica. I’ve had to stop taking it though because for me, these type of nerve pain killer drugs effect my mobility. So it’s a double edged sword. Mind you, I’m not sure my mobility can get much worse. I hope that helps.
Yessss! I'm waiting for MRI but I'm sure I have MS. For me it's both my.legs... feels heavy, chunky, numb, pain.. weakness burning.. my knees feel.like they want to give out on me.. my right leg is worse than left..also slight swelling on foot.. its pissing me off because I can't walk much, climbing stairs is a nightmare.. it hurts my lower back too.. and new symtom I'm getting it jn left arm.. along with MS hug.. I hate it
Hello Zee, I'm pleased to see you're waiting for an MRI as it's important you wait for these results. I say to a lot of people who are convinced they've got MS (they self diagnose with Google) that their symptoms may not actually be a sinister condition. It's important to remember there are a number of conditions that can cause these symptoms, one of them being a disc bulge. This is where a disc located at some point in the spine has protruded and is pushing on to a nerve causing the symptoms of tingling and also weakness. The MRI should definitely highlight this, if this is the case. I'm also able to sympathise with you, I have significant pain every day.. so much that I am having to take Morphine for it because it's the only thing that seems to take the 'edge' off. I too cannot walk hardly at all, I shuffle along .. and yes climbing the stairs for me also is a bit of a night mare. I often have to stop half way for a rest before I carry on to the top to catch my breath. Know that I understand. Thank you for taking the time to watch my videos, there's plenty more .. in fact I've recently been re-diagnosed (3rd time now) so the more recent videos on my channel are about that. I'll keep my fingers cross for you, take care. Neil.
My neurologist recommended a natural alternative called Moringa ( i was surprised medical doctors don't believe in natural medicine ) he told me one of the best ways to treat autoimmune diseases naturally .
@@visionsmagazineonlin you right not helpful. I just try to exercise daily try my best despite paresthsia constanly under my feet ( pins an needles) to live for my kids. Imagine there are worst diseases like ALS an some cancers but ms tortues you. Its my best friend it is always there 🤣🤣🤣. Oh an being one of Jehovah's witness one day no one will say i am sick isiah 33:24
Thanks for the video. Practically sitting in tears watching this. Today has been rough, whole new pain level today. Right leg/foot are usually the worst, but now the left leg/foot has started with pain, numbness and extremely weakness. Scary, to say the least.
Hey there, I'm so sorry to hear this .. know that I truly understand how you're feeling! It's very scary indeed when new symptoms start isn't it. I'm not sure of your circumstances or diagnosis, but you shouldn't leave this. If you are diagnosed with MS, this will be considered as an attack or a relapse. I live in the UK, and if anything like this happens I immediately contact the MS team at my hospital and they decide what to do, usually give you steroids which will hit the inflammation hard and give you the best chance of recovery. This sounds more scary than it actually is, so please try not to worry. I'd be interested to hear back, see how you get on. Sending thoughts. 🙏
I'm sorry you guys are going through it too, I'm going through this too... my right foot is slightly swollen... and both knees hurt like crazy... do you guys have these symptoms too?? Xxx
Hi Zee, my feet aren't swollen and neither are my knees however .. I get significant nerve pain so it feels like my legs (knees and feet also) are being SQUEEZED all of the time. It's very uncomfortable and distressing. To add to this squeezing sensation, sometimes you can add in BURNING to the mix.
Hey there, and thanks for leaving me a comment .. I'm terribly sorry to hear your dealing with terrible leg pain at the moment. I can totally relate to the stabbing pain, but I've also had a lot of the burning pain on both my thighs. Not so much at the moment, but in the past it's kept me up so much at night unable to sleep. It's about trying to find the best medication and introducing it slowly and finding the balance which helps you with the pain, but doesn't make you feel too drowsy at the same time. Sending thoughts - Neil.
just curious, do you incorporate your pain into your dreams. I always have dreams about people beating me and leaving me for dead. I wake up and my nerve pain is flaring up. I know what you mean about new levels of pain.
Hey there, no the pain doesn’t make it into my dreams but I do have regular dreams about my mobility. In waking life my mobility is very poor, but in my dreams it’s really good and I’m always showing people how amazing I can walk and run, and I’m always in awe etc. I’m always absolutely blown away, but then I awake and the dim reality dawns once again bringing me crashing down.
I'm showing all signs of MS more recent is my legs. Aching, numbness, tingling from hips to feet plus weekends when I walk. Plus all the other symptoms
Hello there, I’m sorry to hear you’re having these symptoms. My advice would be to keep a diary of symptoms, remember as far back as you can and when they started. That goes for current symptoms, log any changes. This is very important because a Neurologist will want to know as much detailed history as possible. I wish you well.
I know what you mean I’m feeling the pain but in my right leg”not just today but for many days now,pain medication doesn’t seem to be working.I’ll see what happens next.
Yes indeed Lena, I'm right with you there .. for me it's usually my left leg, I've not got that terrible pain at the moment (Thank God) but when I did nothing would touch it. I really hope you get some sort of relief from the pain very soon Lena. Thank you for your message, good to hear from you.
