Unfortunately the best way to get pip is to be completely dependent on others even though esp say you can work and claim pip , if you can make a cup of tea ,press buttons on a microwave talk read and write then you get no help from pip I do not understand the system but pip is failing a lot of disabled people ?????!!! 2020 government shame on you !
I don't know the ins and outs of how its failed people unfortunately, but I do know that there have been people let down by the system. It's a real shame, as it almost seems like a 'paint by numbers' assessment.
I'm still waiting for a response from sending my application in and today I received a letter saying they haven't received my form yet? It was sent 6 weeks ago!
I have AS and have my face to face assessment on a couple of weeks. How to get round the fact there is no typical day and symptoms can fluctuate massively?
I've applied twice both times zero points on everything last time they phoned me to do last minute check I told them how they made me feel knowing that I can't walk long distances anymore I don't leave my house anymore and loads else but it's just a comment. I told them when they request your Dr's info and never get in contact to ask there opinion and just put zero for everything it knocks me down to level I struggle to get back up from. Everytime I've been giving zero points for bs reasons I end up not wanting to live anymore. And still zero since the last one I stopped all medication that day my World fell apart. To complain to pip you have to contact a local mp if I had energy for that I wouldn't need pip 🤔🤔
I told them also maybe the government should make a personalised disability benefit for people that have had spine surgery that most try and walk to stop back pain but can't walk to far due to Fibromyalgia and Functional neurological disorder 😥 anyone with back problems knows your gotta keep it moving but doesn't mean I feel like it's best thing todo. If I know the location of pip office I'd burn it to the ground. Horrible people
We are just starting out journey with our son who is 41. He also has aspergers which is high functioning autism. Any help to speed up the process would be greatly appreciated. Bless you
Hi there. My support worker initially helped me with my application, and she made me a copy for when my phone assessment was happening. That was sent with a GP letter, and letters from my consultants to support the case. My wife made loads of notes for me ahead of the call, and sat through it with me. Hope this helps, and good luck to you and your son.
Hi i have scheuermanns disease ale a left sided disc protrusion compressing the s1 root and i suffer with depression and anxiety i take medication for both i have been waiting since February and still nothing
If u can turn a door handle cook a bacon sandwich, go in the assessment acting normal you will not get it even my support worker told me you have to act a little or you’ll never get it. Its wrong as they dont see your bad days being in bad for 4 days.. They watch your face expressions the lot…. Go in there dont shower for 2 weeks stink of alcohol and wee and u will get it… The system is messed up..
My claim was going to Run out on the 10Th March 2021 .... and I was expecting my award review around now but called PIP up and they said it’s been extended now and I won’t get a award review letter till July next year so I am happy !!!!!
They did this to me, I rang them up even Thoe they extended it a letter can still drop through your door before the extended date, a pip adviser told me they only have extended people's pip because of the back log they have through covid, you will eventually get a review form to fill in just letting you know this exstention means nothing your not out of the woods so be ready 🌺🙏
I am about to apply for Pip as I got Complex PTSD and now I got essential tremor to I am so scared to apply as I am on the low rate of DLA at the moment the citizens advice bureau man said I would be better of with Pip as I have to buy my own equipment
I suffer with ibd and physically unable to wash and dress while flaring due to symptoms preparing food and eating is also pretty Dire due to loss of appetite and other symptoms of the disease I don't know how that would affect my claim as currently receiving treatment for my disease at the hospital every two weeks I'm there for an hour each time and also take medication daily on top of that and feel I'm slowly getting better so able to wash dress eat so I really don't know how that will affect my claim any advice/opinion from yourself would be appreciated thank you
Hi you have the same as me I’m going through for reconsideration I was on full rate travel twice before because the dr done a letter appealing it now I also have ankylosing spondylitis very depressed I have scooter with out it I can’t shop . I’ve appealed twice before thanks to the dr,s letter won. Now they changed it to the lowest pip again got me involed
The questions are mainly around the application, where you get to explain more detail. At the end, they may ask if there's anything you might want to add; this is where I let them know about how much things have cost me, such as treatment, meds, prescriptions, and items that make my life easier as a result. Hope this helps
I was awarded the higher rate on my initial application, and then when it was renewed 3 years later, they added the basic mobility rate as things have degenerated since then.
@@AnkylosingSpondylitisMan thanks for replying back 🤗 I sent off my PIP form last Thursday and the next day they sent me a text msg to say I may need to attend a consultation with a health professional before making a decision and If they do they will contact me again. Is this usually the norm do you know? Pls (I assumed they send letters either to attend assessments or it’s a NO!! ) Thanks
Yes, that's pretty normal. It takes them a while to get things sorted, but if it's successful, they backdate any money to the date of the original claim.
Waiting for the results and report to come, but I have speech and jointly thinking problems. And believe me it actually makes me feel a bit better you are like me. Struggling to say things and process words x
Fingers crossed for you. It's definitely helpful to know we're not alone with things, I find that a community of people going through the same struggles can talk to each other in a better way as there is more understanding.
Hello there. Thank you for the advice. I’m applying for PIP, for mental health, and I will have a telephone assessment this Wednesday, and I’m dreading it... Do you think it’s a good idea to record the assessment? And if so, do I need to ask them for permission to do that? And How long will the assessment last? Because from what I’ve read online, it can last between 30 mins to 2hrs. I filled out most of my form myself, over a long time, asking for extensions time and again. But I found a charity who kindly posted it for me, and looked over my stuff before sending it.
I was on DLA Higher rate mobility for 12 yrs, I have had 3x bypass & ICD with a EF of 20% on last check, Also severe disease in left part of heart I have 2 ruptured disc's in lumbar & vertebrae around them are so degenerative that surgery was out of the question, I'm diabetic with neuropathy in feet & hands & osteoarthritis in neck shoulders hands hips knees, at my assessment sitting on chair answering her questions it ended & went home, I had also ticked box on form the 20 - 50 meters re. how far before stopping/catching my breath, On the assessment results she'd put she saw .e walking 40 meters without pausing ? And no sign of breathlessness throughout assessment, I appealed as far as I could but the panel sided with dwp, Now after ATOS who the dwp said was being replaced after their FIASCO & FALSE CLAIMS ETC. I discovered later on that the company that was replaced ATOS (IS ACTUALLY FORMERLY ATOS) SO JUST A NAME CHANGE & NO DOUBT STILL HAVE QUOATERS THAT THEY CAN ALLOW THE ENHANCED RATE ON MOBILITY SIDE TO RECEIVE IT. ??????? 😡😡😡😡😡
Hi, they say you should always request a recording. Do you know if this is something you can do on the phone call, or is it automatically recorded etc? Thank you
Any time you speak to people like these record it yourself. Record it using your phone or someone else's. Then you will have it for your records and can listen back on the conversation at your leisure.
