So irritating hearing how much people have to advocate for themselves within our healthcare system. Thank you for sharing. Glad you are ok and have such a good attitude.
I live in Belgium Europe and it is the same here... the medical system is just one big disappointment. Those doctors have such big egos and if you are female and young they tend not to take you seriously : let alone being colored wooo the world is sick and don’t recognize the sick
@@Doesntmatter20 It's an incredible thing to notice and experience. It really opens your eyes and makes you consider, do these doctors really care about me/want the RIGHT care for me OR are they so quick to prescribe something because of a symptom to get you off their back/make money based on prescribing. No alternative medicine is ever a thought and why?! To keep us sick and them in business? It's BS.
I feel like her process was so fast! February-April. I went for 4 years, and YEARS is the story of many. But you’re correct we shouldn’t have to advocate so much, once doctors listen it takes about 2 months to get diagnosed. So this was a great length of time.
Thank you for sharing your story! I was diagnosed with Hodgkin’s lymphoma too and I had similar experience with health care. Them making me feel like it was me not taking care of myself when I knew something was wrong. I had a lump in my armpit and they just kept putting me off never ordering a biopsy. To this day they don’t tell me the starting point of HL but I chose to focus on getting better rather than blame. But hearing stories there are some who have similar experiences. Stay positive. Wishing you all the best! ❤
My grandpa returned from WWII (fought in the battle of Normandy on DDay), he & my grandma had 4 children. The oldest 5 yrs old (my dad) and the youngest was 9 months old. My grandpa was 32 when diagnosed with Hodgkin’s Lymphoma. Back then the medical providers wouldn’t tell a patient they were terminal. He passed leaving my grandma to raise all 4 in her own, she passed at 90 yrs old on the same day that my grandpa passed 52 years prior. She had never dated nor remarried after him.
Alix, I am truly so sorry to hear you share of your sister's passing. The loss of a sister that you were so close with is unimaginable. I am holding you in my thoughts, heart and prayers. You are a beautiful soul with an incredible outlook on life. You are wise beyond your years. Bravo to you for all that you have overcome! Keep shining ever so brightly, so much so, that you leave a sparkly shimmery shiny path for others to follow. Without a doubt, you have not only helped, yet have inspired many people who have been blessed in connecting with you. Take one small step, one hour, one day, and one moment, at a time. Sending heartfelt healing hugs and loads of love your way. 🦋🙏💙
Thank you for your kind words. You have no idea how much they mean to me. I needed to read that today more than I could express to you... Thank you 💖💘💕💗
@@inspiredbyremy92Hi! I have had a swollen nose in my neck for the last year almost. It comes and goes all the time . Did yours come and go or swell really big then get a little smaller? What other symptoms did you have ?
Stay Strong. You have such a positive outlook. I was diagnosed on July 5, 2019 with NLPHL, I am 27 years old. I noticed a swollen lymphnode in my neck in June of 2018 and thought it was my diet. I was vegan at the time and changed my diet back to normal but still healthy and hoped it would go away. In October of 2018 it still was not gone and I went to my primary care. My primary care sent me to have blood work and the blood work did not show any issues. He gave me some antibiotics and sent me on my way. I never had any symptoms or pain. Then this year I went to see an ENT as it still had not disappeared and they did the same thing, needle.biopsy, then an excisional biopsy. I am stage 3 and start my chemo treatment on August 7, 2019. Your videos are inspiring, I have not been reacting and it feels very surreal. You're discussion about cannabinoids therapy makes me curious. Thank you so much for the inspirational words, we all have a choice and we can beat this!
Hi Christopher! I wanted to check in with you and how your doing now? There is this community of young people that I am now connected with that I would love to also connect you with. These are all young people who are currently battling cancer or survivors. Its great being able to connect with people that know what your going through. I hope your treatments have been going well. My heart is with you as I know it hasn't been easy. And please feel free to dm me if you would like to get connected with the group - we would love to have you. ❤️
Stay Strong! Glad you are doing well. Amazing how Doctors don't give you the scans you need on the first time around. Glad you kept fighting for your health. God bless.🙏🏿
Awe I’m so sorry for your loss. Grief can make you ill for sure. I lost my sister and I got really sick. It’s just so hard to loose someone you love. They’re is no time limit on grief . Take care , and thank you for sharing ❤️💕
Thanks for sharing your experience and your combative spirit! Looking for the time when nobody on earth will say : I am sick! Please take good care of yourself and please let me know where you are up to now. Cheers
You are such an inspiration!! This love you’re putting out, the Universe will give back tenfold. Please please continue to make videos inspiring and giving much needed support to those who are battling this or those who are having a hard time even being diagnosed. ❤️❤️❤️
Thank you both for checking in ❤️ I had a really tough time with the second half of my treatments and went off the grid for a little while. I'm beginning to post the rest of my videos from my journey and my time since.
@@bohochic2459 I do t know about Alix, I watched this on you tube as my daughter has just had same diagnosis. I just wanted to see how other people were coping with it . I do think hearing other peoples experiences help others . I hope Alix is ok too.😏😏😏
You are an amazing person, i really appreciate this video and the positivity you give off ik were not really in this together but you made it feel that way and i love you for that. I’m glad you’ve learned to cope with this you are very strong. Thank You sm for the video.
Thank you for taking the time to make this video. I’m starting to think this is what I have although I don’t have any bumps right now, but I have been going through all the same symptoms. Everyone talks about with lymphoma. They did find some weird nodules in my lungs though.