Hope you get to your steroids ok and not good on your birthday but could be spending 6 days of your 10 day holiday in a Greek hospital! As you can imagine I wouldn't wish it on anyone. Hope the meds help and be careful with how much you say about legs etc or next thing your licence is gone just a heads up friend👍
Thanks for the heads up Adrian, I’m giving a lot of thought now to a new vehicle with hand controls. I’ve also recently purchased a Dash-cam to protect myself. The Greek hospital doesn’t sound good at all, scary in fact.
Happy Sunday to you all and a Happy Birthday to Teresa and a Pre-Birthday Wish to you Neil! The gift will be the great feeling of being able to do a bit more in the upcoming weeks.I take Amitriptyline and it helps me with my pangs and helps me sleep. Thanks for the updates over the last few weeks and I hope the pain goes away before your drive in tomorrow. Avril
Thanks Avril, I really value your long and continued support. Cheers for the birthday wishes which I will also pass on to my good wife. I hope you are well.
Hi Charles, and thank you for your message. I really wish I didn't have to take any medication either, but there becomes a point where the pain meets your thresh hold and you just can't take anymore. To be honest, I find regular pain killers don't really do much. This video is just over couple of years old now, and currently I'm in more pain than ever before.. I'm now on the strong stuff (Oramorph) but not by choice. I hope Charles, that your pain is well under control and that you don't have to turn to medication to control it any time soon. Take care.
Wayne, if you’re experiencing sciatic pain this could be caused by a disc in your lower back pushing on a nerve root. Have you had an MRI scan? I really feel for you, . Sciatica is absolutely evil, have you had it checked out my friend?
Me too Karen, I’ve had my first infusion today. It’s currently 2:33am and I’ve been putting my time to good use, by editing and cutting a new video that I will be uploading very shortly. Thanks for he birthday wishes
I'm sorry that your pain got worse! I see I'm not the only one who doesn't listen when I'm told not to do anything. The distraction really does help though, I truly agree with that. Yes it is truly scary when you don't have the answers, and not even the medical staff can answer all of you concerns. My hope is we all can find the answers we all seek soon! Best wishes and hugs to both of you! Stay strong and keep up the good work! P. S. I hate brain fog, I type the same end all the time, and I got the word best on here and forgot the rest of it that quick, I stared at it for almost 2 minutes before I could remember what I was typing. (ugh)
Hello Count, and thank you. I've started listening to my dear wife an awful more just lately, she speaks a lot of sense and only has my best interests at heart, as I do hers. I don't think even medical science has all the answers to be honest. I'm fortunate enough not to suffer with brain fog, but I can very much appreciate how distressing this can be for you.
@@NeilBradleyMS I had a Chiropractor tell me something a long time ago and I really believe it, "Each person knows their own body better than anyone else that includes doctors!". That is a little bit of a dangerous thing to say to someone like me, as I don't entirely trust doctors anyway. Just in case you haven't guessed by now, I'm just a little bit older(joking) than the 2 of you, I'll be 60 on my next birthday just before summer! Best wishes and hugs to the both of you! Stay strong and keep up the good work!
Happy early birthday. I am glad you are getting some steroids, and I really hope they work for you. I tried Amitriptyline and it did nothing for me, I hope it works better for you. And yes, when the new pain levels come it is super scary! I start wondering if I will ever be ok again. Happy Birthday to Teresa!
So sorry to see get your symptoms to get this point. Is always scary when something new happens or intensifies. Wishing you and Theresa the best. Happy belated Birthdays!!
Living with them as is something I would never wish on anybody, not even my worst enemy. I was diagnosed when I was 19 and the leg pain seems to be something that has been consistent throughout.
Hello there, and thank you for your message. I am in total agreement with you, the leg pain has been something (and still is) that has been consistent throughout the whole illness. For me, it all started with numbness in my feet back in 2007 out of nowhere, quickly spreading into my legs. It calmed down for a couple of years, but quickly came back and has only ever got worse really. I find night times are the worst when going to bed, do you? Trying to sleep with the numbness, burning and twitching is like persistent torture. Stay well my friend.
@@NeilBradleyMS I felt the EXACT same thing when my first attack hit. I get the temperature and needle sensation when going through an attack. But the muscle spasms persist even when I'm feeling "normal". Exercise has definetely helped. I have to be on and off any meds for pain (benozos/opiates/opioids) depending on how bad I feel. Getting hooked on one isn't very nice. So I take caution. Changing my diet dramatically changed the way I felt too. It seems like every little thing can set it off. Weather, stress, food, etc. However, all this experimenting to see what hurts and helps my body has been tiresome. The effects are so far spread. Only other people with the diagnoses can really understand it. Hope you find your way of living that best suits your body. Keep up the fight.
