I really learned a lot from the video. Especially the last 5 minutes. I've been suffering with this condition since puberty. I'm now 55. A little less than a week ago, I had 4 coils and 1 vein embolism. Now I feel worse than I did before. The reason is because I thought this was going to solve all the problems. When I woke up from my surgery, the doctor said that he decided not to do a stent in the iliac vein. He thought we could wait and see if what he did worked. I was devastated since this is where most of my pain comes from. My leg swells, hip aches, lower pelvis is swollen and I just knew this would be my cure. If he had only stated that it might be a 2 step process before hand, I would have received that news so much better. Now, I can't wear the compression hose, do the leg compression machine or work a full day (since I'm a pre-k teacher) until I go back for my check up. I feel very discouraged. I know that I'll survive because I have for 50 years. It's always best to say up front that something might be a 2 step process. Or even that the percentage is 75%. That way people are prepared.
Thank you for this information. I was diagnosed with PCS when I had exploratory laparoscopy surgery. Now I'm having a difficult time finding the right doctor to help me with my debilitating chronic pelvic pain. I'm in So. California. Any suggestions how to find the right doctor? When I call vein specialists, I'm told they never heard of PCS.
I really learned a lot from the video. Especially the last 5 minutes. I've been suffering with this condition since puberty. I'm now 55. A little less than a week ago, I had 4 coils and 1 vein embolism. Now I feel worse than I did before. The reason is because I thought this was going to solve all the problems. When I woke up from my surgery, the doctor said that he decided not to do a stent in the iliac vein. He thought we could wait and see if what he did worked. I was devastated since this is where most of my pain comes from. My leg swells, hip aches, lower pelvis is swollen and I just knew this would be my cure. If he had only stated that it might be a 2 step process before hand, I would have received that news so much better. Now, I can't wear the compression hose, do the leg compression machine or work a full day (since I'm a pre-k teacher) until I go back for my check up. I feel very discouraged. I know that I'll survive because I have for 50 years. It's always best to say up front that something might be a 2 step process. Or even that the percentage is 75%. That way people are prepared.
Thank you for this excellent episode!
Thank you for this information. I was diagnosed with PCS when I had exploratory laparoscopy surgery. Now I'm having a difficult time finding the right doctor to help me with my debilitating chronic pelvic pain. I'm in So. California. Any suggestions how to find the right doctor? When I call vein specialists, I'm told they never heard of PCS.
You can see Dr Grace Knuttinen from Mayo Clinic. She specializes with PCS.