I have been getting sicker over the past 2 years since my 19 year old daughter's death, I haven't been healthy my entire life but over 12 years it's just gone down hill... My white cell count is low, I have iron deficiency anemia, lesions in my lungs, on my spine, swelling of my lymph nodes in lower extremities and lymphedema. My doctor says I'm just depressed and hematology refuses to do any biopsies, they also said I am depressed and feel guilty that my daughter died instead of me!! I have had horrible things said to me and charted as a very depressed individual. No one takes me seriously at all... I would agree if I wasn't in so much pain, with chronic anemia and dropping blood counts, lost 15pnds in 5 weeks just recently, have a chronic rash, itching, night sweats and high blood pressure and high pulse. Coughing up blood due to lung lesions. My heart broke for you when you said everyone thought you were crazy. I have to sit here and except that without help I am just going to die because literally no one will help me...
@@eduard7761 I have had multiple opinions!! All horrible opinions because no one would do a biopsy!! They said I was just depressed... When actually it's looking like endometrial cancer and I just got a biopsy Thursday by a new doctor who actually cares for his patients...
Many of the same things were said to me due to the death of my sister. It is not fair that doctors excuse symptoms because of grief... In fact is absolutely absurd and angering. I really hope you have been able to advocate for yourself and get some answers. My heart is with you.
Greetings! I have just bumped into your video and can't resist the temptation of texting you to find out how you have been doing. I hope the second physician took your syndrome seriously and ran proper tests to find out the culprit. I really do. I wish you well and hope you are now in the pink. Please take care of your health.
I know his is an aged post of yours that i'm thankful for you sharing but if your up for talking at all it would be ah valued moment to me. I understand if not too & i hope your feeling better than ever in 2022 🙏🏽🌞
Glad to hear you are doing good! Stay positive and don't worry about money and enjoy every minute of your life because it does go by fast !!Good luck..
Night sweats gives it away unless you're in menopause. You'll be wet sweaty like you're running a marathon. Back, scalp, face all sweaty. Clothing damp. It usually causes you to wake up in the night and toss covers off.
Ive had a lymph node in my neck thats apparentely 2cm they also say it's benign, but now I'm going to get it looked at again. Pretty nervous they mentioned needle aspiration biopsy. Not so much worried about that as much as I dont want it to be something bad. Thank you for sharing your story. I hope youre doing well. Very helpful and thoughtful of you to help others. Strong person.
I noticed lymph nodes in February, and also I had ekzema. I was so scared that it can be lymphoma. Finally, last monday I took results of biopsy, it is not lymphoma.
How are you doing today dear? I pray ok 🙏 I have been going through so much healthwise that my doc/everyone think I am a hypochondriac but I KNOW something is off and has been for so long. I pray they find out what it is before too late. I have two beautiful children I so despirately want to see grow up 😭
Natalie - I am so sorry that you have been treating so horribly by the medical system. It is cruel, careless and reckless. YOU know your body better than anyone! If something feels wrong - your inner wisdom is telling you to pay heed. You deserve to be heard and respected. Don't let them bullying you around. They would not have a bloody job without you! (Which I wish they didn't, as that would mean no more sickness). You matter! You deserve the best care possible. I pray you are okay, and are surrounded by a supportive and caring medical team. What I pray for most is that you found answers and are now on your full healing journey. 🦋🙏💙
Such a brave girl! Another thing is when taking a biopsy or other medical procedure the medical staff is so inhuman. It is normal that you are scared and they act like; don’t be a baby : come on! Just no empathy and not enough information.
4 years ago I was diagnosed with LYMPHOMA and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including LYMPHOMA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for LYMPHOMA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now totally free from LYMPHOMA , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Thanks so much for the video. I had 2 swollen lymph nodes for 2 months and couldn’t go to the gp. I feel like my anxiety is manifesting symptoms like mild hot flashes and random itchy sensations. I’m scared because I’m only 14 and my parents are scared as well because my grandma passed recently from cancer. I’ve been googling everything and I’m gonna stop now. My mom is emailing my gp now but I still can’t get checked because of the coronavirus.
I have a lymph node swollen just below my ear behind my jaw; no side-effects at all; no sweats, no itchiness... nothing, just a node on my neck for almost a year and it's only noticable when I turn my neck and pull the skin sideway...
@@RedloxBeats Yeah but mine was for quite some time like months and now its as big as my palm finger i can feel it just like you said when i turn my head to other side is extremely visible and its hard its size like a bean compared to the other from other ear you can see quite large difference in size and how hard is it i swear if its lymphoma my carrier will be ruined as a i also work in biological research .
@@RedloxBeats No its not like rock hard its soft hard like bubblegum when you chewed it already its not very movable almost at all , other symptoms i had already sleep apneas , the most prominent is itching across the whole body nothing else that i can pin point . Otherwise Iam physically active playing basketball .
Why do doctors do that? Something could be seriously wrong with you and they'll brush you off because you're young and just diagnose you with depression or anxiety
"Practicing medicine". Their job is to get every penny they can, so they send us down a rabbit hole. They call "Holistic doctors" quacks because those doctors go directly for the cause. I beg to differ. Those big pharma backed doctors are the real quacks!
i had hodgkins lymphoma when i was 19 ...thrice i hv relapsed after chemo and BMT .... i left all medical treatment .Now cancer is still in my body ...day by day i am going close to death.
"I shall remain positive", that is what I told my doctor today 1st May 2020. My journey for a definitive diagnosis begins next wednesday, with a ultrasound biopsy and blood work. My Doctor was very honest with me has he knows i am a registered nurse, he said most likely lymphoma. He was visibly shocked by his assessment as he knows i am the soul provider of two children one who has Autism a (pineal gland cyst) arthritis seizures and recently diagnosed with polycystic ovarian failure. I am not stating all this for sympathy, i am stating it because through scientific research i have come to the collusion that vaccines are the one thing that most likely is the reason for such a alarming increase in cancer occurring in the last 20 years or so in society..... I don't like the idea of chemo either... CBD for me if diagnosed with Hodgkin's lymphoma....Rant over, back to life. Thank you for sharing your journey, it helped.