Hi, I am newly diagnosed at 40 and about a year into the diagnosis, I have had 3 nights in a row of horrific lower leg pain. Even my toes hurt\burn. The baclofen prescribed doesn’t seem to do much except make me groggy and sleep until 2 pm! Is this an EVERY night thing? It’s only my right leg. Any advice is much welcome,
@@jamiemicallef8972 Certain benzodiazepines (depending which works best with your body) helped quite a bit with that. Otherwise pregablin or high dose gabapentin. Unfortunately, opioids haven't seemed to help. Tropicals like asper cream help a lot. I'd recommened getting yourself a cbd topical. Helps tremendously. The cbd tinctures have a whole slew of essential oils as well. As for baclofen. My body got used to it and it didn't help even after a dose increase. I switched to Soma for about 4 months, went back to baclofen and now it works much better. Get pressure socks for the day to help the blood flow. And at night use diabetic nurve socks so as to be easy on the nerves and keep the feet warm. Hope this helps
Happy Birthday Teresa!🎂🎉. Neil, sorry to hear your still having leg pain. I don’t know how you do it. Hoping the steroids give you some relief. Good Luck!👍
First: Happy Birthday, Teresa! I hope you´re having a nice relaxing day :) Second: Neil, I am sorry to hear that your legs are in so much pain. Hopefully the steroids can help with that. Best of luck tomorrow. I will be sending good thoughts your way.
Thanks Rikke, I’ll pass on your message to Teresa for sure (she’s more than likely already read it though). Today has been horrendous pain wise. It’s currently 2:29am and I’m not tired because of the steroids. So I’m putting my time to good use by editing up a new video which, should be with you soon. It’s all in there. Thanks for your support.
So sorry for your pain. Wish I could make it go away for you. I wanted to tell Teresa happy birthday. You guys have become my favorite couple. You both are delightful to see you taking care of each other no matter what the challenges. I'm wishing you good results at your hospital visit.
Hope you don't have the pain in your leg tomorrow but if you do, I'd advise to go anyway - you don't want to wait heaven knows how long to get your steroids which (hopefully) will ease the pain. B'day wishes again to both. Wanted to send an eCard but don't know address to send to.
Hi Sondra, the rice bags sounds really good. I’m on day 2 of steroid infusion, in fact I’m just waiting to go in whilst catching up on comments. Thanks for the birthday wishes.
Hi, first I would like to say happy belated birthday to Teresa and happy birthday to you Neil. I hope the steroids offer you some relief and all goes well for you today x
Hey there, I’m very sorry to hear you’re struggling with MS 😢 Know that I do understand, my legs (especially both feet) are hurting terribly also, whilst replying to you. I also have stiff muscles in my back which give me serious pain. Not sure if it’s the same for you, but pain killers don’t seem to touch this level of pain. I hope you start to feel a bit better soon, or at the least see some improvement.
We have much in common in symptoms. I've had MS I since I was 29 years old I'm now 42 I have good days and bad days. Double vision, weakness in right leg regular drop foot poor balance I could go on with many more you know how it is. We just can pray for each other and continue to pray. But God still bless me with a beautiful wife and kids. Thank you for responding to my comment. Stay strong always.
@@NeilBradleyMS So the Pain in your legs counts as a relapse? Or what relapse is causing this pain? Reason I'm asking is because I was diagnosed with RRMS last year, started copaxone and haven't relapsed since, but recently I'm experiencing pain in my legs, and I'm currently not in relapse as far as I'm concerned, I called about it and they immediately called it RLS....
I’ve always suffered with terrible nerve pain in my legs. But round the time of this video it was particularly bad. I also had some other new symptoms, and I’d also broken the plateau of feeling quite well and mobile after having steroids a few months earlier. This was considered a relapse. I do from time to time get this twitching in my left leg. My legs gets this build up sensation and then kick out, then the whole process repeats about a minute later. This can continue for hours, even when trying to sleep. A lot of my subscribers have called this RLS but I also feel it can be a symptom of malfunctioning nerves in MS. I hope that helps - Neil.
@@NeilBradleyMS Thanks for your open honesty man, I feel like I have a decent reference and can be pretty sure this is not RLS but actual nerve pain instead. Thanks again - I'll keep you posted.
I feel for you. I have had unbelievable leg pain since I was 14 (20 years have passed). They are considering ms now due to other symptoms. I find that a sauna and yoga can give me a break for a few minutes but the REALLY severe pain is so hard to deal with. Prayers for you that you will find relief from your pain!
Hello Chelsie, I read your message in the early hours of this morning and my heart went out to you. To suffer with such terrible pain and from such a young age for this length if time is just so horrible for you. I'm so sorry that you have to deal with this on a daily basis. As you probably know there is no definitive diagnosis for MS, instead it's just a case of ruling things out. But in order for you to be diagnosed you should be looking at tests such as MRI Scans (brain and whole spinal cord), Blood tests, Lumber Puncture that sort of thing. I really do hope they get to the bottom of what is happening to you, and then hopefully you'll be able to get some treatment. I'm glad to hear at least you managed to find you're own way of getting some relief which gives you a little bit of a break at least. I think focusing the mind with Yoga can re-focus the mind and give you some relief, but it's not easy especially if the pain is too bad. When my pain is bad, I literally just don't know what to do with myself. Sending thoughts and prayers, stay strong and please feel free to pop back on here anytime. Best - Neil.