I'm about 10 weeks i9nto the process, I do know last week the were ringing my references, just hope it's not long now because this process is diving me mad.
DWP: You haven't been in for quite some time for a review. Me: I normally do it over the phone DWP: What's so special about YOU? Me: Spinal cord injury in my neck. DWP: Slams the phone down.
Hello. I am 22 and I am suffering from mental illlness. Do you think if I will get paid and if so how much? I haven’t told about mental illness to my doctor yet. What should I do?
Sorry to hear that you are suffering. It would probably be a good idea to let your doctor know, as they may be able to help refer you to therapy or prescribe medication to help. The DWP may contact your doctor as part of your assessment, so it would assist any claim if there is a specific diagnosis. I have no affiliation with the DWP, so I couldn't tell you how much you'd get. Good luck with your claim.
I'm at the start I've got permanent nerve damage from a op and have suffered for 10 years with anxiety and depression plus PTSD . Have meds gp and help from my child's dad as I don't have family near me . How do I explain that my bad days I'm a mess all over the place and feel like I don't wanna be here but good days I can just about open the front door . I'm so scared there going to be harsh on me I will buckle under the pressure x
Any help you can get from your GP, like a letter backing up your situation will help with your assessment. Write down as much as possible beforehand so you're prepared, and read it out if you need to. Let them know that you needed to write things down ahead of the call. The assessor can be very understanding, and fingers crossed they will make you feel comfortable during the call. Good luck!
I just got a letter. Good news is that I've got it but the bad news is it doesn't say anywhere that they have backdated it? I claimed in January and my interview/assessment was in September. Will I get a letter saying they've backdated it ?
Good question. They should automatically back date it as far as I'm aware, but it might be a good idea to contact them and double check to see what date they would back date it to.
Hey I’ve had my assessment but waiting on a decision I was wondering if anyone could tell me how long it took for them to make a decision on your claim? From the phone assessment they said up to 8 weeks but just wondered what other peoples experience as was thanks
I think they told me 6-8 weeks, but it was less than that. From memory it may have been about a month, but it was back dated to when I applied so I received a lump sum.
Hello sir. Thank you for the video. My query is about a new PIP claim. I applied pip 3 months ago and on Tuesday I received a call from the Assessment centre that my claim will be paper based (I didnt request it). No other questions asked. Today DWP has received my written report. Is this a good sign? I am just abit overhelmed of how smooth and quick the process went without any question and plus I didnt even request for paper based?
Hi! Thank you for your video , Im suffering for AS myself and recently I’ve been told I can apply for Pip myself too, Im currently waiting for my assessment via video call on 24 th this month and I’m really stressing myself as is super difficult to describe the pain as every day is different ☹️a you know yourself… Can you please tell Me if you get mobility or living allowance? Thank you x
Thank you so much for your reply, Today I had my video assessment. Was very emotional for me to answer all questions as someone of them were very personal. I had such a lovely lady who makes me feel very safe and comfortable. I really hope I will get both allowances . That would really help . Did they told why you wasn’t entitle to mobility allowance?
Hi My Life With Ankylosing Spondylitis. I got an assessment next week and I'm really anxious and hoping you could help by giving examples of what the assessor goes through and what kind of questions they ask? Are there any trick questions? Also due to my deafness, can my partner talk on my behalf? Thanks.
Hi, good luck with your assessment. They asked me the same questions that were in the application, so things like do I use aids to get around, do i need help with medication etc. There aren't any trick questions, but they may ask something that overlaps with another question, so just be honest with them. I had my wife with me on my call, so I'm sure they would welcome your partner on the call with you. Good luck again!
@@AnkylosingSpondylitisMan Thanks so much for your prompt and helpful reply. I suffer from anxiety, so would they allow the partner to talk on your behalf? Also are the questions asked in sequential order i.e same as the form or do they just randomly jump to different questions? Regarding questions like medication etc, do they need to know when you take them or what they are, even though I've already listed them on the form? Sorry for so many questions or if I sound worried, but I've heard a lot of horror stories, hence my nerves.
@@billymitchell5916 no problem at all, happy to help. I have anxiety as well, so completely understand where you're coming from. I honestly can't remember if they were in order, sorry. They did run through my meds, but this was more confirmation rather than a question. It's best to be prepared though. My wife answered some of the questions on my behalf, or some things I didn't understand she would ask to be clarified. Hope this helps!
@@AnkylosingSpondylitisMan Really grateful for your advice. Did they ask more questions than what was already on the form? Other than having the forms in front of me, would there be any other things I'd need to have ready, such as doctor's medical reports, medication names etc?
@@billymitchell5916 yes, anything from your gp, consultant etc. It may be a good idea to ask whether they need to see any medical reports, so you may need to send them over after the call. I honestly can't remember anything other than similar questions to what was in the form, but slightly more in depth.
Hi I was just wondering what award did you get was it enhanced? I have degenerative disc disease in my neck and have just been diagnosed with ankylosing spondylitis. I wish you well and thanks for your videos.
Hi I received the standard award. Sorry to hear about your recent diagnosis, I'm trying to build up a good support and information network here on youtube for people with our condition, so feel free to reach out with any questions you may have. Thanks Ian
I used to receive personal independence payments and unexplained they stopped my payments. Right before Christmas and my birthday. So I think the reason why personal independence payments stop was because I recently had a medical assessment done to see how I was going and there asked me questions and asked from scale 1-10 how I felt about my everyday basic things I needed to do. I will upload the paper work so you can see. So in the assessment I was asked about my ability to cook and clean. I mentioned food in the process only because I recently got diagnosed with type 2 diabetes. So I have to watch my diet. I forgot to mention to the woman doing the assessment. The reason why I mentioned food was because I recently got diagnosed with type 2 diabetes so there fire it required healthy food for me. On the 19 Th of November I recently had a phone call from DWP in regards of personal independence payment and I just came from being hospitalised from the dangers of diabetes. I have uncontrolled diabetes due to my stress and confusion. I have been told by my Gp it’s impossible for me to work because of my diabetes. My risks are comma or losing a leg.