Lisa Ellsmore how is it going? I have multiple swollen lymph nodes with no infection and knowing it could be lymphoma is making my anxiety sky rocket. I hope coronavirus isn’t affecting you that much :( I’m only 14 and I’m scared. Good luck with your diagnosis:)
@@gravityrain4683 Thanks for your comment, I'm staying busy so I'm not dwelling on the possibilities. But i do admit there certainly is a lot to consider going forward. I should know what I'm dealing with by the end of the week. Please talk to your parents about how you feel at the moment.... Please know as humans our thoughts and reactions to circumstances are always manifested in our realities... So i suggest meditation as a calming tool for the mind..... God bless you on your healing journey., 🙏😇❤️
@@inspiredbyremy92 Hello, as things turned out i had stage 4 throat cancer(squamous cell carcinoma) i had 35 rounds of radiation a 3 rounds of chemotherapy. A peg feeding tube and lost some hearing most of my waist length hair, but i have beaten it so far. I'm currently having 3 monthly check ups. So I'm a cancer surviver.
@@lisaellsmore1731 Oh my gosh Lisa! Wow. You have been through so much and have truly SURVIVED. That is incredible. I am so happy to hear your are currently on 3 month check ups! I have my LAST 3 month check up coming up in June. I have felt at times that remission was just as hard as treatment...it takes time, but we do heal. I promise you there are brighter and brighter days ahead
it does have something to do with your diet. most disease starts with the gut and obviously what you're exposed to as well. Diet, water and proper rest are huge factors and environment as i mentioned.
I will continue to keep you in my prayers❤️ thank you for sharing your story. I'm just wondering, did you experience any neck tightness or chest tightness as one of your symptoms? I hope you are doing well.
Hi, thank you for your kind words. I did experience both chest tightness and neck tightness as my lymph nodes we're growing larger and larger and causing different sensations in my body - pushing against organs and tissue. But I also had chest tightness from anxiety.
Thank you so much for sharing Alix! Just wondering if the cystic acne resolved with your treatment? I'm currently under investigation for lymphoma and also have had it pop up out of nowhere
I'm still trying to get tested. I'm so sick and 30# weight loss. I'm getting masses everywhere. Constant diagnosis anxiety. Glands under neck swollen. Now CT showing mass in nasopharynx. Scared whole family gets cancer.
@@laurenclark1480 - OH, Lauren, my heart hurts reading your reply. I wasn't even going to have my phone on today, as I normally turn it off on a Sunday. Alas, here I am. Forgive my "ramblings" as I feel utterly helpless and at a loss for words. As humans, we feel the need to fill the space with words, yet sometimes, it's about holding that space....and in some cases holding the space for someone. So....I am here....holding the space for you....in whatever way feels the most safe for you.....
@@laurenclark1480 - .... I know that you do not know me....typing here behind my phone. However, I am a woman that cares about how you are feeling and coping Not coping). Your story touched me deeply. I asked how you were doing because it was important to do so. You matter. You are not alone. You are cared about. You are loved. I pray you have a healthy and loving support system. I do not wish to pry, nor would I ever think to do so. I am deeply concerned and worried, as you said that you are not good. My one question to you: How can I support you? I am sending heartfelt and compassionate hugs your way. With love and light, Norma. 🦋🙏💙
I hope and pray you are well now and stay that way! Seems like you are based off your most recent videos? May I ask, when you say golf ball sized, do you mean like a golf ball size sticking out? Or was it like half a golf ball sticking out, and other half inside? Could you notice the node from looking at it? If so was it obvious to see, or did you need to look closely? I have something swollen now, that I think I can slightly see when I look very closely (although no one else sees it). But when I touch it’s very obvious. It feels huge, but maybe it’s not as big as I think if it’s not visible? I had my doctor check and she wasn’t that worried but said to monitor.
It was slightly sticking out, but it was more visible when I would turn my neck to tighten the skin around it, then it was more visible. It wasn't too obvious to see until I started chemo and it had grown a lot. The only advice I could give would be to trust yourself. No doctor knows your body better than you. Get a second opinion if that is something that feels in alignment with you.
That’s crazy I have a lump on the groing area and they do a ct scan everything come back normal my pain when away for a year but last week my pain come back but I don’t know what to do I’m frustrated
That sounds very frustrating. Definitely continue to advocate for yourself. CT scans should be able to determine cancer cells but PET scans may be a better option... You should ask your doctor about that. I would also recommend keeping a journal to document your pain/growth of the lymph node to track it.
Alix Kirshner thanks for the advice I hope you doing good i when y to the ER hoping for a CT scan they let me go because al my vitals are normal🤦🏻♂️ even though I told him I’m experiencing chills and lost of appetite
I am a retired RN and cannot believe the medical industry, mostly incompetent and dismissive MD's....I have all the symptoms and blood work associated with leukemia and non of the doctors take me seriously. I'm going to ask for a bone marrow test and just get to the answer...how are you doing now?
I go on Wednesday for my ct on my neck and chest. I have all the same exact symptoms. Thought it was auto immune at first but now the lymph nodes are swollen!
Doctor Kanayo Peterson's TH-cam channel is forever etched in my memory, I wish to thank you for helping me relieve my hiv and aids symptoms with your herbal medicine for two weeks. Through you, I became hopeful that I could live again.
It was probably the size of a the pit of a peach and kept getting bigger. I also started to find other enlarged lymph nodes in my neck that were smaller than the one I initially found.