Neil Bradley pls become Muslim ..Allah has given u this disease to test and to inspire other people pls my brother do research abt Islam.I have a similar disease to urs called FND it was cause by liposuction surgery and in very bad pain I wanted to commit suicide coz of the pain .I was send to psychiatric hospital coz I had mental breakdown they stuffed me with all kinds of medication antipsychotics. Amazingly the pain went down.After two weeks I was discharged.i had leg stiffened muscle atrophy spams leg nerve pain . I kept taking the antipsychotic medication.Now I have stopped taking the crazy medication and jus using balcofen bro me pain has reduced immensely it’s like it’s not The anymore.I know firsthand what u going thru but pls do research abt Islam .I prayed to Allah he helped and heal me he will heal u too.Amin
Hi Patty, I do get pain in my hands. On my right I’ve got numbness on two finger tips. But also, since I started getting symptoms in 2007 my hands would burn with nerve pain and be very red. This still happens but not quite as severe. What sort of pain do you have have Patty?
Hi thank you for contacting me. Almost like I am talking to a super star. I get stiffness in my hands. My fingers get really sore when I make a fist. Seem to be losing strength in my weak hand (right) I do get tingling and have to shake it out. Yesterday my hand looked very twisted. No unusual pain. I wish I knew how to send you a picture of it on here. Not very smart when it comes to TH-cam
Hi Patty, I’m afraid you can’t send picture with comments on TH-cam. Me a superstar? Not sure about that aha .. your hands sound very painful. The tingling would suggest something nerve related perhaps. Have you had a diagnosis?
Neil Bradley yes I was diagnosed last December. I have had many symptoms for years but brushed them off. I was having relapses every month since last August and was put on steroid iv every month and then in July my walking didn’t get better and little things have started Happening like my hands, my toes go completely numb when I walk too much and speech problems on and off. I called the bathroom a banana and ketchup the kitchen so that gets a bit funny at times.
Neil Bradley yes I was diagnosed last December. I have had many symptoms for years but brushed them off. I was having relapses every month since last August and was put on steroid iv every month and then in July my walking didn’t get better and little things have started Happening like my hands, my toes go completely numb when I walk too much and speech problems on and off. I called the bathroom a banana and ketchup the kitchen so that gets a bit funny at times.
hi neil but did you say in other video that ms was affecting hips if not I am sorry its just that I have pain in my hips and I thought it was wear and tare
Hi Paul.. yes, I did say I was having pain and weakness in my hips probably a couple of months ago now. Especially my left hip, standing was sometime very difficult, I can deal with the pain but there’s nothing I can do about the weakness which was terrible. Since recently having steroids I’ve not had this symptom which tells me it is MS related and not wear and tear for me. You see MS, effects the wiring (the nerves) to the muscles, this in turn prevents the muscles from functioning at a 100%, so weakness ensues. Cheers - Neil.
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I have had chronic leg pain due to MS. Showers are excruciating. Clothing just brushing my shins feels like I’m being scratched by a beast. Only thing that has helped is opioids unfortunately. I don’t really want to be on them but this day and age I’m treated like a junkie just for wanting to live my life with a little less pain. Have had some very cruel drs. Had one ‘pain specialist’ actually laugh and make fun of me in the hall with his staff. Goodluck to you all. Glad I’m not alone. God bless
Hey there, I'm so terribly sorry to hear that you've been made fun of and by Dr's as well!!. SO UNPROFESSIONAL. I for one can totally understand where your coming from, especially with clothes brushing on skin, for me it's bed sheets also etc. It's really horrible isn't it. Pain is just HORRIBLE .. and when you're in a lot of pain I tend to not care what I take as long it helps take the edge off. The side of effects are quite often not very good though, but hey we have to cope don't we.
You most certainly ARE NOT alone Angie, please don't ever think that for a minute. Anytime you fancy a chat, please feel free to pop back.
Best to you - Neil.
Neil Bradley MS thanx. Yes the bed sheets! Lol not fun. Just really glad someone gets it.
Oh yes, trust me I really do get it!
I used a pulsating medic heat wand for days...Voltaren emulgel and heating pad. This eventually stopped the pain. At first is slowly lessoned the pain the first day/night, then each day a little less pain and so on. I had the pounding pulse set at the highest level, to which my husband found extremely uncomfortable on his hand when he tried it...I had highest level on almost constantly first day, then used it less times each day thereafter but always on the highest level...i didnt feel any discomfort at this level due to numbness. It works to you other sufferers..it must pulse or pump to work best though. Try it for severe leg pain. Mine was in my right outside thigh. ❤
Does anyone get burning, tingling, stabbing, cripping in there thighs area. I had a cat scan and xray of my back and pelvis and showed nothing.
Hi there, not so much now but I have in the past suffered terribly with burning thighs. Almost to the point of bringing tears, hours and hours of no relief. I’m sorry to hear you’re currently going through this torture.
@@NeilBradleyMS it's my biggest issue. Did you do or take something to help it? Thanks
For me a drug called Pregabalin helps massively, you might know this as Lyrica. I’ve had to stop taking it though because for me, these type of nerve pain killer drugs effect my mobility. So it’s a double edged sword. Mind you, I’m not sure my mobility can get much worse. I hope that helps.