You are able to appeal decisions by the DWP. If your gp has stated you can't work, then you may be able to request a letter that states that, and submit that with your appeal. I wish you luck 🙏
Hi hope you don't mind answering my question but i got a phone assessment early October but the thing is i told them on the form that i don't speak to people i don't know because of my Anxiety an paranoia wuth them being unfamiliar can anyone advice on what i can do please? Also; . I Sent in my medical records and my Son write a Latter to Support me an support worker yet they still want a phone assessment just wondering if you know why as Such? Thanks in advance
Hi I'm not sure if there are any alternatives to a phone call assessment due to the covid situation. I'm in a similar situation with anxiety, so I had my wife sit with me on the call, so you can have anyone on there with you. The call itself is usually to go into more detail than what's on the application, so it's just the next step in the process to get a more detailed idea of your condition and how it affects your daily life. Good luck!
@@AnkylosingSpondylitisMan Thank you very much for your advice. It's a terrible thing when they put you under pressure! Yes, i will definitely have Someone with me..Can't do it on my own with Anxiety and panic attacks..Wishing you all the Best as well..Goodluck everyone 🙏
Hey does anyone know if u fail your assessment will u still continue too get paid until the end of your award have a friend who's pip was extended till October this year but now has an appointment over the phone in 3 weeks.the expectations is she will pass but u never know with pip
Hi, just be honest with your answers. I prepared mine first on a separate pad, then had the help of my case worker to complete the form. As well as A.S., I also have epilepsy, depression and anxiety, so I can appreciate where you're coming from. I tried to use examples of each question in my answer to help show the full picture. It can be overwhelming, but if you have any help from someone you know to go through things, that may help.
I can't really say, I've only had limited experience with them myself. I tend to waffle on & confuse my words when I try to describe things, so that's why my call took so long.
@@Lucky-mr1wr I tend to ramble on trying to get words out, so it took me a lot longer. I also had the help of my wife beside me to help me and the assessor. I was nervous before my call,but they made me feel relaxed and comfortable. If you have your original application with you, refer back to that.
Wow 2 hours, my assessment was 45 minutes over the phone an I was so emotional exhausted for the rest of the day and kept up all night questioning myself. The assessor said it could be up the 6 weeks wait for a final decision 😔
My hubby has extreme osteoarthritis, extreme topacheous gout in every single joint. He can’t walk or even hold a pen sometimes, yet he’s struggling on a building site every day ( when he can just about ), desperately trying to keep his business going. I’ve BEGGED him to throw the towel in now as it’s just getting beyond a joke. He can’t even come up to our bed at night cos of the pain and the HUGE lumps on every joint are something out of this world to look at . We just received his PIP papers to fill out , I’m scared for him to cock it up and be told to take a run and jump .... if only he could 😂 We not a clue about the benefits system + how to ensure get it right . There was a company who helped ppl fill them out but I’m not sure they still going ?
Sorry to hear about your situation, it must be so difficult for your husband and yourself. In terms of support for PIP application, I had help through my doctor. He referred me to my local healthcare, where I was able to talk through things and they assessed me on what they could help me with. They suggested PIP, and helped me complete the form. I used supporting documents from my rheumatologist, neurologist, gp and psychiatrist to back up the application. PIP is not related to earnings, so you can apply even if he is working. I hope this can help, but if you need any other info, or if you have any other questions, please do ask 😊 Good luck!
@@AnkylosingSpondylitisMan oh thank u for replying ! Yes he has stacks of letters from rheumatology to support it , it’s just because he is forcing himself to work like it I’m thinking maybe they will think he’s not eligible. If they could only see him though 🥺 I don’t know if they will do a face to face what with all the covid atm . The hospital signed him off for 3 months on Monday but he’s gone back as obviously no money coming in if he don’t + he hates not being at work too . It’s such a shame as he’s only 34 , doesn’t drink , smoke , yes he’s got a bad diet but it’s not even that that’s causing his gout as his diet is relatively low in purines . They said he’ll be in a wheelchair in 10yrs . Anyway sorry to get my violin out 😂😂😂😂 fingers crossed we can get something, at least that way if one day he can’t go back to work we have that to fall back on 🙏🏼🙏🏼🙏🏼🙏🏼 Thank u for your condolences too 😊
Thanks for this great video. I am in the process of a pip claim and I was wondering when DWP access my medical records from my GP, how many years back records do they check and would they look into repeat prescriptions etc
I'm not sure to be honest, I guess just the relevant years, for example if you were diagnosed in 2015, but had symptoms from 2014, they might go back to 2014. The PIP is based on how you are day to day though, so they may only go back a short while.
Hi After my assessment, I received confirmation about 10 days later and was paid on the following pay run. I don't know much about dystonia, so I don't know how it would affect their assessment of you. Good luck with your assessment! Ian
Yes, be honest with your answers. My difficulties can be any time of the day, but worse in the mornings for instance. Socks are the worst, so I have this gadget that your sock goes over, and you slide your foot in. It's really useful. I also use a long handled brush to shower.
Hi your video was very helpful. I dont really know where to start with the pip application and i am doing it on behalf of my daughter who has recently had a nervous breakdown, She had a psychotic phase and suffers from cptsd. she gets incredibly anxious, struggles to cook etc etc I feel that the responsibility is on me and would appreciate doing it together. I have a meeting next week with a charity and a guy is familiar with the form. His guidance will be great but I dont want to get it wrong. Advice and guidance would be great
Sorry to hear about your daughter, it must be so tough as a mum seeing her go through it. All I can suggest is gather as much information as you can from doctors, consultants etc. Get them to put together a report of how her conditions affect her on a daily basis, and submit these with the application. Keep copies of everything as they are likely to be discussed in the PIP call. Good luck!