95% of the battle is realizing what the patient has done to cause it. Chronic Malnutrition, chronic dehydration, lack of sleep, go-go-go lifestyle. This has taken years to develop and don't allow any oncologist tell you it is now an emergency. You have more than one option.
So they weren’t squishy and really moveable? I have one in my neck it’s been there for a year in a half hasn’t grown it’s bout the size of a baked bean
Yes of course. I found the swollen lymph node in the middle of the right side of my neck. It was round and about the size of a peach pit but then grew to be the size of a golf ball. It was pretty painless. One of the only reasons I noticed it was because of the size....I began to feel it when I moved my neck and when I touched it, it felt pretty hard but also had a bit of a softness to it. I hope that helps... ❤️
@@inspiredbyremy92 thank you very much. I can feel something on my neck too. But it doesnt seem to be round or hard. It's more like of a vein or muscle that has fats on it. Although I can feel when i swallow. I pray you continue on your recovery 💞
Also may I add. I felt a sharp pain on my lower right stomach and I've been having some distortion to my bowel movement and I have dull pain on my lower back.
they already had your results from the original biobsy. they just wanted to make more money with that surgery...famous for doing that. they love to cut cut cut!
fkn dogs. i wonder if HL is a natural process body does to rid the bad cells and i wonder whhat aud happen if we leave it or try heal it naturally. i also wonfer if this girl did any physival activities or herbs to try heal
So irritating hearing how much people have to advocate for themselves within our healthcare system. Thank you for sharing. Glad you are ok and have such a good attitude.
I live in Belgium Europe and it is the same here... the medical system is just one big disappointment. Those doctors have such big egos and if you are female and young they tend not to take you seriously : let alone being colored wooo the world is sick and don’t recognize the sick
@@Doesntmatter20 It's an incredible thing to notice and experience. It really opens your eyes and makes you consider, do these doctors really care about me/want the RIGHT care for me OR are they so quick to prescribe something because of a symptom to get you off their back/make money based on prescribing. No alternative medicine is ever a thought and why?! To keep us sick and them in business? It's BS.
@@Doesntmatter20 💯.
I feel like her process was so fast! February-April. I went for 4 years, and YEARS is the story of many. But you’re correct we shouldn’t have to advocate so much, once doctors listen it takes about 2 months to get diagnosed. So this was a great length of time.
Us healthcare system is only about keeping you alive long enough to extract maximum money - nothing about early preventative care etc. Disgraceful
Thank you for sharing your story! I was diagnosed with Hodgkin’s lymphoma too and I had similar experience with health care. Them making me feel like it was me not taking care of myself when I knew something was wrong. I had a lump in my armpit and they just kept putting me off never ordering a biopsy. To this day they don’t tell me the starting point of HL but I chose to focus on getting better rather than blame. But hearing stories there are some who have similar experiences. Stay positive. Wishing you all the best! ❤
My grandpa returned from WWII (fought in the battle of Normandy on DDay), he & my grandma had 4 children. The oldest 5 yrs old (my dad) and the youngest was 9 months old. My grandpa was 32 when diagnosed with Hodgkin’s Lymphoma. Back then the medical providers wouldn’t tell a patient they were terminal. He passed leaving my grandma to raise all 4 in her own, she passed at 90 yrs old on the same day that my grandpa passed 52 years prior. She had never dated nor remarried after him.
Alix, I am truly so sorry to hear you share of your sister's passing. The loss of a sister that you were so close with is unimaginable. I am holding you in my thoughts, heart and prayers. You are a beautiful soul with an incredible outlook on life. You are wise beyond your years. Bravo to you for all that you have overcome! Keep shining ever so brightly, so much so, that you leave a sparkly shimmery shiny path for others to follow. Without a doubt, you have not only helped, yet have inspired many people who have been blessed in connecting with you. Take one small step, one hour, one day, and one moment, at a time. Sending heartfelt healing hugs and loads of love your way. 🦋🙏💙
Thank you for your kind words. You have no idea how much they mean to me. I needed to read that today more than I could express to you... Thank you 💖💘💕💗
@@inspiredbyremy92Hi! I have had a swollen nose in my neck for the last year almost. It comes and goes all the time . Did yours come and go or swell really big then get a little smaller? What other symptoms did you have ?
Stay Strong. You have such a positive outlook. I was diagnosed on July 5, 2019 with NLPHL, I am 27 years old. I noticed a swollen lymphnode in my neck in June of 2018 and thought it was my diet. I was vegan at the time and changed my diet back to normal but still healthy and hoped it would go away. In October of 2018 it still was not gone and I went to my primary care. My primary care sent me to have blood work and the blood work did not show any issues. He gave me some antibiotics and sent me on my way. I never had any symptoms or pain.
Then this year I went to see an ENT as it still had not disappeared and they did the same thing, needle.biopsy, then an excisional biopsy.
I am stage 3 and start my chemo treatment on August 7, 2019.
Your videos are inspiring, I have not been reacting and it feels very surreal. You're discussion about cannabinoids therapy makes me curious.
Thank you so much for the inspirational words, we all have a choice and we can beat this!
Christopher Reynolds how u doing now bro hope u good
Is the swollen lymph node big?
Hi Christopher! I wanted to check in with you and how your doing now? There is this community of young people that I am now connected with that I would love to also connect you with. These are all young people who are currently battling cancer or survivors. Its great being able to connect with people that know what your going through. I hope your treatments have been going well. My heart is with you as I know it hasn't been easy. And please feel free to dm me if you would like to get connected with the group - we would love to have you. ❤️
@@desheashawn33 deshea sorry I didn't see your response, I am doing good thank you for asking.