Yessss! I'm waiting for MRI but I'm sure I have MS. For me it's both my.legs... feels heavy, chunky, numb, pain.. weakness burning.. my knees feel.like they want to give out on me.. my right leg is worse than left..also slight swelling on foot.. its pissing me off because I can't walk much, climbing stairs is a nightmare.. it hurts my lower back too.. and new symtom I'm getting it jn left arm.. along with MS hug.. I hate it
Hello Zee, I'm pleased to see you're waiting for an MRI as it's important you wait for these results. I say to a lot of people who are convinced they've got MS (they self diagnose with Google) that their symptoms may not actually be a sinister condition. It's important to remember there are a number of conditions that can cause these symptoms, one of them being a disc bulge. This is where a disc located at some point in the spine has protruded and is pushing on to a nerve causing the symptoms of tingling and also weakness. The MRI should definitely highlight this, if this is the case.
I'm also able to sympathise with you, I have significant pain every day.. so much that I am having to take Morphine for it because it's the only thing that seems to take the 'edge' off. I too cannot walk hardly at all, I shuffle along .. and yes climbing the stairs for me also is a bit of a night mare. I often have to stop half way for a rest before I carry on to the top to catch my breath. Know that I understand.
Thank you for taking the time to watch my videos, there's plenty more .. in fact I've recently been re-diagnosed (3rd time now) so the more recent videos on my channel are about that.
I'll keep my fingers cross for you, take care.
Neil.
My neurologist recommended a natural alternative called Moringa ( i was surprised medical doctors don't believe in natural medicine ) he told me one of the best ways to treat autoimmune diseases naturally .
Tried it. Not helpful.
@@visionsmagazineonlin you right not helpful. I just try to exercise daily try my best despite paresthsia constanly under my feet ( pins an needles) to live for my kids. Imagine there are worst diseases like ALS an some cancers but ms tortues you. Its my best friend it is always there 🤣🤣🤣. Oh an being one of Jehovah's witness one day no one will say i am sick isiah 33:24
Thanks for the video. Practically sitting in tears watching this. Today has been rough, whole new pain level today. Right leg/foot are usually the worst, but now the left leg/foot has started with pain, numbness and extremely weakness. Scary, to say the least.
Hey there, I'm so sorry to hear this .. know that I truly understand how you're feeling! It's very scary indeed when new symptoms start isn't it. I'm not sure of your circumstances or diagnosis, but you shouldn't leave this. If you are diagnosed with MS, this will be considered as an attack or a relapse. I live in the UK, and if anything like this happens I immediately contact the MS team at my hospital and they decide what to do, usually give you steroids which will hit the inflammation hard and give you the best chance of recovery. This sounds more scary than it actually is, so please try not to worry. I'd be interested to hear back, see how you get on. Sending thoughts. 🙏
I'm sorry you guys are going through it too, I'm going through this too... my right foot is slightly swollen... and both knees hurt like crazy... do you guys have these symptoms too?? Xxx
Hi Zee, my feet aren't swollen and neither are my knees however .. I get significant nerve pain so it feels like my legs (knees and feet also) are being SQUEEZED all of the time. It's very uncomfortable and distressing. To add to this squeezing sensation, sometimes you can add in BURNING to the mix.
I'm dealing with this right now!! My right leg feels like it's being stabbed! I'm praying for us both, I have MS as well!!
Hey there, and thanks for leaving me a comment .. I'm terribly sorry to hear your dealing with terrible leg pain at the moment. I can totally relate to the stabbing pain, but I've also had a lot of the burning pain on both my thighs. Not so much at the moment, but in the past it's kept me up so much at night unable to sleep. It's about trying to find the best medication and introducing it slowly and finding the balance which helps you with the pain, but doesn't make you feel too drowsy at the same time. Sending thoughts - Neil.
just curious, do you incorporate your pain into your dreams. I always have dreams about people beating me and leaving me for dead. I wake up and my nerve pain is flaring up. I know what you mean about new levels of pain.
Hey there, no the pain doesn’t make it into my dreams but I do have regular dreams about my mobility. In waking life my mobility is very poor, but in my dreams it’s really good and I’m always showing people how amazing I can walk and run, and I’m always in awe etc. I’m always absolutely blown away, but then I awake and the dim reality dawns once again bringing me crashing down.
Me too.
I'm showing all signs of MS more recent is my legs. Aching, numbness, tingling from hips to feet plus weekends when I walk. Plus all the other symptoms
Hello there, I’m sorry to hear you’re having these symptoms. My advice would be to keep a diary of symptoms, remember as far back as you can and when they started. That goes for current symptoms, log any changes. This is very important because a Neurologist will want to know as much detailed history as possible. I wish you well.
Aw I missed the Mrs' bday! Happy birthday to you both!
I know what you mean I’m feeling the pain but in my right leg”not just today but for many days now,pain medication doesn’t seem to be working.I’ll see what happens next.
Yes indeed Lena, I'm right with you there .. for me it's usually my left leg, I've not got that terrible pain at the moment (Thank God) but when I did nothing would touch it. I really hope you get some sort of relief from the pain very soon Lena. Thank you for your message, good to hear from you.
Hope you get to your steroids ok and not good on your birthday but could be spending 6 days of your 10 day holiday in a Greek hospital! As you can imagine I wouldn't wish it on anyone. Hope the meds help and be careful with how much you say about legs etc or next thing your licence is gone just a heads up friend👍
Thanks for the heads up Adrian, I’m giving a lot of thought now to a new vehicle with hand controls. I’ve also recently purchased a Dash-cam to protect myself. The Greek hospital doesn’t sound good at all, scary in fact.