I’m having my phone assessment November 27th really not looking forward to it, suffer with arthritis and schizophrenia, I don’t trust PIP I’ve heard you’ve pretty much gotta be a head on a stick to get approved
Hi Shane I've heard that there is a lot of mistrust out there with PIP. All I can really say to reassure you is that I had a positive experience with them on the phone assessment. They were really nice and sympathetic to my situation and conditions. I hope this helps ! Thanks Ian
@@AnkylosingSpondylitisMan hey bro I have my pip telephone assessment sometime next week. I’m so nervous but going to work everyday with kidney problems on top of that suffering from gout I literally can’t move by the time I’m home from work so painful.
Hi. I had my wife with me to help me through things. I guess if you're not fully confident doing the call by yourself, it would be a good thing to have someone with you. Other things I'd suggest , are to have a copy of your application in front of you during the call. This really helped me. Hope this helps, and good luck!
😱My Award Review just came 😱😰🙈 forms all different, how the hell am a gonna get help filling this in in 3wks, 1week is xmas and new year on a week day! I always find xmas hard anyway, then covid added to the mix....
Good luck with the review, stay strong, and ask for help from someone if you need it. I had help from my care worker initially, then my wife during the telephone assessment.
Hi I just got rejected 😂 assistant did just lie and poot on my report lost of nonsense se das not reed what I say in me form it's just like they are just pooting people down se lied and said I can walk 45meter I can berly walk under10metre on Painkiller codrydamol And I told them that I have worked on HGV trucks that was be for the hospital coced op su postu be major op in and same day *****
The that was Monday I wokop tusday they tell me small combination haha 4hoses out of Tommy And they send me to royal free to fix what they have don rong 7hourse on the operating to fix what they don rong sins that I can't bend down Or pic op of the floor asser says I can work it's it's photo be health pepoe that das the asess mend my friend in disability center in Luton has been helping me so we have send some paperwork to pip and if we have to apeel so I just site and wait
Good luck with your appeal. If there are discrepancies in your assessment, I'm sure a report from your rheumatologist and gp may be able to help with the appeal.
Thank you for your comment. Maybe I should explain that I cannot work? I was signed off work by my GP, Rheumatologist, Psychiatrist and Psychologist. I was then confirmed as unable to work by the DWP and my local Jobcentre plus. The amount of taxation I have paid over the years I have worked prior to my diagnosis was more than enough to substantiate the PIP I now receive. Can I ask you; what job do you think I can do?
Unfortunately the best way to get pip is to be completely dependent on others even though esp say you can work and claim pip , if you can make a cup of tea ,press buttons on a microwave talk read and write then you get no help from pip I do not understand the system but pip is failing a lot of disabled people ?????!!! 2020 government shame on you !
I don't know the ins and outs of how its failed people unfortunately, but I do know that there have been people let down by the system. It's a real shame, as it almost seems like a 'paint by numbers' assessment.
Absolutely nonsense I have autoimmune disease and mental health issues worked on and off and had my PIP since 2004.
I'm still waiting for a response from sending my application in and today I received a letter saying they haven't received my form yet? It was sent 6 weeks ago!
I have AS and have my face to face assessment on a couple of weeks. How to get round the fact there is no typical day and symptoms can fluctuate massively?
I think it's always best to let them know how things are on the worst days, and the things that you can't do, rather than what you can do.
I've applied twice both times zero points on everything last time they phoned me to do last minute check I told them how they made me feel knowing that I can't walk long distances anymore I don't leave my house anymore and loads else but it's just a comment. I told them when they request your Dr's info and never get in contact to ask there opinion and just put zero for everything it knocks me down to level I struggle to get back up from. Everytime I've been giving zero points for bs reasons I end up not wanting to live anymore. And still zero since the last one I stopped all medication that day my World fell apart. To complain to pip you have to contact a local mp if I had energy for that I wouldn't need pip 🤔🤔
I told them also maybe the government should make a personalised disability benefit for people that have had spine surgery that most try and walk to stop back pain but can't walk to far due to Fibromyalgia and Functional neurological disorder 😥 anyone with back problems knows your gotta keep it moving but doesn't mean I feel like it's best thing todo. If I know the location of pip office I'd burn it to the ground. Horrible people
Really sorry to hear about your experiences, it must be so hard to go through that each time you apply.
@@AnkylosingSpondylitisMan don't like pip anymore 😔
We are just starting out journey with our son who is 41. He also has aspergers which is high functioning autism. Any help to speed up the process would be greatly appreciated. Bless you
Hi there. My support worker initially helped me with my application, and she made me a copy for when my phone assessment was happening.
That was sent with a GP letter, and letters from my consultants to support the case.
My wife made loads of notes for me ahead of the call, and sat through it with me.
Hope this helps, and good luck to you and your son.
Hi i have scheuermanns disease ale a left sided disc protrusion compressing the s1 root and i suffer with depression and anxiety i take medication for both i have been waiting since February and still nothing
That's too long to wait, you're perfectly entitled to chase them up.
@@AnkylosingSpondylitisMan they saying its with the assessor but they dont know how long it will take its been 6 months now
If u can turn a door handle cook a bacon sandwich, go in the assessment acting normal you will not get it even my support worker told me you have to act a little or you’ll never get it. Its wrong as they dont see your bad days being in bad for 4 days..
They watch your face expressions the lot…. Go in there dont shower for 2 weeks stink of alcohol and wee and u will get it…
The system is messed up..
My claim was going to Run out on the 10Th March 2021 .... and I was expecting my award review around now but called PIP up and they said it’s been extended now and I won’t get a award review letter till July next year so I am happy !!!!!
Great to hear that!
They did this to me, I rang them up even Thoe they extended it a letter can still drop through your door before the extended date, a pip adviser told me they only have extended people's pip because of the back log they have through covid, you will eventually get a review form to fill in just letting you know this exstention means nothing your not out of the woods so be ready 🌺🙏
@@Doritbardola yeah mines was til oct 2022 and extended to 2023 just got a review form ...
Did you get enhances rate for daily and mobility?
Hi
I just received the standard rate, no mobility enhancement.
