Rare Disease Day Smith-Magenis Syndrome 2011

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  • เผยแพร่เมื่อ 15 ก.ย. 2024
  • For Rare Disease Day, a family discusses how they are affected by Smith-Magenis Syndrome.

ความคิดเห็น • 5

  • @ItsMeKelso
    @ItsMeKelso 11 ปีที่แล้ว +1

    i believe its those who have the most problems needed to be CHALLENGED in this in this life because they are just that strong! and they are the ones who teach others lessons about love and accepting others

  • @woodstyleah
    @woodstyleah 13 ปีที่แล้ว +2

    My daughter is 10 years old and she has Smith-Magenis Syndrome. Her name is Morgan. I have been a member of PRISMS for 8 years now. I just do not know what to do. I do not seem to fit into normal healthy families raising SMS kids. I'm a single mom doing this alone. I would like you to meet Morgan. We live in Denver.

  • @elijahking100
    @elijahking100 13 ปีที่แล้ว

    cool video

  • @kidskids2339
    @kidskids2339 5 ปีที่แล้ว

    My sister has smith magenis syndrome its Lilli Amelia Wilson