Happy Sunday to you all and a Happy Birthday to Teresa and a Pre-Birthday Wish to you Neil! The gift will be the great feeling of being able to do a bit more in the upcoming weeks.I take Amitriptyline and it helps me with my pangs and helps me sleep. Thanks for the updates over the last few weeks and I hope the pain goes away before your drive in tomorrow. Avril
Thanks Avril, I really value your long and continued support. Cheers for the birthday wishes which I will also pass on to my good wife. I hope you are well.
Thanks for video! I have the leg thing I didn’t know what it was ! I’m 46 too but I DO NOT take medication and I am not any worse than yourself,
Hi Charles, and thank you for your message. I really wish I didn't have to take any medication either, but there becomes a point where the pain meets your thresh hold and you just can't take anymore. To be honest, I find regular pain killers don't really do much. This video is just over couple of years old now, and currently I'm in more pain than ever before.. I'm now on the strong stuff (Oramorph) but not by choice. I hope Charles, that your pain is well under control and that you don't have to turn to medication to control it any time soon. Take care.
I know exactly, I thought sciatic leg pain was intense, this is like more than 8 levels beyond.
Hello Wayne, so very sorry to hear you’re in pain. It’s just horrible isn’t it, never seem to get a break 24/7. Hang in there my friend. 🙏
@@NeilBradleyMS thank you
I know that right now it feels like my leg is imploding from the inside out.
Wayne, if you’re experiencing sciatic pain this could be caused by a disc in your lower back pushing on a nerve root. Have you had an MRI scan? I really feel for you, . Sciatica is absolutely evil, have you had it checked out my friend?
@@NeilBradleyMS I have considerable damage in 17 of the 23 disc areas of the spine, I got used to the sciatica but the MS has made it feel worse.
Happy Birthday Neil! Hope the roids help, hang in there.
Me too Karen, I’ve had my first infusion today. It’s currently 2:33am and I’ve been putting my time to good use, by editing and cutting a new video that I will be uploading very shortly. Thanks for he birthday wishes
Happy birthday
have you ever tried Cistus Incanus tea ? it has helped me allot.
Hi Remon, can’t say that I have. I might have to Google that one as I’ve never heard of it. I’m pleased it’s really helping you. 👍
I'm sorry that your pain got worse! I see I'm not the only one who doesn't listen when I'm told not to do anything. The distraction really does help though, I truly agree with that. Yes it is truly scary when you don't have the answers, and not even the medical staff can answer all of you concerns. My hope is we all can find the answers we all seek soon! Best wishes and hugs to both of you! Stay strong and keep up the good work! P. S. I hate brain fog, I type the same end all the time, and I got the word best on here and forgot the rest of it that quick, I stared at it for almost 2 minutes before I could remember what I was typing. (ugh)
Hello Count, and thank you. I've started listening to my dear wife an awful more just lately, she speaks a lot of sense and only has my best interests at heart, as I do hers. I don't think even medical science has all the answers to be honest. I'm fortunate enough not to suffer with brain fog, but I can very much appreciate how distressing this can be for you.
@@NeilBradleyMS I had a Chiropractor tell me something a long time ago and I really believe it, "Each person knows their own body better than anyone else that includes doctors!". That is a little bit of a dangerous thing to say to someone like me, as I don't entirely trust doctors anyway. Just in case you haven't guessed by now, I'm just a little bit older(joking) than the 2 of you, I'll be 60 on my next birthday just before summer! Best wishes and hugs to the both of you! Stay strong and keep up the good work!
Happy early birthday. I am glad you are getting some steroids, and I really hope they work for you. I tried Amitriptyline and it did nothing for me, I hope it works better for you. And yes, when the new pain levels come it is super scary! I start wondering if I will ever be ok again. Happy Birthday to Teresa!
I’m with you there Gwenny, I wonder if it’ll be ever ok again on a regular basis. Thanks for the birthday wishes.
So sorry to see get your symptoms to get this point. Is always scary when something new happens or intensifies. Wishing you and Theresa the best. Happy belated Birthdays!!
Thanks Jason, yes you’re right it is scary and hard to deal with.
Living with them as is something I would never wish on anybody, not even my worst enemy. I was diagnosed when I was 19 and the leg pain seems to be something that has been consistent throughout.
Hello there, and thank you for your message. I am in total agreement with you, the leg pain has been something (and still is) that has been consistent throughout the whole illness. For me, it all started with numbness in my feet back in 2007 out of nowhere, quickly spreading into my legs. It calmed down for a couple of years, but quickly came back and has only ever got worse really. I find night times are the worst when going to bed, do you? Trying to sleep with the numbness, burning and twitching is like persistent torture. Stay well my friend.
@@NeilBradleyMS
I felt the EXACT same thing when my first attack hit. I get the temperature and needle sensation when going through an attack. But the muscle spasms persist even when I'm feeling "normal".
Exercise has definetely helped. I have to be on and off any meds for pain (benozos/opiates/opioids) depending on how bad I feel. Getting hooked on one isn't very nice. So I take caution.
Changing my diet dramatically changed the way I felt too.
It seems like every little thing can set it off. Weather, stress, food, etc.