@@matttt1212 it was quite big but I believe it was only enlarged 3cm if I remember correctly
Stay Strong! Glad you are doing well. Amazing how Doctors don't give you the scans you need on the first time around. Glad you kept fighting for your health. God bless.🙏🏿
Thanks for telling your story. Going for a surgery to remove a groin lymph node and it’s comforting to know you got through it.
I hope the surgery went well! Thinking of you.
Awe I’m so sorry for your loss. Grief can make you ill for sure. I lost my sister and I got really sick. It’s just so hard to loose someone you love. They’re is no time limit on grief . Take care , and thank you for sharing ❤️💕
Thank you! Lympoma is no joke I needed to hear the word fight!
You won the battle! Thanks for sharing your positive experience.
Thanks for sharing your experience and your combative spirit! Looking for the time when nobody on earth will say : I am sick! Please take good care of yourself and please let me know where you are up to now. Cheers
Robert Kim - Is there any recent update on how Alix's is doing?
You are such an inspiration!! This love you’re putting out, the Universe will give back tenfold. Please please continue to make videos inspiring and giving much needed support to those who are battling this or those who are having a hard time even being diagnosed. ❤️❤️❤️
Thank you so much for your kind words. It means so much to know my videos are helping others on their journeys 💜
You are so inspiring! Thank you so much! So many doctors are quick to dismiss patients concerns. Thanks for giving me the courage to move forward🙏
I'm so honored my story could help you in that way 💜
Really sorry to hear about your sister! Hope she'll be in Heaven with God, The almighty. I think it's great that you're doing better.
I love that you address the power of the mind.its very important.
I hope you are doing okay, haven't see any posts for a while. Would be happy to hear from you and know you are alright
Christopher Reynolds I just wondering about her as well. Hopefully she’s doing well.
Thank you both for checking in ❤️ I had a really tough time with the second half of my treatments and went off the grid for a little while. I'm beginning to post the rest of my videos from my journey and my time since.
Alix good to hear you are getting through this . I hope it has all got better for you now , as these comments are a while ago now .👍🌸
@@lindab8397 - I so hope everything is okay with Alix. I am a bit worried. 🦋🙏💙
@@bohochic2459 I do t know about Alix, I watched this on you tube as my daughter has just had same diagnosis. I just wanted to see how other people were coping with it . I do think hearing other peoples experiences help others . I hope Alix is ok too.😏😏😏
You are an amazing person, i really appreciate this video and the positivity you give off ik were not really in this together but you made it feel that way and i love you for that. I’m glad you’ve learned to cope with this you are very strong. Thank You sm for the video.
Thank you for taking the time to make this video. I’m starting to think this is what I have although I don’t have any bumps right now, but I have been going through all the same symptoms. Everyone talks about with lymphoma. They did find some weird nodules in my lungs though.
Same here. Lungs and thyroid.
I appreciate this video in so many ways, you truly are helping people! You are helping people understand what is going on their own body!
Yes, you have power. We all do. Thanks for reminding me of this.
I wish you all the best on your journey, you got this.
Prayers for you in your battle against this. I wish you the best health for the future!
Thank you. You are an Angel. May God Bless you and keep you protected.
I have been getting sicker over the past 2 years since my 19 year old daughter's death, I haven't been healthy my entire life but over 12 years it's just gone down hill... My white cell count is low, I have iron deficiency anemia, lesions in my lungs, on my spine, swelling of my lymph nodes in lower extremities and lymphedema. My doctor says I'm just depressed and hematology refuses to do any biopsies, they also said I am depressed and feel guilty that my daughter died instead of me!! I have had horrible things said to me and charted as a very depressed individual. No one takes me seriously at all... I would agree if I wasn't in so much pain, with chronic anemia and dropping blood counts, lost 15pnds in 5 weeks just recently, have a chronic rash, itching, night sweats and high blood pressure and high pulse. Coughing up blood due to lung lesions. My heart broke for you when you said everyone thought you were crazy. I have to sit here and except that without help I am just going to die because literally no one will help me...
@@eduard7761 I have had multiple opinions!! All horrible opinions because no one would do a biopsy!! They said I was just depressed... When actually it's looking like endometrial cancer and I just got a biopsy Thursday by a new doctor who actually cares for his patients...
Many of the same things were said to me due to the death of my sister. It is not fair that doctors excuse symptoms because of grief... In fact is absolutely absurd and angering. I really hope you have been able to advocate for yourself and get some answers. My heart is with you.
Greetings! I have just bumped into your video and can't resist the temptation of texting you to find out how you have been doing. I hope the second physician took your syndrome seriously and ran proper tests to find out the culprit. I really do. I wish you well and hope you are now in the pink. Please take care of your health.
Crystal Faith - I pray you are okay. Holding you in my thoughts, heart and prayers. 🦋🙏💙
I know his is an aged post of yours that i'm thankful for you sharing but if your up for talking at all it would be ah valued moment to me. I understand if not too & i hope your feeling better than ever in 2022 🙏🏽🌞
Glad to hear you are doing good! Stay positive and don't worry about money and enjoy every minute of your life because it does go by fast !!Good luck..
This made me so happy! You’re an inspiration. You’re positivity is so powerful. Love you babe xoxo
Thank you love! Love and miss you xoxo
Stay strong. You are loved 🥰
Thank you for sharing Alix.
Sending you so much love , Alix.
Night sweats gives it away unless you're in menopause. You'll be wet sweaty like you're running a marathon. Back, scalp, face all sweaty. Clothing damp. It usually causes you to wake up in the night and toss covers off.
Great video 😊 thanks for sharing. and giving people strength and positive hope.
I had lymphoma also was diagnosed Jan 10 now cancer free after 5 archon treatment s .
you are great Alix. Thanks for telling your story.