Thanks
Thats harsh, did you not appeal it? I dont know how you can get around walking is soo stressfull and painfull
I am about to apply for Pip as I got Complex PTSD and now I got essential tremor to I am so scared to apply as I am on the low rate of DLA at the moment the citizens advice bureau man said I would be better of with Pip as I have to buy my own equipment
The citizens advice bureau are great with their support.
Good luck with your application, fingers crossed for you!
How did it go?
They ask you to fill these questions out in the original pip form then they ask you the same things again over the phone
Tell me about it. Kinda pointless really!
I suffer with ibd and physically unable to wash and dress while flaring due to symptoms preparing food and eating is also pretty Dire due to loss of appetite and other symptoms of the disease I don't know how that would affect my claim as currently receiving treatment for my disease at the hospital every two weeks I'm there for an hour each time and also take medication daily on top of that and feel I'm slowly getting better so able to wash dress eat so I really don't know how that will affect my claim any advice/opinion from yourself would be appreciated thank you
Hi you have the same as me I’m going through for reconsideration I was on full rate travel twice before because the dr done a letter appealing it now I also have ankylosing spondylitis very depressed I have scooter with out it I can’t shop .
I’ve appealed twice before thanks to the dr,s letter won. Now they changed it to the lowest pip again got me involed
It seems that its a neverending test.
What type of questions do they ask you can you tell me i am reallly nervous!??
The questions are mainly around the application, where you get to explain more detail.
At the end, they may ask if there's anything you might want to add; this is where I let them know about how much things have cost me, such as treatment, meds, prescriptions, and items that make my life easier as a result.
Hope this helps
How often do they lose the pip envelopes....
Hi did you get awarded pip straight away? I too have AS .. thanks
I was awarded the higher rate on my initial application, and then when it was renewed 3 years later, they added the basic mobility rate as things have degenerated since then.
@@AnkylosingSpondylitisMan thanks for replying back 🤗 I sent off my PIP form last Thursday and the next day they sent me a text msg to say I may need to attend a consultation with a health professional before making a decision and If they do they will contact me again. Is this usually the norm do you know? Pls (I assumed they send letters either to attend assessments or it’s a NO!! )
Thanks
Yes, that's pretty normal. It takes them a while to get things sorted, but if it's successful, they backdate any money to the date of the original claim.
Waiting for the results and report to come, but I have speech and jointly thinking problems. And believe me it actually makes me feel a bit better you are like me. Struggling to say things and process words x
Fingers crossed for you. It's definitely helpful to know we're not alone with things, I find that a community of people going through the same struggles can talk to each other in a better way as there is more understanding.
How did it go
Hello mate quick couple of questions on what grounds did u claim pip and do u have any physical limitations thank you liam
Hi
Good question. I have made another video to help with the answer & put it up here on my channel
Thanks
In France this is 900 euros a month
Hello there. Thank you for the advice. I’m applying for PIP, for mental health, and I will have a telephone assessment this Wednesday, and I’m dreading it... Do you think it’s a good idea to record the assessment? And if so, do I need to ask them for permission to do that? And How long will the assessment last? Because from what I’ve read online, it can last between 30 mins to 2hrs. I filled out most of my form myself, over a long time, asking for extensions time and again. But I found a charity who kindly posted it for me, and looked over my stuff before sending it.
It's probably always a safer situation to let them know you're recording it.
Good luck!!
What is the name of the charity please
@@red_diamonds1590 I’m not being awkward but how do I know you are genuine or a fake acc that will spam them if I give you their name?
@@lg_believe333 what? I'm sure they have ways to deal with that, I genuinely need help my Citizens advice not responding
@@lg_believe333 LG what is the name of the charity I need someone to look over my finished form before I post it in 3 days
Hi I got a txt today to say they have done a paper based assessment. Is this a good thing & how often does the desision maker go against you.
I was awarded enhanced on both 🙌 4 years
I was on DLA Higher rate mobility for 12 yrs, I have had 3x bypass & ICD with a EF of 20% on last check, Also severe disease in left part of heart I have 2 ruptured disc's in lumbar & vertebrae around them are so degenerative that surgery was out of the question, I'm diabetic with neuropathy in feet & hands & osteoarthritis in neck shoulders hands hips knees, at my assessment sitting on chair answering her questions it ended & went home, I had also ticked box on form the 20 - 50 meters re. how far before stopping/catching my breath, On the assessment results she'd put she saw .e walking 40 meters without pausing ?
And no sign of breathlessness throughout assessment, I appealed as far as I could but the panel sided with dwp, Now after ATOS who the dwp said was being replaced after their FIASCO & FALSE CLAIMS ETC. I discovered later on that the company that was replaced ATOS (IS ACTUALLY FORMERLY ATOS)
SO JUST A NAME CHANGE & NO DOUBT STILL HAVE QUOATERS THAT THEY CAN ALLOW THE ENHANCED RATE ON MOBILITY SIDE TO RECEIVE IT. ??????? 😡😡😡😡😡
Did you ever appeal your case?
Hi, they say you should always request a recording. Do you know if this is something you can do on the phone call, or is it automatically recorded etc? Thank you
I'm not sure, maybe contact them ahead of your call to check.
Any time you speak to people like these record it yourself. Record it using your phone or someone else's. Then you will have it for your records and can listen back on the conversation at your leisure.
I applied my hearing was March 27 I still have not heard nothing
Pardon?
@@ciararespect4296 I did a appeal for my pip claim I still have not heard nothing back
How did it go ?
I am happy to see a deaf or hard of hearing person commenting ?
The telephone appointment then the face to face appointment?
Please
@@vanousisi8112 they said I don’t qualify
I'm about 10 weeks i9nto the process, I do know last week the were ringing my references, just hope it's not long now because this process is diving me mad.
I know it can take a while sometimes, but good luck with your application!
@@AnkylosingSpondylitisMan Thanks.
I have MS and finally had my pip assessment today, went well I think, they said it's a 8week wait before I get the decision, will wait and see 🤞
Good luck!
What was your decision
DWP: You haven't been in for quite some time for a review.
Me: I normally do it over the phone
DWP: What's so special about YOU?
Me: Spinal cord injury in my neck.
DWP: Slams the phone down.