However, all this experimenting to see what hurts and helps my body has been tiresome.
The effects are so far spread. Only other people with the diagnoses can really understand it.
Hope you find your way of living that best suits your body.
Keep up the fight.
Hi, I am newly diagnosed at 40 and about a year into the diagnosis, I have had 3 nights in a row of horrific lower leg pain. Even my toes hurt\burn. The baclofen prescribed doesn’t seem to do much except make me groggy and sleep until 2 pm! Is this an EVERY night thing? It’s only my right leg. Any advice is much welcome,
@@jamiemicallef8972 Certain benzodiazepines (depending which works best with your body) helped quite a bit with that. Otherwise pregablin or high dose gabapentin. Unfortunately, opioids haven't seemed to help. Tropicals like asper cream help a lot. I'd recommened getting yourself a cbd topical. Helps tremendously. The cbd tinctures have a whole slew of essential oils as well.
As for baclofen. My body got used to it and it didn't help even after a dose increase. I switched to Soma for about 4 months, went back to baclofen and now it works much better.
Get pressure socks for the day to help the blood flow. And at night use diabetic nurve socks so as to be easy on the nerves and keep the feet warm.
Hope this helps
Happy Birthday Teresa!🎂🎉. Neil, sorry to hear your still having leg pain. I don’t know how you do it. Hoping the steroids give you some relief. Good Luck!👍
Thanks Maria, I’ll pass on your good wishes. I do think I do it very well to be honest but I just keep trying. It feel like a prison sentence though.
First: Happy Birthday, Teresa! I hope you´re having a nice relaxing day :)
Second: Neil, I am sorry to hear that your legs are in so much pain. Hopefully the steroids can help with that.
Best of luck tomorrow. I will be sending good thoughts your way.
Thanks Rikke, I’ll pass on your message to Teresa for sure (she’s more than likely already read it though). Today has been horrendous pain wise. It’s currently 2:29am and I’m not tired because of the steroids. So I’m putting my time to good use by editing up a new video which, should be with you soon. It’s all in there. Thanks for your support.
Neil I am so sorry you are suffering 😔😢
Namaste 🙏 ::: Tere:::
Thank you.
So sorry for your pain. Wish I could make it go away for you. I wanted to tell Teresa happy birthday. You guys have become my favorite couple. You both are delightful to see you taking care of each other no matter what the challenges. I'm wishing you good results at your hospital visit.
Thank you for your support Sondra.
Hope you don't have the pain in your leg tomorrow but if you do, I'd advise to go anyway - you don't want to wait heaven knows how long to get your steroids which (hopefully) will ease the pain. B'day wishes again to both. Wanted to send an eCard but don't know address to send to.
Thanks Zan for your good wishes. If ever you want to send anything my email is neil.bradley@hotmail.com 😊
Happy birthday neil. Did the steroids help? I love the warm rice bags that I make it eases those painful muscles.
Hi Sondra, the rice bags sounds really good. I’m on day 2 of steroid infusion, in fact I’m just waiting to go in whilst catching up on comments. Thanks for the birthday wishes.
Neil, sorry you are having pain in your leg. Hope all goes well with your steroid treatment. Take care!
Thank you Larry.
Hi, first I would like to say happy belated birthday to Teresa and happy birthday to you Neil. I hope the steroids offer you some relief and all goes well for you today x
Hi Jaime, thanks a lot for the birthday wishes. I’m currently on day 2, I’m hoping they’ll kick in soon. Thanks.
Happy birthday Neil and Theresa!!🎂
Thanks you very much.
Many happy returns Teresa
Thank you, I’ll pass that on to her for you.😊
Hang in there. My leg is hurting as am writing this commit. I to struggling with MS.
Hey there, I’m very sorry to hear you’re struggling with MS 😢 Know that I do understand, my legs (especially both feet) are hurting terribly also, whilst replying to you. I also have stiff muscles in my back which give me serious pain. Not sure if it’s the same for you, but pain killers don’t seem to touch this level of pain. I hope you start to feel a bit better soon, or at the least see some improvement.
We have much in common in symptoms. I've had MS I since I was 29 years old I'm now 42 I have good days and bad days. Double vision, weakness in right leg regular drop foot poor balance I could go on with many more you know how it is. We just can pray for each other and continue to pray. But God still bless me with a beautiful wife and kids. Thank you for responding to my comment. Stay strong always.
Always here my friend, you stay strong too. 🙏
The past few days my left leg is in more pain then usual it's agony to be honest .
I'm sorry to hear this Katie, rest assured I do know how you are feeling though. Have you had this checked out?
Not yet phoning my ms nurse tomorrow
Good luck, I hope you get something to help with the pain. Sending thoughts. 🙏
Hi Neil, Did your specialist by any chance label this pain as restless legs syndrome at first?
Hi there, not as such. I think they thought it’s just a result of the relapse at the time.
@@NeilBradleyMS So the Pain in your legs counts as a relapse? Or what relapse is causing this pain?
Reason I'm asking is because I was diagnosed with RRMS last year, started copaxone and haven't relapsed since, but recently I'm experiencing pain in my legs, and I'm currently not in relapse as far as I'm concerned, I called about it and they immediately called it RLS....