Love you cuz xoxo
Ive had a lymph node in my neck thats apparentely 2cm they also say it's benign, but now I'm going to get it looked at again. Pretty nervous they mentioned needle aspiration biopsy. Not so much worried about that as much as I dont want it to be something bad. Thank you for sharing your story. I hope youre doing well. Very helpful and thoughtful of you to help others. Strong person.
So good you're getting it looked at again. I hope the biopsy went as well as it could have. Thinking of you. 💜
I noticed lymph nodes in February, and also I had ekzema. I was so scared that it can be lymphoma. Finally, last monday I took results of biopsy, it is not lymphoma.
You are amazing!
Not sure if you feel comfortable sharing your sister reason for passing?
If not understood!
You are a gift in this world!
Keren Perez She said in a previous video her sister passed in a car accident
Yes, my sister passed in a drunk driving car accident, she was the passenger. I will post a video soon about her 💜 Thank you for asking 💜
seeing an oncologist for the first time today after being sick non stop for 3 years.
howvwas it?
@@furthe5481 I'm getting a bone marrow biopsy in 4 days!
@Scum Destroyer I'm sorry to hear that! Sending you good vibes
@@BeenasBookshelf - how are you? I pray you are okay. 🦋🙏💙
Prayers for you .
Thank you for sharing.....you have good energy. my daughter has just been diagnosed with Hodgkin's lymphoma
Mark Williams - thinking of you. I hope your daughter is as well as possible. 🦋🙏💙
I like your approach 🙂.
This is such a great video! You have an amazing outlook on your situation. You’re so strong.
Thank you so much! I appreciate the your kind words.
You are amazing .... keep strong girl ❤️
Thank you so much ❤️
yes. you have touched me. thank you. God bless!
Thank you for this ❤
How are you doing today dear? I pray ok 🙏
I have been going through so much healthwise that my doc/everyone think I am a hypochondriac but I KNOW something is off and has been for so long. I pray they find out what it is before too late. I have two beautiful children I so despirately want to see grow up 😭
Natalie - I am so sorry that you have been treating so horribly by the medical system. It is cruel, careless and reckless. YOU know your body better than anyone! If something feels wrong - your inner wisdom is telling you to pay heed. You deserve to be heard and respected. Don't let them bullying you around. They would not have a bloody job without you! (Which I wish they didn't, as that would mean no more sickness). You matter! You deserve the best care possible. I pray you are okay, and are surrounded by a supportive and caring medical team. What I pray for most is that you found answers and are now on your full healing journey. 🦋🙏💙
Such a brave girl! Another thing is when taking a biopsy or other medical procedure the medical staff is so inhuman. It is normal that you are scared and they act like; don’t be a baby : come on! Just no empathy and not enough information.
4 years ago I was diagnosed with LYMPHOMA and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including LYMPHOMA , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for LYMPHOMA and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 2 months of use, I am now totally free from LYMPHOMA , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Thanks for the advice, just found out I have follicular Lymphoma your video has helped a ton.👍
How are you doing today
All the vids I've watch so far the first doctors have all let them down .Hope you are ok today 🙏🏾
❤ thanks for your talk
Thank you - I’m sending love to you blessings
Thanks so much for the video. I had 2 swollen lymph nodes for 2 months and couldn’t go to the gp. I feel like my anxiety is manifesting symptoms like mild hot flashes and random itchy sensations. I’m scared because I’m only 14 and my parents are scared as well because my grandma passed recently from cancer. I’ve been googling everything and I’m gonna stop now. My mom is emailing my gp now but I still can’t get checked because of the coronavirus.
Omg same😭
Gravityrain- I am praying you are okay. 🦋🙏💙
@@crystalcampbell2802 - I also hope you are okay. 🦋🙏💙
Thinking of you.
I have a lymph node swollen just below my ear behind my jaw; no side-effects at all; no sweats, no itchiness... nothing, just a node on my neck for almost a year and it's only noticable when I turn my neck and pull the skin sideway...
I am the exactly replica of what you said iam.going for biopsy right now .
@@stevo7220 hey mine was totally fine, it was very normal; I guarantee yours is not a big deal either
@@RedloxBeats Yeah but mine was for quite some time like months and now its as big as my palm finger i can feel it just like you said when i turn my head to other side is extremely visible and its hard its size like a bean compared to the other from other ear you can see quite large difference in size and how hard is it i swear if its lymphoma my carrier will be ruined as a i also work in biological research .
@@stevo7220 how hard is it? is it like stone hard? is it moveable? any symptoms?
@@RedloxBeats No its not like rock hard its soft hard like bubblegum when you chewed it already its not very movable almost at all , other symptoms i had already sleep apneas , the most prominent is itching across the whole body nothing else that i can pin point . Otherwise Iam physically active playing basketball .
Why do doctors do that? Something could be seriously wrong with you and they'll brush you off because you're young and just diagnose you with depression or anxiety
"Practicing medicine". Their job is to get every penny they can, so they send us down a rabbit hole. They call "Holistic doctors" quacks because those doctors go directly for the cause. I beg to differ. Those big pharma backed doctors are the real quacks!
U must me oky now........ I feel that
U seems like a strong girl
U can beat it.... Love from India 🇮🇳
Thank you
Thanks for this video!
My dad he is 77 years old and he got lymphoma but doctor said that they can’t give him any treatment .
That is perplexing... Did they say why?
My grandfather also had hodgkin's lymphoma at 60 and was treated/recovered
God bless you.hope your doing well 🙏
i had hodgkins lymphoma when i was 19 ...thrice i hv relapsed after chemo and BMT .... i left all medical treatment .Now cancer is still in my body ...day by day i am going close to death.
Why do you left medical treatment?, And hopes and pray for you to be cured
How are you now? Praying for you
Best of luck!