Sorry to hear that you have had this bad experience with the DWP, I guess so far I've been lucky dealing with them.
Hello. I am 22 and I am suffering from mental illlness. Do you think if I will get paid and if so how much? I haven’t told about mental illness to my doctor yet. What should I do?
Sorry to hear that you are suffering. It would probably be a good idea to let your doctor know, as they may be able to help refer you to therapy or prescribe medication to help.
The DWP may contact your doctor as part of your assessment, so it would assist any claim if there is a specific diagnosis.
I have no affiliation with the DWP, so I couldn't tell you how much you'd get.
Good luck with your claim.
What was the award mate?
I received the basic rate award.
@@AnkylosingSpondylitisMan for both components?
I'm at the start I've got permanent nerve damage from a op and have suffered for 10 years with anxiety and depression plus PTSD . Have meds gp and help from my child's dad as I don't have family near me . How do I explain that my bad days I'm a mess all over the place and feel like I don't wanna be here but good days I can just about open the front door . I'm so scared there going to be harsh on me I will buckle under the pressure x
Any help you can get from your GP, like a letter backing up your situation will help with your assessment.
Write down as much as possible beforehand so you're prepared, and read it out if you need to. Let them know that you needed to write things down ahead of the call. The assessor can be very understanding, and fingers crossed they will make you feel comfortable during the call. Good luck!
I just got a letter. Good news is that I've got it but the bad news is it doesn't say anywhere that they have backdated it? I claimed in January and my interview/assessment was in September. Will I get a letter saying they've backdated it ?
Good question. They should automatically back date it as far as I'm aware, but it might be a good idea to contact them and double check to see what date they would back date it to.
How long after your tribunal did you receive payment? Thanks
Hey I’ve had my assessment but waiting on a decision I was wondering if anyone could tell me how long it took for them to make a decision on your claim? From the phone assessment they said up to 8 weeks but just wondered what other peoples experience as was thanks
I think they told me 6-8 weeks, but it was less than that. From memory it may have been about a month, but it was back dated to when I applied so I received a lump sum.
@@AnkylosingSpondylitisMan thank you xx
@@AnkylosingSpondylitisMan hopefully I get the same I applied back in November x
Hi.i sent my form back 6 months ago.and still not heard back could you please tell me.if this is normal they said. they were very busy
Did you get your result & how long did it take
How long from when u have a face to face consultation do you have to wait for the decision?
I think it was just over a month. I received the money straight into my account before I got notification from them
Hello sir. Thank you for the video. My query is about a new PIP claim. I applied pip 3 months ago and on Tuesday I received a call from the Assessment centre that my claim will be paper based (I didnt request it). No other questions asked. Today DWP has received my written report. Is this a good sign? I am just abit overhelmed of how smooth and quick the process went without any question and plus I didnt even request for paper based?
Well done I have my Assesment tomorrow morning so fingers crossed
Good luck! 👍
Hi!
Thank you for your video ,
Im suffering for AS myself and recently I’ve been told I can apply for
Pip myself too,
Im currently waiting for my assessment via video call on 24 th this month and I’m really stressing myself as is super difficult to describe the pain as every day is different ☹️a you know yourself…
Can you please tell
Me if you get mobility or living allowance?
Thank you x
I received the living allowance, but not the mobility.
Thank you so much for your reply,
Today I had my video assessment. Was very emotional for me to answer all questions as someone of them were very personal. I had such a lovely lady who makes me feel very safe and comfortable.
I really hope I will get both allowances . That would really help . Did they told why you wasn’t entitle to mobility allowance?
Hi My Life With Ankylosing Spondylitis. I got an assessment next week and I'm really anxious and hoping you could help by giving examples of what the assessor goes through and what kind of questions they ask? Are there any trick questions? Also due to my deafness, can my partner talk on my behalf? Thanks.
Hi, good luck with your assessment. They asked me the same questions that were in the application, so things like do I use aids to get around, do i need help with medication etc. There aren't any trick questions, but they may ask something that overlaps with another question, so just be honest with them.
I had my wife with me on my call, so I'm sure they would welcome your partner on the call with you.
Good luck again!
@@AnkylosingSpondylitisMan Thanks so much for your prompt and helpful reply. I suffer from anxiety, so would they allow the partner to talk on your behalf? Also are the questions asked in sequential order i.e same as the form or do they just randomly jump to different questions? Regarding questions like medication etc, do they need to know when you take them or what they are, even though I've already listed them on the form? Sorry for so many questions or if I sound worried, but I've heard a lot of horror stories, hence my nerves.
@@billymitchell5916 no problem at all, happy to help. I have anxiety as well, so completely understand where you're coming from. I honestly can't remember if they were in order, sorry. They did run through my meds, but this was more confirmation rather than a question. It's best to be prepared though.
My wife answered some of the questions on my behalf, or some things I didn't understand she would ask to be clarified.
Hope this helps!
@@AnkylosingSpondylitisMan Really grateful for your advice. Did they ask more questions than what was already on the form? Other than having the forms in front of me, would there be any other things I'd need to have ready, such as doctor's medical reports, medication names etc?
@@billymitchell5916 yes, anything from your gp, consultant etc. It may be a good idea to ask whether they need to see any medical reports, so you may need to send them over after the call.
I honestly can't remember anything other than similar questions to what was in the form, but slightly more in depth.
Hi I was just wondering what award did you get was it enhanced?
I have degenerative disc disease in my neck and have just been diagnosed with ankylosing spondylitis. I wish you well and thanks for your videos.
Hi
I received the standard award. Sorry to hear about your recent diagnosis, I'm trying to build up a good support and information network here on youtube for people with our condition, so feel free to reach out with any questions you may have.
Thanks
Ian
I used to receive personal independence payments and unexplained they stopped my payments. Right before Christmas and my birthday. So I think the reason why personal independence payments stop was because I recently had a medical assessment done to see how I was going and there asked me questions and asked from scale 1-10 how I felt about my everyday basic things I needed to do. I will upload the paper work so you can see. So in the assessment I was asked about my ability to cook and clean. I mentioned food in the process only because I recently got diagnosed with type 2 diabetes. So I have to watch my diet. I forgot to mention to the woman doing the assessment. The reason why I mentioned food was because I recently got diagnosed with type 2 diabetes so there fire it required healthy food for me. On the 19 Th of November I recently had a phone call from DWP in regards of personal independence payment and I just came from being hospitalised from the dangers of diabetes. I have uncontrolled diabetes due to my stress and confusion. I have been told by my Gp it’s impossible for me to work because of my diabetes. My risks are comma or losing a leg.