I’ve always suffered with terrible nerve pain in my legs. But round the time of this video it was particularly bad. I also had some other new symptoms, and I’d also broken the plateau of feeling quite well and mobile after having steroids a few months earlier. This was considered a relapse.
I do from time to time get this twitching in my left leg. My legs gets this build up sensation and then kick out, then the whole process repeats about a minute later. This can continue for hours, even when trying to sleep. A lot of my subscribers have called this RLS but I also feel it can be a symptom of malfunctioning nerves in MS.
I hope that helps - Neil.
@@NeilBradleyMS Thanks for your open honesty man, I feel like I have a decent reference and can be pretty sure this is not RLS but actual nerve pain instead.
Thanks again - I'll keep you posted.
You’re very welcome, good luck.
I feel for you. I have had unbelievable leg pain since I was 14 (20 years have passed). They are considering ms now due to other symptoms.
I find that a sauna and yoga can give me a break for a few minutes but the REALLY severe pain is so hard to deal with. Prayers for you that you will find relief from your pain!
Hello Chelsie, I read your message in the early hours of this morning and my heart went out to you. To suffer with such terrible pain and from such a young age for this length if time is just so horrible for you. I'm so sorry that you have to deal with this on a daily basis.
As you probably know there is no definitive diagnosis for MS, instead it's just a case of ruling things out. But in order for you to be diagnosed you should be looking at tests such as MRI Scans (brain and whole spinal cord), Blood tests, Lumber Puncture that sort of thing. I really do hope they get to the bottom of what is happening to you, and then hopefully you'll be able to get some treatment.
I'm glad to hear at least you managed to find you're own way of getting some relief which gives you a little bit of a break at least. I think focusing the mind with Yoga can re-focus the mind and give you some relief, but it's not easy especially if the pain is too bad. When my pain is bad, I literally just don't know what to do with myself.
Sending thoughts and prayers, stay strong and please feel free to pop back on here anytime.
Best - Neil.
Are u better now
Ahme Shaz I’m afraid not, I’ve gone downhill again this last few months. But the steroids did pick me up for a while.
Neil Bradley pls become Muslim ..Allah has given u this disease to test and to inspire other people pls my brother do research abt Islam.I have a similar disease to urs called FND it was cause by liposuction surgery and in very bad pain I wanted to commit suicide coz of the pain .I was send to psychiatric hospital coz I had mental breakdown they stuffed me with all kinds of medication antipsychotics. Amazingly the pain went down.After two weeks I was discharged.i had leg stiffened muscle atrophy spams leg nerve pain . I kept taking the antipsychotic medication.Now I have stopped taking the crazy medication and jus using balcofen bro me pain has reduced immensely it’s like it’s not The anymore.I know firsthand what u going thru but pls do research abt Islam .I prayed to Allah he helped and heal me he will heal u too.Amin
Ahme Shaz I’m so very pleased that you’re no longer in pain. I totally respect your faith. Blessings to you. 🙏
Hi Neil! I love your videos! Can you please tell me if you have hand pain?
Hi Patty, I do get pain in my hands. On my right I’ve got numbness on two finger tips. But also, since I started getting symptoms in 2007 my hands would burn with nerve pain and be very red. This still happens but not quite as severe. What sort of pain do you have have Patty?
Hi thank you for contacting me. Almost like I am talking to a super star. I get stiffness in my hands. My fingers get really sore when I make a fist. Seem to be losing strength in my weak hand (right) I do get tingling and have to shake it out. Yesterday my hand looked very twisted. No unusual pain. I wish I knew how to send you a picture of it on here. Not very smart when it comes to TH-cam
Hi Patty, I’m afraid you can’t send picture with comments on TH-cam. Me a superstar? Not sure about that aha .. your hands sound very painful. The tingling would suggest something nerve related perhaps. Have you had a diagnosis?
Neil Bradley yes I was diagnosed last December. I have had many symptoms for years but brushed them off. I was having relapses every month since last August and was put on steroid iv every month and then in July my walking didn’t get better and little things have started Happening like my hands, my toes go completely numb when I walk too much and speech problems on and off. I called the bathroom a banana and ketchup the kitchen so that gets a bit funny at times.
Neil Bradley yes I was diagnosed last December. I have had many symptoms for years but brushed them off. I was having relapses every month since last August and was put on steroid iv every month and then in July my walking didn’t get better and little things have started Happening like my hands, my toes go completely numb when I walk too much and speech problems on and off. I called the bathroom a banana and ketchup the kitchen so that gets a bit funny at times.
hi neil but did you say in other video that ms was affecting
hips if not I am sorry its just that I have pain in my hips and I thought
it was wear and tare
Hi Paul.. yes, I did say I was having pain and weakness in my hips probably a couple of months ago now. Especially my left hip, standing was sometime very difficult, I can deal with the pain but there’s nothing I can do about the weakness which was terrible. Since recently having steroids I’ve not had this symptom which tells me it is MS related and not wear and tear for me. You see MS, effects the wiring (the nerves) to the muscles, this in turn prevents the muscles from functioning at a 100%, so weakness ensues. Cheers - Neil.
Neil Bradley
Thank you for your reply
Much appreciated
You’re very welcome Paul.