I am having very similar symptoms and my blood tests have been relatively normal so far. Were yours pretty normal as well?
Yes, mine were all pretty normal.
Hey, just came across your post. I hope all is well!
"I shall remain positive", that is what I told my doctor today 1st May 2020. My journey for a definitive diagnosis begins next wednesday, with a ultrasound biopsy and blood work. My Doctor was very honest with me has he knows i am a registered nurse, he said most likely lymphoma. He was visibly shocked by his assessment as he knows i am the soul provider of two children one who has Autism a (pineal gland cyst) arthritis seizures and recently diagnosed with polycystic ovarian failure.
I am not stating all this for sympathy, i am stating it because through scientific research i have come to the collusion that vaccines are the one thing that most likely is the reason for such a alarming increase in cancer occurring in the last 20 years or so in society..... I don't like the idea of chemo either... CBD for me if diagnosed with Hodgkin's lymphoma....Rant over, back to life.
Thank you for sharing your journey, it helped.
Lisa Ellsmore how is it going? I have multiple swollen lymph nodes with no infection and knowing it could be lymphoma is making my anxiety sky rocket. I hope coronavirus isn’t affecting you that much :( I’m only 14 and I’m scared. Good luck with your diagnosis:)
@@gravityrain4683 Thanks for your comment, I'm staying busy so I'm not dwelling on the possibilities. But i do admit there certainly is a lot to consider going forward. I should know what I'm dealing with by the end of the week. Please talk to your parents about how you feel at the moment.... Please know as humans our thoughts and reactions to circumstances are always manifested in our realities... So i suggest meditation as a calming tool for the mind..... God bless you on your healing journey., 🙏😇❤️
Lisa, how are you? I'm interested to hearing how everything went. Sending love 💗
@@inspiredbyremy92 Hello, as things turned out i had stage 4 throat cancer(squamous cell carcinoma) i had 35 rounds of radiation a 3 rounds of chemotherapy. A peg feeding tube and lost some hearing most of my waist length hair, but i have beaten it so far. I'm currently having 3 monthly check ups. So I'm a cancer surviver.
@@lisaellsmore1731 Oh my gosh Lisa! Wow. You have been through so much and have truly SURVIVED. That is incredible. I am so happy to hear your are currently on 3 month check ups! I have my LAST 3 month check up coming up in June. I have felt at times that remission was just as hard as treatment...it takes time, but we do heal. I promise you there are brighter and brighter days ahead
it does have something to do with your diet. most disease starts with the gut and obviously what you're exposed to as well.
Diet, water and proper rest are huge factors and environment as i mentioned.
I will continue to keep you in my prayers❤️ thank you for sharing your story. I'm just wondering, did you experience any neck tightness or chest tightness as one of your symptoms? I hope you are doing well.
Hi, thank you for your kind words. I did experience both chest tightness and neck tightness as my lymph nodes we're growing larger and larger and causing different sensations in my body - pushing against organs and tissue. But I also had chest tightness from anxiety.
Thank you so much for sharing Alix! Just wondering if the cystic acne resolved with your treatment? I'm currently under investigation for lymphoma and also have had it pop up out of nowhere
You are so courageous!
Thank you .
How are you now ?
I'm doing well, but up and down! Always learning, growing and reflecting ❤️
I have severe night sweats drenching ones... An I'm wanting to sleep a lot to.
I'm always sleeping all day or all night
I'm still trying to get tested. I'm so sick and 30# weight loss. I'm getting masses everywhere. Constant diagnosis anxiety. Glands under neck swollen. Now CT showing mass in nasopharynx. Scared whole family gets cancer.
Lauren Clark - how are things? 🦋🙏💙
@@bohochic2459 not good
@@laurenclark1480 - OH, Lauren, my heart hurts reading your reply. I wasn't even going to have my phone on today, as I normally turn it off on a Sunday. Alas, here I am. Forgive my "ramblings" as I feel utterly helpless and at a loss for words. As humans, we feel the need to fill the space with words, yet sometimes, it's about holding that space....and in some cases holding the space for someone. So....I am here....holding the space for you....in whatever way feels the most safe for you.....
@@laurenclark1480 - .... I know that you do not know me....typing here behind my phone. However, I am a woman that cares about how you are feeling and coping Not coping). Your story touched me deeply. I asked how you were doing because it was important to do so. You matter. You are not alone. You are cared about. You are loved. I pray you have a healthy and loving support system. I do not wish to pry, nor would I ever think to do so. I am deeply concerned and worried, as you said that you are not good. My one question to you: How can I support you? I am sending heartfelt and compassionate hugs your way. With love and light, Norma. 🦋🙏💙
@@bohochic2459 Thank you. Scared. Pain is horrible
I hope and pray you are well now and stay that way! Seems like you are based off your most recent videos? May I ask, when you say golf ball sized, do you mean like a golf ball size sticking out? Or was it like half a golf ball sticking out, and other half inside? Could you notice the node from looking at it? If so was it obvious to see, or did you need to look closely? I have something swollen now, that I think I can slightly see when I look very closely (although no one else sees it). But when I touch it’s very obvious. It feels huge, but maybe it’s not as big as I think if it’s not visible? I had my doctor check and she wasn’t that worried but said to monitor.
It was slightly sticking out, but it was more visible when I would turn my neck to tighten the skin around it, then it was more visible. It wasn't too obvious to see until I started chemo and it had grown a lot. The only advice I could give would be to trust yourself. No doctor knows your body better than you. Get a second opinion if that is something that feels in alignment with you.