You are able to appeal decisions by the DWP. If your gp has stated you can't work, then you may be able to request a letter that states that, and submit that with your appeal. I wish you luck 🙏
Hi hope you don't mind answering my question but i got a phone assessment early October but the thing is i told them on the form that i don't speak to people i don't know because of my Anxiety an paranoia wuth them being unfamiliar can anyone advice on what i can do please? Also; . I Sent in my medical records and my Son write a Latter to Support me an support worker yet they still want a phone assessment just wondering if you know why as Such? Thanks in advance
Hi
I'm not sure if there are any alternatives to a phone call assessment due to the covid situation. I'm in a similar situation with anxiety, so I had my wife sit with me on the call, so you can have anyone on there with you.
The call itself is usually to go into more detail than what's on the application, so it's just the next step in the process to get a more detailed idea of your condition and how it affects your daily life.
Good luck!
@@AnkylosingSpondylitisMan Thank you very much for your advice. It's a terrible thing when they put you under pressure! Yes, i will definitely have Someone with me..Can't do it on my own with Anxiety and panic attacks..Wishing you all the Best as well..Goodluck everyone 🙏
THE DWP KNOW BUT THEY NEED TO KNOW TWO DEFRIENT DEPARTMENTS.
Hey does anyone know if u fail your assessment will u still continue too get paid until the end of your award have a friend who's pip was extended till October this year but now has an appointment over the phone in 3 weeks.the expectations is she will pass but u never know with pip
Not sure myself, maybe someone else can help?
I have just received my Form. It seems really hard to fill in. I suffer depression anxiety and epilepsy. Do you have any advice. Thanks
Stacey
Hi, just be honest with your answers. I prepared mine first on a separate pad, then had the help of my case worker to complete the form.
As well as A.S., I also have epilepsy, depression and anxiety, so I can appreciate where you're coming from.
I tried to use examples of each question in my answer to help show the full picture.
It can be overwhelming, but if you have any help from someone you know to go through things, that may help.
Me to! I also have agoraphobia and am recovering alcoholic
They can't find my form....
Hi M8.Just want to ask how long its take to recived decision after the phone? Thanks.All The Best
Hi
I can't remember from memory, but it may have been about a month
I got my reply.with in 2weeks what was your outcome ?
My phone call only lasted 28 mins is this something to worry about
I can't really say, I've only had limited experience with them myself. I tend to waffle on & confuse my words when I try to describe things, so that's why my call took so long.
I got mine in the morning any tips
Good luck, just be honest and open with them. The assessor is there to help you through it.
My Life With Ankylosing Spondylitis ok im panicing because you said you spoke for hour and half i dont think i will be able to speak that long
@@Lucky-mr1wr I tend to ramble on trying to get words out, so it took me a lot longer. I also had the help of my wife beside me to help me and the assessor.
I was nervous before my call,but they made me feel relaxed and comfortable.
If you have your original application with you, refer back to that.
My Life With Ankylosing Spondylitis ok thanks man , i subbed to your channle
@@Lucky-mr1wr thank you, really appreciate it. Let me know how the pip assessment goes.
I have just had my telephone assessment which lasted just under 2HOURS!!! Which has lefted me really drained!!
I can imagine! Well done for getting through it, and good luck!
@@AnkylosingSpondylitisMan Thank you
Wow 2 hours, my assessment was 45 minutes over the phone an I was so emotional exhausted for the rest of the day and kept up all night questioning myself. The assessor said it could be up the 6 weeks wait for a final decision 😔
@@Bones_11 yes 2hours!! It does leave you exhausted!! Yes they did say between 6-8weeks maybe sooner good luck to you
I got my reply i was awarded standard missed out by 1point !!! Got a nice backdate too
Hi thx I just had assismant by phone how long it take to receive answer wen they take long tame is butter news
I think it depends on your circumstances. They say to allow 6 weeks I think.
H
My hubby has extreme osteoarthritis, extreme topacheous gout in every single joint. He can’t walk or even hold a pen sometimes, yet he’s struggling on a building site every day ( when he can just about ), desperately trying to keep his business going. I’ve BEGGED him to throw the towel in now as it’s just getting beyond a joke. He can’t even come up to our bed at night cos of the pain and the HUGE lumps on every joint are something out of this world to look at . We just received his PIP papers to fill out , I’m scared for him to cock it up and be told to take a run and jump .... if only he could 😂 We not a clue about the benefits system + how to ensure get it right . There was a company who helped ppl fill them out but I’m not sure they still going ?
Sorry to hear about your situation, it must be so difficult for your husband and yourself.
In terms of support for PIP application, I had help through my doctor. He referred me to my local healthcare, where I was able to talk through things and they assessed me on what they could help me with. They suggested PIP, and helped me complete the form.
I used supporting documents from my rheumatologist, neurologist, gp and psychiatrist to back up the application.
PIP is not related to earnings, so you can apply even if he is working.
I hope this can help, but if you need any other info, or if you have any other questions, please do ask 😊
Good luck!
@@AnkylosingSpondylitisMan oh thank u for replying ! Yes he has stacks of letters from rheumatology to support it , it’s just because he is forcing himself to work like it I’m thinking maybe they will think he’s not eligible. If they could only see him though 🥺 I don’t know if they will do a face to face what with all the covid atm . The hospital signed him off for 3 months on Monday but he’s gone back as obviously no money coming in if he don’t + he hates not being at work too . It’s such a shame as he’s only 34 , doesn’t drink , smoke , yes he’s got a bad diet but it’s not even that that’s causing his gout as his diet is relatively low in purines . They said he’ll be in a wheelchair in 10yrs . Anyway sorry to get my violin out 😂😂😂😂 fingers crossed we can get something, at least that way if one day he can’t go back to work we have that to fall back on 🙏🏼🙏🏼🙏🏼🙏🏼 Thank u for your condolences too 😊
How is it best to answer questions? I have my telephone assessment next week.
Good luck with your assessment. Have as much information ready as possible, and be totally honest about your worst days.
H
Thanks for this great video. I am in the process of a pip claim and I was wondering when DWP access my medical records from my GP, how many years back records do they check and would they look into repeat prescriptions etc
I'm not sure to be honest, I guess just the relevant years, for example if you were diagnosed in 2015, but had symptoms from 2014, they might go back to 2014.
The PIP is based on how you are day to day though, so they may only go back a short while.
My.pip finishes in jan next year so.il proberley have to have a dreaded assment .
Hopefully you'll be successful again, fingers crossed!
How long did u wait for ur decision
The assessment was mid July, and the first payment was a week later, so really quick.
I got my consultation on the 9th of December
I'm just about 2 an application
Good luck!
I had my assessment today. Do you know how long it takes after your assessment. I have dystonia. You think they will pay me.
Hi
After my assessment, I received confirmation about 10 days later and was paid on the following pay run.
I don't know much about dystonia, so I don't know how it would affect their assessment of you.
Good luck with your assessment!
Ian
@@AnkylosingSpondylitisMan thanks
H
how does your back affect your ability to wash and dress. Do you describe your worse days on the form.
Yes, be honest with your answers. My difficulties can be any time of the day, but worse in the mornings for instance. Socks are the worst, so I have this gadget that your sock goes over, and you slide your foot in. It's really useful.
I also use a long handled brush to shower.
Plenty of people claiming this pip aswel when they not supposed to be doing. Thing is today lots of people out here don't want to work
I think when something is available for free, there will always be people who take advantage of the situation.
Hi, how bad is your epilepsy?
It's under control from a seizure perspective, using my meds. I still get the odd weird feeling every now and then, but no full seizures.
and how they can give you any points never serving in a war zone or a doctor or a nurse is beyond me
I don't understand how their points scoring works, it seems like a very simple tick-box exercise, which is a shame.
I HAVE MY CALL WITH PIP IN A WEEK.
Good luck! Let me know how you get on
Can i ask how it was? I have mine next week and let's just say I'm not looking forward too it...
Hi your video was very helpful. I dont really know where to start with the pip application and i am doing it on behalf of my daughter who has recently had a nervous breakdown, She had a psychotic phase and suffers from cptsd. she gets incredibly anxious, struggles to cook etc etc I feel that the responsibility is on me and would appreciate doing it together. I have a meeting next week with a charity and a guy is familiar with the form. His guidance will be great but I dont want to get it wrong. Advice and guidance would be great
Sorry to hear about your daughter, it must be so tough as a mum seeing her go through it. All I can suggest is gather as much information as you can from doctors, consultants etc. Get them to put together a report of how her conditions affect her on a daily basis, and submit these with the application. Keep copies of everything as they are likely to be discussed in the PIP call.
Good luck!
I’m having my phone assessment November 27th really not looking forward to it, suffer with arthritis and schizophrenia, I don’t trust PIP I’ve heard you’ve pretty much gotta be a head on a stick to get approved
Hi Shane
I've heard that there is a lot of mistrust out there with PIP. All I can really say to reassure you is that I had a positive experience with them on the phone assessment. They were really nice and sympathetic to my situation and conditions. I hope this helps !
Thanks
Ian
I have gout also kidney problems just applied for pip hopefully I get it fingers crossed 🤞
Fingers crossed for you, good luck!!
@@AnkylosingSpondylitisMan hey bro I have my pip telephone assessment sometime next week. I’m so nervous but going to work everyday with kidney problems on top of that suffering from gout I literally can’t move by the time I’m home from work so painful.
Hi mate I am having call on 22 September do I need someone with me to talk ? Can u give me some advice pls
Hi. I had my wife with me to help me through things. I guess if you're not fully confident doing the call by yourself, it would be a good thing to have someone with you.
Other things I'd suggest , are to have a copy of your application in front of you during the call. This really helped me.
Hope this helps, and good luck!
Got mine in 1 hour!
Good luck, let me know how it goes!
Aww very very good!!! Usually ,nowadays, one gets awarded! I’m waiting again. Filled the forms. Waiting. My mum is in bad ways you see.
Good luck, fingers crossed 🤞
How many of the assesors have a medical degree?
I would imagine that someone with a medical degree would be in a very different position than an assessor!
Hi my mother dosent speak english can i speak on her behalf
Hi
😱My Award Review just came 😱😰🙈 forms all different, how the hell am a gonna get help filling this in in 3wks, 1week is xmas and new year on a week day! I always find xmas hard anyway, then covid added to the mix....
Good luck with the review, stay strong, and ask for help from someone if you need it. I had help from my care worker initially, then my wife during the telephone assessment.
Sorry.
Hi I just got rejected 😂 assistant did just lie and poot on my report lost of nonsense se das not reed what I say in me form it's just like they are just pooting people down se lied and said I can walk 45meter I can berly walk under10metre on
Painkiller codrydamol
And I told them that I have worked on HGV trucks that was be for the hospital coced op su postu be major op in and same day *****
Then I. Wool op filing
The that was Monday
I wokop tusday they tell me small combination haha 4hoses out of Tommy
And they send me to royal free to fix what they have don rong
7hourse on the operating to fix what they don rong sins that I can't bend down
Or pic op of the floor asser says I can work it's it's photo be health pepoe that das the asess mend my friend in disability center in Luton has been helping me so we have send some paperwork to pip and if we have to apeel so I just site and wait
Good luck with your appeal. If there are discrepancies in your assessment, I'm sure a report from your rheumatologist and gp may be able to help with the appeal.
just get a job you can do instead of leeching off the taxpayer!!!!!!!!!
Thank you for your comment.
Maybe I should explain that I cannot work? I was signed off work by my GP, Rheumatologist, Psychiatrist and Psychologist.
I was then confirmed as unable to work by the DWP and my local Jobcentre plus.
The amount of taxation I have paid over the years I have worked prior to my diagnosis was more than enough to substantiate the PIP I now receive.
Can I ask you; what job do you think I can do?
@@AnkylosingSpondylitisMan if you're so sick that you can't work you should be in hospital