That’s crazy I have a lump on the groing area and they do a ct scan everything come back normal my pain when away for a year but last week my pain come back but I don’t know what to do I’m frustrated
That sounds very frustrating. Definitely continue to advocate for yourself. CT scans should be able to determine cancer cells but PET scans may be a better option... You should ask your doctor about that. I would also recommend keeping a journal to document your pain/growth of the lymph node to track it.
Alix Kirshner thanks for the advice I hope you doing good i when y to the ER hoping for a CT scan they let me go because al my vitals are normal🤦🏻♂️ even though I told him I’m experiencing chills and lost of appetite
@@jtorres12307 hey how are you doing now?
@@Kennyfan13579 its been a roller coaster but the lymph node are normal
how are u right now? i also diagnosed HL in 2017
Keep strong
How big was the lump you had on your neck?
The size of a golf ball
I am a retired RN and cannot believe the medical industry, mostly incompetent and dismissive MD's....I have all the symptoms and blood work associated with leukemia and non of the doctors take me seriously. I'm going to ask for a bone marrow test and just get to the answer...how are you doing now?
Good luck beautiful girl 😊
Live in die in LA.. I GOT SAME CHIN CHIN. DOCTOR ARE MY BROTHER
I go on Wednesday for my ct on my neck and chest. I have all the same exact symptoms. Thought it was auto immune at first but now the lymph nodes are swollen!
How are you? I’ve had a swollen lymph node under jaw. Weeks later my neck has swelling
Aubrey - are you ok? 🦋🙏💙
@@Newjackbarbie - my goodness, what is going on?! Too many of us are getting these symptoms. I am checking in to see if you are ok? 🦋🙏💙
How are you? I have lymph nodes enlarged too but they are painful. I have upper chest pain. 😢
@@Newjackbarbiehow you feel
Honey i have it and its bad did everything i could but keeps coming back ..i hope your okay it sure is painful as it goes on and on ..stay strong
Sophie - how are you? 🦋🙏💙
@@bohochic2459 still here suffering but coping with this hope your doing good
Doctor Kanayo Peterson's TH-cam channel is forever etched in my memory,
I wish to thank you for helping me relieve my hiv and aids symptoms with your herbal medicine for two weeks. Through you, I became hopeful that I could live again.
I’m getting ready to go for my biopsy. I’m terrified. How painful is it?
Jordanah King stay strong truss me ull be good
I hope your biopsy went well and I hope you've been well since! If you need any support my ig is "inspiredbyremy" ❤️
Hoping eveything turned out well for you, I as well have my biopsy today and im super nervous
Jordanah - how are you? 🦋🙏💙
@@yosimi9217 - Are you okay since you posted this? 🦋🙏💙
Have you done chemo? Did you lose your hair? Did you already recover? Thanks for this video.
4years about how are you doing today
Are you took any kind of surgery expect biopsy
How big was the lymph node you first found
It was probably the size of a the pit of a peach and kept getting bigger. I also started to find other enlarged lymph nodes in my neck that were smaller than the one I initially found.
Is it possible to have Hodgkin lymphoma even if you don't show any symptoms except swollen lymph nodes?
Yes you can have lymph nodes that you can’t even feel
Is one bump that’s not very big cancer?
I only had one bump initially and it grew over the course of 2-3 months. Always worth getting it looked at just to check!
@@inspiredbyremy92 that’s what I did today
Thank-you so much. Just like hearing from you. So candid and inspirational. I learn to take it by the horns and be positive,positive ❤
❤️
95% of the battle is realizing what the patient has done to cause it. Chronic Malnutrition, chronic dehydration, lack of sleep, go-go-go lifestyle. This has taken years to develop and don't allow any oncologist tell you it is now an emergency. You have more than one option.
Was your lymph node hard and not moveable?
Yes, it was exactly that; hard and difficult to move around, but did not hurt.
So they weren’t squishy and really moveable?
I have one in my neck it’s been there for a year in a half hasn’t grown it’s bout the size of a baked bean
@@youngianneverletgo3696 u get any symptons or slight symptons or feel completly normal?
Hi! Can you describe the lymph node on your neck? Was it round? Tender? Hard? Big or small?
Yes of course. I found the swollen lymph node in the middle of the right side of my neck. It was round and about the size of a peach pit but then grew to be the size of a golf ball. It was pretty painless. One of the only reasons I noticed it was because of the size....I began to feel it when I moved my neck and when I touched it, it felt pretty hard but also had a bit of a softness to it. I hope that helps... ❤️
@@inspiredbyremy92 thank you very much. I can feel something on my neck too. But it doesnt seem to be round or hard. It's more like of a vein or muscle that has fats on it. Although I can feel when i swallow. I pray you continue on your recovery 💞
Also may I add. I felt a sharp pain on my lower right stomach and I've been having some distortion to my bowel movement and I have dull pain on my lower back.
@@samsepiol1001 It could just be your body fighting something off, but I would keep an eye on it and let you PCP know. Best of luck
@@samsepiol1001 R u ok now?
Are you alright? You haven’t posted in a while
I am doing very well...finally!! I've been meaning to post with a big update!! Work has been crazy but lots to catch up on!!
How pathetic it is that doctors blamed you!! That sucks! That’s what’s happens to women so many times
Are you ok now?😥
Yes I am!! Many videos to come soon! Just ran into some technical difficulties!!
@@inspiredbyremy92 👏👏👏👏👏🌷
they already had your results from the original biobsy. they just wanted to make more money with that surgery...famous for doing that. they love to cut cut cut!
fkn dogs. i wonder if HL is a natural process body does to rid the bad cells and i wonder whhat aud happen if we leave it or try heal it naturally. i also wonfer if this girl did any physival activities or herbs to try heal
@@jjohnson9822 been thinking about that... Maybe many get it and heal and never knew... Fungus, parasites and molds....in the blood ...
Medical system is so broken
thank you